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PRIVACY POLICY
Last updated: April 6, 2023
Susan G. Komen, a registered 501(c)(3) nonprofit, values your trust and is
committed to protecting your privacy. This Privacy Policy is designed to
communicate how we collect, use, and share your information. This Privacy Policy
describes what information we collect about you, including when and how we
collect it; how we use it; with whom we may share it; and what choices you have
regarding our use of your information. In order to fully understand your rights,
we encourage you to read this entire Privacy Policy as well as our Terms of Use.
This Privacy Policy applies to all information collected through (1) your
interactions and communications with Komen, whether electronic, written or oral;
(2) Komen websites or applications (“Apps”); and (3) third parties servicing
Komen (collectively referred to as the “Services”). By accessing our Services or
providing your information to Komen, you accept and agree to the practices
described in this Privacy Policy.
For your convenience, you may review specific information about our data
practices by clicking on any of the questions and statements below:
PERSONAL INFORMATION WE RECEIVE
HOW WE USE PERSONAL INFORMATION
HOW WE SHARE PERSONAL INFORMATION
YOUR PRIVACY RIGHTS
YOUR CONTACT PREFERENCES
DATA SECURITY
RETENTION
OTHER NOTICES AND DISCLOSURES
HOW TO CONTACT US
UPDATES TO THIS PRIVACY POLICY.
PERSONAL INFORMATION WE RECEIVE
Komen collects information in support of our Mission to save lives by meeting
the most critical needs of our communities and investing in breakthrough
research to prevent and cure breast cancer. In general, the type of information
we collect will depend on how you choose to interact with Komen and the Services
we provide you. For instance, if you are a patient or caregiver contacting us
for assistance, we will need different information to assist than if you are
using our website to donate to Komen.
While you are engaging with Komen and utilizing our Services, Komen may collect
information that identifies you as an individual or what is linked or linkable
to you as an individual (“Personal Information”).
The categories of Personal Information that we may collect are outlined below:
* Contact Information and Preferences. We may request contact information such
as your name, mailing address, telephone number, e-mail address, and your
preferences for how you would like to be contacted by Komen. If you become a
registered user on one or more Komen sites and/or apps, we will collect login
and profile information and may also collect information about your areas of
interest. We may also use third-party services to supplement or to ensure
accuracy of contact information.
* Demographic Information. We may request limited demographic information such
as your gender, race or ethnicity, marital status, geographic location,
and/or primary language. Depending on the Services or programs you choose to
use, we may also request or collect race or ethnicity data with your consent
as required.
* Your Experience with Breast Cancer. We may receive information from you about
your relationship to breast cancer or other cancers, which may include
information such as whether you would like to be recognized as a survivor,
your type of breast cancer or other cancers, date of diagnosis, stage,
current treatment, your medical records, care providers and appointments, and
medications. We may request more detailed information such as the health
information provided above if you enroll in a research study or seek Services
from Komen and/or its partners. In those cases where we may request or invite
you to provide the foregoing information, we will do so with your consent or
where there is a clear reason that we have communicated for doing so—such as
where Komen is arranging your travel and accommodations for your
participation in a sponsored event.
* Financial Information. If you donate to Komen or make a retail purchase on a
Komen Site, Komen uses a third-party payment service provider to collect and
process payment information process your transaction. We may also collect the
name of your employing company, if you would like for that company to make a
matching donation. If you participate in direct services, we may collect
income information to verify eligibility.
* Inquiry Information. We collect information when you communicate with us,
including when you contact Komen through our various online, phone, chat, or
application channels for information or assistance. We may record your call
or maintain a transcript of the communication for training and quality
assurance purposes.
* Device Information. We collect information about the computers, phones, and
other devices used when interacting with our Services, including browser
type, version, IP address (which may be used to infer general location at a
city or county level), cookie ID, and other similar tracking technologies.
* Activity and Usage Information. We collect information regarding your use of
our Services, including your referrer URL (which is the URL for the website
that you were viewing prior to visiting the website), how you were directed
to the Services, which specific pages you accessed, how long you view each
page, the time and date you access our Services, and anonymous traffic data.
* Social Media Engagement. We receive information regarding your use of and
engagement with Komen social media, including online public forums,
discussion boards, or chat rooms. Please note that any information you post
within public forums will become public and may be read, collected, and used
by anyone, and is subject to our Terms of Use. If you elect to connect your
social media account to a Komen account for fundraising purposes, certain
Personal Information from your social media account will be shared with us.
Your interactions with social media companies and the use of their features
are governed by their privacy policies.
