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(978) 535-2594 info@progeriaresearch.org
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THE PROGERIA RESEARCH FOUNDATION

For the Children ♥ For the Cure

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VISION

Our vision is a world in which every child with Progeria is cured.


MISSION

To discover treatments and the cure for Progeria and its aging-related
disorders, including heart disease.

VISION

Our vision is a world in which every child with Progeria is cured.

MISSION

To discover treatments and the cure for Progeria and its aging-related
disorders, including heart disease.


NEWS

EXCITING RESEARCH MILESTONES IN TREATMENT EVALUATION AND LIFE EXTENSION!

Mar 15, 2023

Our research team has discovered a vital new way to measure progerin, the toxic
protein that causes Progeria. With this discovery, scientists also found that
the long-term benefit of lonafarnib for children with Progeria is greater than
we thought.
What do these two findings mean for the Progeria community?

read more

WE’RE HIRING!

Mar 3, 2023

PRF is seeking an experienced Donor Database Manager to join our team. This is a
full-time, hybrid role, where the applicant would need to be able to reliably
commute to our Peabody office. We are looking for a passionate, enthusiastic,
and analytical individual who is excited about data integrity, loves to improve
workflow, and can reform donor data processes.

read more

PRF’S 11TH INTERNATIONAL SCIENTIFIC WORKSHOP WAS A SUCCESS!

Nov 15, 2022

Thank you to all of those who attended The Progeria Research Foundation’s 11th
International Scientific Workshop – RACE Progeria to the Cure!

read more

SAM BERNS TEDX TALK HITS 50 MILLION VIEWS!!

Nov 7, 2022

Wow – exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has
inspired millions around the world, and today hit a new milestone: 50 million
views on TEDx.com alone (with a grand total of 95 million times, including on
TED.com).

read more

GET PRF’S 2022 NEWSLETTER HERE!

Oct 31, 2022

The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way –
rife with many exciting updates on PRF’s progress toward worldwide awareness and
the CURE!

read more
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GET INVOLVED

Our lonafarnib clinical trials enrolled 100 children from 40 different countries
to test this now-FDA-approved treatment. Because of your support, these children
and young adults are living longer, healthier lives.


ABOUT PRF

Your donation helps The Progeria Research Foundation treat children with
Progeria today, and cure them in the future.


MEET THE KIDS

We hope their stories inspire you to support PRF, so those dreams can come true.


EVENTS

8

TEAM PRF RUNS THE BOSTON MARATHON

Support TEAM PRF by 11:59PM ET on Sunday, May 14

8

PRF CURE CUP CLASSIC GOLF TOURNAMENT

May 15, 2023, Ipswich Country Club, Ipswich, MA

8

PRF’S 22ND ANNUAL INTERNATIONAL RACE FOR RESEARCH

September 9, 2023, Peabody, MA: (details coming soon!)

View Upcoming Events


8

TEAM PRF RUNS THE BOSTON MARATHON

Support TEAM PRF by 11:59PM ET on Sunday, May 14

8

PRF CURE CUP CLASSIC GOLF TOURNAMENT

May 15, 2023, Ipswich Country Club, Ipswich, MA

8

PRF’S 22ND ANNUAL INTERNATIONAL RACE FOR RESEARCH

September 9, 2023, Peabody, MA: (details coming soon!)

View Upcoming Events




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NEWSLETTER!

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TOGETHER, WE


WILL


FIND THE CURE!

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