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Submission: On October 17 via manual from US — Scanned from DE
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Skip to main content An official website of the United States government Here’s how you know Here's how you know The .gov means it’s official. Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site. The site is secure. The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely. U.S. Department of Health and Human Services ASPE Office of the Assistant Secretary for Planning and Evaluation Menu * Topics * Aging & Disability * Behavioral Health * Biomedical Research, Science, & Technology * Children, Youth, & Families * Data * Evaluation * Health & Health Care * Homelessness & Housing * Human Services * Long-Term Services & Supports, Long-Term Care * Policy & Regulation * Poverty & Economic Mobility * Prescription Drugs & Other Medical Products * Public Health * Strategic Plan * Collaborations, Committees, and Advisory Groups * NAPA - National Alzheimer's Project Act * Physician-Focused Payment Model Technical Advisory Committee (PTAC) * Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) * Health and Human Services (HHS) Data Council * About * About ASPE * Leadership * Offices * Contact ASPE * HHS PRA Waiver Notices & IRB Exemption Search by Keyword Search RECORDS, COMPUTERS AND THE RIGHTS OF CITIZENS BREADCRUMB 1. ASPE 2. Reports 3. Records, Computers and the Rights of Citizens Publication Date Jun 30, 1973 TRANSMITTAL LETTER TO SECRETARY Honorable Caspar W. Weinberger Secretary of Health, Education, and Welfare Dear Mr. Secretary: It is a privilege for me to submit this report to you on behalf of the Secretary's Advisory Committee on Automated Personal Data Systems. The Committee believes that the report makes a significant contribution toward understanding many of the problems arising from the application of computer technology to record keeping about people. Our recommendations provide the framework for general solutions and also specify actions to be taken both within HEW and by the Federal government as a whole. We are grateful for the interest that you have expressed in our work. Both you and former Secretary Richardson deserve praise for responding to public concern about the issues posed by automation of personal-data record- keeping operations. We have greatly appreciated the opportunity to be of service to you and the Department, and, we hope, to all our fellow citizens. Our undertaking has required the cooperation of many agencies and organizations and the assistance of many individuals. We wish to thank everyone at HEW who helped us. The contributions of individuals who served as our immediate staff are acknowledged in the Preface to the report. We wish to note particularly the remarkable diligence and devotion to our task of our Executive Director, David B. H. Martin, and Associate Executive Director, Carole Watts Parsons. Sincerely, Willis W. Ware Chairman FOREWORD BY SECRETARY CASPAR W. WEINBERGER Computers linked together through high-speed telecommunications networks are destined to become the principal medium for making, storing, and using records about people. Innovations now being discussed throughout government and private industry recognize that the computer-based record, keeping system, if properly used, can be a powerful management tool. Its capacity for timely retrieval and analysis of complex bodies of data can be of invaluable assistance to hard-pressed decision makers. Its ability to handle masses of individual transactions in minutes and hours rather than in weeks or months, as was formerly the case, makes possible programs of service to people that would have been unthinkable in the manual record- keeping era. Medicare, for example, would be impossible to administer without computers to take over many routine clerical functions. Computer-based public assistance payments systems are also helping States and counties to assure that welfare payments go to those who truly need and deserve them. This Administration's strategy calls for strengthening direct support of individuals-for putting cash directly in the hands of those who need it-and keeping accurate, up-to-date, easily retrieved records on individual beneficiaries helps achieve that goal. Nonetheless, it is important to be aware, as we embrace this new technology, that the computer, like the automobile, the skyscraper, and the jet airplane, may have some consequences for American society that we would prefer not to have thrust upon us without warning. Not the least of these is the danger that some record keeping applications of computers will appear in retrospect to have been oversimplified solutions to complex problems, and that their victims will be some of our most disadvantaged citizens. This report of the Secretary's Advisory Committee on Automated Personal Data Systems calls attention to issues of record keeping practice in the computer age that may have profound significance for us all. One of the most crucial challenges facing government in the years immediately ahead is to improve its capacity to administer tax dollars invested in human services. To that end, we are attempting to eliminate ineligibility, overpayment, and other errors from welfare caseloads. We are encouraging local government and public and private service agencies to forge new cooperative links with one another. We are attempting to move away from the fragmented social service structures of the past, which have dealt with individuals and with families as if their problems could be neatly compartmentalized; that is, as if they were not people. Many of these measures could result in more intensive and more centralized record keeping on individuals than has been customary in our society. Potentially, at least, this is a double-edged sword, as the Committee points out. On the one hand, it can help to assure that decisions about individual citizens are made on the basis of accurate, up-to-date information. On the other, it demands a hard look at the adequacy of our mechanisms for guaranteeing citizens all the protections of due process in relation to the records we maintain about them. The report of the Secretary's Advisory Committee on Automated Personal Data Systems deserves to be widely read and discussed. It represents the views of an unusual mixture of experts and laymen. The Committee obviously considers its recommendations to be a reasonable response to a difficult set of problems. The Committee has taken a firm position with which some may disagree. However, we should be grateful to the Committee for speaking with such a clear voice. In doing so, it has no doubt set in motion the kind of constructive dialogue on which a free society thrives. Caspar W. Weinberger PREFACE This is a report about changes in American society which may result from using computers to keep records about people. Its central concern is the relationship between individuals and recordkeeping organizations. It identifies key issues and makes specific recommendations for action. The Secretary's Advisory Committee on Automated Personal Data Systems was established by former Secretary of Health, Education, and Welfare Elliot L. Richardson in response to growing concern about the harmful consequences that may result from uncontrolled application of computer and telecommunications technology to the collection, storage, and use of data about individual citizens. The formation of the Committee rests upon a public interest determination made by Secretary Richardson which provides in part as follows: The use of automated data systems containing information about individuals is growing in both the public and private sectors .... The Department itself uses many such systems, and in addition, a substantial number .. are used by other organizations, both public and private, with financial or other support ... from the Department ... At the same time, there is a growing concern that automated personal data systems present a serious potential for harmful consequences, including infringement of basic liberties. This has led to the belief that special safeguards should be developed to protect against potentially harmful consequences for privacy and due process. The Committee was asked to analyze and make recommendations about: * Harmful consequences that may result from using automated personal data systems; * Safeguards that might protect against potentially harmful consequences; * Measures that might afford redress for any harmful consequences; * Policy and practice relating to the issuance and use of Social Security numbers. The Committee's membership encompassed a broad range of expertise and experience and an equally diverse range of viewpoints. Some members came from the social service professions where large-scale data banks are a fact of life, not a probable future development. Others came from management backgrounds in both government and private industry. Many have had practical experience in operating or using automated personal data systems in settings ranging from a nationwide credit-bureau network to the program management information system of a State government. Others came from the academy, and from parts of the research community concerned with applying knowledge developed by the information sciences. Two members of the Committee were State legislators; one was a labor union official; others were lawyers and. private citizens. Given this diversity, it should be no surprise that at our first meetings, in the spring of 1972, the views of individual members on the significance of applying computer technology to personal-data record keeping sometimes differed sharply. Many, indeed probably most, did not initially feel a sense of urgency about the potential ill effects of current practices in the design and operation of automated personal data systems. Some agreed that computer-based record keeping poses a latent danger to individual citizens, but looked 'optimistically to technological innovations, particularly access-control devices, to prevent problems from arising. Others painted dramatic portraits of the potential benefits of large-scale data networks to citizens in a densely populated, highly mobile society-benefits that would accrue to all social I and economic classes, enhancing knowledge, increasing the efficiency of social services, and expanding personal freedom. Slowly, however, the attitudes of the members changed. Shared concerns took root as we heard testimony from over 100 witnesses representing more than 50 different organizations, and as we reviewed a substantial collection of written materials, including reports by similar commissions in this country, Canada, Great Britain, and Sweden. The Committee also gathered information on related studies and fact-finding efforts through a special inquiry to approximately 250 trade and professional associations and public interest groups. (Appendix A lists the individuals who appeared before the Committee and the groups and organizations to which our letter of inquiry was sent.) Out of this array of personal contacts, written communications, and published documents, our report to the Secretary has emerged. We perceive ourselves as sharing concerns and perspectives expressed in other recent reports on computer-based record keeping; among them Privacy and Computers (1972), the report of a task force established jointly by the Canadian Departments of Communications and Justice; Data and Privacy (1972), the report of the Swedish Committee on Automated Personal Systems; and Databanks in a Free Society (1972), the report of the National Academy of Sciences Project on Computer Databanks. Our undertaking has required the cooperation of many agencies and organizations and the assistance of many individuals to all of whom we are grateful. We thank all those in HEW who helped us, noting particularly the generous cooperation of Al Guolo, James J. Trainor, Mrs. Lottie C. Owen, and James D. Smith. The Assistance of those who worked as our immediate staff and consultants deserves special acknowledgement as follows: For general research support and helping to make our meetings productive-Paul J. Corkery, John P. Fanning, Courtney B. Justice, Nancy J. Kleeman, Terrence D.C. Kuch, Carolyn Lewis, William L. Marcus, John J. Salasin, Leonard Sherp, Frederick H. Sontag, Lindsay Spooner, Jeffrey L. Steele, and Lynn Zusman; For legal research and drafting - John P. Fanning; For helping to prepare and edit drafts of the report and for preparing appendices - John P. Fanning, Terrence D.C. Kuch, Daniel H. Lufkin, Lindsay Spooner, and Patricia Tucker; For typewriting and proofreading draft after draft of the report - Claire 1. Hunkin, Rose Schiano, and Patricia Young; For painstaking administrative support - Beverlyann Garfield, Ronald C. Lett, James F. Sasser, Rose Schiano, and Helen C. Szpakowski. Finally, we wish to note especially the dedication and completepersonal commitment to all aspects of the Committee's undertaking by David B.H. Martin, Special Assistant to the Secretary, who served as Executive Director for the Committee, and Carole Watts Parsons, Associate Executive Director. Without their patient prodding and tireless efforts, this report could not have been completed. Willis H. Ware, Chairman Secretary's Advisory Committee on Automated Personal Data Systems COMMITTEE MEMBERS SECRETARY'S ADVISORY COMMITTEE ON AUTOMATED PERSONAL DATA SYSTEMS* WILLIS H. WARE, Corporate Research Staff, The Rand Corporation, Santa Monica, California, Chairman LAYMAN E. ALLEN, Professor of Law, University of Michigan Law School, Ann Arbor, Michigan JUAN A. ANGLERO, Assistant Secretary for Planning & Development, Department of Social Services, Commonwealth of Puerto Rico STANLEY J. ARONOFF, Ohio State Senator, Cincinnati, Ohio WILLIAM T. BAGLEY, California State Assemblyman, Sacramento, California PHILIP M. BURGESS, Professor of Political Science, The Ohio State University, Columbus, Ohio GERTRUDE M. COX, Statistical Consultant, Raleigh, North Carolina YL PATRICIA CROSS, Senior Research Psychologist, Educational Testing Service, Berkeley, California GERALD L. DAVEY, President and Chief Executive Officer, Medlab Computer Services, Inc., Salt Lake City, Utah J. TAYLOR DeWEESE, Philadelphia, Pennsylvania GUY H. DOBBS, Vice President, Xerox Computer Services, Los Angeles, California *ROBERT R.J. GALLATI, Director, New York State Identification and Intelligence System (NYSIIS), Albany, New York FLORENCE R. GAYNOR, Executive Director, Maitland Hospital, Newark, New Jersey **JOHN L. GENTILE, Deputy Director, State of Illinois Department of Finance, Springfield, Illinois *FRANCES GROMMERS, M.D., Visiting Lecturer, Harvard School of Pub lic of Public Health, Boston, Massachusetts JANE L. HARDAWAY, Commissioner, State of Tennessee Department of Personnel, Nashville, Tennessee JAMES C. MARA, Administrator of Educational Accountability, State of Florida. Department of Education, Tallahassee, Florida PATRICIA J. LANPHERE, Assistant Supervisor, Bureau of Services to Families and Children, State of Oklahoma Department of Institutions, Social and Rehabilitative Services, Oklahoma City, Oklahoma ARTHUR R. MILLER, Professor of Law, Harvard Law School, Cambridge, Massachusetts DON M. MUCHMORE, Senior Vice President, California Federal Savings and Loan Association, Los Angeles, California JANE V. NOREEN, St. Paul, Minnesota ROY SIEMILLER, Vice President, Labor Relations, National Affiance of Businessmen, Washington, D.C. MRS. HAROLD SILVER, Denver, Colorado SHEILA M. SMYTHE, Vice President, Associated Hospital Service of New York, New York, New York JOSEPH WEIZENBAUM, Professor of Computer Science, Massachusetts Institute of Technology, Cambridge, Massachusetts DAVID B.H. MARTIN, Special Assistant to the Secretary of Health, Education, and Welfare, Executive Director CAROLE W. PARSONS, Associate Executive Director *Dr. Grommers served as Chairman of the Committee from May, 1972 to January, 1973; she was unable to continue as a member of the Committee thereafter. *On April 1, 1973, Dr. Gallati assumed responsibility as Commanding Officer, Inspection Division, Police Department, City of New York. **On April 1, 1973, Mr. Gentile joined the U.S. Postal Service as Assistant Postmaster General Management Information Systems Department. SUMMARY AND RECOMMENDATIONS The Secretary's Advisory Committee on Automated Personal Data Systems comprised a cross section of experienced and concerned citizens appointed by the Secretary of Health, Education, and Welfare to analyze the consequences of using computers to keep records about people. The Committee assessed the impact of computer-based record keeping on private and public matters and recommended safeguards against its potentially adverse effects. The Committee paid particular attention to the dangers implicit in the drift of the Social Security number toward becoming an all-purpose personal identifier and examined the need to insulate statistical-reporting and research data from compulsory legal process. The Committee's report begins with a brief review of the historical development of records and record keeping, noting the different origins of administrative, statistical, and intelligence records, and the different traditions and practices that have grown up around them. It observes that the application of computers to record keeping has challenged traditional constraints on recordkeeping practices. The computer enables organizations to enlarge their data-processing capacity substantially, while greatly facilitating access to recorded data, both within organizations and across boundaries that separate them. In addition, computerization creates a new class of record keepers whose functions are technical and whose contact with the suppliers and users of data are often remote. The report explores some of the consequences of these changes and assesses their potential for adverse effect on individuals, organizations, and the society as a whole. It concludes that the net effect of computerization is that it is becoming much easier for record-keeping systems to affect people than for people to affect record-keeping systems. Even in nongovernmental settings, an individual's control over the use that is made of personal data he gives to an organization, or that an organization obtains about him, is lessening. Concern about computer-based record keeping usually centers on its implications for personal privacy, and understandably so if privacy is considered to entail control by an individual over the uses made of information about him. In many circumstances in modem life, an individual must either surrender some of that control or forego the services that an organization provides. Although there is nothing inherently unfair in trading some measure of privacy for a benefit, both parties to the exchange should participate in setting the terms. Under current law, a person's privacy is poorly protected against arbitrary or abusive record-keeping practices. For this reason, as well as because of the need to establish standards of record-keeping practice appropriate to the computer age, the report recommends the enactment of a Federal "Code of Fair Information Practice" for all automated personal data systems. The Code rests on five basic principles that would be given legal effect as "safeguard requirements" for automated personal data systems. * There must be no personal data record keeping systems whose very existence is secret. * There must be a way for an individual to find out what information about him is in a record and how it is used. * There must be a way for an individual to prevent information about him that was obtained for one purpose from being used or made available for other purposes without his consent. * There must be a way for an individual to correct or amend a record of identifiable information about him. * Any organization creating, maintaining, using, or disseminating records of identifiable personal data must assure the reliability of the data for their intended use and must take precautions to prevent misuse of the data. The proposed Code calls for two sets of safeguard requirements; one for administrative automated personal data systems and the other for automated personal data systems used exclusively for statistical reporting and research. Special safeguards are recommended for administrative personal data systems whose statistical reporting and research applications are used to influence public policy. The safeguard requirements define minimum standards of fair information practice. Under the proposed Code, violation of any safeguard requirement would constitute "unfair information practice" subject to criminal penalties and civil remedies. The Code would also provide for injunctive relief. Pending legislative enactment of such a code, the report recommends that the safeguard requirements be applied through Federal administrative action. The report discusses the relationship of existing law to the proposed safeguard requirements. It recommends that laws that do not meet the standards set by the safeguard requirements for administrative personal data systems be amended and that legislation be enacted to protect personal data used for statistical reporting and research from compulsory disclosure in identifiable form. The report examines the characteristics and implications of a standard universal identifier and opposes the establishment of such an identification scheme at this time. After reviewing the drift toward using the Social Security number (SSN) as a de facto standard universal identifier, the Committee recommends steps to curtail that drift. A persistent source of public concern is that the Social Security number will be used to assemble dossiers on individuals from fragments of data in widely dispersed systems. Although this is a more difficult technical feat than most laymen realize, the increasing use of the Social Security number to distinguish among individuals with the same name, and to match records for statistical-reporting and research purposes, deepens the anxieties of a public already suffused with concern about surveillance. If record-keeping systems and their data subjects were protected by strong safeguards, the danger of inappropriate record linkage would be small; until then there is a strong case to be made for discouraging linkage. The report recommends that use of the Social Security number be limited to Federal programs that have a specific Federal legislative mandate to use the SSN, and that new legislation be enacted to give an individual the right to refuse to disclose his SSN under all other circumstances. Furthermore, any organization or person required by Federal law to obtain and record the SSN of any individual for some Federal program purpose must be prohibited from making any other use or disclosure of that number without the individual's informed consent. The report recognizes the need to improve the reliability of the Social Security number as an instrument for strengthening the administration of certain Federally supported programs of public assistance. It also recognizes that issuing Social Security numbers to ninth-grade students in schools is likely to be consistent with the needs and convenience of young people seeking part-time employment and who need an SSN for Social Security and Federal income tax purposes. Accordingly, the Committee endorses the recommendation of the Social Security Task Force that a positive program of issuing SSNs to ninth-grade students in schools be undertaken. It does so, however, on the condition that no school system shall be induced to cooperate in such a program against its will, and that any person shall have a right to refuse to be issued an SSN in connection with such a program. The Committee recommends that there be no positive program of issuing SSNs to children in schools below the ninth-grade level; and that the 1972 legislation amending the Social Security Act to require enumeration of all persons who benefit from any Federally supported program be interpreted narrowly. Finally, the Committee recommends legislation to prohibit use of the Social Security number for promotional or commercial purposes. The last chapter of the report contains an agenda of actions to be taken for implementing the Committee's recommendations, which are set forth in full below. RECOMMENDATIONS Code of Fair Information Practice We recommend the enactment of legislation establishing a Code of Fair Information practice for all automated personal data systems. * The Code should define "fair information practice" as adherence to specified safeguard requirements. * The Code should prohibit violation of any safeguard requirement as an "unfair information practice." * The Code should provide that an unfair information practice be subject to both civil and criminal penalties. * The Code should provide for injunctions to prevent violation of any safeguard requirement. * The Code should give individuals the right to bring suits for unfair information practices to recover actual, liquidated, and punitive damages, in individual or class actions It should also provide for recovery of reasonable attorneys' fees and other costs of litigation incurred by individuals who bring successful suits. Pending the enactment of a code of fair information practice, we recommend that all Federal agencies (i) apply the safeguard requirements, by administrative action, to all Federal systems, and (ii) assure, through formal rule making, that the safeguard requirements are applied to all other systems within reach of the Federal government's authority. Pending the enactment of a code of fair information practice, we urge that State and local governments, the institutions within reach of their authority, and all private organizations adopt the safeguard requirements by whatever means are appropriate. Safeguards Requirements for Administrative Personal Data Systems 1. GENERAL REQUIREMENTS A. Any organization maintaining a record of individually identifiable personal data, which it does not maintain as part of an administrative automated personal data system, shall make no transfer of any such data to another organization, without the prior informed consent of the individual to whom the data pertain, if, as a consequence of the transfer, such data will become part of an administrative automated personal data system that is not subject to these safeguard requirements. B. Any organization maintaining an administrative automated personal data system shall: (1) Identify one person immediately responsible for the system, and make any other organizational arrangements that are necessary to assure continuing attention to the fulfillment of the safeguard requirements; (2) Take affirmative action to inform each of its employees having any responsibility or function in the design, development, operation, or maintenance of the system, or the use of any data contained therein, about all the safeguard requirements and all the rules and procedures of the organization designed to assure compliance with them; (3) Specify penalties to be applied to any employee who initiates or otherwise contributes to any disciplinary or other punitive action against any individual who brings to the attention of appropriate authorities, the press, or any member of the public, evidence of unfair information practice; (4) Take reasonable precautions to protect data in the system from any anticipated threats or hazards to the security of the system; (5) Make no transfer of individually identifiable personal data to another system without (i) specifying requirements for security of the data, including limitations on access thereto, and (ii) determining that the conditions of the transfer provide substantial assurance that those requirements and limitations will be observed --except in instances when an individual specifically requests that data about him be transferred to another system or organization; (6) Maintain a complete and accurate record of every access to and use made of any data in the system, including the identity of all persons and organizations to which access has-been given; (7) Maintain data in the system with such accuracy, completeness, timeliness, and pertinence as is necessary to assure accuracy and fairness in any determination relating to an individual's qualifications, character, rights, opportunities, or benefits, that may be made on the basis of such data; and (8) Eliminate data from computer-accessible files when the data are no longer timely. II. PUBLIC NOTICE REQUIREMENT Any organization, maintaining an administrative automated personal data system shall give public notice of the existence and character of its system once each year. Any organization maintaining more than one system shall publish such annual notices for all its systems simultaneously. Any organization proposing, to establish a new system, or to enlarge an existing system, shall give public notice long enough in advance of the initiation or enlargement of the system to assure individuals who may be affected by its operation a reasonable opportunity to comment. The public notice shall specify: (1) The name of the system; (2) The nature and purpose(s) of the system; (3) The categories and number of persons on whom data are (to be) maintained; (4) The categories of data (to be) maintained, indicating which categories are (to be) stored in computer-accessible files; (5) The organization's policies and practices regarding data storage, duration of retention of data, and disposal thereof; (6) The categories of data sources; (7) A description of all types of use (to be) made of data, indicating those involving computer-accessible files, and including all classes of users and the organizational relationships among them; (8) The procedures whereby an individual can (i) be informed if he is the subject of data in the system; (ii) pin access to such data; and (iii) contest their accuracy, completeness, pertinence, and the necessity for retaining them; (9) The title, name, and address of the person immediately responsible for the system. III. RIGHTS OF INDIVIDUAL DATA SUBJECTS Any organization maintaining an administrative automated personal data system shall: (1) Inform an individual asked to supply personal data for the system whether he is legally required, or may refuse, to supply the data requested, and also of any specific consequences for him, which are known to the organization, of providing or not providing such data; (2) Inform an individual, upon his request, whether he is the subject of data in the system, and, if so, make such data fully available to the individual, upon his request, in a form comprehensible to him; (3) Assure that no use of individually identifiable data is made that is not within the stated purposes of the system as reasonably understood by the individual, unless the informed consent of the individual has been explicitly obtained; (4) Inform an individual, upon his request, about the uses made of data about him including the identity of all persons and organizations involved and their relationships with the system; (5) Assure that no data about an individual are made available from the system in response to a demand for data made by means of compulsory legal process, unless the individual to whom the data pertain has been notified of the demand; and (6) Maintain procedures that (i) allow an individual who is the subject of data in the system to contest their accuracy, completeness, pertinence, and the necessity for retaining them; (ii) permit data to be corrected or amended when the individual to whom they pertain so requests; and (iii) assure, when there is disagreement with the individual about whether a correction or amendment should be made, that the individual's claim is