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Effective URL: https://www.angelman.org/
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▼ opener * Walk * Contact Registry * News * Blog Search for: DOnate * What is Angelman Syndrome * Symptoms and Causes * Testing and Diagnosis * Genetics of AS * Photo Gallery * For Parents * Newly Diagnosed * Accomplishments of Individuals * Participate in Research Studies * Angelman Therapeutics * Research * ASF Funded Research * Call for Proposals * Clinical Trials * Research Studies * LADDER * Research Funding Philosophy * Make an Impact * ASF Cure Club * Ways To Donate * Fundraise * Committees & Groups * Send Encouragement * Shop & Support ASF * Volunteer Opportunities * Clinics * Find a Clinic * Clinic Patient Survey * For Clinicians * Jacob Pritzker Fellowship Program * FAQs * Resources * Search by Topic * Adult Resources * ASF Family Resource Team * ASF Family Fund * ASF Family Champions * Angelman Syndrome A to Z * ASF Podcast * Behavior Resources * Communication Resources * Counseling Services * Educational Webinars * Federal Resources * IEP Resources * International AS Resources * Medical Resources * Medical & Social Referrals * Seizures * Sibling Programs * State Resources * Events * ASF Walk * Conferences and Symposia * Bank of America Chicago Marathon * All Events * About * Contact ASF * Contact Registry * Our Partners * Board of Directors * Communication Advisory Committee * Financial Transparency * History of ASF and Angelman Syndrome * Medical Advisory Board * Parent Advisory Committee * Scientific Advisory Committee * Receive Texts & Emails * Privacy WITH YOU FOR THE JOURNEY FAMILIES. RESEARCH. CLINICS. COMMUNITIES. Support Resilience Now ASF WALK WE’RE CELEBRATING THE 25TH ANNIVERSARY OF THE ASF WALK The ASF Walk has raised $19.5 million since 1999. Those funds have made an enormous impact on the lives of those impacted by Angelman syndrome. Join us to celebrate the trail blazers in the AS community who started a ripple of impact. We will raise funds to support the ASF mission and have a great time doing it. * NEWLY DIAGNOSED Received a diagnosis and wondering, what now? WHAT TO DO * ASF CLINICS Specialized healthcare by experts who understand Angelman syndrome. FIND A CLINIC * ASF-FUNDED RESEARCH ASF funded research advance our understanding of AS and increase the potential for treatment & therapeutics. FIND OUT MORE * ANGELMAN RESOURCES The largest offering of help and resources for those impacted by AS. learn more * GOFUND WINGS Want to host a fundraiser? Looking for a current fundraiser to support? Find out more * JOIN THE CURE CLUB A special group of monthly donors dedicated to finding a cure. Learn more WHAT IS ANGELMAN SYNDROME AND THE ANGELMAN SYNDROME FOUNDATION? Watch TESTIMONIALS * Since her diagnosis, we have relied on the Angelman Syndrome Foundation as a source of information and support. David and Jessica Garrick * The Angelman Syndrome Clinic at MGH is a blessing for my adult child. Now we have somebody who really understands our needs. Anonymous * Amazing things have happened because of the ASF-funded LGIT study from Boston’s MassGeneral Hospital. It was the beginning of a new era for treatments for our children with AS. Sybille Kraft Bellamy * dot * dot * dot IN THE NEWS Latest press releases, articles and announcements March 7, 2024 FAMILY ADVOCATES URGE CONGRESS’ SUPPORT DURING INAUGURAL ANGELMAN SYNDROME (AS) CONGRESSIONAL ADVOCACY DAY Washington D.C., – The Angelman Syndrome Foundation (ASF) and the Foundation for Angelman Syndrome Therapeutics (FAST) are hosting the inaugural Angelman Syndrome (AS) Congressional Advocacy Day in Washington, D.C. Angelman syndrome advocates from all corners of the country will head […] Read more January 13, 2024 ANGELMAN CLINIC OPENS AT CEDARS-SINAI GUERIN CHILDREN’S The Angelman Syndrome Foundation is proud to announce a new collaboration with Cedars-Sinai Guerin Children’s to launch a new clinic for patients with Angelman syndrome, a rare neuro-genetic disorder. The clinic is led by Cesar Ochoa-Lubinoff, MD, MPH, director of […] Read more October 13, 2023 ANGELMAN CLINIC OPENS AT CHILDREN’S HOSPITAL OF PHILADELPHIA (CHOP) The Angelman Syndrome Foundation and the Dup15q Alliance are proud to announce plans to launch a new clinic at Children’s Hospital of Philadelphia (CHOP) to better serve the Angelman and Dup15q communities. “We are excited to join other Angelman and […] Read more October 11, 2023 ASF AND .PROT PARTNER TO LAUNCH NEW ANGELMAN CENTER FOR FAMILIES IN POLAND On September 23, The Angelman Center brought together around 50 Families at the First National Gathering of families with Angelman syndrome (I Ogólnopolski Zlot Aniołków). The meeting was organized by the families from the Angelman Syndrome Project (Projekt Zespół Angelmana). […] Read more OUR ASF WALK SPONSORS! * * * * * * * ALL SPONSORS BROWSE * What is Angelman Syndrome * For Parents * ASF Funded Research * Make an Impact * Events * About * Angelman Resources & Education * Contact Registry * News Address Angelman Syndrome Foundation 3015 E. New York Street Suite A2 #285 Aurora, IL 60504 Phone800.432.6435 Emailinfo@angelman.org CONNECT * facebook * twitter * linkedin * instagram * pinterest * rss * youtube THE MISSION The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure. * * * * Copyright © 2024 Angelman Syndrome Foundation. 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