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https://butyoudontlooksick.com/

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MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY!

May 11, 2016 | christine | Featured, Spoon Lady Speaks | 42 Comments



In addition to my lupus, I also have fibromyalgia. One of my best friends was
recently diagnosed with it as well. I love her. I feel that although pain and
fibro is something I know a bit about, I can not help her acceptance of this
diagnosis. I have seen her in pain both emotionally and physically.

[ read more ]

TAGS: awareness, fibro, fibromyalgia, may 12, spoonie




PLEASE DON’T ASK MY DAD ABOUT LUPUS! THE ANSWER MIGHT INVOLVE JELLO.

May 10, 2016 | christine | Articles, Featured, Personal Essays | 11 Comments



If you ask my dad about Lupus he will give you a very seemingly odd answer.  He
will always say “Getting a grip on Lupus is like trying to tie up Jello with a
string” Most people laugh, look confused, or even attempt to think of how one
would even begin to tie up Jello with a string.  It's one

[ read more ]

TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle




MAY 10TH IS LUPUS AWARENESS DAY! HAVE YOU LOVED SOMEONE WITH LUPUS LATELY?

May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments



Wear orange or purple, send friends your favorite awareness websites (bydls.com
? lol) to educate, read, ask your friends to read some lupus facts, make your
status a lupus support or awareness message, blog about lupus, blog about your
friends with lupus, Do something nice for a person living with

[ read more ]

TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie





PLEASE DON’T ASK MY DAD ABOUT LUPUS! THE ANSWER MIGHT INVOLVE JELLO.

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He
will always say “Getting a grip on Lupus is like trying to tie up Jello with a
string” Most people laugh, look confused, or even attempt to think of how one
would even begin to tie up Jello with a string.  It's one

[ read more ]




WIGS, HATS, AND MAKE UP… OH MY! TRYING TO LOOK BETTER, WHEN YOU FEEL BAD.

We have all heard the dreaded saying "But you don't look sick?" But the last
thing we want to do is walk around looking like death 24/7. It is true that when
you look better you feel better, but there is a fine balance between spending
tons of hours putting on full face make up, hair done, and full

[ read more ]




NIMBLE: GOOD THINGS COME IN SMALL PACKAGES, ESPECIALLY WHEN THEY HELP YOU OPEN
BIG PACKAGES!

The old saying goes that "good things come in small packages." But when you are
like me, and are best friends with the UPS delivery man; good things can come in
all size packages. As someone who is chronically ill, living with lupus,
fibromyalgia and a collage of other chronic illnesses; I have lear

[ read more ]




CHRISTINE IS ON TWITTER @BYDLS AND IF YOU USE THE HASHTAG #SPOONIE YOU CAN
CONNECT WITH OVER 11,200 FOLLOWERS!

  There is a amazing growing community of our readers who have been using
twitter to connect by using the hashtag #spoonie at the end of every post. These
people are all fans of butyoudontlooksick.com and are all somehow connected to
"The spoon theory".  I personally (Christine) use t

[ read more ]





WE HAVE REACHED OVER 135,000 LIKES ON OUR FACEBOOK PAGE! COME JOIN OUR #SPOONIE
COMMUNITY!

    WHoooo HHhhoooo!!!  Do a happy Dance! We have reached OVER 135,000 fans/
likes on our ButYouDontLookSick.com facebook fanpage! Thank you to all our
readers, friends, and "spoonies" for making every part of our online community
as supportive as it is. You guys are amazing!

[ read more ]




LOOK OUT WORLD… I’M BACK IN THE SADDLE AGAIN!

A few years ago I got thrown from my horse. OK, who am I kidding? I am a
Brooklyn girl at heart, no horses for me. But literally I felt like I had, if
not been thrown from my horse, I was certainly thrown off my game. Life kept
throwing me obstacles and I found it harder and harder to get around the

[ read more ]





HOW DO YOU DESCRIBE YOUR PAIN? NUMBERS ON PAIN SCALE, ADJECTIVES, SILLY WEIRD
PAIN FACES.

I hear it all the time from doctors and nurses: "Tell me your pain on a scale
from 1 to 10". I always cringe at the thought of summarizing my pain and fatigue
down to a number. I also get scared at the thought that I have never felt below
a 4 or 5. How can every patient from a broken leg, to a chemo

[ read more ]





WHAT IS THE PERFECT GIFT TO GIVE, WHEN YOU WANT TO GIVE THE MOST MEMORABLE GIFT?

My father turned 66 this summer and I decided to get him a gift that was both
unique and memorable. He has a great interest in family history and saved some
mementos from his mother’s estate. In an old worn out shipping box in the
basement I found a small reel of old fashioned video film: the kind

[ read more ]




I AM SICK, NOT STUPID.

Many years ago I heard a joke that was going around and it went like this. A guy
was going home from the auto mechanic and just as he was passing a psychiatric
center, a wheel fell off his car. He stopped, surveyed the situation and
realized that the mechanic must have been distracted and never p

[ read more ]




PAINSOMNIA – TICK TOCK, TICK TOCK, THE CLOCK KEEPS MOVING…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t
sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t
talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying
to work things out but still I AM AWAKE. Some

[ read more ]






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SPOON LADY SPEAKS

MAY 12 IS INTERNATIONAL FIBROMYALGIA AWARENESS DAY!

In addition to my lupus, I also have fibromyalgia. One of my best friends was
recently diagnosed with it as well. I love her. I feel that although pain and
fibro is something I know a bit about, I can not help her acceptance of this
diagnosis. I have seen ...

More: May 12 is International Fibromyalgia Awareness Day!

MAY 10TH IS LUPUS AWARENESS DAY! HAVE YOU LOVED SOMEONE WITH LUPUS LATELY?

Wear orange or purple, send friends your favorite awareness websites (bydls.com
? lol) to educate, read, ask your friends to read some lupus facts, make your
status a lupus support or awareness message, blog about lupus, blog about your
friends with lupus, Do something nice for a person living with ...

More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?

AFTER SAYING HELLO TO MY GUESTS, I SAY #HELLOKEURIG AND FEEL LIKE THE PERFECT
HOST

Don’t Be Afraid of the Paper Directions! So much paper packing In the box and
such a thick instruction book. All those languages, I only speak English. I have
to guess you are trying to hide the best secret in the world: that the new 550
is EASY to use. I ...

More: After saying hello to my guests, I say #hellokeurig and feel like the
perfect host

I MADE A HEALTHY LITTLE SWITCH TO MUSSELMAN'S APPLESAUCE. SMALL DIET CHANGES CAN
MAKE A BIG DIFFERENCE.

How lucky is this? In the mail today, I received a free sample of Musselman’s
Apple Sauce, just when I made a commitment to lose weight last week. The great
god of internet says I can snack on ½ cup of unsweetened apple sauce for 2
points but with a ...

More: I made a healthy little switch to Musselman's Applesauce. Small diet
changes can make a big difference.




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