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THE ALS ASSOCIATION

Reviewed by the Sacramento Region Community Foundation

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$14,340 raised by 86 donors

48% complete

$30,000 Goal


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ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative
disease that affects nerve cells in the brain and spinal cord. There is no cure
for ALS yet. 

By leading the way in global research, providing assistance for people with ALS
through a nationwide network, coordinating multidisciplinary care through
certified clinical care centers, and fostering government partnerships, The
Association builds hope and enhances quality of life while aggressively
searching for new treatments and a cure. 

The ALS Association's core pillars include: care services, advocacy, and global
research. 

Care Services

The ALS Association in Greater Sacramento serves 284 people living with ALS and
their families. One hundred percent of our services are free of charge. 

We provide local care throughout the following 24 counties: Alpine, Amador,
Butte, Calaveras, Colusa, El Dorado, Glenn, Lassen, Modoc, Mono, Nevada, Placer,
Plumas, Sacramento, San Joaquin, Shasta, Sierra, Siskiyou, Sutter, Tehama,
Trinity, Tuolumne, Yolo, and Yuba.

Programs and services we offer to meet the needs of those living with ALS and
their caregivers:

 * Five Multi-Disciplinary Clinics serving the Greater Sacramento area
   * UC Davis Multidisciplinary ALS Clinic: Certified Treatment Center of
     Excellence
   * Forbes Norris ALS Multidisciplinary Clinic
   * Kaiser ALS Multidisciplinary Clinic 
   * Redding ALS Multidisciplinary Clinic
   * ALS Neuromuscular Multidisciplinary Clinic Mather: Serving Veterans
 * Support Groups for People Living with ALS and Their Caregivers
 * Educational Training Programs and Resources
 * Equipment Loan Program including Durable Medical Equipment & Communication
 * Remote Language Interpretation Program
 * Virtual Home Modification Program
 * Quality of Life Grants
 * Home and Video Evaluations

Advocacy

Our advocacy work focuses on educating and mobilizing members of Congress and
the Administration in a nonpartisan way to achieve our mission of discovering
new treatments and a cure for ALS, and serving, advocating for and empowering
people living with ALS to live their lives to the fullest.

The ALS Association is aggressively advocating for legislative priorities that
will help to:

 * Find New Treatments and Cures
 * Optimize Current Treatments and Care
 * Prevent or Delay the Harms of ALS

Global Research

We have the premier ALS research program in the world. Currently, The ALS
Association is funding 162 research projects nationwide.

From individual projects to global collaborations, we provide funding to experts
in a variety of scientific focus areas critical to advancing the search for
treatments and a cure for ALS. Thanks to the donations raised during the ALS Ice
Bucket Challenge, we're now spending three times more on ALS research than
before summer 2014.

Characters : 2718/5000



ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative
disease that affects nerve cells in the brain and spinal cord. There is no cure
for ALS yet. 

By leading the way in global research, providing assistance for people with ALS
through a nationwide network, coordinating multidisciplinary care through
certified clinical care centers, and fostering government partnerships, The
Association builds hope and enhances quality of life while aggressively
searching for new treatments and a cure. 

The ALS Association's core pillars include: care services, advocacy, and global
research. 

Care Services

The ALS Association in Greater Sacramento serves 284 people living with ALS and
their families. One hundred percent of our services are free of charge. 

We provide local care throughout the following 24 counties: Alpine, Amador,
Butte, Calaveras, Colusa, El Dorado, Glenn, Lassen, Modoc, Mono, Nevada, Placer,
Plumas, Sacramento, San Joaquin, Shasta, Sierra, Siskiyou, Sutter, Tehama,
Trinity, Tuolumne, Yolo, and Yuba.

