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Hannah’s Hope FundEmpire Admin2023-11-27T19:46:12+00:00

Please generously support our unique global mission to develop therapies for
Giant Axonal Neuropathy (GAN) by donating today.

“Have hope! Live for today without fear of tomorrow. Know that we are working
tirelessly to provide a wonderful tomorrow for all suffering with GAN.”

Donate Now

WHAT IS GAN?



Giant Axonal Neuropathy (GAN) is a recessively inherited condition that results
in progressive nerve death. Giant axonal neuropathy generally appears in early
childhood. It progresses slowly as neuronal injury becomes more severe.
Extremely kinky hair (as compared to others in the family) is characteristic of
giant axonal neuropathy, but not all confirmed GAN cases have kinky hair.

Learn More




NEWLY DIAGNOSED WITH GAN?



You are not alone! Hannah’s Hope Fund, this website, and the tribe we’ve created
are dedicated to connecting families of GAN patients. Together we hold hope for
the eventual cure of Giant Axonal Neuropathy (GAN).


LOOKING FOR INFORMATION ON CARING FOR A GAN PATIENT?



The parents of children with Giant Axonal Neuropathy (GAN) have compiled an
extensive list of situations we’ve encountered. We hope you find the information
helpful in the care of patients suffering from GAN.

Get More Info




SCIENTIFIC ADVANCEMENT FOR GAN



In 2016, HHF successfully launched a first-in-human gene therapy! This was made
possible only by the thousands of people supporting Hannah’s Hope Fund!


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”TOGETHER WE CAN ACHIEVE ANYTHING”




WHERE IS GAN?



Learn More




WHAT IS HANNAH’S HOPE FUND? (HHF)



The heart of HHF began in 2008 with Lori Sames and Matt Sames after they
received the GAN diagnosis of their youngest daughter, Hannah. After combing the
globe to find scientists who had published on GAN or related pathways, HHF
brought 20 research scientists together in Boston in August of 2008 for the
first-ever symposium on GAN. The team of scientists that assembled prioritized
gene replacement therapy as the top priority therapeutic approach in hope of
getting a possible treatment to patients currently living with the disease.

Read More




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STAY CONNECTED WITH THE GAN COMMUNITY

Join our mailing list


PLEASE DONATE GENEROUSLY TO HELP US FIND TREATMENT AND A CURE FOR GAN.


”TOGETHER WE CAN ACHIEVE ANYTHING”

Donate Now

CONTACT US




Hannah’s Hope Fund

70 Railroad Pl #305

Saratoga Springs, NY 12866

518-275-5359

info@hannahshopefund.org

Hannah’s Hope Fund for Giant Axonal Neuropathy, Inc. is a 501(c)(3) public
charity whose mission is to raise funds to support the development of a
treatment and cure for GAN and to be the resource for doctors, scientists, and
families worldwide.

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