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                <h1 class="meta-article-title ">Refugee Mental Health—An Urgent Call for Research and Action</h1>
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                <span class="wi-fullname brand-fg"><a href="/searchresults?author=Altaf+Saadi&amp;q=Altaf+Saadi" rel="nofollow" target="_blank">Altaf&nbsp;Saadi,&nbsp;MD, MSc<sup>1</sup></a></span><span class="al-author-delim">; </span><span
                  class="wi-fullname brand-fg"><a href="/searchresults?author=Tala+Al-Rousan&amp;q=Tala+Al-Rousan" rel="nofollow" target="_blank">Tala&nbsp;Al-Rousan,&nbsp;MD, MPH<sup>2</sup></a></span><span class="al-author-delim">; </span><span
                  class="wi-fullname brand-fg"><a href="/searchresults?author=Rawan+AlHeresh&amp;q=Rawan+AlHeresh" rel="nofollow" target="_blank">Rawan&nbsp;AlHeresh,&nbsp;PhD, OTR/L<sup>3</sup></a></span>
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                      <div class="meta-author-name"><sup>1</sup>Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston</div>
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                      <div class="meta-author-name"><sup>2</sup>Herbert Wertheim School of Public Health and Human Longevity, University of California, San Diego</div>
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                      <div class="meta-author-name"><sup>3</sup>Department of Occupational Therapy, School of Health and Rehabilitation Sciences, MGH Institute of Health Professions, Boston, Massachusetts</div>
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                <span class="meta-citation-journal-name">JAMA Netw Open. </span><span class="meta-citation"> 2021;4(3):e212543. doi:10.1001/jamanetworkopen.2021.2543</span>
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                        <div class="related-article-title sb-tc">Mental Health Symptoms Among Rohingya Refugees in Bangladesh</div>
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                          <div class="related-article-authors">Ahmed&nbsp;Hossain,&nbsp;PhD; Redwan Bin Abdul&nbsp;Baten,&nbsp;MPH; Zeeba Zahra&nbsp;Sultana,&nbsp;MPH; Taifur&nbsp;Rahman,&nbsp;MPH; Mirza Asif&nbsp;Adnan,&nbsp;MPH;
                            Moynul&nbsp;Hossain,&nbsp;MPH; Taifur Aziz&nbsp;Khan,&nbsp;MPH; Muzakkir Kamar&nbsp;Uddin,&nbsp;MPH</div>
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                  <p class="para"><span class="drop-cap">A</span>t the end of 2019, the United Nations (UN) Refugee Agency estimated that there were 26 million refugees worldwide—the highest number ever
                    seen.<sup><a href="#zic210031r1" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">1</a></sup> This growing exodus of refugees from their home countries is triggered by war, civil unrest, political violence,
                    and other humanitarian crises that fail to realize the human rights of millions of people worldwide. According to the UN Convention Relating to the Status of Refugees, refugees are people forced to flee their home country for fear
                    of persecution based on “race, religion, nationality, membership of a particular social group or political opinion.”<sup><a href="#zic210031r2" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">2</a></sup>
                  </p> <a class="article-section-id-anchor" id="247648830"></a>
                  <p class="para">Refugees experience cumulative trauma across their migration journey, including premigratory trauma in their home countries, trauma during their journey to safer areas, and postmigratory trauma involved in the
                    resettlement process. These experiences may involve exposure to violence, sexual assault or rape, human trafficking, unemployment, loneliness, and limited access to food and/or medical
                    care.<sup><a href="#zic210031r3" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">3</a></sup> Consequently, the prevalence of mental illness, including depression and posttraumatic stress disorder, in this
                    population is high, albeit a systematic review finding that studies reported large variations in mental illness among this population and calling for increased data on this growing and marginalized
                    population.<sup><a href="#zic210031r4" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">4</a></sup> Notably, studies focus predominantly on discrete aspects of the migration journey (premigratory, migration
                    journey, or postmigratory). The literature is lacking studies that link the continuum of experience. The study by Hossain and
                    colleagues<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> focusing on a large sample of Rohingya refugees fills this gap.</p>
                  <a class="article-section-id-anchor" id="247648831"></a>
                  <p class="para">The Rohingya are a distinct, mostly Muslim ethnic group in Myanmar, ethnically and linguistically distinct from the Burmese majority population. Nearly a quarter of a million Rohingya have been expelled from their
                    homes in Rakhine state, Myanmar, by the Myanmar security forces since August 2017 owing to renewed violence, including rape, murder, and arson. The UN has determined that Myanmar’s security forces showed genocidal intent, and some
