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   English (USA) العربية


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Epidermolysis bullosa


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Our Service


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Epidermolysis bullosa


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Our Service


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Epidermolysis bullosa


WELCOME TO BUTTERFLY WINGS ORGANIZATION!

Our Service



WHO WE ARE

Butterfly Wings for Health and Psychological Care is a non-profit organization
that aims to provide primary health care and supportive In- House medical
services to people with epidermolysis bullosa. Butterfly Wings is the premiere
charitable Fund organization established within the Hashemite Kingdom of Jordan
concerned with supporting patients affected by Epidermolysis Bullosa (EB) and
their families. we improve the lives of those impacted by Epidermolysis Bullosa
(EB) — “The Worst Disease You’ve Never Heard Of”.

About Us



WHAT WE DO

To improve the lifestyle of those Classified with various types of epidermolysis
bullosa until a cure is found, the Butterfly Wings Foundation is currently doing
its part to provide In-House health care services. A group of services is
provided to patients upon request and free of charge. These services do not
replace the need to visit a specialist and are provided as support services to
primary health care as ancillary medical services.

HOME NURSING

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HOME NURSING

Butterfly Wings organization delivers In-House medical care

WOUND CARE MANAGEMENT & WOUND DRESSING

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WOUND CARE MANAGEMENT & WOUND DRESSING

We provide wound care and wound dressing for infected

NUTRITION COUNSELLING

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NUTRITION COUNSELLING

Nutrition counseling provides personalized guidance

AWARENESS SESSIONS FOR NEW BABY BORN

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AWARENESS SESSIONS FOR NEW BABY BORN

This service is available to newborns.

EB PATIENT CARE KIT

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EB PATIENT CARE KIT

EB Patient Care Kit is issued based on a comprehensive


EPIDERMOLYSIS BULLOSA


ABOUT EB

What is EB Epidermolysis bullosa is a rare genetic disorder....

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Are you ready for a better, more productive business?

26 Mar

ARE YOU READY FOR A BETTER, MORE PRODUCTIVE BUSINESS?

Are you ready for a better, more productive business?


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CONTACT INFO

 * Jordan - Amman
 * 0792242383
 * info@bwo-eb.org

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EPIDERMOLYSIS BULLOSA

What is EB Epidermolysis bullosa is a rare genetic disorder. Its onset occurs as
a result of a genetic mutation that causes disruption or loss of proteins found
within different layers of the skin and sometimes in internal organs, resulting
in a group of rare disorders with many genetic variations and symptoms.

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