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 * Life With Rett
 * Rett Explained
 * Rett Care Plan
 * Rett Stories
 * Community & Resources

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Life With Rett


RETT EXPLAINED


Rett Care Plan


RETT STORIES




COMMUNITY & RESOURCES


Join Us

Join Us!
✨ All-New Episode ✨
of Magnolia’s Guide to Adventuring coming 5/14/24.
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FINDING JOY IN THE EVERYDAY MOMENTS WITH RETT SYNDROME

A Rett syndrome diagnosis can change every aspect of your family’s life. You
don’t have to face the future alone. See Rett syndrome through the eyes of other
families who are living their lives to the fullest.




RETT SYNDROME EXPLAINED

Lucy is every bit a teenager, just a teenager with Rett. Learn more about what
Rett syndrome is and how to navigate a diagnosis through her family.

Find out


CREATING A RETT CARE PLAN

Learn how sticking to a Rett syndrome care plan helps Minna's mom work through
daily challenges and find out how you can create a personalized plan for your
child with your care team.

Get ideas


EVERYDAY CHALLENGES BECOME ADVENTURES

Follow the journey of Magnolia and others with Rett syndrome as they go on
everyday adventures that once seemed impossible.

Take inspiration from each episode as the families explore different symptoms of
Rett and share ways you can adapt your own adventures around them.

Discover more


JUST AS EVERY PERSON IMPACTED BY RETT SYNDROME IS DIFFERENT, SO TOO IS THEIR
EXPERIENCE.

Whether living with Rett, caring for a loved one, or advocating on behalf of
Rett, every journey is made up of its own unique moments.


A COLLECTION OF UNIQUE MOMENTS

Explore the Rett Revealed interactive mosaic inspired by Confetti, the art of
Emily Shifflet. Each image uploaded has been woven into the mosaic to reveal a
collective experience of the Rett community.

Explore the mosaic


JOIN US

Sign up to be notified when new perspectives from families living with Rett
syndrome and resources provided by Acadia become available!

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HOME

Life With Rett

RETT EXPLAINED

What Is Rett Syndrome?Navigating a Diagnosis

RETT CARE PLAN

RETT STORIES

Lucy RevealedMinna Revealed Emily Revealed

COMMUNITY & RESOURCES

Rett Revealed MosaicResources
HomeLife With Rett
Rett StoriesLucy RevealedMinna RevealedEmily Revealed
Rett ExplainedWhat Is Rett Syndrome?Navigating a Diagnosis
Community & ResourcesRett Revealed MosaicResources
Rett Care Plan

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