                    countries have recognized the crimes committed against the Rohingya as constituting genocide.</p> <a class="article-section-id-anchor" id="247648832"></a>
                  <p class="para">Hossain and colleagues<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> interviewed 1184 Rohingya refugees from 8 refugee camps within Cox’s Bazar,
                    Bangladesh, currently the location of the world’s largest refugee camp. They found that almost half the refugees had severe posttraumatic stress symptoms (PTSSs), and almost one-fourth had probable PTSSs. More than 4 in 10
                    refugees in the sample reported receiving inadequate humanitarian aid for their families, among whom 57% reported severe PTSSs. Almost 12% of refugees experienced physical and sexual abuse before displacement in Myanmar; 64% of
                    these refugees had severe PTSSs.</p> <a class="article-section-id-anchor" id="247648833"></a>
                  <p class="para">The authors found that all types of abuse (verbal, physical, and sexual) were associated with PTSSs. Higher prevalence ratios of PTSSs were associated with increased age, higher rates of predisplacement abuse, less
                    self-reported humanitarian aid, and fewer paid employment opportunities. Stated differently, postmigratory experiences of access to appropriate humanitarian aid and paid employment opportunities reduced the risk of PTSSs. The
                    research approach undertaken by Hossain and colleagues,<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> associating premigratory and postmigratory realities, is
                    noteworthy given the existing literature gap.</p> <a class="article-section-id-anchor" id="247648834"></a>
                  <p class="para">As clinical and public health researchers with expertise in refugee health, we recognize that education, employment, and humanitarian aid represent critical pathways to improve the health of this marginalized
                    population. Opportunities for employment, education, and occupational engagement in meaningful and purposeful daily activities have been shown to reduce mental health symptoms in refugees and other marginalized
                    populations.<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup><sup>-<a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">7</a></sup>
                    From an intervention standpoint, these opportunities necessitate interdisciplinary collaboration within and outside of health care. For example, occupational therapists can address personal and contextual barriers to individual
                    engagement in meaningful livelihood activities, thereby improving mental health and quality of life.<sup><a href="#zic210031r8" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">8</a></sup> Social
                    entrepreneurs or business incubators can partner with refugee-serving agencies to provide employment opportunities that may otherwise be inaccessible to refugees. Advocates and policy makers can promote policy changes that
                    facilitate increased humanitarian aid or increased access to employment opportunities on resettlement.</p> <a class="article-section-id-anchor" id="247648835"></a>
                  <p class="para">Despite its many strengths, the article by Hossain and colleagues<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> must be considered in light of certain
                    limitations. A significant gap in refugee medicine is the lack of cross-cultural validation and accountability of measurement invariance, such that an instrument or questionnaire developed in English is measuring the same
                    construct in other linguistic or cultural groups. This study used the Impact of Event Scale–Revised to determine PTSSs. However, translating questionnaire items from one language to another does not address cultural irrelevancy,
                    potentially jeopardizing measurement precision. For example, emotional distress is explained as the “absence of peace” in the Rohingya
                    culture,<sup><a href="#zic210031r6" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">6</a></sup> but this concept is not measured in any of the mental health assessments used with Rohingya refugees, leaving
                    significant attributions out of the picture.</p> <a class="article-section-id-anchor" id="247648836"></a>
                  <p class="para">In addition, numerous studies aiming to screen and assess refugees’ mental health train their data collectors on consistency and ethics, with a negligible focus on trauma-informed care. Hossain and
                    colleagues<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> did not provide detailed information about how this training was done. However, they alluded to how the
                    training may have negatively affected their data collection (namely, that they combined physical and sexual abuse when they found that Rohingya women were reluctant to respond to questions about sexual abuse as an individual
                    option on the questionnaires). Building awareness about and implementing trauma-informed refugee research approaches are necessary to avoid retraumatization of refugees and prevent vicarious trauma among data collectors. The
                    roadmap to promoting an evidence base for refugee health must include trauma-informed research approaches.</p> <a class="article-section-id-anchor" id="247648837"></a>
