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 * Rare Disease
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   * Patient & Family Support Program
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LEARN MORE ABOUT RARE DISEASE DAY!
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BY KIDS — FOR KIDS


BY KIDS
FOR KIDS


WHY WE’RE HERE


OUR MISSION

We are committed to our mission of youth-centered leadership development through
service to the rare disease community.

By providing emotional support to pediatric patients and their families during
life-changing and critical transitions, we help shape a healthier & more
positive experience that ensures compliance with treatments as well as family
unity.

About Us



RARE DISEASES

%


OF PATIENTS DIAGNOSED WITH A RARE DISEASE ARE CHILDREN


NUMBER OF AMERICANS WITH A RARE DISEASE

%


OF TAF PATIENTS MAINTAIN TREATMENT AS PRESCRIBED BY THEIR PHYSICIAN

Keep up with TAF!


THE AVALON FOUNDATION HAS BEEN PASSIONATELY WORKING

by mayres | Oct 15, 2023 | Uncategorized

The Avalon Foundation has been passionately working towards its mission of
promoting and teaching youth leadership while offering steadfast support to
children undergoing life-altering treatments for rare diseases. Here are some of
the recent...

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WATCH OUR VIDEO


OUR STORY

Learn more about who we are, what we do, and how we help


Watch All of Our Videos



YOUTH COMMUNITY


#KC4K YOUTH LEADERSHIP PROGRAM

Designed to give kids at an early age a place to volunteer and learn to give
back. Our #KC4K mission is to teach our youth the importance of volunteering,
having responsibility, and being compassionate at an early age, all while
becoming a leader.

Learn How to Get Involved



RARE DISEASE COMMUNITY


PATIENT & FAMILY SUPPORT PROGRAM

Our customized care packages called #PainBoxes serve as an incentive program for
children starting treatment for hypophosphatasia (HPP). We also provide support
and resources for patients and their families in the rare disease community.

Request a #PainBox
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