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Effective URL: https://virtualtrials.org/
Submission: On November 28 via manual from GB — Scanned from GB
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Skip to main contentEnable accessibility for visually impairedOpen the accessibility menu × AL MUSELLA, DPM PRESIDENT Al Musella, DPM is a podiatrist in private practice in Hewlett, NY. He worked his way through school as a computer programmer for medical research projects. His interest in brain tumors started when his siter-in-law, Lana, was diagnosed with a gbm in 1992, and was told it was hopeless. After surgery and radiation, the tumor was larger than before the surgery and she was told she only had a few weeks left to live and there was no treatment options for her other than a standard course of bcnu, which had no chance to help her for more than a few extra weeks. At that time, there was no world wide web! Version 1 of Netscape was released on December 15, 1994. Al was an active member of Compuserve, and Compuserve had a cancer forum, with sections devoted to the top 10 cancers (and no brain tumor section). Al created and ran the Brain Tumor Forum on Compuserve in January 1993. He organized the members and had them help survey every major hospital in the USA to find what treatments were available. That list was posted on Compuserve and became the basis for the first internet database of clinical trials! At that time, the NCI only maintained lists of clinical trials that they funded, not the trials sponsored by the drug companies or the individual doctors or hospitals. (They do most now). And the only way to access them was to call the NCI and they would mail them to you. The NCI invited Al to demonstrate his technology to them, and the clinicaltrials.gov website was partially modelled after virtualtrials.org! Al found a few clinical trials that would accept Lana, after being told by a few major brain tumor centers that there were none. She did very well for a while, getting to see her 4 kids grow up, then unfortunately died of a recurrence on Oct 25,2000. She lived over 8 years after being told she only had a few weeks left. Many of those years were in excellent condition, with her taking care of her kids, working, driving and enjoying life. Ironically, Al's father was diagnosed with a GBM in 1999, a year after Al formed the Musella Foundation. He died quickly, in about 3 months. Close PRIVACY POLICY × Our Privacy Policy has changed -------------------------------------------------------------------------------- Close * * Learn Patient Navigation Program Find Treatment Options Brain Tumor Symptoms Guide For Newly Diagnosed Checklist For Newly Diagnosed Video Library Clinical Trials Noteworthy Treatments Brain Tumor News Survivor Stories Fundraising DC-Vax Onc-201 for DIPG/DMG Optune Temodar (Temozolomide) GammaTile * Newsletter Subscribe Change Email Unsubscribe Archives * Virtual Trial What is it? Join Submit An Update Map of Participants * Resources Discussion Forum Copayment Assistance Program Drug Discount Card Brain Tumor Centers Support Groups Links To Other Resources Books Memorials * About Us Musella Foundation Research Grants Recent Additions To Website Privacy Policy Our Sponsors Financials Contact * donations × NEWS ALERT ➠ PEER REVIEWED PUBLICATION OF DCVAX NOW AVAILABLE (11/17/22)! × ACTIVISM ALERT ➠ CLICK HERE TO SUPPORT THE PROMISING PATHWAY ACT! × [CHANGED] OUR NEXT WEBINAR WILL BE ON MONDAY, DEC 5TH, 2022 AT 8:30PM EASTERN TIME. ➠ CLICK HERE FOR DETAILS AND TO WATCH. CLINICAL TRIALS & NOTEWORTHY TREATMENTS FORBRAIN TUMORS Find Treatments! * Guide For Newly Diagnosed * Checklist For Newly Diagnosed * Video Library OFFICERS AND MEDICAL ADVISORY BOARD Previous Virginia Stark-Vance, MDDallas, Tx Lee Eric Tessler, MDNYU Langone Hospital - Long Island Katherine E. Warren, MDDana Farber Paul M. Zeltzer MDEncino, CA Al Musella, DPMPresident Steven RuttgeizerTreasurer Mitchell Siegel Vice President Neal Houslanger, DPMSecretary Keith Black, MDCedars Sinai Medical Center Nicholas A. Blondin, MDSt. Vincent´s Medical Center John A. Boockvar, MDLenox Hill Hospital Arno Fried, MDHackensack University Medical Center Henry Friedman, MDPreston Robert Tisch Brain Tumor Center at Duke Isabelle M. Germano MD, MBAMt. Sinai New York, NY Roberta Hayes, Ph.D.New York, NY Gil Lederman, MDRadiosurgery New York Mark Levin, MDNew York, NY Linda M. Liau, MD, PhDUCLA Medical Center Los Angeles, CA Michael Schulder, MD, FAANS Cushing Institute of Neuroscience, NY Virginia Stark-Vance, MDDallas, Tx Lee Eric Tessler, MDNYU Langone Hospital - Long Island Katherine E. Warren, MDDana Farber Paul M. Zeltzer MDEncino, CA Al Musella, DPMPresident Steven RuttgeizerTreasurer Mitchell Siegel Vice President Neal Houslanger, DPMSecretary Keith Black, MDCedars Sinai Medical Center Nicholas A. Blondin, MDSt. Vincent´s Medical Center John A. Boockvar, MDLenox Hill Hospital Arno Fried, MDHackensack University Medical Center Henry Friedman, MDPreston Robert Tisch Brain Tumor Center at Duke Isabelle M. Germano MD, MBAMt. Sinai New York, NY Roberta Hayes, Ph.D.New York, NY Gil Lederman, MDRadiosurgery New York Mark Levin, MDNew York, NY Linda M. Liau, MD, PhDUCLA Medical Center Los Angeles, CA Michael Schulder, MD, FAANS Cushing Institute of Neuroscience, NY Virginia Stark-Vance, MDDallas, Tx Lee Eric Tessler, MDNYU Langone Hospital - Long Island Katherine E. Warren, MDDana Farber Paul M. Zeltzer MDEncino, CA Next OUR SPONSORS * * * * * * * * Call Us Today 888-295-4740 Musella Foundation 1100 Peninsula Blvd, Hewlett, NY 11557 FIND US ON * * QUICK LINKS * Home * Noteworthy Treatments * Brain Tumor Guide * News * Contact Us * Virtual Trial * Find A Treatment * Videos OUR NEWSLETTER Brain Tumor News Blast Click Here to Subscribe! Copyright © 1993 - 2022 Musella Foundation - All Rights Reserved. Website by LcsProductionDesign.com Our privacy / cookie policy has changed. Click HERE to read it! Please ensure Javascript is enabled for purposes of website accessibility