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IT'S TIME TO REWRITE THE STORY OF SICKLE CELL.

Learn More

CIP SPOTLIGHT ON 


ADE ADEYOKUNNU 

Get to know Ade and all of our dedicated 

Community Input Panel members.

Our Community Input panel


THE CLINICAL AND ECONOMIC IMPACT ANALYSIS (CEIA) CONSORTIUM 

A Conversation with Dr. Anirban Basu 

Watch the Video

COMMUNITY STORIES


“LIVING WITH SICKLE CELL, I WANT PEOPLE TO KNOW THAT IT DOESN’T DEFINE WHO I AM
AND I WON’T LET IT TAKE OVER MY LIFE.”

WATCH JASMIN’S & OTHER STORIES

NEWS


SEPTEMBER IS SICKLE CELL AWARENESS MONTH

LEARN MORE ABOUT CURES

The Cure Sickle Cell Initiative is building and growing a community of patients,
advocates, researchers, and scientists to accelerate promising gene therapies to
cure sickle cell disease.

LEARN ABOUT The Cure Sickle Cell Initiative


THE LATEST FROM THE CURE SICKLE CELL INITIATIVE

NEWS + UPDATES

FDA approval of SCD gene therapies: Q&A with NHLBI leadership

CLINICAL TRIALS

The Phase 1 CRISPR-SCD Clinical Trial

WEBINAR

Get to Know Gene Therapies for Sickle Cell Disease


OUR COMMUNITY

People living with sickle cell disease and their caregivers have helped build
the foundation for the Cure Sickle Cell Initiative.

Patient & Advocacy Community



SCIENCE IN ACTION 

The scientific community is working together to advance gene therapies by
addressing barriers to research and identifying and implementing best practices.

Scientific Community



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IN THE UNITED STATES, MOST PEOPLE WHO HAVE SICKLE CELL DISEASE ARE OF AFRICAN
ANCESTRY, BUT IT ALSO AFFECTS PEOPLE FROM HISPANIC, SOUTHERN EUROPEAN, MIDDLE
EASTERN, OR ASIAN INDIAN BACKGROUNDS.

SOURCE: THE NATIONAL INSTITUTES OF HEALTH 
NHLBI.NIH.GOV/HEALTH-TOPICS/SICKLE-CELL-DISEASE


SICKLE CELL DISEASE CAN LEAD TO COMPLICATIONS SUCH AS INFECTIONS, DELAYED
GROWTH, AND EPISODES OF PAIN.

SOURCE: THE NATIONAL INSTITUTES OF HEALTH
NHLBI.NIH.GOV/HEALTH-TOPICS/SICKLE-CELL-DISEASE


EARLY DIAGNOSIS AND REGULAR MEDICAL CARE TO PREVENT COMPLICATIONS ALSO
CONTRIBUTE TO IMPROVED WELL-BEING.

SOURCE: THE NATIONAL INSTITUTES OF HEALTH
NHLBI.NIH.GOV/HEALTH-TOPICS/SICKLE-CELL-DISEASE


ABOUT 100,000 AMERICANS HAVE SICKLE CELL DISEASE.

SOURCE: THE NATIONAL INSTITUTES OF HEALTH
NHLBI.NIH.GOV/HEALTH-TOPICS/SICKLE-CELL-DISEASE


STAY CONNECTED

Please feel free to email us if you wish to receive more information.

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The Cure Sickle Cell Initiative is dedicated to accelerating the development of
treatments aimed at genetic-based cures.

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