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DONATE NOW
WELCOME TO
MUSCULAR DYSTROPHY NSW
Information, support and community for people living with neuromuscular
conditions.
GET STARTED
GET THE INFORMATION YOU NEED TO UNDERSTAND YOUR CONDITION
GET STARTED
GET SUPPORT PROGRAMS TAILORED TO YOUR SPECIFIC NEEDS
GET STARTED
JOIN A COMMUNITY OF PEOPLE WHO GET YOU, AND LOOK FORWARD TO FEELING CONNECTED
GET STARTED
* Specialised support
* Connect to your community
* Live the life you choose
FINDING A SERVICE PROVIDER AND
COMMUNITY THAT GETS YOU CAN BE HARD
You deserve a provider that understands your neuromuscular condition, so you can
get tailored information, support programs and connection to the neuromuscular
community.
You deserve to live the life you choose. Let us support you to make that happen.
GET STARTED
We are a NDIS registered provider!
SPECIALISED SUPPORT
We understand your neuromuscular condition, and we’re here to help you find
tailored support as your condition changes over time.
CONNECT TO YOUR COMMUNITY
Join a community of people who understand you and what you’re going through.
You’ll laugh, share, and feel supported knowing you’re not alone..
LIVE THE LIFE YOU CHOOSE
We’re here to connect you with the tools, services, community and programs you
need to live the life you choose. We’re here to listen and deliver – not tell
you how to live.
WE UNDERSTAND THAT A NEW DIAGNOSIS OR A CHANGE IN YOUR CONDITION CAN MAKE YOU
FEEL ANXIOUS AND ALONE.
We’re here to support you.
* Over 60 years of experience
* Tailored support for all neuromuscular conditions
* Registered NDIS provider
* Over 2000 official members
* Support for people across NSW
GET STARTED
WHO WE ARE
HOW OUR COMMUNITY FEELS ABOUT…
ADVENTURE CAMP:
“The Adventure Camp experience ended up being such a positive opportunity for
John to develop independence and this was something I really wanted for him. Not
only did he make new friends and enjoy new experiences like playing in the sand
at the beach and abseiling, but he also developed new independent skills that he
is still doing at home now like brushing his teeth every day and getting himself
dressed.
He’s more confident and we both understand that things won’t fall apart if I’m
not around. John can’t wait to go back to Camp next year and I am so grateful to
MDNSW for making this life-changing experience for him possible.”
- Effie, John’s Mum
ADVENTURE CAMP:
“The Adventure Camp experience ended up being such a positive opportunity for
John to develop independence and this was something I really wanted for him. Not
only did he make new friends and enjoy new experiences like playing in the sand
at the beach and abseiling, but he also developed new independent skills that he
is still doing at home now like brushing his teeth every day and getting himself
dressed.
He’s more confident and we both understand that things won’t fall apart if I’m
not around. John can’t wait to go back to Camp next year and I am so grateful to
MDNSW for making this life-changing experience for him possible.”
- Effie, John’s Mum
PEER CONNECT RETREAT:
“Being surrounded by a group of people who understood and supported each other
gave me the confidence I needed to get through. And they made me laugh and feel
the happiest I’d felt in a long time. I forgot about my disability and just had
fun.”
- Marie
GIRL POWER (PEER CONNECT):
“I think the best thing about Peer Connect is being able catch up with my
friends more often than ever before… it’s really easy to attend because it’s all
online and I don’t have to travel anywhere to get to it. It’s also great that
it’s open to people all over NSW so we can connect with people who live far
away.”
- Jamieson
ADVENTURE CAMP:
“Daniel had a fantastic time, caught up with old friends, made new ones, was
completely silly and even managed to miss his family, just a little. When he
returns from camp each year we see a massive growth in self-esteem and
confidence. Words cannot describe what this week away means to him.”
