www.sdsregistry.org
Open in
urlscan Pro
34.149.87.45
Public Scan
Submitted URL: http://www.sdsregistry.org/
Effective URL: https://www.sdsregistry.org/
Submission: On June 27 via api from US — Scanned from DE
Effective URL: https://www.sdsregistry.org/
Submission: On June 27 via api from US — Scanned from DE
Form analysis 2 forms found in the DOM
<form id="comp-lxkj1hyc" class="JVi7i2 comp-lxkj1hyc wixui-form">
<div data-mesh-id="comp-lxkj1hycinlineContent" data-testid="inline-content" class="">
<div data-mesh-id="comp-lxkj1hycinlineContent-gridContainer" data-testid="mesh-container-content">
<div id="comp-lxkj1hyf" class="MpKiNN comp-lxkj1hyf wixui-text-input qzvPmW"><label for="input_comp-lxkj1hyf" class="wPeA6j wixui-text-input__label">First Name</label>
<div class="pUnTVX"><input name="first-name" id="input_comp-lxkj1hyf" class="KvoMHf has-custom-focus wixui-text-input__input" type="text" placeholder="" aria-required="false" maxlength="100" autocomplete="off" value=""></div>
</div>
<div id="comp-lxkj1hyn" class="MpKiNN comp-lxkj1hyn wixui-text-input qzvPmW"><label for="input_comp-lxkj1hyn" class="wPeA6j wixui-text-input__label">Last Name</label>
<div class="pUnTVX"><input name="last-name" id="input_comp-lxkj1hyn" class="KvoMHf has-custom-focus wixui-text-input__input" type="text" placeholder="" aria-required="false" maxlength="100" autocomplete="off" value=""></div>
</div>
<div id="comp-lxkj1hyp2" class="MpKiNN comp-lxkj1hyp2 wixui-text-input qzvPmW"><label for="input_comp-lxkj1hyp2" class="wPeA6j wixui-text-input__label">Email</label>
<div class="pUnTVX"><input name="email" id="input_comp-lxkj1hyp2" class="KvoMHf has-custom-focus wixui-text-input__input" type="email" placeholder="" aria-required="false" pattern="^.+@.+\.[a-zA-Z]{2,63}$" maxlength="250" autocomplete="off"
value=""></div>
</div>
<div id="comp-lxkjd5zs" class="MpKiNN comp-lxkjd5zs wixui-text-input qzvPmW"><label for="input_comp-lxkjd5zs" class="wPeA6j wixui-text-input__label">Phone</label>
<div class="pUnTVX"><input name="phone" id="input_comp-lxkjd5zs" class="KvoMHf has-custom-focus wixui-text-input__input" type="tel" placeholder="Phone" aria-required="false" pattern="^[+]?([(][0-9]{1,3}[)][-]?)?([0-9][-]?){3,16}[0-9]$"
maxlength="50" autocomplete="off" value=""></div>
</div>
<div id="comp-lxkj1hys" class="snt4Te comp-lxkj1hys wixui-text-box oKe0Po"><label for="textarea_comp-lxkj1hys" class="PSkPrR wixui-text-box__label">Message</label><textarea id="textarea_comp-lxkj1hys"
class="rEindN has-custom-focus wixui-text-box__input" placeholder="" aria-required="false"></textarea></div>
<div class="comp-lxkj1hyz1 FubTgk" id="comp-lxkj1hyz1" aria-disabled="false"><button aria-disabled="false" data-testid="buttonElement" class="uDW_Qe wixui-button PlZyDq"><span class="l7_2fn wixui-button__label">Send</span></button></div>
<div id="comp-lxkj1hz43" class="HcOXKn c9GqVL QxJLC3 comp-lxkj1hz43 wixui-rich-text" data-testid="richTextElement">
<p class="font_5 wixui-rich-text__text" style="font-size:14px;"><span style="font-family:avenir-lt-w01_35-light1475496,avenir-lt-w05_35-light,sans-serif;" class="wixui-rich-text__text"><span style="font-size:14px;"
class="wixui-rich-text__text">Thanks for submitting!</span></span></p>
</div>
</div>
</div>
</form><form id="comp-juqpdgy9" class="JVi7i2 comp-juqpdgy9 wixui-form">
<div data-mesh-id="comp-juqpdgy9inlineContent" data-testid="inline-content" class="">
<div data-mesh-id="comp-juqpdgy9inlineContent-gridContainer" data-testid="mesh-container-content">
