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Effective URL: https://dravetfoundation.org/dsf-annual-campaign/
Submission: On November 10 via api from US — Scanned from DE
Effective URL: https://dravetfoundation.org/dsf-annual-campaign/
Submission: On November 10 via api from US — Scanned from DE
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Manage Cookie Consent To provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions. Functional Functional Always active The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network. Preferences Preferences The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user. Statistics Statistics The technical storage or access that is used exclusively for statistical purposes. 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Not consenting or withdrawing consent, may adversely affect certain features and functions. Functional Functional Always active The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network. Preferences Preferences The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user. Statistics Statistics The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you. Marketing Marketing The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes. Manage options Manage services Manage {vendor_count} vendors Read more about these purposes Accept Deny View preferences Save preferences View preferences {title} {title} {title} Skip to content Open toolbar Accessibility Tools Accessibility Tools * Increase TextIncrease Text * Decrease TextDecrease Text * GrayscaleGrayscale * High ContrastHigh Contrast * Negative ContrastNegative Contrast * Light BackgroundLight Background * Links UnderlineLinks Underline * Readable FontReadable Font * Reset Reset Skip to content Search Search Close this search box. * * * * News * Events * Donate * Shop * News * Events * Dravet syndrome * What is Dravet syndrome? * Diagnosis and Treatment * Dravet Syndrome in Adults * Comorbidities in Dravet syndrome * Genetics of Dravet Syndrome * History of Dravet Syndrome * Dravet Stories * Virtual Remembrance Wall * Caregivers * Caregiver Resources * Caregiver Resource Links * Day of Dravet Workshops * C.A.R.E. Binder * Patient Assistance Grants * Birthday Buddies Club * Super Siblings Club * Caregiver Connect Grants * Disaster Relief and Recovery Fund * Safety and Dravet Syndrome * Brainfirst Parenting * Surgery for Patients with DS * Adenovirus Vaccines and Gene Therapy * Patient-Centered Research * Newly Diagnosed * DSF Family Network * Caregiver Connect * DSF Conference * Educational Videos * Find a Doctor * Comprehensive Care Centers * Importance of Research * Bereavement * HCPs * Resources for Healthcare Providers * DSF Conference * Diagnosis and Treatment * Doctor Registration * Comprehensive Care Centers Application * Surgery for Patients with DS * COVID-19 and Dravet Syndrome * Research * DSF Funded Research * DSF Research Grant Programs * Transformational Science Grants * Research Grants * Clinical Research Grants * Postdoctoral Fellowships * Clinician-Researcher Grants * DSF Research Roundtable * Dravet Genome Study * Current Clinical Trials & Pipeline * Collaboration Opportunities for Industry * Roadmap to a Cure * Gene Therapy for Dravet Syndrome * SUDEP Registry & Tissue Donation * Externally Led PFDD Meeting * Get Involved * Ways to Give * Upcoming Events / Host an Event * Walks & Races * Steps Toward a Cure * Dash for Dravet * TCS New York City Marathon * Race for Research * Cycling for a Cure * Galas & Evening Events * Dance for Dravet * Casino Night * Strike Out Dravet * Give Up Your Cup * Fundraising Campaign Pages * Dravet Syndrome Awareness Month * DSF Volunteer Network * About DSF * About DSF * Our Team * Advisory Boards * Our Programs * Strategic Plan * Your Impact * Ambassador Programs * Partnerships * Social Media & Inclusivity Policy * Logo Guidelines * Media Menu * Dravet syndrome * What is Dravet syndrome? * Diagnosis and Treatment * Dravet Syndrome in Adults * Comorbidities in Dravet syndrome * Genetics of Dravet Syndrome * History of Dravet Syndrome * Dravet Stories * Virtual Remembrance Wall * Caregivers * Caregiver Resources * Caregiver Resource Links * Day of Dravet Workshops * C.A.R.E. Binder * Patient Assistance Grants * Birthday Buddies Club * Super Siblings Club * Caregiver Connect Grants * Disaster Relief and Recovery Fund * Safety and Dravet Syndrome * Brainfirst Parenting * Surgery for Patients with DS * Adenovirus Vaccines and Gene Therapy * Patient-Centered Research * Newly Diagnosed * DSF Family Network * Caregiver Connect * DSF Conference * Educational Videos * Find a Doctor * Comprehensive Care Centers * Importance of Research * Bereavement * HCPs * Resources for Healthcare Providers * DSF Conference * Diagnosis and Treatment * Doctor Registration * Comprehensive Care Centers Application * Surgery for Patients with DS * COVID-19 and Dravet Syndrome * Research * DSF Funded Research * DSF Research Grant Programs * Transformational Science Grants * Research Grants * Clinical Research Grants * Postdoctoral Fellowships * Clinician-Researcher Grants * DSF Research Roundtable * Dravet Genome Study * Current Clinical Trials & Pipeline * Collaboration Opportunities for Industry * Roadmap to a Cure * Gene Therapy for Dravet Syndrome * SUDEP Registry & Tissue Donation * Externally Led PFDD Meeting * Get Involved * Ways to Give * Upcoming Events / Host an Event * Walks & Races * Steps Toward a Cure * Dash for Dravet * TCS New York City Marathon * Race for Research * Cycling for a Cure * Galas & Evening Events * Dance for Dravet * Casino Night * Strike Out Dravet * Give Up Your Cup * Fundraising Campaign Pages * Dravet Syndrome Awareness Month * DSF Volunteer Network * About DSF * About DSF * Our Team * Advisory Boards * Our Programs * Strategic Plan * Your Impact * Ambassador Programs * Partnerships * Social Media & Inclusivity Policy * Logo Guidelines * Media Flyout Menu * Dravet syndrome * What is Dravet syndrome? * Diagnosis and Treatment * Dravet Syndrome in Adults * Comorbidities in Dravet syndrome * Genetics of Dravet Syndrome * History of Dravet Syndrome * Dravet Stories * Virtual Remembrance Wall * Caregivers * Caregiver Resources * Caregiver Resource Links * Unite Us * Day of Dravet Workshops * Super Siblings Club * Caregiver Connect Grants * Safety and Dravet Syndrome * Birthday Buddies Club * Disaster Relief and Recovery Fund * Brainfirst Parenting * Surgery for Patients with DS * PAG Application * Adenovirus Vaccines and Gene Therapy * Patient-Centered Research * Newly Diagnosed * DSF Family Network * Caregiver Connect * DSF Conference * Educational Videos * Find a Doctor * Comprehensive Care Centers * Importance of Research * Bereavement * HCPs * Resources for Healthcare Providers * DSF Conference * Diagnosis and Treatment * Doctor Registration * Comprehensive Care Centers Application * Surgery for Patients with DS * COVID-19 and Dravet Syndrome * Research * DSF Funded Research * DSF Research Grant Programs * Transformational Science Grants * Research Grants * Clinical Research Grants * Postdoctoral Fellowships * Clinician-Researcher Grants * DSF Research Roundtable * Dravet Genome Study * Current Research Studies & Pipeline * Roadmap to a Cure * Gene Therapy for Dravet Syndrome * North American SUDEP Registry & Tissue Donation * Externally Led PFDD Meeting * Get Involved * Walks & Races * Dash for Dravet * Steps Toward a Cure * Race for Research * Cycling for a Cure * Galas & Evening Events * Dance for Dravet * Casino Night * Give Up Your Cup * DSF Volunteer Network * Ways to Give * Fundraising Campaign Pages * Dravet Syndrome Awareness Month * About DSF * About DSF * Our Team * Advisory Boards * Our Programs * Strategic Plan * Your Impact * Family Network and Brand Ambassadors * Social Media & Inclusivity Policy * Media * Logo Guidelines * News * Events * Shop * Donate Donate A LETTER FROM OUR EXECUTIVE DIRECTOR Dear Friend, As we celebrate 15 years of impact at Dravet Syndrome Foundation (DSF), we’re filled with gratitude for all who have joined us in making a difference. This year, your generosity and commitment to our mission have fueled remarkable achievements for Dravet families: * We hosted our 6th DSF Family & Professional Conference, bringing together families, professionals, and advocates to strengthen our community. * Our executive team attended over 20 professional events, building crucial connections to advance our outreach and support. * We trained 15 new Family Ambassadors, expanding our network of support for families across the country. * Five fundraising galas raised over $1.37M, empowering our initiatives. * New support resources were launched, including our Caregiver Connect webinar series and virtual meet-ups designed for grandparents. * We anticipate funding at least another $1.5M to research by the end of 2024. As we approach the end of the year, you have the unique opportunity to double your impact through our Year End Challenge Fund. Every donation made before December 31 will be matched up to $30,000, amplifying the difference you can make in the lives of Dravet families. Your support can help fund groundbreaking research, provide direct family support, and expand essential resources like our Caregiver Connect series. Together, we can drive even more progress in 2025, bringing us closer to life-changing breakthroughs. Will you help us reach new heights this year? Join us in making an impact that matters for Dravet families. With deep gratitude, Mary Anne Meskis Executive Director Dravet Syndrome Foundation P.S. Why not use this opportunity to make a donation in honor or in memory of a loved one? Be sure to include that information on the donation form. And don’t forget to send your gift by the end of the year to maximize your tax savings. Thank you for supporting DSF! OUR DEEPEST THANKS TO OUR YEAR END CHALLENGE FUND DONORS Thanks to the incredible generosity of our Year End Challenge Fund donors, each gift made before December 31 is being matched up to $30,000, doubling the impact for Dravet families. We are profoundly grateful for your support, which has amplified our efforts to drive life-changing progress in the Dravet community. Below, we recognize and honor those who joined us in this challenge. Thank you for standing with us in our mission. Together, we are making a difference. Christine and Michael Angelakis Mary Jane Wahl Gearns Foundation David Martin Aaron and Sara Polatsek Staci and Zvi Rudawsky Erin and Robert Scherbinske Eli Braun and Alyce Thompson Powered by Google Übersetzer Arabic Chinese (Simplified) Dutch English French German Italian Portuguese Russian Spanish German DRAVET SYNDROME FOUNDATION, INC info@dravetfoundation.org PO Box 3026, Cherry Hill, NJ 08034 (203) 392-1955 Facebook Twitter Youtube Instagram Rss DRAVET SYNDROME * What is Dravet? * Genetics of Dravet * Dravet Stories * Dravet Adults CAREGIVERS * Newly Diagnosed * DSF Family Network * Find a Doctor * Educational Videos GET INVOLVED * Events * Galas & Gatherings * Fundraising Pages * Volunteer Network Sign up for our DSF Newsletter This website is made possible through educational grants from our partners. Partners did not have a role in developing content. The information you obtain at this site is not intended to be medical advice, please read our medical disclaimer. 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