spondylitis.org Open in urlscan Pro
52.250.115.108  Public Scan

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Text Content

Mail info@spondylitis.org
Monthly Newsletter
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Serving the Spondyloarthritis Community.
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 * Home
 * About Spondylitis
   Overview of Spondyloarthritis
   * Ankylosing Spondylitis
   * Non-Radiographic Axial Spondyloarthritis
   * Enteropathic Arthritis
   * Psoriatic Arthritis
   * Reactive Arthritis
   * Undifferentiated Spondyloarthritis
   * Juvenile Spondyloarthritis
   Treatment Information
   * Medications
   * Exercise
   * Diet and Nutrition
   * Complementary Treatments
   Possible Complications
   * Pain in Spondyloarthritis
   * Iritis or Anterior Uveitis
   * Fatigue in Spondyloarthritis
   * The Heart in Spondyloarthritis
   * Mental and Emotional Health
   Could I Have Spondyloarthritis? For The Newly Diagnosed
   Icon Items wrapp
   * Could I Have Spondyloarthritis?
   * Find a Rheumatologist
   * Learn About Spondyloarthritis
 * About SAA
   Mission & Vision Major Accomplishments Awards & Honors Annual Reports &
   Financials Meet the People
   * Meet the Staff
   * Board of Directors
   * Medical & Scientific Advisory Board
   * Meet Our Founder
   Partners & Sponsors News & Press Releases Careers Privacy Policy Contact Us
   Icon Items wrapp
   * Annual Reports & Financials
   * Major Accomplishments
   * News & Press Releases
 * Resources & Support
   For Medical Professionals
   * For Rheumatologists
   * For Primary Care Physicians
   * For First Responders
   * For Anesthesiologists
   * For Chiropractors
   * Imaging Resources
   * Research Library
   Educational Materials & Resources
   * Spondylitis Plus
   * Seminars and Webinars
   * Podcasts
   * Back in Action, Again
   * eSUN Archive
   * Global Spondyloarthritis Summit
   * Literature
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   * Living with AS Guide
   * For Kids & Teens
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   * Community Voices
   * Life Cafe
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   * Action Plan
   * Disability
   * Life After Diagnosis
   Icon Items wrapp
   * What is Non-Radiographic Axial Spondyloarthritis?
   * For Medical Professionals
   * Juvenile Spondyloarthritis
 * Advocacy
 * Research
   Research News Participate in Research SAA Research Early Career Investigators
   Award Research Breakthroughs
   Icon items wrapp
   * Participate in Research
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 * Get Involved
   Join/Renew Donate Give in Honor or Memory Volunteer Fundraising Wander
   Project L5 Investments Capital Cup Banding Together Brandon Robert’s
   Fundraiser Donate Your Vehicle Planned Giving Shop
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Donate!
Mail info@spondylitis.org
Monthly Newsletter
Latest News
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SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA


SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA


SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA


SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA


SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA


SERVING THE SPONDYLOARTHRITIS COMMUNITY

Upcoming EventsSupport SAA





INTRODUCING SPONDYCAST, SAA’S NEW PODCAST SERIES!

Looking for an exciting way to stay informed and motivated about
spondyloarthritis? Spondycast offers the newest source of information by leading
experts in the field, who will share their knowledge and experience. Whether you
are a patient, a caregiver, or someone who wants to learn more about
spondyloarthritis, Spondycast is the perfect place.

Listen Now


SAA’S FALL VIRTUAL PATIENT EDUCATIONAL SEMINAR 2023

Learn the latest treatment and research updates, listen to a talk about diet &
nutrition, and more!

Learn More

excuse me,


SPONDY WHAT?

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS),
Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively
unknown.

 * Nearly 1 in 100 Americans have
   spondyloarthritis

 * Spondyloarthritis is the most overlooked cause
   of persistent back pain in young adults

 * 1 in 4 patients have had to change
   careers due to spondyloarthritis

 * 1 in 4 patients have seen five or more
   health professionals in search of a diagnosis

 * The typical age of onset is
   between 17 and 45

10


als (30k)

20


MS (400 k)

50


Rheumatoid Arthritis (1.3 million)

90


Spondyloarthritis (3.2 million)

54% of patients remain undiagnosed for at least 5 years

75% of kids with juvenile spondyloarthritis experience moderate to severe pain

Learn More

COULD I HAVE SPONDYLITIS?

