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Text Content

ABOUTELIGIBILITYPARTICIPATIONFAQS




THE CATORI STUDY IS LOOKING FOR PARTICIPANTS.



Are you American Indian or Alaska Native? Have you recently been referred to an
oncologist, neurologist, or ophthalmologist?  You may be eligible to join.

Receive up to $80 per visit, up to $590 if you complete the trial.

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.



WHAT IS THIS RESEARCH ABOUT AND WHY IS IT IMPORTANT?

American Indians and Alaska Natives have a higher rate of long-term diseases,
such as cancer and diabetes, than most other races/ethnicities. Many of these
diseases can be prevented, managed, or treated with the help of specialists
(doctors who focus on a specific area of medicine). However, many American
Indians and Alaska Natives do not receive specialty care. The purpose of this
study is to learn more about why.

Specifically, this research is looking to better understand the experiences of
American Indians and Alaska Natives with first-time referrals to oncologists,
neurologists, and/or ophthalmologists.


Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.


WHO IS THIS STUDY FOR?

Those who meet the following criteria may be eligible:


You are 18 years of age or older

You are American Indian or Alaska Native

Your primary care physician (PCP) or family doctor NEWLY referred you to an
oncologist, neurologist, or ophthalmologist and the referral is still active

You have NOT yet seen this new specialist or you have seen them for less than 3
months

You have a personal landline or cell phone and/or access to internet


WHAT DO I HAVE TO DO TO PARTICIPATE?

Get started on the steps below right now to check your eligibility and begin
your participation in the study. Enrollment is online and easy. You can receive
up to $80 per visit, up to $590 if you complete the trial.

 * Take a short online survey by clicking any of the buttons on screen to see if
   you may qualify.
 * If you qualify, you’ll pick a time to schedule a 30 minute remote video
   screening visit in which you will confirm your eligibility and provide
   consent to participate.
 * Attend your remote video screening visit, and allow us to confirm your active
   specialist referral with your family doctor or PCP. Once we verify this with
   your PCP we’ll get you scheduled for your first official study visit (remote)
   to begin participation.
 * When, or if, you go to your specialist appointments, you will fill out short
   surveys regarding your visit.
 * Continue as usual with your healthcare routine. You will have two remote
   video visits which will be 6 months and 12 months after you received your
   referral. At these appointments you will answer more questions about your
   healthcare experience.

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.


HELPFUL RESOURCES


LEARN MORE ABOUT AI/AN HEALTHCARE INEQUITIES

The Most Prevalent AI/AN Health Disparities

How Does Healthcare for Federally Recognized Tribes Work?

Downloadable Educational Resources for AI/AN Patients

View frequently asked questions




LEARN MORE ABOUT CLINICAL TRIAL PARTICIPATION

What does joining a clinical trial involve?

The basics of clinical trial participation

Clinical Participation Guide for AI/AN

Learn more about this study on clinicaltrials.gov


FREQUENTLY ASKED QUESTIONS

Why should I participate in this study?
By participating in this study, you may provide valuable insights about
healthcare experiences for American Indians or Alaska Natives.

When and how will I be compensated?
Participants will be compensated after completing certain study activities. You
can receive up to $80 per visit, $35 per survey and up to $590 if you complete
the trial.

What are the benefits and  risks to participation?
There are no risks associated with participation in this study. You will not be
asked to take any medication or undergo any procedures directly for this study.

There are no guaranteed benefits from study participation. Information learned
from the study may help inform future research around healthcare experiences for
American Indians or Alaska Natives.

Do I need to live on tribal lands to participate and/or have a doctor through
the Indian Health Service (IHS)?
No. This study is open to anyone who is American Indian or Alaska Native; has a
first-time referral to an oncologist, neurologist, or ophthalmologist from a
primary care or family doctor; and has seen the new specialist for less than 3
months or not at all.

Can I participate if I am already seeing an oncologist, neurologist, or
ophthalmologist?
You must have a first-time referral to ONE of these specialists to be eligible.
For example, you may still be eligible if you regularly see an ophthalmologist,
but have recently been referred to an oncologist and have not yet seen the
oncologist.
Can I stop being in the study?
Yes. You can decide to stop at any time. Just tell the study researcher if you
wish to stop being in the study. You do not need to give a reason why you want
to stop participating.

Also, the study researchers may ask you to stop taking part in this study at any
time if they believe it is in your best interest, if you do not follow the study
rules, or if the study is stopped.