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THIS IS NOT JUST FATIGUE

Myalgic Encephalomeyelitis, a disease commonly known as “Chronic Fatigue
Syndrome” or “ME/CFS”, is a severely debilitating physiological illness. Of
those suffering, 75% are unable to attend school or work, and 25% are completely
homebound or bedbound with a quality of life comparable to that of congestive
heart failure and cancer. Yet, there are no FDA approved treatments, biomarkers,
or diagnostic tests. And in fact, as many as 45% of the Long Covid community fit
the case definition for ME/CFS.

The purpose of this website is to help us understand—the shameful history of
neglect, the crippling reality of the condition, and what we can and must do to
help.


THERE ARE MORE THAN 60 REPORTED SYMPTOMS. FATIGUE IS JUST ONE.



WATCH THE TRAILER


WATCH THE FULL FILM

UNDERSTANDING ME/CFS

 * Past
 * Present
 * Future


THIS STORY ISN’T OVER.

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Present
Future
Home
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About #NOTJUSTFATIGUE
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GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats
using science and data

NIH

The National Institute of Health aims to discover new information that will
result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private
organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety,
and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a
randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food,
drugs, cosmetics, animal food, dietary supplements, medical devices, biological
goods, and blood products