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   Learn
    * Understanding chordoma
      * Symptoms and diagnosis
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      * Advanced and metastatic disease
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      * Surgery
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🇧🇷
 * Learn
    * Understanding chordoma
      * Symptoms and diagnosis
      * How to get the best care
      * Children and young adults
    * Treatment guidelines
      * New diagnosis
      * Local recurrence
      * Advanced and metastatic disease
    * Types of treatment
      * Surgery
      * Radiation
      * Drug therapy
      * Clinical trials
    * Managing side effects
      * Clival and upper cervical spine
      * Mobile spine and sacral
      * Pain management
      * Cancer-related fatigue
      * Emotional wellness
      * ...and more
    * Educational resources
    * Resources
      * Talk with a Patient Navigator
      * Find a chordoma doctor
      * Search drug therapy options
      * Questions to ask your doctors
      * Glossary
      * FAQs

 * Connect
    * Support
      * Talk with a Patient Navigator
      * Get matched with a Peer Guide
      * Join our online community
      * Find an international Ambassador
    * Chordoma community map
    * Patient stories
      * Uncommon Stories
      * Memorials
    * Events
      * Virtual support groups

 * Improve the outlook
    * The path to cures
    * How to help
    * Ways to give
    * For friends and family

 * About us
    * Our story
    * Our research lab
    * Team
    * Careers
    * Newsletter
    * Latest updates
    * Annual reports and financials

 * Researchers
 * Healthcare professionals
 * International
    * Overview and map
    * Brazil
    * Canada
    * France
    * Germany
    * Israel
    * Italy
    * Netherlands
    * Spain
    * United Kingdom

Improving lives. Accelerating cures.

--------------------------------------------------------------------------------


ONE IN A MILLION, BUT NOT ALONE

The commitment and participation of everyone affected by chordoma is fueling
progress that's virtually unprecedented for a rare cancer. With your help,
dramatically better treatments are possible — and they could be available soon.


The path to cures How to help

Start Here

--------------------------------------------------------------------------------


NEWLY DIAGNOSED? WE CAN HELP.

We offer expertise, resources, and support so you can get the best care and
outcomes possible.

If you're new to chordoma, it's normal to feel overwhelmed. Our Patient
Navigation Service — a free, confidential resource — is an excellent place to
start. Our Patient Navigators can answer your questions, provide information
about treatment guidelines, help you find qualified doctors, and connect you
with others in the chordoma community who have been through a similar journey.

(And if chordoma has been part of your life for awhile, our Patient Navigators
are here for you, too.)

Request personalized support


WHAT TO DO NEXT



We're here to support you throughout your entire journey with chordoma, from
diagnosis through survivorship. We provide a wealth of information to help you
understand chordoma, make informed decisions, and get the best care possible.

Read more in this step-by-step guide.


UNDERSTAND CHORDOMA

Learn about the disease including what it is, who is affected, risk factors,
prognosis, and more.

Learn more


PLAN YOUR TREATMENT

Read about surgery, radiation, and other treatments for chordoma, and when those
treatments should be considered.


Learn more


FIND A SPECIALIST

Search our Doctor Directory of nearly 150 chordoma specialists around the world
to find an experienced care team.


Learn more


IMPROVE SIDE EFFECTS

Address the quality of life issues that most frequently affect people during or
after chordoma treatments.

Learn more


WE BELIEVE CURES ARE POSSIBLE

We envision a future in which everyone affected by chordoma is able to overcome
it and maintain their quality of life. And because of the commitment of everyone
in our community, we've made a lot of progress: We've turned what was once a
neglected, lonely disease into one we can solve — together.


LAYERED APPROACH

To achieve better treatments, outcomes, and care for chordoma patients, we
invest in three mutually reinforcing programmatic areas encompassing research,
patient services, and healthcare improvement.

Learn more


STRATEGIC RESEARCH

We're advancing a comprehensive research roadmap that spans every stage of
treatment development, and we run the only laboratory in the world 100%
dedicated to accelerating cures for chordoma.

Learn more


ACTIVE PARTICIPATION

The more people who contribute, the faster we'll be able to achieve our
ambitious shared mission. Thankfully, there are numerous opportunities for
everyone affected by this disease to help dramatically improve outcomes.

Learn more


THE BEST COMMUNITY YOU NEVER ASKED TO BE A PART OF

Support from someone who knows what you're going through can make all the
difference. Fortunately, the chordoma community is full of people eager to share
their experiences, serve as a sounding board, and help you find your way.


PEER CONNECT


We can match you with a trained Peer Guide: a patient or caregiver who has been
down a similar path.

Sign up


ONLINE COMMUNITY

You can join Chordoma Connections, our private online community, to exchange
information, experiences, and encouragement.

Join


EVENTS

We offer virtual and in-person opportunities to learn from and connect with
experts and other people affected by chordoma.

Attend


SERVING THE WORLDWIDE CHORDOMA COMMUNITY

Wherever you're located, we're here to support you throughout your entire
journey with chordoma. Check out our world map to see our growing number of
chordoma patient data, stories, and resources in your country.

View and be counted on our map

Support patient-driven chordoma research

--------------------------------------------------------------------------------


EVERY GIFT ACCELERATES CURES

Together, we’ve already changed much of what it means to face chordoma. Yet the
pressing need remains for better treatments. Today, our sights are set on
treatments that don't just slow the disease down, but:

 * Eliminate tumors,
 * prevent recurrence,
 * and preserve patients’ quality of life.
   

With adequate investment, these new therapies are years, not decades away.

Thank you for providing a real reason for hope for everyone facing chordoma.

Ways to give

Events Latest updates Contact us Newsletter


INVEST IN A BETTER FUTURE

Each and every contribution adds up to better options and outcomes for those
facing chordoma.


Give now


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The Chordoma Foundation is recognized by the IRS as a 501(c)(3) non-profit
organization, and donations are tax-deductible to the full extent allowed by
law. EIN 20-8423943.

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