noted and included in any subsequent disclosure or dissemination of the disputed data. Existing laws or regulations affording individuals greater protection than the safeguard requirements should be retained, and those providing less protection should be amended to meet the basic standards set by the safeguards. In particular, we recommend * That the Freedom of Information Act be amended to require, an agency to obtain the consent of an individual before disclosing in personally identifiable form exempted category data about him, unless the disclosure is within the purposes of the system as specifically required by statute. * That pending such amendment of the Act, all Federal agencies provide for obtaining the consent of individuals before disclosing individually identifiable exempted-category data about them under the Freedom of Information Act. * That the Fair Credit Reporting Act be amended to provide for actual, personal inspection by an individual of his record along with the opportunity to copy its contents, or to have copies made; and that the exceptions from disclosure to the individual now authorized by the Fair Credit Reporting Act for medical information and sources of investigative information be omitted. Statistical-Reporting and Research Uses of Administrative Personal Data Systems In light of our inquiry into the statistical-reporting and research uses of personal data in administrative record-keeping systems, we recommend that steps be taken to assure that all such uses are carried out in accordance with five principles: First, when personal data are collected for administrative purposes, individuals should under no circumstances be coerced into providing additional personal data that are to be used exclusively for statistical reporting and research. When application forms or other means of collecting personal data for an administrative data system are designed, the mandatory or voluntary character of an individual's responses should be made clear. Second, personal data used for making determinations about an individual's character, qualifications, rights, benefits, or opportunities, and personal data collected and used for statistical reporting and research, should be processed and stored separately. Third, the amount of supplementary statistical-reporting and research data collected and stored in personally identifiable form should be kept to a minimum. Fourth, proposals to use administrative records for statistical reporting and research should be subjected to careful scrutiny by persons of strong statistical and research competence. Fifth, any published findings or reports that result from secondary statistical-reporting and research uses of administrative personal data systems should meet the highest standards of error measurement and documentation. In addition, there are certain safeguards that can be feasibly applied to all administrative personal data systems used for statistical reporting and research. Specifically, we recommend that the following requirements be added to the safeguard requirements for administrative personal data systems: Under I. General Requirements, add C. Any organization maintaining an administrative automated personal data system that publicly disseminates statistical reports or research findings based on personal data drawn from the system, or from systems of other organizations, shall: (1) Make such data publicly available for independent analysis, on reasonable terms; and (2) Take reasonable precautions to assure that no data made available for independent analysis will be used in a way that might reasonably be expected to prejudice judgments about any individual data subject's character, qualifications, rights, opportunities, or benefits. Under the Public Notice Requirement, add (8a) The procedures whereby an individual, group, or organization can gain access to data used for statistical reporting or research in order to subject such data to independent analysis. Systems Used Exclusively For Statistical Reporting and Research All the features of the Code of Fair Information Practice that we recommend for automated personal data systems would apply to systems used exclusively for statistical reporting and research. The safeguard requirements to be included in the Code for such systems are designed to help protect the individual citizen against unintended or unforeseen uses of information that he provides exclusively for statistical reporting and research, and to help assure that the uses organizations make of such data are subject to independent expert review and open public discussion. Pending the enactment of a code of fair information practice, we recommend that all Federal agencies (i) apply these safeguard requirements, by administrative action, to all Federal statistical-reporting and research systems, and (ii) assure, through formal rule making, that the safeguard requirements are applied to all systems within reach of the Federal government's authority. Pending the enactment of a code of fair information practice, we also urge that State and local governments, the institutions within reach of their authority, and all private organizations adopt the safeguard requirements by whatever means are appropriate. Safeguard Requirements For Statistical-Reporting and Research Systems 1. GENERAL REQUIREMENTS A. Any organization maintaining a record of personal data, which it does not maintain as part of an automated personal data system used exclusively for statistical reporting or research, shall make no transfer of any such data to another organization without the prior informed consent of the individual to whom the data pertain, if, as a consequence of the transfer, such data will become part of an automated personal data system that is not subject to these safeguard requirements or the safeguard requirements for administrative personal data systems. B. Any organization maintaining an automated personal data system used exclusively for statistical reporting or research shall: (1) identify one person immediately responsible for the system, and make any other organizational arrangements that are necessary to assure continuing attention to the fulfillment of the safeguard requirements; (2) Take affirmative action to inform each of its employees having any responsibility or function in the design, development, operation, or maintenance of the system, or the use of any data contained therein, about all the safeguard requirements and all the rules and procedures of the organization designed to assure compliance with them; (3) Specify penalties to be applied to any employee who initiates or otherwise contributes to any disciplinary or other punitive action against any individual who brings to the attention of appropriate authorities, the press, or any member of the public, evidence of unfair information practice; (4) Take reasonable precautions to protect data in the system from any anticipated threats or hazards to the security of the system; (5) Make no transfer of individually identifiable personal data to another system without (i) specifying requirements for security of the data, including limitations on access thereto, and (ii) determining that the conditions of the transfer provide substantial assurance that those requirements and limitations will be observed-except in instances when each of the individuals about whom data are to be transferred has given his prior informed consent to the transfer; and (6) Have the capacity to make fully documented data readily available for independent analysis. II. PUBLIC NOTICE REQUIREMENT Any organization maintaining an automated personal data system used exclusively for statistical reporting or research shall give public notice of the existence and character of its system once each year. Any organization maintaining more than one such system shall publish annual notices for all its systems simultaneously. Any organization proposing to establish a new system, or to enlarge an existing system, shall give public notice long enough in advance of the initiation or enlargement of the system to assure individuals who may be affected by its operation a reasonable opportunity to comment. The public notice shall specify: (1) The name of the system; (2) The nature and purpose(s) of the system; (3) The categories and number of persons on whom data are (to be) maintained; (4) The categories of data (to be) maintained, indicating which categories are (to be) stored in computer-accessible files; (5) The organization's policies and practices regarding data storage, duration of retention of data, and disposal thereof; (6) The categories of data sources; (7) A description of all types of use (to be) made of data, indicating those involving computer-accessible files, and including all classes of users and the organizational relationships among them; (8) The procedures whereby an individual, group, or organization can pin access to data for independent analysis; (9) The title, name, and address of the person immediately responsible for the system; (10) A statement of the system's provisions for data confidentiality and the legal basis for them. III. RIGHTS OF INDIVIDUAL DATA SUBJECTS Any organization maintaining an automated personal data system used exclusively for statistical reporting or research shall: (1) Inform an individual asked to supply personal data for the system whether he is legally required, or may refuse, to supply the data requested, and also of any specific consequences for him, which are known to the organization, of providing or not providing such data; (2) Assure that no use of individually identifiable data is made that is not within the stated purposes of the system as reasonably understood by the individual, unless the informed consent of the individual has been explicitly obtained; (3) Assure that no data about an individual are made available from the system in response to a demand for data made by means of compulsory legal process, unless the individual to whom the data pertain (i) has been notified of the demand, and (ii) has been afforded full access to the data before they are made available in response to the demand. In addition to the foregoing safeguard requirements for all automated personal data systems used exclusively for statistical reporting and research, we recommend that all personal data in such systems be protected by statute from compulsory disclosure in identifiable form. Federal legislation protecting against compulsory disclosure should include the following features: * The data to be protected should be limited to those used exclusively for statistical reporting or research. Thus, the protection, would apply to statistical-reporting and research data derived from administrative records, and kept apart from them, but not to the administrative records themselves. * The protection should be limited to data identifiable with, or traceable to, specific individuals. When data are released in statistical form, reasonable precautions to protect against "statistical' disclosure" should be considered to fulfill the obligation not to disclose data that can be traced to specific individuals. * The protection should be specific enough to qualify for non-disclosure under the Freedom of Information Act exemption for matters "specifically exempted from disclosure by statute." 5 U.S.C. 552(b)(3). * The protection should be available for data in the custody of all statistical-reporting and research systems, whether supported by Federal funds or not. * Either the data custodian or the individual about whom data are sought by legal process should be able to invoke the protection, but only the individual should be able to waive it. * The Federal law should be controlling; no State statute should be taken to interfere with the protection it provides. Use of the Social Security Number We take the position that a standard universal identifier (SUI) should not be established in the United States now or in the foreseeable future. By our definition, the Social Security Number (SSN) cannot fully qualify as an SUI; it only approximates one. However, there is an increasing tendency for the Social Security number to be used as if it were an SUI There are pressures on the Social Security Administration to do things that make the SSN more nearly an SUI. We believe that any action that would tend to make the SSN more nearly an SUI should be taken only if, after careful deliberation, it appears justifiable and any attendant risks can be avoided. We recommend 'against the adoption of any nationwide, standard, personal identification format, with or without the SSN, that would enhance the likelihood of arbitrary or uncontrolled linkage of records about people, particularly between government and government-supported automated personal data systems. We believe that until safeguards against abuse of automated personal data systems have become effective, constraints should be imposed on use of the Social Security number. After that the question of SSN use might properly be reopened. As a. general framework for action on the Social Security number, we recommend that Federal policy with respect to use of the SSN be governed by the following principles: First, uses of the SSN should be limited to those necessary for carrying out requirements imposed by the Federal government. Second, Federal agencies and departments should not require or promote use of the SSN except to the extent that, they have a specific legislative mandate from the Congress to do so. Third, the Congress should be sparing in mandating use of the SSN, and should do so only after full and careful consideration preceded by well advertised hearings that elicit substantial public participation. Such consideration should weigh carefully the pros and cons of any proposed use, and should pay particular attention to whether effective safeguards have been applied to automated personal data systems that would be affected by the proposed use of the SSN. (Ideally, Congress should review all present Federal requirements for use of the SSN and determine whether these existing requirements should be continued, repealed, or modified.) Fourth, when the SSN is used in instances that do not conform to the three foregoing principles, no individual should be coerced into providing his SSN, nor should his SSN be used without his consent. Fifth, an individual should be fully and fairly informed of his rights and responsibilities relative to uses of the SSN, including the right to disclose his SSN whenever he deems it in his interest to do so. In accordance with these principles, we recommend specific, preemptive, Federal legislation providing: (1) That an individual has a legal right to refuse to disclose his SSN to any person or organization that does not have specific authority provided by Federal statute to request it; (2) That an individual has the right to redress if his lawful refusal to disclose his SSN results in the denial of a benefit, or the threat of denial of a benefit; and that, should an individual under threat of loss of benefits supply his SSN under protest to an unauthorized requestor, he shall not be considered to have forfeited his right to redress; and (3) That any oral or written request made to an individual for his SSN must be accompanied by a clear statement indicating whether or not compliance with the request is required by Federal statute, and, if so, citing the specific legal requirement. In addition, we recommend (4) That the Social Security Administration undertake a positive program of issuing SSNs to ninth-grade students in schools, provided (a) that no school system be induced to cooperate in such a program contrary to its preference; and (b) that any person shall have the right to refuse to be issued an SSN in connection with such a program, and such right of refusal shall be available both to the student and to his parents or guardians; I. RECORDS AND RECORD KEEPERS "The horror of that moment, " the King went on, "I shall never, never forget!" "You will, though, " the Queen said, "if you don't make a memorandum of it." Lewis Carroll Through the Looking-glass HISTORICAL DEVELOPMENT In Cabinet No. 1 of the Musee des Antiquites Nationales near Paris there lies a wing-bone of an eagle, not much longer than a finger. On it, three rows of tiny marks, each carefully engraved with a flint point, count off a calendar of days from new moon to new moon. That eagle bone from the Magdalenian period, roughly 14,000 years ago, is the most ancient evidence we have of man's unique ability use abstract notation as an aid to memory. Out of the Stone Age, through the dawn of agriculture, similar records in all pre-literate cultures attest to the attempts of hunters, gatherers, and farmers to keep track of the passing of the seasons and the meshing cycles of growth and harvest on which survival depended. Even long after more complex societies had fostered more elaborate forms of written record keeping, simple tally scratches, half practical and half magical, continued to serve as records-on the tally sticks of millers, for example, and on the six-guns of lawmen. Record-keeping techniques grew and were perfected as once scattered tribes and small communities were amalgamated into larger and more organized states. Among the ancient cradles of civilization-Asia Minor, China, India, and Central and South America-only the Inca civilization of the Andes did not develop a written method of recording, using instead a system of knotted cords, called quipu. Indeed, practically all the earliest writing deals with records-palace inventories, lists of tribute to kings and sacrifices to temples, records of royal births and deaths, traders' accounts-records of things too important to trust to memory. In most of the ancient world, the scribes and clerks who developed systematic record keeping quickly expanded into generalized public administration. In Sumer and other city-states of Mesopotamia, royal genealogies were embellished with accounts of battles, land. surveys included detailed descriptions of farms and villages, and tax records included commentaries on the tax laws that governed them. Gradually these commentaries were detached from records proper and took on a separate existence. The law code of Hammurabi, for example, emerged from the notes of scribes and marks an important milestone in the history of social organization. Once the laws of the state achieved an existence independent of records, the witness of the records could be used to bind the state and the citizen equally. When both the tax laws and the size of a man's herd were matters of public record, the pressure of public scrutiny would tend to keep both the publican and the herdsman honest. Systematic record keeping in the ancient world reached a high point during the Roman Empire and then degenerated with the decline of strong central government. During the Middle Ages the levying of taxes was left largely in the hands of local strongmen who had little interest in record keeping. Although the laws of inheritance and the interest of the Church in proper sacramental procedures encouraged parishes to maintain registers of births, marriages, and deaths, those records seldom covered the bunk of the population. In soma cases, however, rulers of newly conquered domains did order inventories and land surveys. One such was William the Conqueror's survey, known as the Domesday Book, of the extent and value of landholdings in England in 1086 A.D.. It became the foundation of Exchequer records that, in turn, grew to include audits of the accounts of sheriffs and other local officials. The memory-aiding function of these records is suggested by the title of the official responsible for keeping them-King's Remembrancer. As a landmark in the gradual evolution from personal sovereignty to bureaucratic administration, the Magna Carta of A.D. 1215 laid the foundation in Anglo-Saxon legal tradition for codifying mutual responsibilities of government and governed. The Magna Carta, wrested from King John by his powerful barons, reduced the independence of justices, sheriffs, and other local officials, censuring, in theory at least, that men who knew the common law and were willing to observe it would hold positions of high authority. During the reign of King John also, an administrative distinction between public and closed records began to be observed; official records were divided into letters patent that were sent and stored open, with the king's seal attached for authentication, and letters close that were sent folded and sealed, and that were stored secure from public inspection. The use and content of these two classes of records corresponds well, as we shall see, with the modern practice of separating public from confidential records. As custom and statute more and more provided that government records should be open to the public, the justification for closed or secret records came to be their pertinence to the defense and security of the state. By the mid-1600's; all royal courts maintained files1 of information on the identity and activities of citizens or aliens who were considered a threat to the state or the sovereign. Such files covered a small number of individuals by today's standards, but were treated with great secrecy and came to be the responsibility of a special class of record keeper well outside the regular channels of administration. The scope and intensity of this special field of record keeping soon gave it a character so different from its bureaucratic origins that it becomes convenient at this point to draw a distinction between general administrative records and the very special intelligence records. As the idea gradually spread that governing a state involved more than determining and following the wishes of a small ruling class, government became less desultory, more aligned to philosophical currents, and less reactive to the press of random events. As government thus grew more self-conscious, the need for planning became apparent. At first, legislators used their right of access to public records mainly to look backwards; to reconstruct the flow of history that had brought them to their present position. However, lawmakers bent on reform soon found that they needed better guides than records of legal decisions, royal correspondence, and official accounts and audits. They needed benchmark information from which to measure progress toward the goals they wish to achieve. About 1750, the notion of a national census was revived for the first time since the Roman era. Public opposition was strong at first, many people suspecting a scheme to raise taxes. The clergy, for whom the Biblical injunction against the taking of a census still held,2 also were opposed. Resistance gradually subsided.; first in Scandinavia and the German states, then generally throughout the Continent and North America. In the American democracy, where a State's Congressional representation constitutionally depends in part on the size of its population, a national census, at ]east to the extent of a simple head count, was an obvious political necessity. Government soon found that although there was little organized public objection to the head count as such, probing by census takers for information about income, family life, living habits, and other personal matters turned citizens obstinate and made the census more difficult to take. The problem of gathering information from an antagonistic public led to the creation of yet another class of official. records, the so-called statistical3 file. The essence of such a file is that the data it contains are not used to affect specific individuals. In creating such a file, the government, in, order to gain information the public might otherwise be reluctant to give, foregoes some of the power over individuals that administrative records containing the same data would afford. The essential condition is that citizens believe that their individual contributions to a statistical file will not be made public and will not be used to punish or embarrass them. TYPES OF RECORDS ABOUT PEOPLE As we approach the computer age in this brief survey of record keeping, we need to define the three main types of records that have been distinguished historically4. > Administrative Records. The administrative record is often generated in the > process of a transaction-marriage, graduation, obtaining a license or permit, > buying on credit, or investing money. Usually a record that refers to an > individual includes an address or other data sufficient for identification. > Personal data- in an administrative record tends to be self-reported of > gathered through open inspection of the subject's ,affairs. Private firms > usually treat administrative records pertaining to individuals as proprietary > information, while administrative records held by the government are normally > accessible to the public and may be shared for administrative purposes among > various agencies. Administrative records sometimes serve as credentials for an > individual; birth certificates, naturalization papers, bank records, and > diplomas all serve to define a person's status. > Intelligence Records. The intelligence record may take a variety of forms. > Familiar examples are the security clearance file, the police investigative > file, and the consumer credit report. Some of the information in an > intelligence record may be drawn from administrative records, but :much of it > is the testimony of informants and the observations of investigators. > Intelligence records tend to circulate among intelligence-gathering > organizations and to be shared selectively with organizations that make > administrative determinations about individuals. Intelligence records are > seldom deliberately made public, except as evidence in legal proceedings. Statistical Records. A statistical record is typically created in a population census or sample survey. The data in it are usually gathered through a questionnaire, or by some other method designed to assure the comparability of individual responses. In nearly all cases, the identity of the record subject is eventually separated from the data in the record. If a survey must follow a given individual for a long time, his identity is often encoded, with the key to the code entrusted to a separate record to guard anonymity. Data from administrative records are sometimes used for statistical purposes, but statistical records about identifiable individuals are generally not used for administrative or intelligence purposes. Not every record falls clearly into one of these three categories. The contemporary personnel record combines features of bath administrative and intelligence records, and the records in the modern "management information system" have both administrative and statistical uses. Many records share characteristics of all three types to some degree. Yet whether one looks at the relationships among records of different types historically, from the perspective of present-day public policy, or from the point of view of the individuals who are the subjects of records, it is apparent that, by and large, administrative records are considered public; intelligence records, secret; and statistical records, anonymous. Moreover, democratic traditions with respect to the maintenance of government records about people have deep historical roots in a number of countries,5 and appear to be dominated by three major principles. * An organization should record only information that has a clear-cut relevance to its concerns. Religious data, for example, should not be recorded where there is no state supported church, and citizens should not be required to furnish extraneous data as the price of obtaining a benefit. * As much as possible, information that has been collected should be held in public files so that public scrutiny can act as a check on the arbitrary exercise. of administrative authority. Closed files in government sould be the exception, and their content and use should be regulated by specific laws, both to limit their extent and to assure their confidentiality.6 * The three types of records described above should be held separately, and each should be used only for its nominal purpose. The transfer of data from one type of record to another should take place only under controlled conditions. Records that do not fall neatly into one category, and record systems whose structure or use blurs the boundaries between types of records, demand special safeguards to protect personal privacy. FROM RECORD KEEPING TO DATA PROCESSING In this country, the end of World War II unleashed the deferred wants and pent-up purchasing power of the war years onto a labor-poor, capital-rich market. To help deal with the social and economic dislocations created, first, by demobilization, and later, by the Cold War, government kept in force many of the controls it had established during the years of all-out mobilization. The nation's pride in its wartime accomplishments lent a tone of confidence to even the most ambitious planning. Industry, for its part, took advantage of new technologies emerging from. wartime research and development to make revolutionary changes in its methods of producing and distributing goods and services. Acting together, these forces rapidly expanded commercial and governmental activities in the late forties and early fifties, forcing a vast increase in the volume of transactions requiring records about people. Compared with pre-war years, the number of bark checks written, the number of college students, and the number of pieces of mail all nearly doubled; the number of income-tax returns quadrupled; and the number of Social Security payments increased by a factor of more than 35.7 Technology developed during the war years was available to meet the challenge posed by this rising tide of recorded transactions. Automated data processing, transplanted from its military origin, quickly blossomed into a powerful industry, feeding on the demands of commerce and government for fast and efficient data handling, and in turn, fueling that demand by significantly changing the philosophy and practice of management itself. Since most industries based on a highly technical product must quickly develop a mass market to recover the high development and tooling costs, the computer industry devoted much attention and talent to marketing its products, without appreciating the implications of the technological revolution it was unleashing. By the 1960's, attractive prices, persuasive salesmen, and ingenious computer software services had stimulated the introduction of automated data processing equipment into a great many record-keeping organizations, sometimes with far too little attention to the objectives and costs of automation. Although there were many examples of diseconomies and a few outright failures, the successes were so spectacular that the prestige of having a large-scale data processing capacity often prompted managers to keep their computers running, even at a financial loss. The computer scored its earliest successes as a record keeper in fields where the data were mainly numerical. The speed with which the computer can do complex arithmetic, and the compactness of numerical data as compared to natural language, were major factors in quickly amortizing the considerable expense of installing a computer, and of converting an established record-keeping operation to take full advantage of the computer's capabilities. Thus, the earliest successes were heavily concentrated in science and engineering, banking, insurance, and accounting, and, above all, in the space program, where the value of computers in handling the intricate logistics of production, assembly, and testing was soon discovered. SYSTEMATIC MANAGEMENT For computers to be used