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WELCOME TO THE LYME DISEASE ASSOCIATION WEBSITE
LYME DISEASE FUNDING | TREATMENT GUIDELINES | SYMPTOMS
Lyme Disease Association was founded in 1991 with the mission to increase
nationwide funding and awareness about Lyme and tick-borne diseases. On this
site you will find information regarding Lyme disease symptoms, Lyme disease
treatments and other Lyme resources and educational materials for patients,
medical professionals, researchers, educators, and policy makers.
Our Lyme doctor referral database can help put you in touch with medical
professionals who specialize in diagnosing and treating Lyme disease in your
area. You can find out how to help our efforts to enable legislation which
promotes scientific research to study Lyme disease and to find a cure, and see
what grants we have awarded to researchers to move the field forward. Over the
years, our work has been instrumental in helping the fight against Lyme disease,
and we could not do it without your generous support.
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CURRENT NEWS
1. You are here »
2. category »
3. Home Page Featured »
PROTEIN IN HUMAN SWEAT: NEW DISCOVERY FOR LYME DISEASE PREVENTION AND
THERAPEUTICS?
March 23, 2024
Nature Communications (Strausz, S., et al.) 03.19.2024, published, “SCGB1D2
inhibits growth of Borrelia burgdorferi and affects susceptibility to Lyme
disease.” In this study, researchers at MIT and the University of Helsinki
utilized epidemiological and genetic data from 617,731 individuals, including
25,355 individuals with Lyme disease, from FinnGen and Estonian Biobank, to
conduct a genome-wide association study.
Read More
1. You are here »
2. category »
3. Home Page Featured »
EARLY TICK SEASON AND INCREASE OF LYME DISEASE IN NY
March 17, 2024
New York Post’s, Brooke Steinberg, 03.07.24, published online, “Tick season is
kicking off early this year — experts warn of Lyme disease risk.” Steinberg
states that many northern states (NH, MN, NY) in the US are reporting tick
activity earlier that usual this year, and warn that it could be a high risk
year for ticks and tick-borne diseases. Mild winter temperatures are proposed as
being responsible for this earlier than usual tick activity.
Read More
1. You are here »
2. category »
3. Home Page Featured »
ALPHA-GAL CASES UP IN IOWA AND MINNESOTA
March 15, 2024
KTTC.com News journalist, Eric Min, 03.11.24 reports, “Iowa and Minnesota sees
uptick in uncommon tickborne disease.” Min reports that the number of cases of
Alpha-gal meat allergy are increasing from southern Iowa north to southern
Minnesota. One of the issues surrounding tracking for this condition is that
Alpha-gal may be under-reported due to lack of awareness about the condition and
symptoms.
Read More
1. You are here »
2. category »
3. Home Page Featured »
DYSAUTONOMIA FOLLOWING LYME INFECTION
March 15, 2024
Frontiers in Neurology (Adler, B.L., aet al.) 02.07.24, published a review
article, “Dysautonomia following Lyme disease: a key component of post-treatment
Lyme disease syndrome?” Though the Lyme patient community and treating
physicians report disabling symptoms of dysautonomia as a complication of Lyme
disease, dysautonomia has not yet been established as a complication of Lyme in
the medical literature.
Read More
1. You are here »
2. category »
3. Home Page Featured »
PARENTAL ATTITUDE TOWARD LYME VACCINES FOR CHILDREN
March 14, 2024
Science Direct (Gidengil, C., et al.) 03.19.2024, published, “Lyme disease
vaccine attitudes and intentions among parents of children aged 5–18 years in
the United States.” In this study, an online survey of 1,351 parents of children
aged 5–18 years was conducted in states with high and/or emerging prevalence of
Lyme disease to determine willingness for their child to receive a Lyme disease
vaccine, and preference for vaccine type.
