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Celiac DiseaseResearchLife with Celiac DiseaseGluten-Free DietTake Action
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Celiac Disease

Section Overview »
Symptoms & Risk Factors
What is Celiac Disease?Fast FactsSigns & SymptomsSymptoms ChecklistCeliac
Disease & ChildrenThe Gluten ReactionRisk Factors
Testing and Diagnosis
Getting TestedFind a DoctorGluten ChallengeTreatmentFor Healthcare Professionals
Additional Information
Related ConditionsGluten SensitivityRefractory Celiac DiseaseDermatitis
HerpetiformisCeliac and COVID-19Celiac and Health Equity
Research

Section Overview »
Research News
Research NewsResearch Email Sign UpResearch Interviews
Treatments Pipeline
Drug DevelopmentDrug Development PipelineClinical TrialsPatient
RecruitmentCeliac Disease Vaccines
Our Work in Research
Our Science PlanGo Beyond Celiac RegistryBeyond Celiac
CoalitionSummitsSymposiumsCeliac and Health EquityFor Researchers
Life with Celiac Disease

Section Overview »
Resources
Newly DiagnosedInfo for Students & SchoolsWomen’s HealthMen’s Health
Common Concerns
Family TestingManagement & MonitoringGluten in MedicationsPsychological
ImpactsMyths
News
Research NewsCeliac in the NewsOur NewsletterOur PodcastPress Releases
The Community
Community AdvocacyGluten-Free BloggersMeet Arturo Chacón-CruzVoices of Celiac
Disease
Gluten-Free Diet

Section Overview »
The Gluten-Free Diet
Gluten-Free Diet OverviewGetting Started GuideIs It Gluten-Free?What Is
Gluten?Gluten-Free on a BudgetAnswers from a Dietitian
Gluten-Free Recipes
Gluten-Free RecipesGluten-Free BakingKids Recipes
Food Safety
Reading Food LabelsLabeling LawsGluten-Free
CertificationCross-ContactGluten-Free Dining
Take Action

Section Overview »
Donate
Celiac Champions – Monthly GivingDonate NowWays to GiveFundraiseCorporate
MatchingPlanned & Stock GivingBeyond Celiac Investments
Get Involved
Volunteer & ConnectAdvocacyAmbassadorsShare Your StoryTake SurveysCelebrating
Celiac Awareness Month
Events
Upcoming EventsTown HallsCommunity SummitStep Beyond Celiac



WE’RE DRIVING A CURE FOR CELIAC DISEASE.

Beyond Celiac has the strategic science plan, the people and the passion to
accelerate a cure by 2030.

How we’re achieving our goal

HELP ACCELERATE TREATMENTS AND A CURE FOR CELIAC DISEASE. GIVE TODAY!


Research News 05.24.24


GLUTEN CHALLENGES FOR PEOPLE ON A GLUTEN-FREE DIET SEEKING A CELIAC DISEASE
DIAGNOSIS MAY NEED TO BE INCREASED, STUDY SUGGESTS… READ MORE

Research News 05.23.24


MORE THAN HALF OF CHILDREN WITH CELIAC DISEASE DON’T GET RECOMMENDED FOLLOW-UP
BLOOD TESTS, STUDY SHOWS… READ MORE

Celiac News 03.29.24


"WHY IS EVERYONE ALLERGIC TO GLUTEN THESE DAYS?" A BRIEF HISTORY OF CELIAC
DISEASE AND THE GLUTEN-FREE DIET… READ MORE

> My mother had been diagnosed and then I took the symptom checklist on Beyond
> Celiac website. I had not considered [celiac disease] prior to my mother being
> diagnosed.


GET INVOLVED:

Join Go Beyond Celiac


WHY RESEARCH MATTERS

Celiac disease is a serious autoimmune disease

1 in 5 children with celiac disease isn't healing on the gluten-free diet

44% who follow a strict gluten-free diet still get glutened once a month

Many with celiac disease pay over 40% more in annual healthcare costs

Celiac disease is associated with a higher risk of brain damage and mental
health issues, based on brain images and cognitive test scores

Finding treatments and curing celiac disease will advance research for other
autoimmune diseases

Celiac disease can lead to anemia, infertility, osteoporosis, and even certain
cancers

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Participate in research


WHY RESEARCH MATTERS

Celiac disease is a serious autoimmune disease

1 in 5 children with celiac disease isn't healing on the gluten-free diet

44% who follow a strict gluten-free diet still get glutened once a month

Many with celiac disease pay over 40% more in annual healthcare costs

Celiac disease is associated with a higher risk of brain damage and mental
health issues, based on brain images and cognitive test scores

Finding treatments and curing celiac disease will advance research for other
autoimmune diseases

Celiac disease can lead to anemia, infertility, osteoporosis, and even certain
cancers


Participate in research


HOW WE’RE MAKING A DIFFERENCE

2023
 * Beyond Celiac celebrates 20 years of service to the community

2022
 * Beyond Celiac launches a precompetitive coalition to accelerate clinical
   research
 * Beyond Celiac and SSCD award $180,000 to Arnold Han, MD PhD to investigate
   CD8 T-cells
 * Beyond Celiac Research Summit brings together scientists, clinicians, pharma,
   and patients to discuss the latest in celiac science

2021
 * Beyond Celiac announces an early-career grant in partnership with SSCD to
   attract researchers to the field of celiac disease
 * Beyond Celiac hosts a mini-conference to discuss those "left behind" in the
   world of celiac disease diagnosis
 * Beyond Celiac partners with the University of Sheffield to research
   neuropathology of celiac disease
 * First Virtual Town Hall launched to connect the community with celiac disease
   experts
 * Beyond Celiac partners with Janssen (Johnson & Johnson) to commit up to $1
   million to accelerate celiac disease research