                  <p class="para">Last, refugees who live in camps make up about 20% of the entire refugee population. This study should be replicated in other refugee populations to better understand the association of premigratory, migration
                    journey, and postmigratory trauma with mental health outcomes across diverse refugee populations. For medical and public health practitioners motivated to address the needs of refugee populations, the study by Hossain and
                    colleagues<sup><a href="#zic210031r5" class="ref-link section-jump-link" data-tab-toggle=".tab-nav-references">5</a></sup> can serve as an important starting point toward policy development and programmatic implementation. In this
                    way, postmigration social factors, such as humanitarian aid or employment opportunities, are not passive circumstances to which refugees are exposed but circumstances borne out of refugee agencies’ and host countries’ operational
                    policy decisions.</p> <a class="article-section-id-anchor" id="247648838"></a>
                  <p class="para">Ultimately, we need a robust evidence base paired with carefully planned multidisciplinary programming to effectively and holistically meet the mental health needs of the growing refugee population. This begins with
                    elucidating the nature and effect of premigratory trauma with postmigration social factors using rigorous research studies so that multidisciplinary collaborators, policy makers, and advocates alike can effectively improve refugee
                    populations’ health.</p> <a class="article-section-id-anchor" id="247648839"></a>
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                    <div class="heading-text thm-col sb-sc"> Article Information </div>
                  </div>
                  <p class="parapublished-online"><strong>Published:</strong> March 16, 2021. doi:10.1001/jamanetworkopen.2021.2543</p>
                  <p class="paraopen-access-note"><strong>Open Access:</strong> This is an open access article distributed under the terms of the <a href="https://jamanetwork.com/pages/cc-by-license-permissions">CC-BY License</a>. © 2021 Saadi A et
                    al. <i>JAMA Network Open</i>.</p>
                  <p class="authorInfoSection"><strong>Corresponding Author:</strong> Altaf Saadi, MD, MSc, Department of Neurology, Massachusetts General Hospital, 55 Fruit St, Boston, MA 02114
                    (<a href="mailto:asaadi@mgh.harvard.edu" target="_blank">asaadi@mgh.harvard.edu</a>).</p>
                  <p class="parafinancial-disclosure"><strong>Conflict of Interest Disclosures:</strong> None reported.</p> <a class="article-section-id-anchor" id="247648840"></a>
                  <div class="h3 cb section-type-references  ">
                    <div class="heading-text thm-col sb-sc">
                      <div class="references">References</div>
                    </div>
                  </div>
                  <div class="references">
                    <div class="reference"><a class="reference-number" id="zic210031r1">1.</a>
                      <div class="reference-content">UNHCR. Refugee data finder. Accessed January 30, 2021. <a href="https://www.unhcr.org/refugee-statistics/">https://www.unhcr.org/refugee-statistics/</a></div>
                    </div>
                    <div class="reference"><a class="reference-number" id="zic210031r2">2.</a>
                      <div class="reference-content">UNHCR. Convention and protocol relating to the status of refugees. Accessed February 11, 2021. <a href="https://www.unhcr.org/3b66c2aa10.html">https://www.unhcr.org/3b66c2aa10.html</a></div>
                    </div>
                    <div class="reference"><a class="reference-number" id="zic210031r3">3.</a>
                      <div class="reference-content">Steel &nbsp;Z, Chey &nbsp;T, Silove &nbsp;D, Marnane &nbsp;C, Bryant &nbsp;RA, van Ommeren &nbsp;M. &nbsp;Association of torture and other potentially traumatic events with mental health
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                        doi:<a href="http://jamanetwork.com/article.aspx?doi=10.1001/jama.2009.1132">10.1001/jama.2009.1132</a>
                        <br><a href="https://jamanetwork.com/journals/jama/fullarticle/184348" class="jn-article-link">Article</a><a class="pubmed-link" href="https://www.ncbi.nlm.nih.gov/pubmed/19654388" target="_blank" xmlns:helper="urn:XsltStringHelper">PubMed</a><a class="google-scholar-ref-link" href="https://scholar.google.com/scholar_lookup?title=Association%20of%20torture%20and%20other%20potentially%20traumatic%20events%20with%20mental%20health%20outcomes%20among%20populations%20exposed%20to%20mass%20conflict%20and%20displacement%3A%20a%20systematic%20review%20and%20meta-analysis.&amp;author=Z%20Steel&amp;author=T%20Chey&amp;author=D%20Silove&amp;author=C%20Marnane&amp;author=RA%20Bryant&amp;author=M%20van Ommeren&amp;publication_year=2009&amp;journal=JAMA&amp;volume=302&amp;pages=537-549" target="_blank" xmlns:helper="urn:XsltStringHelper">Google Scholar</a><a href="https://doi.org/10.1001/jama.2009.1132" class="crossref-doi" target="_blank" xmlns:helper="urn:XsltStringHelper">Crossref</a>
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 * Lay-Led Intervention for War and Refugee Trauma
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Invited Commentary
Public Health
March 16, 2021