* Employment or Volunteer Participation. If you seek employment with Komen or
volunteer for Komen, we will collect information related to your role or
application. For instance, we will collect employment history information if
you submit a resume to Komen. If you are volunteering, we may ask about your
experience in similar roles, your relationship to breast cancer or other
cancers, and/or for any other background information needed for the specific
role, such as background checks or licenses.
* Other Sources. We may receive Personal Information from other sources,
including third-party organizations we collaborate with to provide support
services and information to patients and their caregivers. We may also
receive Personal Information from other sources when we conduct fundraising
campaigns, promotions, or events. In these instances, we may receive access
to donor reports that include donor name, contact information, and donation
amount. We also may receive your Personal Information if you respond to a
cause-related marketing campaign or other promotion benefitting Komen that is
conducted by a corporate partner
HOW WE USE PERSONAL INFORMATION
We use Personal Information for the following purposes:
* Providing Services. We use Personal Information to provide our Services to
you, including to provide you with the information, resources, and support
services you request and to communicate special activities for caregivers,
survivors, or those living with metastatic disease. For example, if you
contact Komen to utilize Services provided by the Patient Care Center (e.g.,
Helpline, Screening & Diagnostics Program, Financial Assistance Program,
and/or patient navigation), we may ask you for contact information,
demographic information, and health information to connect you to services,
education, financial assistance, and/or other resources relating to
participating in research and clinical trials.
* Fundraising. We use Personal Information to process donations and purchase
transactions, including to verify identity and/or contact you for the purpose
of raising money for Komen, to determine the effectiveness of fundraising
campaigns and mission activities, and to send you a receipt and/or thank you
for your donation.
* Ensuring Quality. We use Personal Information to help ensure the quality of
our Services, including to maintain your account, to help diagnose problems
with our server, to administer our websites, to develop, evaluate, and
improve our Services, to update and expand our business activities, and to
provide other support services.
* Personalization. We use Personal Information to help deliver Services that
are better tailored to you, including to provide you with customized
personalized services and content, to keep you informed about breast
cancer-related news developments, to notify you of Komen services that may be
of interest to you based on the information that you provide including
clinical trials, support services, or research opportunities, and to invite
you to upcoming Komen events in your area. If you choose to provide
information regarding your relationship to breast cancer or other cancers, we
may use this information to let you know about special activities for
caregivers, survivors, those living with metastatic disease, or other
targeted groups. For more information on how to control the communications
and content you may receive, please review the Your Privacy Rights and the
Your Contact Preferences sections below.
* Data Analytics. We use Personal Information to conduct data analytics so that
we can better understand the individuals we serve, better communicate with
you, improve our Services, and gain a greater understanding of breast cancer,
breast cancer treatment and the related needs of patients and their
caregivers and our constituents. This analysis can help us improve patient
experiences, mission delivery, and support.
* Research Participation. We use Personal Information to facilitate research
participation, including inviting and managing your participation in research
studies and processing grant applications.
* Responding to Inquiries. We use Personal Information to respond to your
inquiries, including to manage your preferences, facilitate technical
support, respond to volunteer inquiries, respond to research study inquiries,
and assist you if you contact Komen seeking breast cancer information or
request support or Services from Komen and/or its partners.
* Communicating with You. We may use Personal Information to communicate with
you, including sending emails, newsletters, or additional content to market
our Services; responding to your questions and comments; and to update you
about changes to your account.
* Security. We may use Personal Information to secure our Services, including
verifying your identity and protect against malicious conduct, fraudulent
activity, or unsafe experiences.
* Other Business Purposes. We may use Personal Information for other business
purposes, such as recruiting, hiring, conducting audits, fraud monitoring and
prevention, and recordkeeping.
* To Comply with Applicable Law. We may use Personal Information to comply with
applicable law, including to respond to valid legal process, including, but
not limited to, a search warrant, subpoena, or court order, and any other
instance when we believe we are required to do so by law.
HOW WE SHARE PERSONAL INFORMATION
We may share the above categories of Personal Information with the following
third parties to provide our Services:
* Third Party Service Providers. We share Personal Information with
third-parties that provide operational services on our behalf, such as
website hosting, information technology and infrastructure, data analytics,
email delivery, credit card processing, order fulfillment, auditing or other
services, or that assist Komen in providing you with support and resources.
These third parties may not use Personal Information for any other purposes.
* Marketing, Advertising, and Analytics Partners. We may use third-party
marketing, advertising, and analytics providers to provide statistics and
analysis about how people are using our Services and to provide advertising
and marketing for our Services, and to conduct charitable sales promotions,
which may be considered targeted advertising. These third-party partners may
receive information about your interactions with our Services through
third-party cookies. For information about how to opt out of our use of
third-party cookies that share data with these partners, see “Your Privacy
Rights.” Where required by law, we will first obtain your consent before
engaging in the marketing or advertising activities described.
