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Get Involved
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News
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A STATE-OF-THE-ART RESIDENTIAL CENTER FOR PEOPLE WITH PRADER-WILLI SYNDROME

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OUR VISION:

 

To ensure people with Prader-Willi syndrome have the support of family, friends
and community to experience the best quality of life possible.


OUR MISSION:

To establish and maintain homes that serve people who have Prader-Willi syndrome
and other individuals with developmental disabilities who have similar service
needs, to provide support services to these individuals and their families, and
to educate the public about Prader-Willi syndrome.

 


HOUSING

Individuals with PWS suffer cognitive and physical challenges that are unique,
complex, and life-threatening. As a result, people with PWS are unable to live
independently, and all require 24-hour residential care in specially designed
homes with a highly trained staff.

PWHC currently is raising funds to buy, refurbish, and staff the first such PWS
home in the San Francisco Bay Area.


SUPPORT

A PWS home is only as good as the people who staff and support that home. While
providing a residence to individuals with PWS is a primary goal, PWHC also acts
as a nexus for residential PWS information and training through our expertise
and contacts with some of the foremost experts on PWS in the world.

PWHC constantly is recruiting PWS experts from around the globe to join our team
of residential advisers and trainers.


FAMILIES

We partner with PWS families to help explore housing options for their loved
ones. These collaborations include helping families navigate state and local
systems to find residences and staff that best support individuals with PWS.

PWHC currently has a group of families eager to place their loved ones with PWS
at our flagship home. We welcome additional families to join us as we establish
this first home and others like it down the line.


STORIES

Meet some of the people who inspire our work.


RICHARD DE LONE

When Richie was born in January of 1998 he was 6 weeks premature. All during the
pregnancy he barely moved in the womb, and at first even the OBGYN didn’t think
that his Mom was pregnant.

Continue reading…


JULIA LINDSTROM

Julia was born in 1985 by a traumatic Caesarian delivery. She was a healthy size
of 8lbs 1oz, and to me she was beautiful. After her birth she exhibited weak
sucking muscles, and had trouble nursing or taking a bottle, but she was able to
go home after spending just a few days under observation.

Continue reading…


JULIETTE ANDERSON

Our second daughter, Juliette Rita, was born in October 2001. It was a very
difficult birth ending in Caesarean section. Her Apgar was 6. She was like a rag
doll. Floppy baby syndrome it was called. The doctors told us they were at a
complete loss as to why she presented this way. Will she be able to walk? I
asked. We do not know they said. I broke down. The first of many times I’ve done
so.

Continue Reading…


ANNIKA STEINHART

After the intercom alert, the squeak of shoes, and the man’s anguished screams,
the psych ward fell silent.  I lay in a chair-bed combo in a small exam room, my
eyes fixed on the door.  The handle had no lock, and the slit of a window
afforded a clear sightline out of the room - and into it.

Continue reading…

 


LATEST NEWS

The latest updates from PWHC.



PRADER-WILLI HOMES OF CALIFORNIA

P.O. Box 1410
Mill Valley, CA 94942-1410

info@praderwillihomes.org

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