REFUGEE MENTAL HEALTH—AN URGENT CALL FOR RESEARCH AND ACTION

Altaf Saadi, MD, MSc1; Tala Al-Rousan, MD, MPH2; Rawan AlHeresh, PhD, OTR/L3
Author Affiliations Article Information
 * 1Department of Neurology, Massachusetts General Hospital, Harvard Medical
   School, Boston
 * 2Herbert Wertheim School of Public Health and Human Longevity, University of
   California, San Diego
 * 3Department of Occupational Therapy, School of Health and Rehabilitation
   Sciences, MGH Institute of Health Professions, Boston, Massachusetts

JAMA Netw Open. 2021;4(3):e212543. doi:10.1001/jamanetworkopen.2021.2543

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 * Original Investigation
   Mental Health Symptoms Among Rohingya Refugees in Bangladesh
   Ahmed Hossain, PhD; Redwan Bin Abdul Baten, MPH; Zeeba Zahra Sultana, MPH;
   Taifur Rahman, MPH; Mirza Asif Adnan, MPH; Moynul Hossain, MPH; Taifur
   Aziz Khan, MPH; Muzakkir Kamar Uddin, MPH
   JAMA Network Open






At the end of 2019, the United Nations (UN) Refugee Agency estimated that there
were 26 million refugees worldwide—the highest number ever seen.1 This growing
exodus of refugees from their home countries is triggered by war, civil unrest,
political violence, and other humanitarian crises that fail to realize the human
rights of millions of people worldwide. According to the UN Convention Relating
to the Status of Refugees, refugees are people forced to flee their home country
for fear of persecution based on “race, religion, nationality, membership of a
particular social group or political opinion.”2

Refugees experience cumulative trauma across their migration journey, including
premigratory trauma in their home countries, trauma during their journey to
safer areas, and postmigratory trauma involved in the resettlement process.
These experiences may involve exposure to violence, sexual assault or rape,
human trafficking, unemployment, loneliness, and limited access to food and/or
medical care.3 Consequently, the prevalence of mental illness, including
depression and posttraumatic stress disorder, in this population is high, albeit
a systematic review finding that studies reported large variations in mental
illness among this population and calling for increased data on this growing and
marginalized population.4 Notably, studies focus predominantly on discrete
aspects of the migration journey (premigratory, migration journey, or
postmigratory). The literature is lacking studies that link the continuum of
experience. The study by Hossain and colleagues5 focusing on a large sample of
Rohingya refugees fills this gap.

The Rohingya are a distinct, mostly Muslim ethnic group in Myanmar, ethnically
and linguistically distinct from the Burmese majority population. Nearly a
quarter of a million Rohingya have been expelled from their homes in Rakhine
state, Myanmar, by the Myanmar security forces since August 2017 owing to
renewed violence, including rape, murder, and arson. The UN has determined that
Myanmar’s security forces showed genocidal intent, and some countries have
recognized the crimes committed against the Rohingya as constituting genocide.

Hossain and colleagues5 interviewed 1184 Rohingya refugees from 8 refugee camps
within Cox’s Bazar, Bangladesh, currently the location of the world’s largest
refugee camp. They found that almost half the refugees had severe posttraumatic
stress symptoms (PTSSs), and almost one-fourth had probable PTSSs. More than 4
in 10 refugees in the sample reported receiving inadequate humanitarian aid for
their families, among whom 57% reported severe PTSSs. Almost 12% of refugees
experienced physical and sexual abuse before displacement in Myanmar; 64% of
these refugees had severe PTSSs.

The authors found that all types of abuse (verbal, physical, and sexual) were
associated with PTSSs. Higher prevalence ratios of PTSSs were associated with
increased age, higher rates of predisplacement abuse, less self-reported
humanitarian aid, and fewer paid employment opportunities. Stated differently,
postmigratory experiences of access to appropriate humanitarian aid and paid
employment opportunities reduced the risk of PTSSs. The research approach
undertaken by Hossain and colleagues,5 associating premigratory and
postmigratory realities, is noteworthy given the existing literature gap.

As clinical and public health researchers with expertise in refugee health, we
recognize that education, employment, and humanitarian aid represent critical
pathways to improve the health of this marginalized population. Opportunities
for employment, education, and occupational engagement in meaningful and
purposeful daily activities have been shown to reduce mental health symptoms in
refugees and other marginalized populations.5-7 From an intervention standpoint,
these opportunities necessitate interdisciplinary collaboration within and
outside of health care. For example, occupational therapists can address
personal and contextual barriers to individual engagement in meaningful
livelihood activities, thereby improving mental health and quality of life.8
Social entrepreneurs or business incubators can partner with refugee-serving
agencies to provide employment opportunities that may otherwise be inaccessible
to refugees. Advocates and policy makers can promote policy changes that
facilitate increased humanitarian aid or increased access to employment
opportunities on resettlement.

