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“I RARELY GO TO THE DOCTOR MYSELF BECAUSE OF TRAUMATIC EXPERIENCES”: DEAF
PATIENTS EXPERIENCE COMMUNICATION BARRIERS IN NCFL HOSPITALS

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Daily recording of the 12 pm newscast
By Amber Pellicone
Published: Thu Jan 27 2022
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receive news straight to your email every morning.

GAINESVILLE, Fla. (WCJB) - Imagine being out at lunch with a Deaf colleague when
he suddenly has a heart attack. You rush with him to UF Health Shands, only to
find once you arrive, he has no way to communicate. Eight hours later an
interpreter arrives.

Experiencing this first hand is what inspired research fellow Tyler James to
bring the communication challenges Deaf people are faced with in medical
environments to light as part of a qualitative health research study.

“Infuriating is the best word I could use to describe it,” James said. “We don’t
want to make a patient who is already sick jump through hoops just to under
stand their basic medical information.”

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Eleven Deaf or Hard of Hearing people from North Central Florida, who primarily
use American Sign Language to communicate, were interviewed.

Their experiences at UF Health Shands and North Florida Regional Medical Center
were all alike. If an interpreter was not available, a video remote interpreting
device would be provided which often wouldn’t work. Doctors would then resort to
speaking to the Deaf patient or writing notes back and forth.

“I actually have a picture from a deaf advocate in the Gainesville area who was
in an emergency department and a doctor wrote on a brown paper napkin to them,”
James said. “Not only were they not being adequately communicated with, but
imagine the relegation you feel because you’re being communicated with on a
paper napkin as opposed to even a piece of paper.”

James said he was inspired to conduct this research because this issue is not
isolated to North Central Florida. He says deaf people report similar
experiences across the state and country.

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For Yary Santiago, a deaf lecturer at the University of Florida, this means
having to reschedule appointments and often times just putting them off to avoid
the hassle.

“I rarely go to the doctor myself because of the traumatic experiences I’ve had
across Florida,” Santiago added. “For example, in the pandemic I debated long
and hard about whether or not to see the doctor and waiting for the pain to
subside by itself.”

TRENDING STORY: Florida surgeon general appointee says getting vaccinated isn’t
the only tool to prevent COVID-19

She recalls a time when she waited three months for an appointment, only for it
to get rescheduled because there was no interpreter or VRI device available.



“It was such an unfortunate experience and it really hit me very hard,” Santiago
adds.

Whether in a medical environment or anywhere in the community, the eleven Deaf
or Hard of Hearing people interviewed agree that hearing people can do their
part by asking preferred form of communication and practicing patience.

Copyright 2022 WCJB. All rights reserved. Click here to subscribe to our
newsletter.

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