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PLEASE, HELP ANGELA

Morristown, TN   Medical
10%
$2,005
of $20,000.00
raised by 12 people

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Follow This Campaign
Created March 24th, 2022
Kelly Powell
1 Campaigns Created · 0 Supported
 * Details

Hello,My name is Angela and I'm currently a single mom raising my daughter.
Adaline was born via an emergency c-sections after my amniotic fluid levels
dropped dramatically over the course of a week. During a scan at 35 weeks, my
OBGYN saw "something" on my scan that she said looked like a cyst inside my
daughter. She said this could cause a problem or could be nothing. Having my
daughter was an amazing and difficult experience. When we finally made it to our
recovery room together, I was so happy. I held her, breastfed her, and let her
get to really meet her Mimi. But as a few hours passed, she refused to eat a
second time. She turned very red and cried in a way I could tell was pain. I
called for the nurses. It took a little bit of fight, but they agreed to take
her off for an x-ray. As soon as that was done, things began to speed to a rapid
pace. Her small intestine was completely ruptured. The amniotic fluid she'd been
drinking had created a cyst in her gut. They needed to open her up right away
and remove the cyst, the dead section of bowel, and re-attach everything
together. That's always a very scary thing to hear as a mother. I waited with
anxiety through surgery and immediately met her in the NICU after. She spent
nine days following the surgery recovering in the NICU. It was so hard after I
was released to go home at night being away from my newborn.

I was so happy when we were finally told she could come home. I'd been pumping
breast milk during her NICU stay, but that's hard when not with your baby, and I
wasn't producing enough to fully cover her needs. We supplemented with the
formula the NICU gave us. It was fine formula. But she didn't take well to it.
Over the course of the next month, she steadily lost weight. She was having
constant diarrhea, and not eating very well. I met with her surgeon and her
gastroenterology team regularly, and they decided we needed to admit her to the
hospital for failure to thrive.

What ensued next was certainly time-consuming and stressful. She spent the next
two months in the hospital. They needed to know exactly why she wasn't pulling
any nutrients out of her food. She had swallow studies, chest x-rays, so very
much labwork, an NG tube, O2 at one point, blood transfusions, a central IV line
and TPN nutrients... She went through so much.

Ultimately, they decided that because of the distension and lack of mobility in
a segment of her gut and a severe milk allergy, she had had an overgrowth of
bacteria in her gut. This led to her being unable to absorb anything she did eat
and also led to blood in her stool which was causing her body to weaken. This
could only be truly corrected and addressed by getting her on the right formula
(one meant for severe milk allergies) and surgically implanting a g-tube into
her stomach.

Finding out there wasn't some genetic condition causing her problems was a
relief, but clearing all of those off the table was an arduous process that
resulted in many blood draws. At one point the doctors marveled at the tests
we'd done, commenting that they'd run many tests they'd never before even run at
that hospital.

We were finally released from the hospital. Her home health company set us up
with Adaline's G-tube pump and other supplies, and we got a prescription for her
formula, which costs $50 per 16oz can. She also had a few medications. Reflux
medicine and a gut-based antibiotic that she takes in cycles. I settled into my
new routine with her at home. Things seemed to be going okay.

There has been a constant looming question of whether she needs additional
surgery though. There is scar tissue from her first surgery adhering her
intestine to her liver in a way that could lead to issues. As we tried to figure
out the best answer, Similac underwent a massive recall, and suddenly Adaline's
miracle formula was gone. We began to try other formulas, and none worked well,
until recently, when finally one did. It is also $45 per 16oz can. Two days ago,
I received a call from her medical supply company saying they couldn't find a
source for this formula. They said that it's too rare and can't be found. It
isn't sold in regular stores anywhere either.

And that's where we are today.

So please, if you have a little extra or relate to this story and want to
help... Please. For me, for my beautiful curly-haired daughter who loves Aladdin
and Pikachu and who smiles through everything she's had to endure. If you can
donate, please do.

Thank you so much



Did you know? Even if you can't contribute with money, you can help this
campaign by sharing on Facebook! In fact, when this campaign reaches 100 shares
on Facebook and $1000 raised, FreeFunder will donate $20 to it. Tell your
friends! Currently this campaign has been shared on Facebook about 58 times.



CONTRIBUTORS (12)

$10.00
Louis Eisenman
14 hours ago
My thoughts and prayers are with you
$100.00
Jackie Helton
1 week ago
All our LOVE.
$50.00
Becky Shockley
2 weeks ago
Offline donation added by Kelly Powell
$100.00
Bridget Lowe
3 weeks ago
Offline donation added by Kelly Powell
$150.00
Anonymous
3 weeks ago

$50.00
Erika Harville-Goode
3 weeks ago
Offline donation added by Kelly Powell
Amount Hidden
Tammy Cox
3 weeks ago
I love you Angela!!
Amount Hidden
C L Jennings
4 weeks ago
Hope this helps
$25.00
Anonymous
4 weeks ago

Amount Hidden
Eric Schaefer
4 weeks ago


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