Read More
1. You are here »
2. category »
3. Home Page Featured »
POWASSAN REPORTED IN RHODE ISLAND
March 9, 2024
WPRI.COM12 News (Melanie DaSilva,02.29.2024) published “RI reports case of rare
tick-borne disease.” A confirmed case of Powassan virus was reported by The
Rhode Island Department of Health. It is reported […]
Read More
1. You are here »
2. category »
3. Home Page Featured »
HYGROMYCIN A HEADED FOR HUMAN TRIALS IN AUSTRALIA
March 9, 2024
Northeastern Global News (Cynthia McCormick Hibbert, 02.28.24) published
“Experimental antibiotic treatment for Lyme heads for human safety trials.”
Human safety trials are scheduled to begin for hygromycin A this spring in
Australia. Hygromycin A is a novel antibiotic treatment for Lyme disease
developed by Northeastern professor Kim Lewis. So far, hygromycin A has been
found to clear Lyme spirochete infections in mice without any toxicity to
animals.
Read More
1. You are here »
2. category »
3. Home Page Featured »
ATTENTION RESEARCHERS! CDMRP: PROGRAM FUNDING OPPORTUNITIES 2024
March 9, 2024
The FY24 Defense Appropriations Act is anticipated to provide funding for the
Tick-Borne Disease Research Program (TBDRP) to support innovative, high-impact
tick-borne disease research. The managing agent for the anticipated program
announcements/funding opportunities is the Congressionally Directed Medical
Research Program (CDMRP) at the US Army Medical Research and Development Command
(USAMRDC).
Read More
1. You are here »
2. category »
3. Home Page Featured »
EXPANDING DISTRIBUTION OF PACIFIC COAST TICK AND RICKETTSIA PATHOGENS
March 7, 2024
Journal of Medical Entomology (Paddock, CD, et al.) 02.26.2024, published,
“Rickettsia species identified in adult, host-seeking Dermacentor occidentalis
(Acari: Ixodidae) from Baja California, Mexico, and Oregon and Washington,
United States.” In this study, researchers collected and tested 1,367
host-seeking, adult D. occidentalis (Pacific Coast ticks), between 2015 – 2022
in Baja California, Mexico, and Oregon and Washington. This is the first survey
for rickettsiae in Pacific Coast ticks from these regions.
Read More
1. You are here »
2. category »
3. Home Page Featured »
LYME DISEASE AND SLEEP DISTURBANCE
March 7, 2024
Rx Lyme editor, Stanley Lang, MD, 12.29.2023 posted, “How does sleep affect Lyme
disease.” In this article, Dr. Lang discusses how those with chronic Lyme
symptoms often experience disorders in sleep. He explains how many forms of
sleep disruption can exacerbate symptoms of Lyme disease and demonstrates how
important adequate sleep is to supporting the immune system in fighting the
infection. He stresses the significance of both the quality and quantity of
sleep that can effect the course of Lyme illness, and then presents strategies
to improve sleep for patients suffering from Lyme disease, including diet,
exercise, mindfulness, and stress reduction.
Read More
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BROCHURES
LYME: KIDS & SCHOOLS
Children with Lyme can have school problems. Check to find information for
parents, teachers, educators, children: Publications, books, video, talks
Read More...
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CONTAGION® LYME VIDEOS
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ILADS doctors, in open discussion on the Lyme disease controversy
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LDA Doctor Referral System © Terms & Conditions and Guidelines
Save this Information for Your Records:
About LDA DOCTOR REFERRAL SYSTEM ©
Welcome to the Lyme Disease Association’s LDA Doctor Referral System ©. LDA made
updates and enhancements to its prior system and has launched a new site to
provide patients with information about doctors, other practitioners, testing
labs, and pharmacies that are knowledgeable about chronic Lyme disease and often
about many other tick-borne diseases (TBD). Many of the doctors listed are often
referred to as Lyme Literate Physicians/Doctors (LLMD). Tens of thousands of
patients have successfully used the prior LDA system to locate Lyme and TBD
resources.