effectively as management tools, an organization must first analyze its activities in a careful, systematic way. For example, if it is known that the goals of an operation can be attained by more than one method, the various alternatives can in principle be simulated on the computer, and their relative costs and benefits thereby compared to find the most cost-effective one. This mathematical simulation of a complex activity is called systems analysis. During the late sixties, planners began to extend the techniques of systems analysis from their early engineering applications to more general problems of society. In particular, systems analysis was brought to bear on such ambitious tasks as improving the delivery of health care, managing the rapidly growing welfare caseload in urban centers, and measuring the effectiveness of a fragmented and increasingly expensive educational system. The introduction of the disciplined methods of computer-assisted management gave program managers new tools for "auditing" the performance of institutions in programs of service to people. This auditing process includes: * Keeping track of transactions between an organization and its clients or beneficiaries; * Measuring the performance of the organization in relation to the goals set for it; * Providing information needed for planning. Each of these functions involves information about individuals. Administrative data are needed for everyday management of individual transactions. Statistical data are needed for planning and for assessing the performance of a program. Intelligence: data are needed for making judgments about people's character and qualifications; e.g., in making suitability determinations for employment, commercial credit, welfare assistance, tuition-loan aid, or disaster relief. The demand generated by all these uses for personal data, and for record-keeping systems to store and process them, challenges conventional legal and social controls on organizational record keeping. Records about people are becoming both more ubiquitous and more important in everyday life. The number of organizations performing service and control functions is growing. In many cases, the scale of their operations virtually assures that the individuals they affect will be known to them only through the contents of systematically maintained records. A new technology is also demonstrating its potential to accommodate radical growth in organizational record-keeping operations. Yet society currently affords little protection for an individual who is the subject of a record, unless some commercial or property interest in involved. The following chapters represent our effort to demonstrate why this situation deserves immediate attention and to recommend a course of action that, we believe, constitutes an appropriate societal response to the problems at hand. 1 The use of the word "file" in this sense dates from the 1640's. See "File," Oxford English Dictionary, 1933,1V, 210. 2II Samuel 24 and I Chronicles, 21, 23, 27. 3The word statistics [state-istics] came into use in the late 18th century to denote information on the condition of a state. See "Statistics," Oxford English Dictionary, 1933, X, E64. 4The classification follows that of Prof. Alan Westin in M. Greenberger (Ed.), Computers, Communications, and the Public Interest (Baltimore, Md.: The Johns Hopkins Press), 1971, p. 156. 5The reader who is interested in comparing the American experience with that of other nations will find a summary of available material in Appendix B, below. 6The evolution of Federal policy with respect to the confidentiality of census data is traced in Appendix C, below. See also Daniel J. Boorstin, The Americans: The Democratic Experience (New York: Random House), 1973, Chapters 19-28. 7Alan F. Westin, and Michael A. Baker, Databanks in a Free Society (New York: Quadrangle Books), 1972, pp. 224-225. II. LATENT EFFECTS OF COMPUTER-BASED RECORD KEEPING The dangers latent in the spread of computer-based personal-data record keeping stem, in our view, from three effects of computers and computer-related technology on an organization's recordkeeping practices. * Computerization enables an organization to enlarge its data-processing capacity substantially. * Computerization greatly facilitates access to personal data within a single organization, and across boundaries that separate organizational entities. * Computerization creates a new class of record keepers whose functions are technical and whose contact with original suppliers and ultimate users of personal data are often remote. These three effects on personal-data record-keeping are seldom observed in isolation from one another. Indeed, they are usually interdependent and may acquire a self-reinforcing momentum. The discussion that follows is focused on their potentially adverse consequences for individuals, for organizations, and for the society as a whole. It concentrates on aspects of computer-based record keeping that. highlight the influence of the technology, but also recognizes that organizational objectives, bureaucratic behavior, and public attitudes account in part for many of the potentially undesirable effects we have identified. TOO MUCH DATA The bare statement that computerization enables an organization to enlarge its capacity to process information deserves amplification. Although the computer enables a large organization to handle more data, the cost of changing from a manual to an automated operation may practically compel a smaller organization to exploit its data-processing capacity more fully. The cost of setting up an automated system includes not only that of equipment and special facilities, but also the cost of system analysis and design, of writing and testing computer programs, and of converting manual records into computer-accessible form. Thus, the manager of a newly automated system may have a strong economic incentive to spread the initial cost over as large a data-processing volume as he can; and to economize wherever possible in providing services. that do not make a direct contribution to the efficient operation of the system itself. A typical result of this condition is that clients receive erroneous bills, unjustified dunning letters, duplicate :magazine subscriptions, and countless other symptoms of inadequate system design and operation. Although these may be more a nuisance than a threat, they contribute heavily to the popular image of computerization as an offending and intrusive phenomenon. The annoyance factor is worth more attention than many system managers give it. Resentment engendered in customers at the mercy of a computerized billing system, for example, spills over onto other computer operations, making unemotional discussion of computerization in fundamentally more significant contexts difficult. An early incentive to concentrate on efficiency may also foster a tendency to behave as though data management were the primary goal of a computer-based record-keeping operation. When this occurs, unnecessary constraints may be placed on the gathering, processing, and output of data, with the result that the system becomes rigid and insensitive to the interests of data subjects. A commonly observed tendency in these situations is to make the data subject do as much of the data collection work as possible by forcing him to decide how to fit himself into a highly structured, but limited set of data categories (e.g., "Please check one of the following boxes."). This can be a way to cut down errors in transcribing data from one form of record to another, but when done solely in the interest of economy the system may well sacrifice flexibility and accuracy. It is true that data compression and "shorthand" record entries did not originate with the computer; ill-adapted categorization has been the bane of bureaucracy for generations. However, manual record keeping can, at the stroke of a pen, take account of data that do not fit comfortably into pre-conceived categories, while a computer record is not usually amenable to any sort of annotation that was not expressly planned for in the design of the system. The relative inflexibility of computer-based record keeping, coupled with the constraints that some automated systems put on the freedom of data subjects to provide explanatory details in responding to questions, contributes to the so-called "dehumanizing" :image of computerization. A recent occurrence in France illustrates how the inflexibility of an automated personal data system can adversely affect large numbers of people.1 The computer facility of the national family allotment system, which disburses some $600 million annually to 700,000 families in the Paris area, succumbed to the confusion created by changes in the allotment rate for nonworking wives, young people, and the handicapped. Efforts to unravel the difficulty were unsuccessful, and the computer center had to be reorganized as a manual operation in order to clear up an enormous backlog of emergency allotment payments. The disruption of human lives resulting from the inability to use the computer-based payments system was undoubtedly great and demonstrates why the difficulty of making even minor changes in the computer programs of a complex system gives cause for concern. Human bureaucracies exhibit similar rigidities, but their procedures can usually be changed by management directive, often by a simple promulgation of rules, and in a reasonably short time. In computer systems, however, even a change that has the wholehearted support of all concerned may be difficult and slow to effectuate. This problem can become even more serious when economies of scale are sought by consolidating the data-processing tasks of several organizations into one automated system serving all. The effects of dysfunction then fall not only on the customers of the system primarily at fault, but also on "bystander" data subjects and other organizations. EASY ACCESS The second effect of computerization on personal-data record keeping-that it facilitates access to data within a single organization and across boundaries normally separating organizations-is another source of concern. Quick, cheap access to the contents of a very large automated file often prompts an organization or group of organizations to indulge in what might be called "'dragnet behavior.2 An example of how a very carefully planned data system of ostensible social benefit operates as a dragnet is the National Driver Register of the Department of Transportation (more fully described in Appendix D). It provides a central data facility containing the names of individuals whose driver licenses are denied or withdrawn by a State. The purpose of the Register is to give each State access to the current revocation records of all other States, so that one may, if it wishes, avoid issuing a license to an individual whose license has been denied or withdrawn by another State. Suppose that Missouri revokes John Doe's license for a serious offense. Doe applies in Illinois for a license, neglecting to mention the Missouri revocation. If Illinois issues Doe a license, it in effect nullifies Missouri's action, without knowing it is doing so. Before the National Driver Register was established, Illinois would have had to make specific inquiry to all other States in order to discover the Missouri record of license withdrawal. Because this was time- consuming, States tended to do it only for blatantly suspicious cases with the presumable result that many fraudulent applications were never detected. Now that Doe's record of license withdrawal goes into the master file of the National Driver Register, however, one query to the Register from Illinois will bring the Missouri action to light within 24 hours, thus permitting Illinois to make a decision to grant or withhold a license based upon the original Missouri record. How can a system whose only purpose is to prevent fraud by drivers of demonstrated unfitness have any adverse effect? The answer lies in the efficiency of the Register; it has become easier for most States to put all their license applications routinely onto magnetic tape to be searched against the Register's file, rather than to separate out the suspicious cases for special treatment. If one accepts the objectives of the system-to identify irresponsible or incompetent drivers, and thus to reduce the number of traffic fatalities-this is not in itself an objectionable practice. However, automated matching of queries against NDR records generates identity matches so imprecise that subsequent manual ;screening reduces the system's 5000 possible "hits" per day to about 500 probable ones. Of the probable hits, the operators of the Register estimate that about three quarters are true identifications; that is, they definitely relate to an individual who has misrepresented himself in a license application. Arithmetic does the rest; a quarter of the probable hits -- 125 individuals per day -- may find that they are required to prove that their licenses have not been withdrawn. In theory, a reply from the Register is supposed to be treated merely as a "flag" to inform the inquiring State that there may be a record on the individual about whom the query was made in the revocation files of another State. At least one State, however, makes the "flagged" applicant bear the full burden of proving that such a record does not exist. Here, the "dragnet effect" of cheap arid easy data access-the fact that it is cheaper and more efficient to search the NDR on every license application-has resulted in occasional nuisance and potential injustice to some applicants: The problems that can arise from the operation of the NDR stem from its role as a clearinghouse for information supplied and used by more than 50 independent driver licensing jurisdictions whose operations it does not control. Each jurisdiction using the; Register risks being misled by incomplete or erroneous data submitted. By another participating jurisdiction. Although mistakes propagated by the NDR can usually be corrected at small expense in time and trouble, other mufti jurisdictional clearinghouses can have potentially more serious effects on individuals. The criminal history fileof the FBI's National Crime Information Center (NCIC) is one example. The NCIC is a computerized clearinghouse of information about wanted persons, stolen property, and criminal history records3 that will eventually provide criminal justice agencies throughout the United States with computer-to-computer access to the dicta in its files. The ultimate objective of the NCIC criminal history file is to enable law enforcement agencies, courts, and correctional institutions to determine, in seconds, whether an individual has a criminal record. The NCIC would appear to lack the potential to be used as a dragnet because inquiries are made only about particular individuals with whom law enforcement agencies have contact under conditions that constitute cause for suspicion of wrongdoing. In this respect, it differs significantly from the operation of the National Driver Register. Furthermore, the problem of mistaken identification in using the criminal history files should not arise because of NCIC's requirement that fingerprints be used to identify arrest and offender records entered into the system. Errors of identification can and do occur in using the records in the wanted persons files because these are not identified by fingerprints. However, the ease with which inquiries can be made from remote terminals located in law enforcement and criminal justice agencies all over the; country could lead to access to the NCIC criminal history files by more users and for checking on more individuals than is socially desirable. Leaving aside the question of the probative value of arrest records, about which lively controversy exists, the consequences of excessive use of criminal