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THALASSEMIA AWARENESS: INDIA’S GROWING CONCERN AFTER TB

 * August 15, 2024 15:41
 * Aditi

Low Hemoglobin Levels Dragging You Down?
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Thalassemia is a genetic blood disorder that affects the production of
hemoglobin, the protein in red blood cells that carries oxygen throughout the
body. In India, thalassemia has emerged as a growing health concern, second only
to tuberculosis (TB). While TB continues to be a major public health issue,
thalassemia is quietly spreading, affecting thousands of families across the
country. The rising number of cases and the lack of awareness make it imperative
to focus on this condition.

The Impact of Thalassemia in India

India has one of the highest burdens of thalassemia in the world. According to
the Indian Council of Medical Research (ICMR), around 10,000 to 12,000 babies
are born with thalassemia major every year in India. The prevalence of carriers
(people who carry the gene but do not show symptoms) is also high, with an
estimated 3-4% of the Indian population being carriers. This translates to
approximately 42 million people at risk of passing the disorder to their
children.

The financial and emotional toll on families with thalassemia patients is
immense. Treatment typically involves regular blood transfusions and iron
chelation therapy to remove excess iron from the body. These treatments are not
only expensive but also require lifelong commitment. Many families struggle to
afford the cost, leading to inadequate care and a decreased quality of life for
the patients.

Challenges in Managing Thalassemia

One of the biggest challenges in managing thalassemia in India is the lack of
awareness. Many people, especially in rural areas, are unaware of the condition
and its genetic nature. This leads to marriages between two carriers, increasing
the risk of having a child with thalassemia major. Premarital screening and
genetic counseling are crucial but not widely practiced due to cultural and
social barriers.

Another challenge is the limited availability of treatment facilities. While
some urban areas have access to advanced medical care, many rural regions lack
the necessary infrastructure. Blood banks, essential for regular transfusions,
are often understocked, and the quality of care can vary significantly depending
on the location.

Moreover, there is a stigma associated with genetic disorders in many parts of
India. Families with thalassemia patients often face discrimination, making it
difficult for them to seek help and support. This stigma further hampers
awareness efforts and prevents people from getting tested or treated.

Government Initiatives and the Way Forward

The Indian government has recognized the growing threat of thalassemia and has
taken steps to address it. The National Health Mission (NHM) includes programs
aimed at controlling and preventing thalassemia. These programs focus on
screening, early diagnosis, and providing treatment to those affected.

One of the key strategies is to increase awareness about thalassemia,
particularly in high-risk communities. Educational campaigns and community
outreach programs are essential to inform people about the importance of genetic
screening and counseling. Schools and colleges can play a vital role in
spreading this awareness among the younger generation.

Another important initiative is to improve the availability and quality of
treatment. The government is working to strengthen the network of blood banks
and ensure that patients have access to safe and sufficient blood supplies.
Efforts are also being made to provide financial support to families affected by
thalassemia, helping them manage the cost of treatment.

Thalassemia is a growing concern in India, but with increased awareness and
better management, it is possible to reduce its impact. Understanding the
genetic nature of the disorder, promoting premarital screening, and improving
access to treatment are essential steps in combating thalassemia. As the country
continues its fight against TB, it is crucial not to overlook other emerging
health challenges like thalassemia. By raising awareness and taking proactive
measures, India can better support those affected and prevent the spread of this
genetic disorder.

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ADITI




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FEATURED POSTS

 * 1
   
   HEALTHCARE PROFESSIONALS TO UNITE FOR CANDLE MARCH AT INDIA GATE TO DEMAND
   JUSTICE FOR KOLKATA DOCTOR
   
    * August 15, 2024 18:52

 * 2
   
   THALASSEMIA AWARENESS: INDIA’S GROWING CONCERN AFTER TB
   
    * August 15, 2024 15:41

 * 3
   
   OLYMPIC MEDALIST MANE KHELIF: 5 SIGNS OF HIGH TESTOSTERONE IN FEMALE
   
    * August 15, 2024 14:16

 * 4
   
   POLIO SURVIVOR UNDERGOES LIFE-SAVING LIVER TRANSPLANT
   
    * August 15, 2024 14:03

 * 5
   
   STUCK IN SPACE: NASA ASTRONAUT SUNITA WILLIAMS UNDERGOES HEARING TEST AMID
   STARLINER DELAY
   
    * August 15, 2024 12:29

RECENT POSTS

 * GLOBAL HEALTH BUDGETS ALLOCATE JUST 2% TO MENTAL HEALTH, LANCET REPORT
   REVEALS
   
    * August 15, 2024 12:17

 * MPOX OUTBREAK HITS SEVERE POINT: WHO DECLARES GLOBAL EMERGENCY AS NEW STRAIN
   SPREADS RAPIDLY
   
    * August 15, 2024 12:13

 * STUDY UNCOVERS MICROPLASTICS IN ALL INDIAN SALT AND SUGAR BRANDS
   
    * August 14, 2024 17:19

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