Terms & Conditions and Guidelines
Because there is a negative political climate surrounding Lyme disease, many
LLMDs do not want their names posted outright on the internet. LDA has tried to
balance the doctors’ wishes with patients’ need to find a doctor. This new
system is a result of that compromise and therefore:
* LDA permits searches over a calendar month period that will result in access
to up to 15 Doctor Referrals. To access a Doctor Referral listing, first
conduct a search, and then click on the desired provider from the results
that populate. Clicking on a listing will re-direct you to that provider’s
page which will include all necessary contact information. The system enables
you to click on up to 15 Doctor Referrals every calendar month period.
* Searches can be refined based on the search location (street address, city,
zip code or country), search radius (distance from the starting point),
category filter(s), and/or keyword search.
Because of the limited number of physicians treating chronic Lyme disease
nationwide, some states, and in some instances, entire regions, may not have any
treating physicians who follow flexible treating approaches such as those in the
International Lyme & Associated Diseases Society (ILADS) Guidelines, Evidence
Assessments and Guideline Recommendations in Lyme Disease: The Clinical
Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease.
In the event that the LDA Doctor Referral System © contains no Lyme or TBD
resource listings in a given area, the closest possible option(s) will populate
based on the location entered and specaialty/ies selected. The LDA appreciates
any changes in provider information that you may find and make us aware of so we
can investigate.
Some providers may not specifically treat Lyme and TBD but see patients who have
symptoms associated with Lyme and TBD to address those specific symptoms.
Contact the provider to confirm.
--------------------------------------------------------------------------------
It is your responsibility to contact the provider’s office to confirm the
current address, directions, nature of services provided, and all other provider
information before you make an appointment.
--------------------------------------------------------------------------------
DISCLAIMER: The Lyme Disease Association, Inc. provides referrals to health
care providers who treat Lyme disease, and often other TBD, as a courtesy to
those seeking Lyme Literate Physicians (LLMD). However, some of the providers
included do not specifically treat Lyme and TBD but see patients who have
symptoms associated with Lyme and TBD to address those specific symptoms. We do
not evaluate the professional competence or qualifications of health care
providers on our referral list or the costs of services provided. Accordingly,
the LDA neither warrants nor endorses the health care providers contained on
this list nor the quality of care you will receive from those providers. We do
not make recommendations, only referrals. LDA does not receive any monies from
physicians to be included on this list nor does LDA provide any monies to
physicians. Because of the limited number of physicians treating chronic Lyme
disease nationwide, some states, and in some instances, entire regions, may not
have any treating physicians who follow flexible treating approaches such as
those in the International Lyme & Associated Diseases Society (ILADS)
Guidelines: Evidence Assessments and Guideline Recommendations in Lyme Disease:
The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and
Persistent Disease. In the event that the Doctor Referral System contains no
Lyme or TBD resource listings in a given area, the closest possible option(s)
will populate based on the zip code entered and category/ies selected. The LDA
appreciates any changes in provider information that you may find and make us
aware of.
LDA does not accept or reply to any comments on:
* What insurance a doctor accepts or does not accept, or if any insurance is
accepted.
* How listed doctors practice or any other aspect of the doctor-patient
relationship.
* The cost or fees charged by any healthcare provider.
* Why a particular doctor is or is not listed.
* Request for providers that treat COVID-19, although some of the providers in
the system may treat COVID.
We cannot guarantee that the information provided will be timely and accurate or
that physicians on the list are accepting new patients, or that they accept
insurance. The selection of a physician should be made by you after careful
consideration. There are two approaches in the treatment of Lyme disease. Our
list contains physicians who generally follow more flexible treatment approaches
than those advocated by the Infectious Diseases Society of America (IDSA). LDA
is not responsible for incorrect information on the website. BEFORE DOCTOR
VISIT: Please contact the physicians’ offices directly to confirm their current
address, directions, and any other necessary information before scheduling an
appointment. Do not rely only on the maps provided on this site. The maps on
LDA’s Doctor Referral System are for informational purposes and provide an
approximate locality of the listing based on the addresses we are provided with
at the time of site updates. Practitioners often relocate and addresses can
change. Notification of changes in listed information can be updated on our Dr.
