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HELLO FIBRO BLOG

The life of a 20 something living with fibromyalgia

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CHRONIC ILLNESS DOESN’T VANISH JUST BECAUSE I HAVE PLANS

14th Aug 202314th Aug 2023 Bethan Jones

Chronic illness doesn't vanishJust because I have plansIt doesn't stop so I can
liveWhen my schedule gets filled When I am busy in my lifeMy health takes a back
seatI need to focus on my plansNot on how I'm feeling But that's when my health
takes a diveMy fatigue starts to showIt won't be forgotten… Continue reading
Chronic Illness Doesn’t Vanish Just Because I Have Plans

Tagged bad day, Chronic illness, Chronic pain, enjoy life, Exercise, fatigue,
Fibro, Fibromyalgia, getting on with things, HelloFibro, IBS, ill, listen, pace,
pain, Poem, rest, tired, TruthLeave a comment
Fibro Blogs, Fibromyalgia, Fibromyalgia Poems


LOSING MY MIND

31st Jul 202331st Jul 2023 Bethan Jones

Some days I feel like I am losing my mindI can't seem to form sentencesThe words
don't make any senseAnd I know others can tell Those days I stumble and can't
seem to focusEverything in me seems to stopI forget what I'm doingWhat I was
trying to say Some days I feel like others think… Continue reading Losing My
Mind

Tagged bad day, Chronic illness, Chronic pain, fatigue, Fibro, Fibro Fog,
Fibromyalgia, Forgetful, HelloFibro, ill, Poem, tired, Truth1 Comment
Fibro Blogs, Fibromyalgia


6 TOP TIPS FOR LIVING WITH CHRONIC ILLNESS

4th Jul 2023 Bethan Jones

Follow my blog on Facebook... Follow my blog on Twitter... Follow my blog on
Instagram... Follow my blog on Pinterest... Looking for escapism? My debut
historical fiction novel, Marian, is out now!

Tagged Chronic illness, Chronic pain, Fibro, Fibromyalgia, friendship, getting
on with things, healing, Inspirational, positive, Positivity, TruthLeave a
comment
Fibro Blogs, Fibromyalgia


ADJUSTMENTS IN THE WORKPLACE

4th May 2023 Bethan Jones

It can be scary even thinking about broaching the subject of your health to your
line manager. You may worry that they won't be understanding and will use it
against you. Thankfully there are laws in place to protect those with
disabilities. You may think they will treat you differently if they find out.
You… Continue reading Adjustments in the Workplace

Tagged bad day, Chronic illness, Chronic pain, fatigue, Fibro, Fibromyalgia,
Forgetful, getting on with things, healing, HelloFibro, ill, Inspirational,
Mental Health, pain, positive, Positivity, TruthLeave a comment
Fibro Blogs, Fibromyalgia


BEING A PUBLISHED AUTHOR WITH CHRONIC ILLNESS

19th Jul 2022 Bethan Jones

This has been a passion project since I was 15 years old. On the 29th July 2022,
I get to call myself a published author! I never thought someone would actually
want to publish the novel I worked on for 10 years, but here I am. At the age of
28, I am living my… Continue reading Being a Published Author with
Chronic Illness

Tagged author, Chronic illness, Chronic pain, dreams, fatigue, Fibro,
Fibromyalgia, HelloFibro, ill, novel, pain, positive, Positivity, published,
Truth2 Comments
Fibro Blogs, Fibromyalgia


MY EXPERIENCE OF THE ACCESS CARD

11th May 202211th May 2022 Bethan Jones

The access card is a card you can apply for if you are living with a disability.
It can be used to prove disability and receive assistance without having to
bring loads of documentation. It comes with different symbols depending on your
access needs. I use mine for fibromyalgia and chronic fatigue syndrome and find…
Continue reading My Experience of the Access Card

Tagged Chronic illness, Chronic pain, enjoy life, fatigue, Fibro, Fibromyalgia,
getting on with things, healing, HelloFibro, IBS, ill, Inspirational, pain,
Positivity, rest, Thank you2 Comments
Fibro Blogs, Fibromyalgia, Fibromyalgia Poems


THE WORST THING ABOUT FATIGUE

11th Feb 202211th Feb 2022 Bethan Jones

The worst thing about fatigue Is the constant tiredness The fuzzy head that
means I need to rest The realisation that I can't do everything I want The worst
thing about fatigue Is the inability to function The reality of having to rest
The fact I feel judged for doing less The worst thing about… Continue reading
The Worst Thing About Fatigue

Tagged bad day, Chronic illness, Chronic pain, fatigue, Fibro, Fibromyalgia,
getting on with things, healing, HelloFibro, ill, listen, Poem, rest, tired,
TruthLeave a comment
Fibro Blogs, Fibromyalgia


FINDING A NEW JOB WHEN LIVING WITH CHRONIC ILLNESS

2nd Feb 20222nd Feb 2022 Bethan Jones

I have been working in theme park entertainment for over 6 years, and worked my
way up to a manager role. However, the role is no longer suitable for my health.
Don't get me wrong, my managers have been understanding and made some
adjustments such as not working over my hours, having split days off,… Continue
reading Finding a New Job When Living with Chronic Illness

Tagged Chronic illness, Chronic pain, enjoy life, fatigue, Fibro, Fibro Fog,
Fibromyalgia, Forgetful, getting on with things, healing, HelloFibro,
Inspirational, pace, Positivity, TruthLeave a comment
Fibro Blogs


MY FIGHT TO BE DIAGNOSED WITH CHRONIC FATIGUE SYNDROME

30th Dec 202130th Dec 2021 Bethan Jones

It's been such a long time since I last posted! I can only apologise. A lot has
happened this year including lots of amazing things, but the one negative
constant has been my health. As usual, my health has never been great, and it
has not been helped by the pandemic, leading to lots of… Continue reading My
Fight to Be Diagnosed With Chronic Fatigue Syndrome

Tagged Chronic illness, enjoy life, fatigue, Fibro, Fibromyalgia, getting on
with things, healing, ill, Inspirational, listen, Positivity, rest, tired,
Truth1 Comment
Fibro Blogs, Fibromyalgia


6 WAYS I GET THE MOST OUT OF LIFE DESPITE CHRONIC ILLNESS

14th Jun 202114th Jun 2021 Bethan Jones

Over the last year, since lockdowns forced me to rethink my lifestyle and how
important my health is, I've made a decision to start putting myself first and
it has really changed my outlook on life. Below are 6 ways I get the most out of
life despite living with chronic pain and fatigue: I… Continue reading 6 Ways I
Get the Most Out of Life Despite Chronic Illness

Tagged bad day, Chronic illness, Chronic pain, enjoy life, Exercise, fatigue,
Fibro, Fibromyalgia, friendship, getting on with things, healing, HelloFibro,
ill, Inspirational, listen, Mental Health, pace, pain, Positivity, rest, tired,
Truth2 Comments


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