history files might be innocuous if the NCIC records could be completely reliable. In practice, however, the NCIC, like the National Driver Register, does not have effective control over the accuracy of all the information in its files. The NCIC is essentially an automated receiver, searcher, and distributor of data furnished by others. If a subscribing system enters a partially inaccurate record, or fails to submit additions or corrections to the NCIC files (e.g., the recovery of a stolen vehicle or the disposition of an arrest), there is not much that the NCIC can do about it. Furthermore, the risk of propagating information that may lead to unjust treatment of an individual by law enforcement authorities in subscribing jurisdictions cannot be fully prevented.4 The NCIC checks on records being entered into its files, and periodically audits its files to try to assure that system standards for completeness and accuracy of records are being met. When it detects errors or points of incompleteness, it can seek corrective action and can flag its records to warn users of possible deficiencies. In the cases of an arrest record, however, even if the source agency does eventually submit information about the disposition of the arrest, there is no way that the NCIC can assure that all those who have had access to the record in the interim will receive the disposition information. Once a subscribing police department contributes an arrest report to the NCIC, that report is available to any qualified requestor in the system. In some States, this means that employers and licensing agencies (for physicians, barbers, plumbers, and the like) will have access to the record under State laws that require an arrest-record check on candidates for certain types of occupational certification. Thus, unless a criminal record information system is designed to keep track of all the ultimate users of each record released, and of every person who has seem it, any correction or emendation of the original record can never be certain to reach each holder of a copy. Systems like the NCIC and the National Driver Register illustrate one of the potentially most significant effects of computerization on personal-data record keeping-the enhanced ability to gather, package, and deliver information from one organization to ;another in circumstances where lines of authority and responsibility are overlapping or ambiguous, and where the significance attached to data disseminated by the system may vary among subscribing organizations. Unless all organizations in a mufti jurisdictional system can be counted on to interpret and use data in the same way, the likelihood of unfair or inappropriate decisions about the individual to whom any given record pertains will be a problv;m, and a particularly acute problem whenever records are incomplete or compressed. The records of school children, for instance, while highly comparable within a single school district, will be less so among the districts of a single State, and even more disparate among different States. Thus, data systems that are established deliberately to pass information across jurisdictional lines must be very carefully designed so as to foster sensitive, discriminating use of personal data. The untoward effects of such systems (or of any system, :for that matter) do not stem in the main from poor technical security. Although public mistrust of the computer often centers on the possibility of unauthorized access to a central data bank for purposes of blackmail or commercial exploitation (such as the clandestine copying of a list of names and addresses), the. purely technical difficulties that can be placed in the path of any but the most well-equipped intruder can make almost every computer installation more secure than its manual counterpart. Unless an intruder has detailed technical knowledge of the system, and possibly also clandestine access to the facility itself, most systems can be quite well defended against "unauthorized" access (although at the present time many systems may not be well-defended). The problem is how to prevent "authorized" access for "unauthorized" purposes, since most leakage of data from personal data systems, both automated and manual, appears to result from improper actions of employees either bribed to obtain information, or supplying it to outsiders under a "buddy system" arrangement. Concern about abuses of authorized access to "integrated" data systems maintained by State and local governments can have a particularly debilitating effect on people's confidence in their governmental institutions. Ambitiously conceived integrated systems, no matter how secure technically, may have the effect of blurring, either in fact or appearance, established lines of political accountability and constitutionally prescribed boundaries between branches of government. When different branches arrange to share an integrated data-processing facility and its data, the executive usually will operate it. This happens partly because operational functions are normal for the executive, and partly because executive agencies usually have more experience with computer systems. It leads people to fear, however, that the needs of executive claimants may be met before the needs of legislative bodies and the judiciary. The priority system for allocating computer support will, of course, look fair on paper, but in practice the result may often be to shortchange the passengers on the system in favor of the driver.5 The recent development of mini-computers, much cheaper than the big systems of only five years ago but of comparable power, is providing an attractive economic alternative to . large integrated systems. Large systems, however, are also becoming less expensive and there is no assurance that they will not become even more so as the result of new technological advance. Finally, in terms of the historical classification of records in Chapter I, we recognize that combining bits and pieces of personal data from various records is one way of creating an intelligence record, or dossier. The possibility of using a large computer to assemble a number of data banks into a "master file" so that a dossier on nearly everybody could then be extracted is currently remote, since the ability to merge unrelated files efficiently depends heavily upon their having many features of technical structure in common, and also on having adequate information to match individual records with certainty.6 These technical obstacles are avoided if the capability to merge whole files is designed into a group of systems at the outset, a practice now characteristic of only a few multi-jurisdictional systems but perhaps becoming more prevalent. At the present time, however, compiling dossiers from a number of unrelated systems presents problems that few organizations, and probably no organizations outside of government, have the resources to solve.7 Nonetheless, public concern about such combinations of data through linkings and mergers of files is well founded since any compilation of records from other records can involve crossing functional as well as geographic and organizational boundaries. When data from an administrative record, for example, become part of an intelligence dossier, neither the data subject nor the new holder knows what purpose the data may some day serve. Moreover, the investigator may believe that no detail is too small to put into dossier, while the subject, for his part, can never know when some piece of trivia will close a noose of circumstantial evidence around him. Public sensitivity to the possibility of such situations argues strongly for preserving the functional distinctions between different classes of personal data systems. TECHNICIANS AS RECORD KEEPERS The reputation of the computer for impersonality and inhuman efficiency is due, in part, to the publicity given the computer as a poet, a chess-player, and a translator of exotic languages. "Machine intelligence" is a subject with fascinating technical and philosophical aspects. To date, however, there is no evidence that a computer capable of "taking over" anything it was not specifically programmed to. take over is attainable. Indeed, as pointed out earlier, programming a computer to handle anything complicated is usually a very difficult and expensive job, requiring generous amounts of money, expertise, and management capability. It seems safe to predict that economic and organizational constraints on the uses of computers . will not change: radically during the next few years. Although computing power and data-storage capability are steadily becoming cheaper, and problemoriented programming is being improved, no dramatic breakthroughs are in sight. This prediction, however, cuts two ways. If we can comfortably assume that computers will not take control of anything on their own volition, we may still feel some disappointment that the application of computers will tend to remain in the hands of trained specialists whose competence is primarily in data processing rather than in the fields that data processing serves. Some would say that this circumstance results from an abdication by managers of their proper role, but whatever the reason, the effect can easily be to insulate the record-keeping functions of an organization from the pressures of both consumers and suppliers of data. The presence of a specialized group of data-processing professionals in an organization can create a constituency within the organization whose interests are served by any increase in data use, without much regard for the intrinsic value of the increased use. The point is underlined by an experience common to many organizations. Some unit is already operating a computer facility for accounting, processing scientific or engineering data, or for some other straightforward application to which the technology is well-adapted. Because the facility has extra computer time available, it is soon discovered that attractive software packages can be purchased to enable the computer to enlarge its scope and become a "management information system." Such systems are founded on the proposition that efficient decision making requires that managers have available to them a greater or more timely supply of relevant information than they have been getting. As commonly observed, however, most managers do not need more of relevant information nearly as badly as they need less of irrelevant raw data.8 Thus, until the theory of management itself has progressed to a stage where the necessary data content of management-oriented systems can be predicted, their users are likely to find them disappointing. Another, potentially more serious, consequence of putting record keeping in the hands of a new class of data-processing specialists is that questions of record-keeping practice which involve issues of social policy are sometimes treated as if they were nothing more than questions of efficient technique. The pressure for establishing a simple, identification scheme for locating records in computer-based systems is a case in point. The technical argument for having a standard universal identifier for records about individuals focuses on increasing the efficiency of record keeping and record usage. Proponents argue that if every item of data entered into an automated system could be associated with an identifier unique to the individual to whom the data pertain, updating, merging, and linking operations would be greatly. simplified and far less error-prone than they are today. Moreover, records could be used more intensively; administrative records indexed by Social Security number, for example, could also be used for certain types of research which require matching data on individuals from several different record systems. To reap the full technical advantages of a standard identiflication scheme, it is necessary for each individual to supply the identifier assigned to him every time he has contact with a record-keeping organization using it. This practice is already familiar to the clients of banks, credit-card services, and many other organizations that have developed their own standard schemes. What worries people is that the inconvenience to record-keeping organizations of having to devise their own numbering arrangements will encourage the adoption of a single universal scheme for use in all computer-based personal data systems. If this happens, organizations that share an interest in monitoring and controlling the behavior of some portion of the population will acquire an enlarged capacity to do so, since they will all be able to know when an individual has contact with any one of them. Fingerprints, for example, are the standard method used by the police to identify persons arrested for crimes. Fingerprinting assures accurate identification and may seem a reasonable way of dealing with criminal offenders, but it is a dubious model for other types of record-keeping organizations to follow. It is, of course, a long step from having each individual identified in the same way in every data system to creating a giant national data bank of dossiers constructed from fragments of records on citizens in widely dispersed data systems. There would have to be some strong incentive for "putting it all together," and as we noted earlier, it is doubtful that even the dollar cost of doing so could be justified on any reasonable grounds. However, it is not necessary to build a giant national data bank to experience some of the effects of having one. There are already systems in operation which have some of the control capabilities that such a centralized dossier system would create. One computer-based personal data system that came to our attention was a comprehensive health information system developed and maintained by an agency of the Department of Health, Education, and Welfare on an Indian reservation in the Southwest. Approximately 10,000 Indians living in the area have records in the system and another 4,000 have records in it but, for one: reason or another, are not part of the active patient population. These 14,000 record subjects are, by and large, an economically dependent population with very serious health problems. Within the confines of the geographic area covered by the system-about the size of Connecticut-they are also a highly mobile population, with each individual going by any one of several different names depending on circumstances. The health facility consists of a combination of in-patient, out-patient, and field-clinic services. The purpose of its cornputer-based record-keeping system is to develop a complete, cradle-to-grave, medical dossier on each individual eligible to use the facility, so that all can benefit from a comprehensive diagnostic and treatment program that aims to control illness by preventing its occurrence, or by taking preemptive steps at the, first sign of a medical problem. The record-keeping system has three basic components: (1) an administrative one that notes and describes every contact each patient has with any segment of the health facility, including the "interdisciplinary" teams of doctors, nurses, and social workers who travel about administering tests and providing ambulatory health services; (2) a statistical-reporting one that attempts to observe fluctuations in the incidence of certain types of ailments and to pinpoint "high risk" groups needing special preventive attention; and (3 ) a "surveillance" one that consists of the recorded results of medical tests administered according to a schedule established by the health facility. The system is a little more than three years old. By the summer of 1972 it contained about 50 million characters of data, or approximately 3,500 characters per patient-record. It accommodates data in narrative as well as standard computer-accessible form. The system is an elegant tool for addressing a complex set of social