Despite its many strengths, the article by Hossain and colleagues5 must be
considered in light of certain limitations. A significant gap in refugee
medicine is the lack of cross-cultural validation and accountability of
measurement invariance, such that an instrument or questionnaire developed in
English is measuring the same construct in other linguistic or cultural groups.
This study used the Impact of Event Scale–Revised to determine PTSSs. However,
translating questionnaire items from one language to another does not address
cultural irrelevancy, potentially jeopardizing measurement precision. For
example, emotional distress is explained as the “absence of peace” in the
Rohingya culture,6 but this concept is not measured in any of the mental health
assessments used with Rohingya refugees, leaving significant attributions out of
the picture.

In addition, numerous studies aiming to screen and assess refugees’ mental
health train their data collectors on consistency and ethics, with a negligible
focus on trauma-informed care. Hossain and colleagues5 did not provide detailed
information about how this training was done. However, they alluded to how the
training may have negatively affected their data collection (namely, that they
combined physical and sexual abuse when they found that Rohingya women were
reluctant to respond to questions about sexual abuse as an individual option on
the questionnaires). Building awareness about and implementing trauma-informed
refugee research approaches are necessary to avoid retraumatization of refugees
and prevent vicarious trauma among data collectors. The roadmap to promoting an
evidence base for refugee health must include trauma-informed research
approaches.

Last, refugees who live in camps make up about 20% of the entire refugee
population. This study should be replicated in other refugee populations to
better understand the association of premigratory, migration journey, and
postmigratory trauma with mental health outcomes across diverse refugee
populations. For medical and public health practitioners motivated to address
the needs of refugee populations, the study by Hossain and colleagues5 can serve
as an important starting point toward policy development and programmatic
implementation. In this way, postmigration social factors, such as humanitarian
aid or employment opportunities, are not passive circumstances to which refugees
are exposed but circumstances borne out of refugee agencies’ and host countries’
operational policy decisions.

Ultimately, we need a robust evidence base paired with carefully planned
multidisciplinary programming to effectively and holistically meet the mental
health needs of the growing refugee population. This begins with elucidating the
nature and effect of premigratory trauma with postmigration social factors using
rigorous research studies so that multidisciplinary collaborators, policy
makers, and advocates alike can effectively improve refugee populations’ health.


Back to top
Article Information

Published: March 16, 2021. doi:10.1001/jamanetworkopen.2021.2543

Open Access: This is an open access article distributed under the terms of the
CC-BY License. © 2021 Saadi A et al. JAMA Network Open.

Corresponding Author: Altaf Saadi, MD, MSc, Department of Neurology,
Massachusetts General Hospital, 55 Fruit St, Boston, MA 02114
(asaadi@mgh.harvard.edu).

Conflict of Interest Disclosures: None reported.

References
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UNHCR. Refugee data finder. Accessed January 30, 2021.
https://www.unhcr.org/refugee-statistics/
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UNHCR. Convention and protocol relating to the status of refugees. Accessed
February 11, 2021. https://www.unhcr.org/3b66c2aa10.html
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Steel  Z, Chey  T, Silove  D, Marnane  C, Bryant  RA, van Ommeren  M.
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health outcomes among populations exposed to mass conflict and displacement: a
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migration among Rohingya refugees in Bangladesh.  JAMA Netw Open.
2021;4(3):e211801. doi:10.1001/jamanetworkopen.2021.1801
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Tay  AK, Riley  A, Islam  R,  et al.  The culture, mental health and
psychosocial wellbeing of Rohingya refugees: a systematic review.   Epidemiol
Psychiatr Sci. 2019;28(5):489-494. doi:10.1017/S2045796019000192 PubMedGoogle
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Al-Rousan  T, Fredricks  K, Chaudhury  S, Albezreh  S, Alhokair  A, Nelson
 BD.  Improving peace and well-being among Syrian refugee youth through a
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doi:10.1080/13623699.2018.1518748 PubMedGoogle ScholarCrossref
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Swarbrick  M, Noyes  S.  Effectiveness of Occupational Therapy Services in
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Saadi A, Al-Rousan T, AlHeresh R. Refugee Mental Health—An Urgent Call for
Research and Action. JAMA Netw Open. 2021;4(3):e212543.
doi:10.1001/jamanetworkopen.2021.2543

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