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IMPROVING TRANSITION OF CARE THROUGH VIRTUAL REALITY SKILLS TRAINING


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St. Jude Virtual Reality Skills Training


ST. JUDE VIRTUAL REALITY SKILLS TRAINING

OVERVIEW

Moving from pediatric (children’s) care to adult care can be one of the hardest
changes you will face as a patient with sickle cell disease. Many issues must be
considered when moving from a pediatric hematologist (sickle cell doctor) to an
adult hematologist. There are many differences between pediatric and adult
healthcare.

Parental involvement is expected and encouraged in pediatric healthcare.
However, teens must be autonomous in adult healthcare models. St. Jude
facilitates transition by providing education and skills to patients and parents
from infant/toddler through teen clinic.

CHALLENGE

Data shows that young adult patients have an increased risk of death coinciding
with transition care. Patients who receive intense services as pediatric
patients and then fail to connect with adult providers experience an abrupt halt
to those services and to healthcare. For St Jude, patients transitioning to
adult care received fewer transfusions and hydroxyurea, had higher healthcare
costs, and suffered frequent SCD-related complications.


Translating real-world objects into virtual objects

Pediatric patients often do not have the support needed from family and have to
navigate complex healthcare systems on their own. They need specific skills
training to become advocates for their own health care.

St. Jude provides skills training in a teaching lab environment that leverages
real-world scenarios. Their skills training program was limited by how many
skills instructors were available and only available for patients still at the
hospital. 


The VR platform introduces pediatric patients to the forms they will encounter
during their healthcare experience

St. Jude needed a digital training solution that simulated real-world
environments provided tailor skills training, and could be accessed from
anywhere in the world.

‍SOLUTION

Agency 39A research teams worked directly with physicians and patients at St.
Jude, forming a better understanding of the problems and limitations with a
skills-lab approach. 

We determined that a Virtual Reality (VR) training experience would best
simulate the real-world interactions that patients have to navigate. Our
approach involved patients and physicians in the design of the experience and
development of training content. 

We created, designed, and built a collection of training scenarios to help
adolescents and young adults (AYA patients) navigate appointment setting,
insurance requirements, prescription fulfillment, follow-on care, and ongoing
medicinal regimen adherence. We developed the application for the Oculus headset
in the Unity environment, mimicking the environments patients will encounter for
each of the scenarios


Captures from the VR skills lab app demonstrate real world environments patients
must navigate throughout their healthcare experience

RESULT

Agency 39A developed an oculus-based VR teaching app, The St. Jude Skills Lab,
to reduce the likelihood of Sickle Cell complications in Adolescent and Young
Adult patients. The VR Skills Lab further extended the reach of the St. Jude
skills lab, providing greater access to more patients with a self-service
experience while reducing the organizational burden of small-group,
instructor-led sessions.

Our VR solution helps ensure a successful transfer from pediatric to adult care
by preparing pediatric patients for the culture of adult medicine, promoting
self-advocacy in obtaining support from schools and employers, and addressing
issues of funding of health care services.

Clinical researchers are often limited by the technical capabilities of the
health system in which they operate, slowing research and leading to costly and
mismatched technology that doesn’t deliver. Researchers are often handed
technologies and tools that don’t meet their needs, are difficult to use, and
require lengthy onboarding processes. All of this is a distraction for the
research at hand, and the patients these clinicians serve.


Art direction created a rich comic-book inspired aesthetic that helped pediatric
patients engage with the lesson materials

Mismatched tools are part of a larger challenge, ensuring meaningful
participation from research participants, adherence to medicinal regimen and the
adoption of new behaviors. The role of the clinical researcher is complex and
navigates emotional, social, physical, and digital needs. In the case of our
work with St. Jude, an adolescent patient population managing serious chronic
disease with ineffective digital tools becomes a significant barrier to better
health and valuable scientific research.

The medicine only works for those that take it; obvious but important. One of
the most common barriers for patients managing chronic disease is inconsistent
medicinal regimens and poor health education. Despite evidence of the
effectiveness of Hydroxyurea Therapy to manage Sickle Cell Disease, adherence is
low among patients,

Inconsistent adherence leads to a decline in health and undermines the patient’s
belief that Hydroxyurea has a positive impact on their health and well-being –
further reducing better outcomes. Poor adherence to a medication regimen turns
an effective therapy into an ineffectual, lost opportunity in patients with SCD
who often have less access to healthcare providers and comprehensive sickle cell
programs at a critical time in their lives: adolescence.






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CONNECT WITH OUR TEAM

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