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Bindi Irwin reveals her life was 'torn apart' by endometriosis One in 10 women
or people with uteruses experience endometriosis during their reproductive
years.
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MAIN CHARACTER OF THE DAY

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BINDI IRWIN IS SHINING A LIGHT ON THIS PAINFUL, UNDERDIAGNOSED CONDITION

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March 8, 20235:24 PM ET

Manuela López Restrepo

Enlarge this image

Bindi Irwin Irwin has continued sharing and promoting endometriosis awareness as
she recovers, receiving support from thousands across the globe. March is also
endometriosis awareness month. Bradley Kanaris/Getty Images hide caption

toggle caption
Bradley Kanaris/Getty Images


Bindi Irwin Irwin has continued sharing and promoting endometriosis awareness as
she recovers, receiving support from thousands across the globe. March is also
endometriosis awareness month.

Bradley Kanaris/Getty Images

One in 10 women or people with uteruses experience endometriosis during their
reproductive years. To combat the ongoing stigma around it, Bindi Irwin has
documented her surgery and called for people to "keep searching for answers."

Who is she? Depending on how old you are, you might remember Bindi Irwin as the
daughter of America's favorite late Aussie TV show host, Steve Irwin (AKA the
crocodile hunter).

 * But she has since become a conservationist in her own right, continuing her
   family's philanthropic efforts focused on nature, and starring in TV shows.
   
 * Irwin is also married, and the mother of a baby girl named Grace. That comes
   into play with her diagnosis.

(From left) Robert Irwin, Bindi Irwin and Terri Irwin greet a sloth onstage as
Animal Planet celebrates "Crikey! It's the Irwins" in 2018 in New York City.
Monica Schipper/Getty Images for Discovery, Inc hide caption

toggle caption
Monica Schipper/Getty Images for Discovery, Inc

What's the big deal? On Tuesday, Irwin shared social media posts detailing her
decade-long battle with endometriosis, writing: "For 10yrs I've struggled with
insurmountable fatigue, pain & nausea. Trying to remain a positive person & hide
the pain has been a very long road."

 * Like many other women who live with chronic pain, Irwin recounts having her
   experience discounted by doctors, and chalked off as something she would just
   have to "deal with as a woman."
   
 * Endometriosis occurs when "tissue that is similar to the lining of the uterus
   grows in other places in your body," according to the National Library of
   Medicine. Common symptoms of the disease can include very painful menstrual
   cramps, chronic pain, infertility and stomach (digestive) problems, among
   other things. While there are various theories, the underlying cause of
   endometriosis isn't yet known.
   
 * Linda Griffith, a top biological engineer at MIT, spoke with NPR in 2021
   about having the condition herself; the somewhat mysterious factors behind
   the condition; and why it can be so painful.




What are people saying?

Bindi Irwin on her struggle with the condition:

> Things may look fine on the outside looking in through the window of someone's
> life; however, that is not always the case. Please be gentle & pause before
> asking me (or any woman) when we'll be having more children. After all that my
> body has gone through, I feel tremendously grateful that we have our gorgeous
> daughter. She feels like our family's miracle.   
> 
> I'm aware of millions of women struggling with a similar story. There's stigma
> around this awful disease. I'm sharing my story for anyone who reads this & is
> quietly dealing with pain & no answers. Let this be your validation that your
> pain is real & you deserve help. Keep searching for answers. 

Linda Griffith about why so many overlook endometriosis:

> Some women just don't understand that other women could have these terrible,
> terrible things happening, because they themselves don't experience those
> symptoms. "Period privilege," as I'm calling it, could be active or passive.
> Passive is just they don't think about it and they kind of find it hard to
> believe. But active — and I encountered this a lot — is women saying, "It
> can't be that bad." And some of these women are gynecologists, like the one
> who treated my niece who had endometriosis, and the gynecologist told my
> sister my niece was making everything up. 



--------------------------------------------------------------------------------

Want more health journalism? Listen to the Consider This episode on hidden
viruses and how to prevent the next pandemic

--------------------------------------------------------------------------------

So, what now?

 * Griffith's research has focused on tissue regeneration, and she says
   understanding endometriosis could be key in furthering our understanding of
   it. 
   
 * Irwin has continued sharing and promoting endometriosis awareness as she
   recovers, receiving support from thousands across the globe. March is also
   endometriosis awareness month.
   
 * Griffith, Irwin and countless others say stigma surrounding period pain and
   chronic conditions has got to go in order to make progress.  
   
 * Griffith: "There's many period problems: Heavy menstrual bleeding, fibroids,
   all of these kinds of things. You just don't talk about your period. So that
   has to change."
   
 * A U.K. trial for the first non-hormonal drug being aimed to treat
   endometriosis pain is showing promising results, The Guardian reports. It
   would be the first new class of drug for the condition in 40 years. 

Read more:

 * Why are women's health concerns dismissed so often?
 * Opinion: With abortion bans on the rise, kids need to know more about
   menstruation
 * Greater gender equality can help both men and women live longer, a new study
   finds

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