problems. It would be hard to argue that the patient population being cared for would be better off without the services the system makes possible: It is also apparent that knowing who an individual is, and the details of his medical history, can be of vital importance in treating patients, but the system has certain social control capabilities that should be noted nonetheless. The surveillance component, for example, has the primary purpose of discovering incipient medical problems in individual patients. To do this effectively, each patient must be induced to comply with the health facility's testing schedule, and the health data system can be used to encourage compliance. As long as a patient has no need for medical treatment, he can avoid the testing program. However, once he becomes a patient, for whatever reason, his record will be there at the doctor's fingertips showing all tests he has not had but should be persuaded to have before he leaves the field clinic or wherever it is that he has come to the medical facility's attention. In discussing a system serving such, patently humane purposes, words like "control" and "coercion" may have an objectionable ring, but the coercive potential of the surveillance component, especially in some other area of application, is evident.9 In another environment, the statistical-reporting component of the system could also have potentially unsavory consequences for individuals. It is characteristic of modern organizations to single out "high risk" categories of people to whom the normal standards and rules do not apply. Often these high risk groups are identified from statistical studies of populations that use the services an organization offers. The consequences for any given individual exhibiting the characteristics of the high risk group may range from total exclusion (uninsurability) to being made eligible for special treatment (remedial education, free medical care). Although there is nothing intrinsically harmful in such practices, in dealing with human populations it is essential not to assume that any single member of a statistically defined group will necessarily behave in the way predicted for the group as a whole. Theoretically, the adverse consequences of "statistical stereotyping" can be avoided by permitting an individual to know that he has been labelled a risk and to contest the label as applied to him. However, depending on the circumstances-and particularly on the stake that an organization may have in being able to predict the behavior of each individual in its clientele-a lone individual could have considerable difficulty making his case. Even the administrative record-keeping component of a comprehensive data system can have coercive effects. When the; administrative part of the health data system was described to the Committee, repeated reference was made to the advantages of knowing that a patient has previously been treated for an emotional disorder when he shows up at a clinic claiming that he has accidentally scratched his wrist on a rusty nail. One hopes, that his chances of being discharged after some bandaging and a tetanus shot are about the same as his chances of being committed for treatment as a potential suicide. But are they? Should they be? In some other record-keeping environment, could an individual depend on having someone equivalent to a trained medical practitioner available to make such a judgment? Finally, it is important to note that the health data system has grown very rapidly, that elements like the "high risk" categorization were not present in the beginning, and that the health facility is now trying to improve its method of identifying patients for the purpose of updating and retrieving the information it maintains about them. In this particular situation, the Social Security number happens to be considered a poor identification device because many patients are thought to have more than one; but the patients also tend to have several different names, so the managers of the data system are trying to develop their own unique numbering scheme cross-referenced with all known "aliases" for each patient. Scheduling, labelling, monitoring, improved methods of identifying records about individuals-these are being discussed in some quarters today as if they were mere tools for delivering services to people efficiently. In the health data system just described, the surveillance component is regarded as a way of providing preventive health care; of taking preemptive steps to halt the natural development of illnesses and conditions conducive to illness. It is hard to quarrel with those objectives, or for that matter with the objectives of a great many data systems now in operation or being planned. Should a national credit card service be prohibited from using a sophisticated personal data system to prevent its card holders from going on irresponsible spending sprees? Should school districts be forbidden to use personal data systems to help prevent children from becoming delinquents? These are difficult questions to answer. Often the immediate costs of not using systems to take preemptive action against individuals can be estimated (in both dollars and predictable social disruption), while the long-term costs of increasing the capacity of organizations to anticipate, and thus to control, the. behavior of individuals can be discussed only speculatively. One fact seems clear, however; systems with preemptive potential are typically developed by organizations, and groups of organizations, who see them primarily as attractive technological solutions to complex social problems. The individuals that the systems ultimately affect, the people about whom notations are made, the people who are being labelled and numbered, have, by comparison,, a very weak role in determining whether many of these systems should exist, what data they should contain, and how they should be used. THE NET EFFECT ON PEOPLE Today it is much easier for computer-based record keeping to affect people than for people to affect computer-based record keeping. This signal observation applies to a very broad range of automated personal data systems. When a machine tool produces shoddy products, the reaction of consumers (and of government regulatory agencies in some cases) is likely to give the factory managers prompt and strong incentives to improve their ways. This is much less likely to be the case when computerized record-keeping operations fail to meet acceptable standards. There is some evidence that in commercial settings competition helps to prevent harmful or insensitive record-keeping practices, especially when a record-keeping organization (a bank, for instance) depends on continuous interaction with individual data subjects in order to. keep its own records straight. It is also true that a number of schools and colleges have been forced to abandon automated registration and scheduling by determined student campaigns to fold, spindle, and mutilate. In governmental sittings, however, the dissatisfied data subject usually has nowhere else to take his business and can even be penalized for refusing to cooperate. The result, of course, is that many organizations tend to behave like effective monopolies, which they are. It is no wonder that people have come to distrust computer-based record-keeping operations. Even in non-governmental settings, an individual's control over the personal information that he gives to an organization, or that an organization obtains about him, is lessening as the relationship between the giver and receiver of personal data grows more attenuated, impersonal, and diffused. There was a time when information about an individual tended to be elicited in face-to-face contacts involving personal trust and a certain symmetry, or balance, between giver and receiver. Nowadays an individual must increasingly give information about himself to large and relatively faceless institutions, for handling and use by strangers-unknown, unseen and, all too frequently, unresponsive. Sometimes the individual does not even know that an organization maintains a record about him. Often he may not see it, much less contest its accuracy, control its dissemination, or challenge its use by others. In more than one opinion survey, worries and anxieties about computers and personal privacy show up in the replies of about one third of those interviewed. More specific concerns acre usually voiced by an even larger proportion.11 The public fear of a "Big Brother" system, in effect a pervasive network of intelligence dossiers, focuses on the computer, but it includes other marvels of twentieth-century engineering, such as the telephone tap, the wireless microphone, the automatic surveillance camera, and the rest of the modern investigator's technical equipage. Such worries seem naive and unrealistic to a data-processing specialist, but as in the case of campus protests against computerized registration systems, the apprehension and distrust of even a minority of the public can grossly complicate even a safe, straightforward datagathering and record-keeping operation that may be of undoubted social advantage. It may be that loss of control and confidence are more significant issues in the "computers and privacy" debate than the organizational appetite for information. An agrarian, frontier society undoubtedly permitted much less personal privacy than a modern urban society, and a small rural town today still permits less than a big city. The poet, the novelist, and the social scientist tell us, each in his own way, that the life of a small-town man, woman, or family is an open book compared to the more anonymous existence of urban dwellers. Yet the individual in a small town can retain his confidence because he can be more sure of retaining control. He lives in a face-to-face world, in a social system where irresponsible behavior can be identified and called to account. By contrast, the impersonal data system, and faceless users of the information it contains, tend to be accountable only in the formal sense of the word. In practice they are for the most part immune to whatever sanctions the individual can invoke. 1New York Times, January 26, 1973, p. 4. 2 Although the term "dragnet" commonly connotes a system for catching criminals or others wanted by the authorities, the term, as used here, refers to any systematic screening of all members of a population in order to discover a few members with specified characteristics. 3 See Appendix E for a discussion of the development of computerized criminal justice information systems in the United States. 4 The NCIC system has been imitated by many city police departments whose systems respond to inquiries from law enforcement jurisdictions in adjacent suburbs. A suburban law enforcement officer first queries the city system to which his terminal is linked; if the file search there yields nothing, his query is passed on automatically to the State system and from there to the NCIC. These local systems have all the accuracy problems of the NCIC and some are currently the objects of law suits brought by their hapless victims. See, for example, "S.F.'s Forgetful Computer," San Francisco Examiner, May 9> 1973, p. 3, and "Coast Police Sued as Computer Errs," New York Times, May 5, 1973, p. 23. Almost all of these cases involve the failure of a local jurisdiction to report the recovery of a stolen vehicle or the revocation of a warrant. 5 For a discussion of political issues raised by computer-based information systems in urban government, sex Anthony Downs, "The Political Payoffs in Urban Information Systems," in Alan F. Westin (Ed.), Information Technology in a Democracy (Cambridge, Mass.: Harvard University Press), 1971, pp. 311-321. 6 In addition to incompatibilities of file structure, the expectation that ;some day "it will all be put together" also runs afoul of the tenacity with which record-keeping organizations tend to protect their own turf. Certainly among private organizations competitive pressures sometimes inhibit the free circulation of information about clients and also induce resistance to sharing large blocks of individually identifiable data with government agencies. The California Bankers Association, for example, is currently involved in litigation (Stark v.Connally, 347 Fed. Supp. 1242, 1972) to prevent the Treasury Department from enforcing the reporting provisions of the so-called Bank Secrecy Act of 1970 (12 U.S.C. 1E29b; 31 U.S.C. 1051-1122) with respect to domestic financial transactions. 7 It should be noted that the same characteristics of automated systems which inhibit the compilation of dossiers can also inhibit efforts by the press and public interest: groups to penetrate the decision-making processes of record-keeping organizations and expose them to public scrutiny. This is particularly true when organizations destroy "hard-copy" records after putting the information in them into computer-accessible form. In such cases, the computer can become a formidable gatekeeper, enabling -a record-keeping organization to control access to public-record information that previously had been available to anyone with the time and energy to sift through its paper filers. Putting public-record data in computer-accessible form can also increase the cost of piecing information together from several different files. The same programming costs that make it uneconomical for law enforcement investigators and private detectives to "fish" in the automated files of a credit bureau could also make it prohibitively expensive for private citizens to examine public records. 8 "See, for example, Russell Ackoff, "Management Misinformation Systems," in Westin, op. cit., pp. 264-271. 9 A computer-based information system designed to control the population of a prison is described in Appendix F. 10 For a cogent description of how this is done, see James B. Rule, Private Lives and Public Surver7lance (London: Allen Lane), 1973, especially Chapter 6. See also Robert A. Hendrickson, The Cashless Society (New York: Dodd, Mead & Company), 1972. 