Your pain may be caused by spondylitis. Watch our new awareness video and take
the quiz.

Learn more

LEARN ABOUT SPONDYLOARTHRITIS

Spondyloarthritis is a relatively unknown disease but it affects 1 in 100
Americans..

Learn More

LOCATE A RHEUMATOLOGIST

Use our directory to locate a patient recommended and board certified
rheumatologist.

Learn More

PATIENT RESOURCES & SUPPORT

The most comprehensive library of spondylitis information and educational
materials.

Learn More

WHY JOIN THE COMMUNITY?

Connect with others because no one should have to face spondylitis alone.

Learn More

GET INVOLVED

There are many ways to get involved in the community. Which one’s right for you?

Learn More

TELL A STORY WITH SAA STORYTELLERS, YOUR STORIES ON STAGE!
SEND US YOUR STORY PITCH!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their
story (patients, caregivers, medical personnel, and friends of the community –
all are welcome!).

Send Us Your Story


VOLUNTEER FUNDRAISER SPOTLIGHT

Support SAA and Curt Rocca via Charity Golf Tournament

Join a GroupDonate

SAA and Curt Rocca are working together for a second season to raise funds via
The L5 Investments Capital Cup, scheduled for September 15-17, 2023. Curt, whose
son Grant was diagnosed with ankylosing spondylitis a couple of years ago, will
be on one of two teams competing to share in a $120,000 prize fund that is split
amongst the winning team’s players and donated to a cause of their choice.

Learn More

One of our many


COMMUNITY VOICES

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS),
Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively
unknown.

COMMUNITY VOICES:

Each individual affected by spondyloarthritis has their own unique story. We at
SAA believe that each and every story can be a source of inspiration and
empowerment and hope you enjoy reading through our collection. We’d love to
share your story as well! Send it to us at programs@spondylitis.org.

Read more

LEARN ABOUT SPONDYLOARTHRITIS:

If you have been diagnosed with spondyloarthritis, knowledge is power. Stay
current with the latest medical information and educational resources.

Read more

COULD I HAVE SPONDYLOARTHRITIS?

Could your chronic back pain be caused by spondyloarthritis? Take a quick quiz
and learn more.

Read more

GET INVOLVED!

Connect with others because no one should have to face spondyloarthritis alone.

Read more
Join a Support GroupDonate
Join a GroupDonate

BY KARRA ELOFF

YOUR STORIES: THRIVING AS A COUPLE WHILE LIVING WITH CHRONIC PAIN

Karra Eloff is the author of The Chronic Pain Couple: How to be a joyful partner
and have a remarkable relationship in spite of chronic pain and the director of
Eloff & Andrews Clinical Psychology in on the Sunshine Coast of Australia. She
can be reached at www.chronicpaincouple.com.

Read More


ESUN


THE ELECTRONIC SPONDYLITIS UPDATE NEWSLETTER

Check Out eSUN
Sign Up Now!

ESUN

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Your Name





LATEST NEWS & UPDATES

Oct 2023

WOMEN WITH RHEUMATIC DISEASE ARE AT GREATER RISK FOR POSTPARTUM DEPRESSION,
STUDY SUGGESTS

According to a study published in the Journal of Rheumatology, women of
childbearing …

Read More
Sep 2023

HEALTHY LIVING IS HEALTHY AGING

Experts say that misconceptions about aging can hinder the way we care for …

Read More
Aug 2023

INFLAMMATORY RHEUMATIC DISEASES AND THE RISKS OF LONG COVID

While researchers have studied how inflammatory rheumatic diseases and the use
of immunosuppressants …

Read More
More Articles
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CAREER CHOICES

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CONTACT US

Spondylitis Association of America

16430 Ventura Blvd. Suite 300 Encino, CA 91436

info@spondylitis.org


INFORMATION REQUESTS

(800) 777-8189 U.S. only or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening
crisis, please dial 911 for immediate help in the US. Please follow this link
for crisis intervention resources.

GIVE WITH CONFIDENCE



INFORMATION REQUESTS

(800) 777-8189 U.S. only or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening
crisis, please dial 911 for immediate help in the US. Please follow this link
for crisis intervention resources.

Please note that the content and information that is being shared on our website
is for informational and educational purposes only and in no way is to be
construed as medical advice, or an endorsement of any specific treatment plan,
service, or individual. SAA strongly suggests checking with your treating
physician before starting any treatment or new routine.

GIVE WITH CONFIDENCE



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