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Submitted URL: http://ntsad.org/
Effective URL: https://ntsad.org/
Submission Tags: tranco_l324
Submission: On May 23 via api from DE — Scanned from CA
Effective URL: https://ntsad.org/
Submission Tags: tranco_l324
Submission: On May 23 via api from DE — Scanned from CA
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* Meet Our Families
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* Resources for Individuals & Families
* Care Tips Series
* Webinars
* Donate to NTSAD
* Events
* Annual Family Conference
* Externally-Led GM2 PFDD Meeting
* Imagine & Believe
* Imagine & Believe – 2022
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* Day of Hope
* Family Events & Funds
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* For Individuals & Families
* Glossary
* Information for Researchers
* Our Priorities
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National Tay-Sachs & Allied Diseases Association – HomeMichael
Foley2024-05-20T16:19:40+00:00
National Tay-Sachs & Allied Diseases Association
THE POWER OF COMMUNITY
DISEASES
Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and
Sandhoff diseases.
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FAMILY SUPPORT
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resources to help you navigate a diagnosis.
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RESEARCH
Learn about ongoing studies, clinical trials, funding opportunities, and
research initiatives, and browse our research library.
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EVENTS
Attend and support events that bring our Community together and raise awareness
and critical funds.
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NTSAD NEWS & EVENTS
READ THE LATEST NEWS AND SUBSCRIBE TO OUR COMMUNITY NEWSLETTER.
Read More News
May 2024 Issue
COMMUNITY NEWS
In this Issue:
Research Updates
* ASGCT Conference
* Sanofi GM2 Trial Discontinued
* GM1 Awareness Day
* School Supports Rare Family
* Connecting with Families
* Fall Family Meet Up
* Day of Hope 2024
* NTSAD Staffing News
* Imagine & Believe and 47th Annual Family Conference
Read this Issue
Subscribe for News
On February 15, the GM2 Community shared their experiences of living with
Tay-Sachs and Sandhoff diseases during the first-ever, Externally-Led
Patient-Focused Drug Development (EL-PFDD) Meeting with the FDA.
You can watch a recording of the GM2 EL-PFDD Meeting here.
Stay tuned for the summary of this first-ever meeting in the “Voice of the
Patient” report in the late spring/early summer.
On Thursday, November 10, 2022, the NTSAD Community will gather at the Royal
Sonesta in Boston for the first in-person Imagine & Believe event in three years
to commemorate NTSAD’s 65th Anniversary.
WE CARE FOR RARE
Jessie Jackson
Juvenile GM1 Disease
“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing.
She is not about to let GM1 keep her from LIVING life!”
Merlie Jackson, Jessie’s Mom
Read More Rare Stories
National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide
fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by
driving research, forging collaboration, and fostering community. Supporting
families is the center of everything we do.
The content of this website is intended for informational purposes only and not
intended to be a substitute for professional medical advice, diagnosis, or
treatment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide
fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by
driving research, forging collaboration, and fostering community. Supporting
families is the center of everything we do.
COMMUNITY NEWS
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hope, and what is happening in the world of rare disease.
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