* Komen Partners. We may provide your information to organizations we work with
to provide services, products, or programs, such as content providers,
sponsors, service providers or other third parties to advance the goals of
education, dissemination or information, and otherwise in fulfillment of our
mission.
* Referring Health Care Providers and Health Care Plans. If you were referred
to Komen by your health care provider, we may also report back to your
referring provider regarding your usage of Komen programs and services or to
coordinate treatment-related services.
* Volunteers. We may share limited Personal Information, such as contact
information, with volunteers who are assisting Komen and who require the
information as part of their duties. We will only share the information
necessary to enable the volunteer to perform their duties.
* Social Media. By connecting your Komen account with your social media
account, you authorize us to share information with your social media account
provider. For example, if you log-in to our website using your social media
account, use a “like” button or use other social media features while
visiting our website, those social media companies may collect information
about you. You understand that your interactions with social media companies,
the use of their features, and the use of the information we share will be
governed by their privacy policies. Please note that any information you post
within these public forums or social media pages may become public and may be
read, collected, and used by anyone.
* Nonprofit List Share. From time to time, Komen may also share donor names and
mailing addresses with other nonprofit organizations on a limited basis. We
do not share email addresses or health information in connection with this
list exchange. You, as a donor may, at any time, request that Komen exclude
your name from being shared with other nonprofit organizations. To ask that
your name be excluded or to otherwise change how Komen contacts you, please
email us at privacymanager@komen.org, use the contact options on our Contact
Us page, or mail your request to: Susan G. Komen, 13770 Noel Road, Suite
801889, Dallas, TX 75380, Attn: Legal.
* Memorial and Honor Giving. You may choose to honor someone whose life has
been impacted by cancer by making a donation in their name. Once your gift is
received and you have requested a notification be sent to the honoree or
family, Komen will send a card to the honoree or family acknowledging your
gift. The amount of money donated through memorial or honor donations is kept
confidential, but the individual (or their immediate family in the case of a
memorial donation) may be provided with the name and address of those
individuals who have donated in honor of their loved one, whether in the card
itself or at the request of the honoree or family.
* Other Uses or Disclosures of Personal Information. We may also use and
disclose your Personal Information as we believe to be necessary or
appropriate: (a) to comply with applicable law, which may include laws
outside your country of residence, to respond to requests from public and
government authorities, which may include authorities outside your country of
residence, to cooperate with law enforcement, or for other legal reasons; (b)
to enforce our Terms of Use; and (c) to protect our rights, privacy, safety
or property, and/or that of you or others. In addition, Komen may use,
disclose or transfer your information to a third-party in the event of any
reorganization, merger, sale, joint venture, assignment, transfer or other
disposition of all or any portion of our organization (including in
connection with any bankruptcy or similar proceedings).
YOUR PRIVACY RIGHTS
Under some U.S. state laws, residents may have a right to:
* Right of Access and/or Portability. Subject to certain limitations, you can
request that we disclose the categories and/or specific pieces of Personal
Information that we collect, use, disclose, and may sell, and, in some
circumstances, have that data provided to you so that you can provide or
“port” that data to another provider.
* Right to Opt Out. Like many companies, we may use advertising and analytics
services that are intended to analyze your interactions with our Services,
based on information obtained from cookies or other trackers, including for
delivering advertising to you (such as interest-based, targeted, or
cross-context behavioral advertising). To opt out of the targeted
advertising, follow the instructions below. You may also disable certain
cookies in the “Help” function within most browsers. We do not have actual
knowledge that we “sell” the Personal Information of consumers under 18 years
of age.
* Right to Correction. You can request that we correct the Personal Information
that we have collected from you under certain circumstances.
* Right to Deletion. You can ask us to delete the Personal Information that we
have collected from you, subject to certain exceptions such as to complete a
transaction for you, to exercise our rights, or to comply with a legal
obligation.
How to Exercise Your Rights: To exercise your applicable rights, please email us
at privacymanager@komen.org, use the contact options on our Contact Us page, or
mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX
75380, Attn: Legal. We are required to verify your identity to process your
request and reserve the right to confirm your state residency. We will provide a
substantive response within 45 calendar days of receiving your request, or
inform you of the reason and extension period (up to a total of 90 days) in
writing.
Please note that, before we process your request, we may ask that you provide us
with additional information to verify your identity. We reserve the right to
deny your request if we cannot verify your identity or an exemption applies. You
may designate an authorized agent to submit your verified consumer request by
providing written permission and verifying your identity, or through proof of
power of attorney.