Referral Contact Form. Thank you, Lyme Disease Association, Inc. (LDA)
Subscriber information will not be shared outside of the Lyme Disease
Association, Inc. nor used for donor solicitation.
The Lyme Disease Association, Inc. reserves the right to unsubscribe anyone from
this service without cause.
PLEASE USE OUR DR. REFERRAL CONTACT FORM REGARDING ANY ISSUES.
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Patricia Smith Bio
President
Patricia V. Smith, a Monmouth University graduate, is in her 24th year as
President of the all-volunteer run national non-profit Lyme Disease Association
(LDA). She served two terms as a public member of the HHS Tick-Borne Disease
Working Group (TBDWG) in Washington, DC, where she co-authored the TBDWG Group
Report to Congress 2018 and the TBDWG Report to Congress 2020 and wrote several
minority reports contained in those documents. She also co-chaired the “Training
& Education, Patient Access to Care” Subcommittee and co-authored its report,
and was a member of the Inventory Subcommittee. In her 2nd TBDWG, term, she
co-chaired the Subcommittee and co-authored its Report of the Disease Vectors,
Surveillance, and Prevention Subcommittee 2018. She is a member of Columbia
University’s Lyme & Tick-Borne Diseases Research Center Advisory Committee,
member of the Food & Drug Administration’s (FDA) PESP Partnership to promote
avoidance of tick exposure. She was appointed in 2016 as a member of the US
Army Medical Research and Materiel Command (USAMRMC) Tick-Borne Disease Research
Program (TBDRP) as a member of the Congressionally Directed Medical Research
Program Programmatic Panel where she served 4 years. She has twice testified
before Congressional committees in Washington on Lyme disease.
Ms. Smith is also former Chair, (NJ) Governor’s Lyme Disease Advisory Council.
She was EPA’s PESP 2011 Lyme prevention conference session co-chair with CDC. In
2011 she presented a Lyme session to the New Jersey Education Association’s
Annual Meeting. She is a member & former officer of ILADS, International Lyme &
Associated Diseases Society, a professional medical and research organization.
She was a member of the on-line journal Contagion Infectious Disease Today
Chronic Lyme Expert Panel on video.
Ms. Smith is former President/12-year member of the Wall NJ Board of Education
where she earned state board member-certified status. She is a former officer of
Monmouth County School Boards Assn. and was a member of the Federal Relations
Network for New Jersey School Boards Association/National School Boards Assn.
During her LDA presidency, Ms. Smith has led the effort to raise funds for
researchers nationally, with 121 research grants awarded ─ research
acknowledged in 54 scientific journals. She has organized 20 continuing medical
education (CME) accredited Lyme scientific conferences for doctors and
researchers with international faculty, held in different areas of the US, most
jointly sponsored by Columbia University, the 20th in Philadelphia in September
2019. She has spoken at many conferences on Lyme including those presented by
the University of New Haven (CT), the California Lyme Disease Association (now
LymeDisease.org), Midcoast Maine Lyme Education and Support, Colorado Tick-Borne
Awareness Association, Lyme Connections, Lyme Society, Inc., and International
Lyme & Associated Diseases Society, ILADS. She spoke at Project Lyme’s Zoom
Meeting on th eiDSA Guidelines in 2020. She has been a speaker at hundreds of
public, school, business, & government events.
Ms. Smith led the LDA in its effort with a partner organization, to endow the
Columbia Lyme & Tick-Borne Diseases Research Center in New York, which opened in
2007. She developed the ABCs of Lyme Disease pamphlet for parents and educators
(updated in 2019 and translated into Spanish in 2020) and co-authored an article
in it, and she also developed the LymeR Primer brochure now featuring 20
tick-borne diseases, the Tick Mark bookmark, and helped design LDA Tick
Awareness cards. More than 2.5 million education items have been distributed.