2020
 * Beyond Celiac partners with National Minority Quality Forum to target
   inequalities in celiac disease diagnosis and treatment
 * Beyond Celiac chosen as the exclusive patient organization to recruit for the
   first-ever phase 3 clinical trial for celiac disease
 * Summer Intern Council launches to engage college students in the mission to
   cure celiac disease

2019
 * Beyond Celiac awards $600,000 in research grants to 3 scientists
 * Beyond Celiac hosts our 2nd Research Summit to address how to accomplish the
   goal of developing celiac disease treatments
 * 3rd Beyond Celiac Research Symposium
 * Beyond Celiac launches first of its kind mobile app companion for Go Beyond
   Celiac
 * 1st Step Beyond Celiac 5K Event in Philadelphia

2018
 * 2nd Beyond Celiac Research Symposium
 * Beyond Celiac celebrates its 15th Anniversary

2017
 * 1st Annual Beyond Celiac Research Symposium
 * 1st Step Beyond Celiac 5K Event in Kansas City

2016
 * Beyond Celiac offers grant to screen at-risk relatives in NC
 * Team members present at the prestigious Standford MedX conference
 * Launched #60ForCeliac campaign to show what it's like to live with celiac
   disease
 * Trained 630 foodservice professionals in safe gluten-free cooking

2015
 * NFCA launches first national family testing campaign, Seriously Celiac
   Disease: Talk Tell Test
 * NFCA hosts Research Summit to drive innovation and collaboration among
   researchers
 * NFCA becomes Beyond Celiac
 * The new Beyond Celiac website is launched

2014
 * NFCA becomes top resource for understanding the FDA gluten-free food labeling
   law
 * NFCA studies barriers to celiac disease testing in at-risk family members
 * NFCA launches the GREAT Schools, Colleges & Camps training program

2013
 * NFCA formally supports the Gluten in Medicine Disclosure Act
 * NFCA endorses the Gluten-Free Certification Program (GFCP)

2012
 * beyondceliac.org surpasses 1 million visitors
 * NFCA participates in program to gather signatures to push gluten-free food
   labeling laws through the FDA
 * NFCA distributes survey on celiac disease and fertility

2011
 * NFCA participates in “1 in 133” lobbying event in DC to push gluten-free
   labeling standards
 * Alice Bast receives the Philadelphia Award'
 * FDA grant to study gluten in medications awarded to NFCA

2010
 * NFCA produces first Gluten-Free Pavilion at National Restaurant Association
   (NRA) Show
 * beyondceliac.org rated as one of “10 Great Website with Accurate Information”
 * beyondceliac.org ranked “#1 Resource for Celiac Facts”
 * NFCA launches initiative focused on celiac disease and women’s health

2009
 * NFCA launches first of its kind GREAT Healthcare programs
 * NFCA launches CME for primary care providers

2008
 * First Appetite for Awareness event held in Philadelphia
 * NFCA creates continuing education programming for pharmacists
 * NFCA hosted two Gluten in Medications Educational Session events
 * NFCA begins free monthly webinars
 * NFCA launches GREAT Kitchens to train restaurants in safe gluten-free food
   preparation

2007
 * First Gluten-Free Cooking Spree is held
 * Alice Bast joins Alliance for a Stronger FDA
 * Alice Bast becomes member of the FDA panel on food labeling

2006
 * First ever campaign to raise public awareness of celiac disease launches
 * NFCA launches the first Celiac Disease Symptoms Checklist
 * NFCA educates community on food labeling laws in the absence of a gluten-free
   food labeling law
 * New web section created to help the community voice their opinion on
   gluten-free food labeling

2005
 * NFCA submits letter to the FDA highlighting the need for consistent
   gluten-free food labeling

2003
 * Alice Bast founds the National Foundation for Celiac Awareness (NFCA)


FAST FACTS ABOUT CELIAC DISEASE VIEW ALL

Previous
There are no pharmaceutical treatments or cures for celiac disease.
An estimated 1 in 133 Americans, or about 1% of the population, has celiac
disease.
Celiac disease is a serious genetic autoimmune disease that damages the villi of
the small intestine and interferes with absorption of nutrients from food.
It is estimated that 83% of Americans who have celiac disease are undiagnosed or
misdiagnosed with other conditions.
6-10 years is the average time a person waits to be correctly diagnosed.
(Source: Daniel Leffler, MD, MS, The Celiac Center at Beth Israel Deaconness
Medical Center)
5-22% of people with celiac disease have an immediate family member (first
degree relative) who also has celiac disease.
There are no pharmaceutical treatments or cures for celiac disease.
An estimated 1 in 133 Americans, or about 1% of the population, has celiac
disease.
Celiac disease is a serious genetic autoimmune disease that damages the villi of
the small intestine and interferes with absorption of nutrients from food.
It is estimated that 83% of Americans who have celiac disease are undiagnosed or
misdiagnosed with other conditions.
6-10 years is the average time a person waits to be correctly diagnosed.
(Source: Daniel Leffler, MD, MS, The Celiac Center at Beth Israel Deaconness
Medical Center)
5-22% of people with celiac disease have an immediate family member (first
degree relative) who also has celiac disease.
There are no pharmaceutical treatments or cures for celiac disease.
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ACCELERATING RESEARCH FOR CELIAC DISEASE:


OUR SCIENCE PLAN

The science propelling our strategy toward a cure for celiac disease


RESEARCH NEWS

In-depth looks at celiac disease studies that matter to you


CLINICAL TRIALS

Information on studies looking for participants. Find out if you qualify


THINK YOU MAY HAVE CELIAC DISEASE?

Symptoms Checklist
OUR PARTNERS



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