www.fshfriends.org Open in urlscan Pro
162.215.248.89  Public Scan

Form analysis
1 forms found in the DOM

Name: mc-embedded-subscribe-form — POST https://fshfriends.us7.list-manage.com/subscribe/post?u=311239d37539763f9f5e63361&id=6b5183e93a

<form action="https://fshfriends.us7.list-manage.com/subscribe/post?u=311239d37539763f9f5e63361&amp;id=6b5183e93a" method="post" id="mc-embedded-subscribe-form" name="mc-embedded-subscribe-form" class="validate" target="_blank"
  novalidate="novalidate">
  <div class="indicates-required"><span class="asterisk">*</span> indicates required</div>
  <div class="mc-field-group">
    <label style="width:auto;" for="mce-EMAIL">Email Address <span class="asterisk">*</span></label>
    <input type="email" value="" name="EMAIL" class="required email" id="mce-EMAIL" autocomplete="email" aria-required="true">
  </div>
  <div class="mc-field-group">
    <label style="width:auto;" for="mce-FNAME">First Name </label>
    <input type="text" value="" name="FNAME" class="" id="mce-FNAME" autocomplete="given-name">
  </div>
  <div class="mc-field-group">
    <label style="width:auto;" for="mce-LNAME">Last Name </label>
    <input type="text" value="" name="LNAME" class="" id="mce-LNAME" autocomplete="family-name">
  </div>
  <div class="mc-field-group">
    <label style="width:auto;" for="mce-MMERGE3">How you heard about us </label>
    <input type="text" value="" name="MMERGE3" class="" id="mce-MMERGE3">
  </div>
  <div id="mce-responses" class="clear">
    <div class="response" id="mce-error-response" style="display:none"></div>
    <div class="response" id="mce-success-response" style="display:none"></div>
  </div> <!-- real people should not fill this in and expect good things - do not remove this or risk form bot signups-->
  <div style="position: absolute; left: -5000px;" aria-hidden="true"><input type="text" name="b_311239d37539763f9f5e63361_6b5183e93a" tabindex="-1" value=""></div>
  <div class="clear"><input type="submit" value="Subscribe" name="subscribe" id="mc-embedded-subscribe" class="button"></div>
</form>

Text Content

 * Home
 * About Us
 * FSHD Facts
 * Research Progress
 * Grant Resources
 * Events
 * Ways to Give
 * News


JOIN OUR CIRCLE OF FRIENDS

RECEIVE UPDATES ABOUT OUR RESEARCH AND EVENTS

* indicates required
Email Address *
First Name
Last Name
How you heard about us





CONNECT WITH US ON SOCIAL MEDIA

   

 

 

 * 
 * Home
 * About Us
   * Our Mission
   * Free FSHD Testing
   * Board of Directors
   * Scientific Advisory Board
   * Our Impact & Finances
 * FSHD Facts
 * Research Progress
   * Researcher Profiles
   * Project Grants
   * Funding Partners
   * Research Institutes
   * Ask the Expert
   * Newsletter Archive
 * Grant Resources
   * Scope of Research
   * Types of Grants
   * Apply for a Grant
   * FSHD Research Scholar
   * Resources
 * Events
   * Auction 2025
   * Complete Item List
   * Corporate Opportunities
   * Auction Forms
   * Auction History
   * Sponsors & Donors
   * Shop & Support Research
 * Ways to Give
   * Donate Auction Items
   * Volunteer
   * Corporate Opportunities
   * Stocks and Securities
   * Connect
   * Financial Donations
   * Stuff For You
 * News




ACCELERATING RESEARCH SINCE 2004

The mission of Friends of FSH Research is to accelerate the discoveries that
will lead to treatments or cures for FSHD. To achieve our goal, we actively
manage a portfolio of research that supports a pipeline for drug discovery. Our
board, staff, volunteers, and world-class scientists are fully committed to
transparent, reproducible, and transformative science that will inspire hope for
people with FSHD. Learn more >>



LATEST NEWS

Update: Motor Outcomes to Validate Evaluations in FSHD
Aug 4, 2024
MOVE FSHD study update.
Progress Update: Flex fund for clinical study participant reimbursement
Jul 11, 2024
Patient study update by Dr. Kyba after a Covid hiatus.
Progress Update: Consequence of human satellite II repeat expression in FSHD
Jun 27, 2024
Findings indicate selective interactions of RNA binding proteins with HSATII
RNA, which may impact mRNA processing pathways downstream of DUX4 expression;
and that HSATII RNA structure dictates protein recruitment.
World FSHD Day - Interview with Rick & Terry
Jun 20, 2024
FSHD Straight Talk: 2024 World FSHD Special!
Report: Molecular Markers of FSHD
May 30, 2024
First year progress.
Report: Kennedy Krieger Institute Data-Lake Expansion
May 18, 2024
The progress report highlights advancements in constructing an MRI data-lake for
studying Facioscapulohumeral Muscular Dystrophy (FSHD) using AI segmentation
techniques.


OVER $8.3 MILLION
FUNDED TO DATE,
ATTRACTING MILLIONS MORE
TO FSHD RESEARCH

Check Out Your Impact >>

 

Friends is proud to help support free FSHD testing for individuals at
myfshd.org


 


CURRENT FSHD STUDIES WORLDWIDE

See listings at:
ClinicalTrials.gov
Please consider participating.

 

"Hopefully one day FSHD will be stopped in its tracks. I know that there is
still a long road ahead, with many milestones to pass but the journey isn’t
quite so scary knowing that I am not alone and that there are those willing to
keep pushing ahead, guiding the way until we find the key to unlock that final
door."

- T. Pilato

 

Our vision: One day the diagnosis of FSH Muscular Dystrophy will be followed by
"...there is a treatment."





Review This Charity on
Great Nonprofits

Read reviews about
Friends of FSH Research

Copyright (c) 2010- - Friends of FSH Research. All Rights Reserved. Privacy
Statement. Terms of Use.


Tel:

EIN 86-1108537



 
 
 
 
 
 
 


--------------------------------------------------------------------------------

--------------------------------------------------------------------------------

© 2024 Friends of FSH Research   Sign In to Edit this Site