Ms. Smith has testified for and secured passage of state and federal bills for
Lyme research and physician’s right to treat. She has been invited to state
capitals in CT, MA, MD, MN, NH, NJ, NY, PA, RI, to present oral testimony and
education on Lyme and has provided written testimony in many others. Based on
her written testimony, LDA was included in ground breaking Maine legislation as
a website resource on Lyme disease on Maine’s DPH website. She was invited to
testify on two occasions before the NY Assembly Health Care Committee and also
before the Rhode Island (Governor’s) Lyme Disease Advisory Commission and has
spoken before the California Lyme Disease Advisory Council. Over time, she has
personally met with many State Health Commissioners and with Governors in NH, RI
CT on Lyme issues and with then Governor Pataki’s office on many occasions along
with several NY state legislators. She has also presented before the
Pennsylvania House of Representatives Majority Policy Committee and was an
invited speaker for Lyme forums hosted by a member of the Massachusetts House of
Representatives and the Majority Caucus Administrator for the Pennsylvania House
of Representatives and the Minnesota State Senate Health Committee.
She has twice been invited to present to CDC Vector-Borne Diseases Division, Ft.
Collins (2007, 2013); met with then CDC Director Dr. Julie Gerberding/5
Congressmen in DC; organized & led a team that met with HHS Asst. Sec. of Health
with CDC/NIH officials teleconferenced in; met with military leaders in DC; and
briefed the Senate HELP Committee Members and House Subcommittee on Health. She
met several times with US Army CHPPM/Public Health Command at Aberdeen Proving
Grounds. She met in DC with the NIH Program Director and research coordinator
and presented educational PowerPoints on Lyme to employees at the Environmental
Protection Agency (2008, 2014), to the Dept. of Energy, and to Homeland Security
in 2014. In 2014, she helped develop language for a federal bill on Lyme and led
the nationwide effort which successfully passed the bill through the House. Ms.
Smith spoke at a number of press conferences with Senator Charles (Chuck)
Schumer (NY)–now Senate Minority Leader–including one in 2014 on the doxycycline
shortage for Lyme patients. In 2012, she testified before the House Foreign
Affairs Committee, Africa, Global Health & Human Rights Subcommittee on issues
affecting Lyme patients. In 2013, she testified before the House Energy &
Commerce Health Subcommittee on HR 610 to establish a federal Lyme & Tick-Borne
Diseases Advisory Committee. She co-authored an article which was read into the
Congressional Record on Lyme disease research priorities from the patient
perspective. In 2015, she spoke at the American Association for the Advancement
of Science in DC on patient research priorities. In 2016, she spoke before the
Women in Government’s annual conference. In 2016, she led the negotiations with
House leadership for the Lyme language subsequently passed in the 21st Century
Cures Act which creates a federal working group on tick-borne diseases with
patient and advocates reps at the same table as government officials.
Chosen Jackson NJ’s Chamber of Commerce 2008 Woman of the Year, she has also
received commendation from the NJ legislature, a Special Congressional
Recognition certificate from RI Cong. Langevin, and had a flag flown over the US
Capitol by request of NJ Cong. Chris Smith in honor of her Lyme work. Ms. Smith
helped to organize and presented at educational forums held by 3 congressmen
(Langevin, Pitts, C. Smith). She has received awards from Dr. Brian Fallon,
Columbia, from various Lyme groups, and was given the Courage in Advocacy Award
in 2015 from Connecticut based Lyme Connection and Focus on Lyme Excellence in
Advocacy (AZ) award in 2017.
Other activities include providing input into a NJ law requiring teacher
education for staff who teach students with Lyme disease, performing school
in-services for educators on Lyme disease, and working with parents of students
who are classified due to Lyme disease. Working with author Amy Tan, she created
LDA’s LymeAid 4 Kids, a fund for children with no health coverage for Lyme, a
fund that has awarded $400,000+ for uninsured children to date.
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