<div id="comp-juqpuk4t" class="HcOXKn SxM0TO QxJLC3 comp-juqpuk4t wixui-rich-text" data-testid="richTextElement">
<h6 class="font_6 wixui-rich-text__text" style="line-height:0.9em; font-size:18px;"><span style="letter-spacing:-0.15em;" class="wixui-rich-text__text">Send Samples/Records</span></h6>
</div>
<div class="comp-juqpdh4z FubTgk" id="comp-juqpdh4z" aria-disabled="false"><button aria-disabled="false" data-testid="buttonElement" class="uDW_Qe wixui-button PlZyDq"><span class="l7_2fn wixui-button__label">Learn more</span></button></div>
</div>
</div>
</form>Text Content
top of page Skip to Main Content DONATE * * * The SDS Registry * Mission * Join the Registry * Centers * Team * Advisory Board * Enrollment * Learn about SDS * Patients & Families * Why a registry? * Patient Stories * SDS Resources * Presentations * Research * Latest SDS Research * SDSR Publications * SDS-Related Publications * Collaborators * FAQs * Ways to Help * More Use tab to navigate through the menu items. UPCOMING SDS REGISTRY EVENTS SDS Registry Family Day 2024 Please join us virtually on September 15, 2024 from 1:00-5:00 PM EST for a day of education and connection including presentations from experts in SDS, updates from the Registry, panel discussions with Q&A, and more! Information regarding registration to come. SDS Congress 2025 The 11th International SDS Congress will be held June 5-8, 2025, in Cincinnati, Ohio. SDS experts from around the world will present their newest research to both the scientific community and families. Click here to learn more! SHWACHMAN-DIAMOND SYNDROME REGISTRY ACCELERATING RESEARCH TO FIND A CURE FOR SDS OUR MISSION The Shwachman-Diamond Syndrome (SDS) Registry is committed to accelerating the pace of discovery for treatments and therapies of SDS. The Registry provides access to clinical expertise as well as cutting-edge research. Read more SAMPLES & RECORDS Every patient's experiences and samples hold vital clues to advance our understanding of SDS. The SDS Registry enables patients to share their medical information and samples with researchers working to cure SDS. Send samples QUESTIONS? Physicians or patients with questions about SDS are welcome to contact our medical team. Contact Us OUR CLINICAL CENTERS Learn more about our Centers. JOIN Contact our team to learn more about participating in the SDS Registry. Join the SDS Registry. LEARN ABOUT THE SDS REGISTRY Join The Registry JOIN THE REGISTRY If you are interested in enrolling yourself and/or your child in the SDSR, please fill out this form so we can contact you or click here to contact us directly. Contact Us * * First Name Last Name Email Phone Message Send Thanks for submitting! AREAS OF FOCUS ACCELERATE RESEARCH Harnessing science and clinical research to improve diagnosis and treatment of SDS. Learn more EMPOWER PATIENTS & FAMILIES Providing education and resources to SDS patients and families through access to clinical expertise and leading edge research. The Registry invites the SDS community to join the fight to beat SDS. Read more ENGAGE PHYSICIANS & RESEARCHERS Sharing medical expertise to improve clinical care. Promoting collaboration to advance SDS research. Learn more GIVE TODAY TO ACCELERATE SDS RESEARCH DONATE NOW CONTACT US SDSRegistry-dL@childrens.harvard.edu 617-919-1574 CONNECT WITH US Facebook X SEND SAMPLES/RECORDS Learn more © 2022 Shwachman-Diamond Syndrome Registry bottom of page