YOUR CONTACT PREFERENCES
In addition to the rights listed above, you may update your contact preferences
by following the instructions below:
* Contact Preferences and Restrictions. We respect your privacy and recognize
that you may wish to limit the ways in which we contact you. If you no longer
wish to receive event emails, newsletters, or other subscriptions, you may
opt-out by following the instructions in the “Updating Preferences” section
below. If you register for a Komen event or sign up for a newsletter or
similar subscription, you will receive communications related to that
service, regardless of your prior preferences or restrictions. However, we
may continue to send transaction-related emails regarding our relationship
and the services you have requested.
* Apps. You can stop collection of information by Apps by uninstalling the
Apps. You may use the standard uninstall processes available as part of your
device or network. To discontinue the collection of geolocation data within
Apps, you can modify your privacy settings on your mobile device.
* Updating Preferences. To inform us of any desired restrictions, please make
changes through the “Manage Your Email Preferences” link at the bottom of our
email communication, email us at privacymanager@komen.org, use the contact
options on our Contact Us page, or mail your request to: Susan G. Komen,
13770 Noel Road, Suite 801889, Dallas, TX 75380, Attn: Legal. In addition to
the above, Komen offers the following options:
* Do not contact me by postal mail.
* Do not contact me by telephone.
* Do not contact me by SMS (text) message.
* Do not contact me by email.
* Do not share my contact information with other nonprofit organizations.
* Do not share my contact information for other third party opportunities,
marketing, or commercial purposes.
* Do not contact me (ends all communications except transaction-related
notifications).
DATA SECURITY
Komen is committed to using reasonable organizational, technical and
administrative measures designed to secure the information to protect Personal
Information within our organization. Unfortunately, however, no data
transmission over the Internet nor any data storage system is 100% secure. While
we strive to protect your information, we cannot ensure or warrant the security
of such information on our or third-party sites. If you have reason to believe
that your interaction with us is no longer secure, please immediately notify us
using the contact options on our Contact Us page.
RETENTION
Komen retains Personal Information that we receive for as long as necessary to
fulfill the purpose(s) for which the information was collected, to provide our
services and products, to pursue legitimate business purposes, to enforce our
agreements, and comply with all applicable laws.
OTHER NOTICES AND DISCLOSURES
Children’s Privacy. You must be 18 years old to use our Services and our
Services are not targeted at children. With the signed consent of the parent or
guardian, children are able to participate in certain Komen events in which case
Personal Information may be collected from such participating children. Other
Services are not intended for individuals under the age of 18, or equivalent
minimum age depending on jurisdiction, and we do not knowingly collect Personal
Information from minors. If you become aware of any Personal Information we have
collected from a minor, please contact us using the contact options on
our Contact Us page, or mail your request to: Susan G. Komen, 13770 Noel Road,
Suite 801889, Dallas, TX 75380, Attn: Legal. If we discover that we have
inadvertently collected Personal Information from a person under the age of 18
or if we are provided with a verifiable parental request, we will delete the
child’s information.
Links to Third-Party Websites. Our Services may contain links to third-party
websites, whose privacy practices may be different from Komen’s. This Privacy
Statement does not address, and we are not responsible for, the privacy,
information, or other practices of any third parties, including any third-party
operating any website or service to which the Services link. Links to other
sites do not imply Komen’s endorsement of the products or services or privacy or
security practices of those websites. In addition, we are not responsible for
the information collection, use, disclosure of security policies or practices of
other organizations, such as Facebook, Apple, Google, Microsoft, RIM,
Salesforce, or any other app developer, app provider, social media platform
provider, operating system provider, wireless service provider or device
manufacturer, including with respect to any Personal Information you disclose to
other organizations through or in connection with our sites or our social media
pages.
HOW TO CONTACT US
If you have questions about our Privacy Policy, want to know what Personal
Information of yours Komen is in possession of, or if you have concerns
regarding our privacy practices, you can email us at privacymanager@komen.org,
mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX
75380, Attn: Legal, or use the contact options on our Contact Us page. Please
provide a description of your comments or questions in enough detail so we can
respond appropriately.
UPDATES TO THIS PRIVACY POLICY.
Since we will continue to implement new technologies and improve our services
and features, we reserve the right to change this Privacy Policy from time to
time, consistent with applicable law. When changes are made, we will update the
date at the top of our Privacy Policy. When material changes are made, we will
notify you. Otherwise, your continued use of Komen’s Services after the
effective date of any modification to the Privacy Policy will be deemed to be
your agreement to the updated terms.
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1-877-465-6636 (Se habla español)
helpline@komen.org
Donor Services Support:
1-877 GO KOMEN
1-877-465-6636 (Se habla español)
info@komen.org
All Inquiries:
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