Programs and services we offer to meet the needs of those living with ALS and
their caregivers:

 * Five Multi-Disciplinary Clinics serving the Greater Sacramento area
   * UC Davis Multidisciplinary ALS Clinic: Certified Treatment Center of
     Excellence
   * Forbes Norris ALS Multidisciplinary Clinic
   * Kaiser ALS Multidisciplinary Clinic 
   * Redding ALS Multidisciplinary Clinic
   * ALS Neuromuscular Multidisciplinary Clinic Mather: Serving Veterans
 * Support Groups for People Living with ALS and Their Caregivers
 * Educational Training Programs and Resources
 * Equipment Loan Program including Durable Medical Equipment & Communication
 * Remote Language Interpretation Program
 * Virtual Home Modification Program
 * Quality of Life Grants
 * Home and Video Evaluations

Advocacy

Our advocacy work focuses on educating and mobilizing members of Congress and
the Administration in a nonpartisan way to achieve our mission of discovering
new treatments and a cure for ALS, and serving, advocating for and empowering
people living with ALS to live their lives to the fullest.

The ALS Association is aggressively advocating for legislative priorities that
will help to:

 * Find New Treatments and Cures
 * Optimize Current Treatments and Care
 * Prevent or Delay the Harms of ALS

Global Research

We have the premier ALS research program in the world. Currently, The ALS
Association is funding 162 research projects nationwide.

From individual projects to global collaborations, we provide funding to experts
in a variety of scientific focus areas critical to advancing the search for
treatments and a cure for ALS. Thanks to the donations raised during the ALS Ice
Bucket Challenge, we're now spending three times more on ALS research than
before summer 2014.




GIVING ACTIVITY

Joe and Audrey Samora gave $52.60

1 day ago

Anonymous

1 day ago

Danielle Dunphy gave $105.20 in memory of Todd Moreno

1 day ago

Carol Kavooras gave $55.33

1 day ago

Deb Bowyer gave $31.56 in memory of Keith Bowyer

1 day ago

Anonymous

1 day ago

julia levine gave $78.90

1 day ago

Liesa Ludke-Seward gave $263.00 dedicated to Heinz - Go Daddy Go!

1 day ago

Anonymous gave $158.00

1 day ago

Anonymous gave $105.00

1 day ago

See all activity


MISSION

To discover treatments and a cure for ALS, and to serve, advocate for, and
empower people affected by ALS to live their lives to the fullest.


NEEDS

Grants for families living with ALS: It costs approximately $250,000 annually to
care for someone with ALS. We provide grants to support ALS families in
financial distress, purchase and deliver supplies, provide professional in-home
caregiving support, and assist with medical copays.



Support Group: Protecting our community's mental health and building a
supportive network is more important than ever. Our support group meetings and
care consultations with ALS staff help to provide a sense of hope and
connection, uplifting our ALS community.



Durable medical equipment loans: The need for durable medical equipment and
augmentative communication device loans continues to grow. The ALS Association
loans hundreds of pieces of equipment and speech communication devices annually
to the families who need it most. Loaned equipment includes power wheelchairs,
speech generating devices, smart home technology, lift systems, walkers, shower
chairs, and more.


EQUITY STATEMENT

The ALS Association is dedicated to cultivating an environment in which all
voices are raised and heard as we serve, engage, advocate for, and empower
people with ALS. We will maintain a community that resolves inequities that
impede progress in the fight against ALS and ensures that our mission-driven
work is informed by multiple perspectives and experiences.




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ORGANIZATION DATA

Summary 0 Programs 0 Management 0 Governance 0 Financials 0 Documents 0


SUMMARY

Organization name

The ALS Association

other names

ALSSAC

Mission Category

Health Care

Operating Budget

$1,000,001-$5 million

Organization Need

Funding: Program, Technology

Demographics Served

Women/Female-identifying

BIPOC Leadership

Executive Director/CEO

Counties Served

El Dorado, Placer, Sacramento, Yolo

Equity Statement

Equity Statement

Address

5701 Sunrise Blvd
CITRUS HEIGHTS, CA 95610



Service areas 0

Sacramento, CA, US

Yolo, CA, US

El Dorado, CA, US

Placer, CA, US

San Joaquin County, CA, US

Phone

9168778032

fax

916-979-9271

Email 0

stephanie.cardenas@als.org

Website 0

http://www.als.org

Social Media 0

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