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 * What is Rare Disease Day?
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28 FEBRUARYIS RARE DISEASE DAY

Raising awareness and generating change for the 300 million people worldwide
living with a rare disease, their families and carers.

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22
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300M

people with rare diseases

600+

events worldwide

106

countries involved


SHARE YOUR COLOURS

Join the community. Help us build awareness. Share your photos, videos and
experiences!


MEET OUR HEROES

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SOCIAL FEED


JOURNEY TO WHERE I AM TODAY





I was between early 20’s when, I was told that they had found a match something
that was rather unspexpected , because the DD study… Continue reading Journey to
where I am Today



Read full story


NOT TOO RARE TO CARE





Hi, my name is Jayme and I am 26 years old. When I was born in 1996, my Mom
along with Doctors knew there was… Continue reading Not Too Rare To Care



Read full story


KATIE’S STORY





I was diagnosed with CMTC when I was 5 months old. At 29 years old, I have lived
with markings down the right side of… Continue reading Katie’s Story



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WHAT'S YOUR STORY?

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message of solidarity!

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THOUSANDS OF EVENTS
IN OVER 100COUNTRIES

Every year, thousands of events are
organised across the world.


DISCOVER

Events near me Global chain of lights events


IN THE NEWS


OFFICIAL 2023 GLOBAL VIDEO LAUNCH

15 December 2022

20 November was the launch of the official #RareDiseaseDay 2023 video in over 40
languages! This 20-second video kicks off the international patient-led campaign
and… Continue reading Official 2023 Global Video Launch

Read article


REGISTER FOR THE #RAREDISEASEDAY DOWNLOAD MATERIALS WEBINAR!

14 November 2022

On 25 November at 2 PM (CET), the Rare Disease Day team is hosting a download
materials webinar for your Rare Disease Day campaign! This… Continue reading
Register for the #RareDiseaseDay Download Materials Webinar!

Read article


HOW TO SPEAK TO YOUNG CHILDREN ABOUT RARE DISEASES

16 March 2022

In the run up to Rare Disease Day 2022, we gathered a team of expert speakers
from all around the world to tackle an important… Continue reading How to speak
to young children about rare diseases

Read article


SOCIAL FEED

Rare Disease Day Follow 2,254 41,846

28 February 2023 is Rare Disease Day. Raising awareness for patients, families
and carers around the world that are affected by rare diseases. #RareDiseaseDay


; Rare Disease Day @rarediseaseday ·
4 Feb 1621871380835745792


Did you know that 1 in 5 cancers is rare?

We are one community that shares the same fight for:

more awareness,
greater equity as well as
advocating for a brighter future.

Join us in marking #WorldCancerDay!

#RareDiseaseDay #ShareYourColours #CancerDay #Support


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; Rare Disease Day @rarediseaseday ·
3 Feb 1621571770825195520


On #RareDiseaseDay, the rare disease community will #LightUpForRare!

Join the Global Chain of Lights by:

Illuminating a monument
Lighting up your home
Posting your pictures with the hashtag #LightUpForRare

https://cutt.ly/jYNFp5X
https://cutt.ly/UYNFkKV


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; Rare Disease Day @rarediseaseday ·
2 Feb 1621176821319405573


Happy Rare Disease Month from @ACHSEeV

Around #RareDiseaseDay on 28 February, there will be many events in Germany.
@ACHSEeV  Rare Diseases Germany is calling out again to #ShareYourColours for
#RareDiseases #Awareness #RareIsMany





Tag der Seltenen Erkrankungen 2023 | ACHSE e.V.

Die ACHSE koordiniert den internationalen Rare Disease Day 2023 bundesweit und
wirbt mit vielfältigen Aktionen. Machen Sie mit.

kurzelinks.de

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; Rare Disease Day @rarediseaseday ·
1 Feb 1620777794060918784


Today marks the first day of Rare Disease Awareness Month 2023!

Join us this month to raise awareness for the 300 million people living with a
rare disease worldwide!

Find out how you can get involved: https://cutt.ly/w9tI5Pb


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; Rare Disease Day @rarediseaseday ·
30 Jan 1620106160073281539


Introducing a new #RareDiseaseDay partner organisation for 2023...

La Fondation Internationale TIerno et MAriam (FITIMA)

We are thrilled to be working with them this year!

Find out more: https://fitima.org/

@FITIMABFGN


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