- Joanne, Daniel’s Mum
PEER CONNECT MYOTONIC MEET UP GROUP:
“You are not alone. There are people in same boat, who are going through same
problems and share how they are getting through.”
- Anonymous participant
SUMMER CAMP:
“As a full-time carer for Kamal, as well as caring for my other sons, we rely
heavily on financial support from the government just to get by. We don’t have
modified transport for Kamal. We simply can’t afford it. This is where the
people at Muscular Dystrophy NSW have really gone above and beyond in their
support care for us, covering the cost of transport for Kamal to and from camp,
making it possible for him to go each year. No transport would mean no camp for
Kamal and I just couldn’t bear seeing how sad and disappointed he’d be. The help
we get from MDNSW is beautiful, it’s really nice, and is making a huge
difference in a boy’s life. You are getting these kids to a very happy place!”
- Dalal, Kamal’s Mum
SUPPORT COORDINATION:
“The support with Ganesh (MDNSW Support Coordinator) has been God-sent.
Without him it would be extremely hard to work with the NDIS. Whenever there are
any problems whether it be with the NDIS, my therapy, or repairs, Ganesh is
always there to sort it out.
He explains things so well and makes it so easy for me to understand; he gives
me courage going forward. Muscular Dystrophy NSW puts the client first. They
have always been there for me throughout all the years. Without them, I would be
lost.”
- Samson
OUR SERVICES
NDIS FAQ'S
Answering common questions about the NDIS
NDIS FAQ'S
Answering common questions about the NDIS
PEER CONNECT
A place to connect with other people living with a neuromuscular condition
NDIS SUPPORT COORDINATION
Connecting you to and coordinating the best support programs for you
CAMPS FOR KIDS
Where kids with a neuromuscular condition can meet new friends, learn new
skills, and most of all – have fun!
SUPPORT FOR KIDS
Information, support and community connection tailored to your child’s
condition.
ADULTS AND OVER 65’S
Helping you live the life you choose, with retreats, information and community
connection – no matter what age you are, or where you are in NSW.
SUPPORT FOR FAMILIES AND CARERS
Supporting you with retreats, community groups and information as you support
your loved one with a neuromuscular condition.
EVENTS AND PROGRAMS
From trivia night catchups to research seminars, we’ve got events and programs
to connect you with new friends, new experiences and new information.
NDIS FAQ'S
Answering common questions about the NDIS
PEER CONNECT
A place to connect with other people living with a neuromuscular condition
NDIS SUPPORT COORDINATION
Connecting you to and coordinating the best support programs for you
CAMPS FOR KIDS
Where kids with a neuromuscular condition can meet new friends, learn new
skills, and most of all – have fun!
SUPPORT FOR KIDS
Information, support and community connection tailored to your child’s
condition.
ADULTS AND OVER 65’S
Helping you live the life you choose, with retreats, information and community
connection – no matter what age you are, or where you are in NSW.
SUPPORT FOR FAMILIES AND CARERS
Supporting you with retreats, community groups and information as you support
your loved one with a neuromuscular condition.
EVENTS AND PROGRAMS
From trivia night catchups to research seminars, we’ve got events and programs
to connect you with new friends, new experiences and new information.
NDIS FAQ'S
Answering common questions about the NDIS
PEER CONNECT
A place to connect with other people living with a neuromuscular condition
NDIS SUPPORT COORDINATION
Connecting you to and coordinating the best support programs for you
CAMPS FOR KIDS
Where kids with a neuromuscular condition can meet new friends, learn new
skills, and most of all – have fun!
SUPPORT FOR KIDS
Information, support and community connection tailored to your child’s
condition.
ADULTS AND OVER 65’S
Helping you live the life you choose, with retreats, information and community
connection – no matter what age you are, or where you are in NSW.
SUPPORT FOR FAMILIES AND CARERS
Supporting you with retreats, community groups and information as you support
your loved one with a neuromuscular condition.
