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 * What is ITP? Open submenu for What is ITP? Close submenu for What is ITP?
    * ITP symptoms
    * How is ITP diagnosed?

 * Living with ITP Open submenu for Living with ITP Close submenu for Living
   with ITP
    * ITP Physical and emotional wellbeing

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   stories
    * Barbara's story
    * Marie Louise's story

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    * Videos
    * Breaking down barriers in ITP


ITP AND YOU 




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ITP AND YOU 


IMMUNE THROMBOCYTOPENIA (ITP)

Only nine or ten people in every 100,000 have ITP, a rare autoimmune disease
affecting platelet production and characterised by fatigue, bruising and
bleeding. Until recently, ITP management has tended to be ruled by compromise.
But now, thanks to increased treatment options and disease awareness, improved
quality of life may be possible for people living with ITP. 1,2,3

 ITP stands for immune thrombocytopenia. The disease was previously known
as idiopathic thrombocytopenic purpura, and this term may still be used. If the
condition persists for more than a year, it is called chronic immune
thrombocytopenia.

my-ITP.com is designed to navigate through ITP. This website contains
information on ITP symptoms, diagnosis, living with ITP and useful tips and
advice to help you navigate everyday life or support somebody with this ITP rare
condition. 

What is ITP?

ITP symptoms

ITP diagnosis

Living with ITP

ITP Patient stories

Helpful resources





PATIENT ORGANISATIONS AND SUPPORT GROUPS

Patient Organisations and Support Groups offer a wealth of information and
advice that you may find useful and they may be able to connect you with other
people who are also living with ITP.

For more information about Patient Organisations and Patient Support Groups in
your country, please refer to ITP in Adults(link is external).

For medical advice please contact your doctor. 

For more information and support on managing your ITP from a holistic
approach, Platelet Disorder Support Association - Empowering ITP Patients - Home
(pdsa.org)(link is external) offers, among other resources, a range of different
materials on yoga, nutrition, fitness and mindfulness.

References

1 https://rarediseases.org/rare-diseases/immune-thrombocytopenia/(link is
external)

2 Immune Thrombocytopenia (ITP): Current Limitations in Patient Management.
Terrell DR, Neunert CE, Cooper N, Heitink-Pollé KM, Kruse C, Imbach P, Kühne T,
Ghanima W. Medicina (Kaunas). 2020 Nov 30;56(12):667. doi:
10.3390/medicina56120667. PMID: 33266286

3 Epidemiology and Clinical Manifestations of Immune Thrombocytopenia. Rahil
Kohli, Shruti Chaturvedi. Hamostaseologie 2019; 39(03): 238-249

 


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