EVENTS AND PROGRAMS
From trivia night catchups to research seminars, we’ve got events and programs
to connect you with new friends, new experiences and new information.
SEE ALL OUR SERVICES
YOU DESERVE TO LIVE THE LIFE YOU CHOOSE.
A lot of people in NSW don’t know who to turn to when they’re diagnosed with a
neuromuscular condition, or when there’s a change in their condition.
At Muscular Dystrophy NSW, we’re here to connect you to a community of people
who get what you’re going through, and offer you support programs that are built
to match your needs.
So the next time you’re lying awake, wondering if anyone understands what you’re
going through, you’ll know that the Muscular Dystrophy NSW community is here for
you.
READ MORE ABOUT US
HERE’S HOW TO GET INVOLVED WITH ALL OUR GREAT SERVICES, PROGRAMS AND COMMUNITY:
1
Contact us, or click “get started”, and tell us about yourself.
2
We’ll guide you to the right information.
3
You’ll feel supported, knowing you’re now part of a community that understands
and welcomes you.
GET STARTED
NOT SURE IF
MUSCULAR DYSTROPHY NSW
IS FOR YOU?
Give us a call on 1800 635 109, and we can chat about how we can support you.
Or, if you’re not ready to chat, why not check out our 3 email course on living
the life you choose with a neuromuscular condition – and how we can help.
SIGN UP TO OUR 3 EMAIL COURSE
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LATEST NEWS
2023-24 MDNSW Annual Impact Report
Our Annual Impact Report for 2023-2024 is available now! Read on to see all the
…
LEARN MORE
Interview with a Camper – Adventure Camp 2024
Adventure Camp is a place where teamwork, challenges and fun come together in
the great …
LEARN MORE
Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of
the land on which we live and work, and we pay our respects to their Elders past
and present. We extend that respect to all Aboriginal and Torres Strait Islander
peoples.
DCJ Apology to the Stolen Generations
* Our Services
* Peer Connect
* Peer Connect Calendar
* Events & programs
* Peer Connect Video
* NDIS Support Coordination – Your Choice
* Information and Referral Service
* NDIS FAQs
* Advocacy
* Kids and Young people
* Camps for kids!
* Duke of Edinburgh’s Award
* Peer Connect
* Adults & over 65s
* Young Adults Weekends
* Peer Connect Retreat
* Weekend Retreats
* Peer Connect
* Family & Carers
* Mums’ Weekend Retreats
* Siblings Programs
* Peer Connect
* My Community
* Our Members
* Become a Member
* Our Partners
* Our newsletter
* Events & programs
* In Memoriam
* The Loop
* The Peer Collective
* Fun Stuff
* Sport & Rec
* Travel
* Entertainment
* Podcasts
* Passions & Pastimes
* Learning & Earning
* School Life
* Duke of Ed
* TAFE & Uni
* Employment
* Retirement
* Love, Life & Loss
* Relationships & sexuality
* Families & carers
* Parenting
* grief & loss
* Info, Rights & Gov
* NDIS
* Entitlements and Concessions
* Complaints & Advocacy
* Useful Resources
* Tech & Mods
* Home Mods
* Assistive Technology
* Transport
* Vehicle Mods
* Health, Support & Wellbeing
* Living with NMCs
* Support Workers
* Independent Living
* Mental Health
* Covid Collective
* Therapies
* Medical Info
* Neuromuscular Information and Research Days
* Neuromuscular Fact Sheets
* Clinics
* MDF Australia
* Research and Resources
* Research Scholarships – Available now!
* Get Involved
* Membership
* Donate
* Fundraise
* MDNSW Shop
* Volunteer
Follow Us
Muscular Dystrophy NSW
ABN 11 774 587 436
31 Clermont Ave, Concord NSW 2137
Muscular Dystrophy NSW is registered as a Charitable Entity with the Australian
Charities and Not-for-profits Commission.
All donations over $2 are tax deductible.
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