11 See, for example, A National Survey of the Public's Attitudes Toward Computers (AFIPS-TIME, Inc.) 1971. This survey is discussed in Alan F. Westin and Michael A. Baker, III. SAFEGUARDS FOR PRIVACY There is widespread belief that personal privacy is essential to our well-being– physically, psychologically, socially, and morally. Concern about the effects of computerized personal data systems on their threat to privacy. Safeguards must therefore focus protection of personal privacy. The rationale for the safeguards that we will recommend is set forth in this chapter. In it we take account of existing legal constraints on the. invasion of personal privacy through record keeping and of the role that records play in the relationship between individuals and record-keeping organizations. PERSONAL PRIVACY, RECORD KEEPING, AND THE LAW Some suggest that the risks presented by automated personal data systems call for a Constitutional amendment, or a general computer-based record-keeping practices. In the latter view, the enactment of an explicit, general right of personal privacy, whether Constitutionally or by statute, would not only provide no greater protection than is already latent in the common law of privacy, but also would create uncertainty and confusion that the courts are ill-suited to resolve. Although the Constitution of the United States does not mention a right to privacy, and only three State Constitutions (Alaska, California, and South Carolina) make explicit provision for a right of privacy, various aspects of personal privacy have been protected against government action by judicial interpretation of certain provisions of the Bill of Rights. The First Amendment guarantees free speech, a free press, and freedom of assembly and religion; the Third Amendment prohibits quartering soldiers in private homes; the Fourth Amendment prohibits unreasonable searches and seizures; the Fifth Amendment protects against compulsory self-incrimination; and the Ninth Amendment guarantees that rights not enumerated in the Constitution are retained by the people. Courts have construed these protections of the Bill of Rights to uphold the individual's right not to be coerced into revealing political, social, or philosophical beliefs, or private associations, unless national security or public order are at stake. The issues in many cases are clearly rooted in concerns for personal privacy, but the courts have articulated their decisions in terms of Bill of Rights guarantees. The Supreme Court, however, has recognized a right of privacy as the basis for protecting the freedom of individuals to practice contraception, to read or look at pornography at home, and to have an unwanted pregnancy terminated. Courts have also developed principles in the common law to allow suits for invasion of privacy in various situations involving financial or reputational. injury of one person by another. There is little evidence, however, that court decisions will, either by invoking Constitutional rights or defining common law principles, evolve general rules, framed in terms of a legal concept of personal privacy, that will protect individuals against the potential adverse effects of personal-data record-keeping practices. Indeed, there are many court decisions in which seemingly meritorious claims that could have been sustained by recognizing a right of privacy were denied because the courts would not permit such a right to override other legal considerations. Although there is a substantial number of statutes and regulations that collectively might be called the "law of personal-data record keeping," they do not add up to a comprehensive and consistent body of law. They reflect no coherent or conceptually unified approach to balancing the interests of society and the organizations that compile and use records against the interests of individuals who are the subjects of records.1 The Federal Reports Act2 and the so-called "Freedom of Information Act,"3 taken together, come as close as any enactments to providing a framework for Federal policy in this area. However, they are limited in application to agencies of the Federal government; they deal in a limited fashion with only two aspects of record-keeping practice-data collection and data dissemination; and they contain scant and potentially inconsistent protections for the interests of individual record subjects. The Federal Reports Act requires that Federal agencies, with several significant exceptions, obtain concurrence from the Office of Management and Budget before collecting "information upon identical items, from ten or more persons." The Act was designed chiefly to help business enterprises. Its main purposes are to minimize the "burden" upon those required to furnish information to the Federal government; to minimize the government's data collection costs; to avoid unnecessary duplication of Federal data-collection efforts; and to maximize the usefulness to all Federal agencies of the information collected. Although concern for the interests of individuals can be discerned in its administration, the Act itself makes no mention of personal privacy. It neither creates nor recognizes any rights for individuals with respect to the personal-data record-keeping practices of the Federal government. The Freedom of Information Act mandates disclosure to the public of information held by the Federal government. It barely nods at the interest of the individual record subject by giving Federal agencies the authority to withhold personal data whose disclosure would constitute a clearly unwarranted invasion of privacy. The Act, however, is an instrument for disclosing information rather than for balancing the conflicting interests that surround the public disclosure and use of personal records. The Act permits exemption from mandatory disclosure for personal data whose disclosure would constitute a "clearly unwarranted invasion of personal privacy," but the agency is given total discretion in deciding which disclosures meet this criterion. The Act gives the data subject no way at all to influence agency decisions as to whether and how disclosure will affect his privacy.4 Many of the States, have similarly broad "public records" or "freedom of information" statutes whose objective is to assure public access to records of State government agencies,. Most of them, however, provide no exceptions from their general disclosure requirements in recognition of personal privacy interests. We discovered no State law counterparts to the Federal Reports Act. By and large, one finds that record-keeping laws and regulations at all levels of government are limited and specific in their application. The requirements and prohibitions they impose apply to particular types of organizations, records, or record-keeping practices. They seldom go further than to stipulate that particular records shall be maintained and made accessible to the public, to particular officials, or for particular purposes, or that particular records shall be subject to confidentiality constraints. No body of statutory or administrative law establishes rights for individual record subjects or other rules of general application governing personal-data record-keeping practices, whether manual or automated. Nor should we look to court decisions to develop such general rules. Courts can only decide particular cases; their opportunity to establish legal principle is: limited by the nature of litigation arising from controversies between parties. Few cases that raise the broad issues posed by all personal-data record keeping g have been brought before the courts, and fewer that focus those issues on computer based systems. There are several possible explanations for this. One possibility is that nobody has been hurt enough or has felt sufficiently aggrieved by current record- keeping practices to bring suit. Another is that record-keeping and data-processing practices are not an overt or well understood function of institutions, whether governmental or private. Their adverse effects may not have been recognized. The individual affected may never discover that the root of his difficulties with an institution was some piece of information about him in a record. This is one reason for the section in the Fair Credit Reporting Act5 that requires than an individual be notified when an adverse action, such as denial of credit, insurance, or employment, is taken on the basis of a report from a consumer-reporting agency. Still another possibility is that unless injury to the individual can be translated into reasonably substantial claims for damages, the individual ordinarily has little incentive to undertake a lawsuit. Few people can afford to bring suit against a well-defended organization solely for moral, satisfaction. Record-keeping practices have ancient and predominantly honorable traditions, as we have seen. Historically, their social utility has seldom been questioned. Only when record-keeping systems can be shown to have caused actual injury, to have created problems with serious Constitutional implications, or to be in conflict with clear statutory requirements, are courts likely to interfere with their operation. As a consequence, government data systems appear, under existing law, to be virtually immune to constraint through suits by individual data subjects; private-sector systems appear no less so. The personal-data record-keeping, operations of private organizations are unlikely to give rise to Constitutional issues and are typically not subject to statutory requirements.6 The judicial process, in short, seems functionally ill-suited to initiating development of general common law rules relating to record-keeping practices. The foregoing analysis leads us to conclude that the natural evolution of existing law will not protect personal privacy from the risks of computerized personal data systems. In our view the analysis also disposes of any expectation that enactment of a mere right of personal privacy would afford such protection .7 The creation of such a right without precise and elaborate definition of its intended significance: would not overcome the obstacles in the judicial process that hinder recognition of personal privacy in relation to record keeping. The development of legal principles comprehensive enough to accommodate a range of issues arising out of pervasive social operations, applications of a complex technology, and conflicting interests of individuals, record-keeping organizations, and society, will have to be the work of legislative and administrative rule-making bodies. A REDEFINITION OF THE CONCEPT OF PRIVACY Our review of existing law leads to the conclusion that agreement must be reached about the meaning of personal privacy in relation to records and record-keeping practices. It is difficult, however, to define personal privacy in terms that provide a conceptually sound framework for public policy about records and record keeping and a workable basis for formulating rules about record-keeping practices. For any one individual, privacy, as a value, is not absolute or constant; its significance can vary with time, place, age, and other circumstances. There is even more variability among groups of individuals. As a social value, furthermore, privacy can easily collide with others, most notably free speech, freedom of the press, and the public's "right to know." Dictionary definitions of privacy uniformly speak in terms of seclusion, secrecy, and withdrawal from public view. They all denote a quality that is not inherent in most record-keeping systems. Many records made about people are public, available to anyone to see and use. Other records, though not public in the sense that anyone may see or use them, are made for purposes that would be defeated if the data they contain were treated as absolutely secluded, secret, or private. Records about people are made to fulfill purposes that are shared by the institution maintaining them and the people to whom they pertain. Notable exceptions are intelligence records maintained for criminal investigation, national security, or other purposes. Use of a record about someone requires that its contents be accessible to at least one other person-and usually many other persons. Once we recognize these characteristics of records, we must formulate a concept of privacy that is consistent with records. Many noteworthy attempts to address this need have been made. > Privacy is the claim of individuals, groups, or institutions to determine for > themselves when, how, and to what extent information about them is > communicated to others. 8 > this is the core of the "right of individual privacy" --the right of the > individual to decide for himself, with only extraordinary exceptions in the > interests of society, when and on what terms his acts should be revealed to > the general public. 9 > The right to privacy is the right of the individual to decide for himself how > much he will share with others his thoughts, his feelings, and the facts of > his personal life 10 > As a first approximation, privacy seems to be related to secrecy, to limiting > the knowledge of -others about oneself. This notion must be refined. It is not > true, for instance, that the less that is known about us the more privacy we > hive. Privacy is not simply an absence of information about us in the minds of > others; rather it is the control we have over information about ourselves.11 The significant elements common to these formulations are (1) that there will be some disclosure of data, and (2) that the data subject should decide the nature and extent of such disclosure. An important recognition is that privacy, at least as applied to record-keeping practices, is not inconsistent with disclosure, and thus with use. The further recognition of a role for the record subject in deciding what shall be the nature and use of the record is crucial in relating the concept of personal privacy to record-keeping practices. Each of the above formulations, however, speaks of the data subject as having a unilateral role in deciding the nature and extent of his self-disclosure. None accommodates the observation that records of personal data usually reflect and mediate relationships in which both individuals and institutions have an interest, and are usually made for purposes that are shared by institutions and individuals. In fact, it would be inconsistent with this essential. characteristic. of mutuality to assign the individual record subject a unilateral role in making decisions about the nature and use of his record. To the extent that people want or need to have dealings with record-keeping organizations, they must expect to share rather than monopolize control over the content and use of the records made. about them. Similarly, it is equally out of keeping with the mutuality of record-generating relationships to assign the institution a unilateral role in making decisions about the content and use of its records about individuals. Yet it is our observation that organizations maintaining records about people commonly behave as if they had been given such a unilateral role to play. This is not to suggest that decisions are always made to the disadvantage of the record subject; the contrary is often the case. The fact, however, is that the record subject usually has no claim to a role in the decisions organizations make about records that pertain to him. His opportunity to participate in those decisions depends on the willingness of the record-keeping organization to let him participate and, in a few .instances, on specific rights provided by law. Here then is the nub of the matter. Personal privacy, as it relates to personal-data record keeping must be understood in terms of a concept of mutuality. Accordingly, we offer the following formulation: > An individual's personal privacy is directly affected by the kind of > disclosure and use made of identifiable information about him in a record. A > record containing information about an individual in identifiable form must, > therefore, be governed by procedures that afford the individual a right to > participate in deciding what the content of the record will be, and what > disclosure and use will be made of the identifiable information in it. Any > recording, disclosure, and use of identifiable personal information not > governed by such procedures must be proscribed as an unfair information > practice unless such recording, disclosure or use is specifically authorized > by law. This formulation does not provide the basis for determining a priori which data should or may be recorded and used, or why, and when. It does,, however, provide a basis for establishing procedures that assure the individual a right to participate in a meaningful way in decisions about what goes into records about him and how that information shall be used. Safeguards for personal privacy based on our concept of mutuality in record-keeping would require adherence by record-keeping organizations to certain fundamental principles of fair information practice. * There must be no personal-data record-keeping systems whose very existence is secret. * There must be a way for an individual, to find out what information about him is in a record and how it is used. * There must be a way for an individual to prevent information about him obtained for one purpose from being used or made available for other purposes without his consent. * There must be a way for an individual to correct or amend a record of identifiable information about him. * Any organization creating, maintaining, using, or disseminating records of identifiable personal data must assure the reliability of the data for their intended use and must take reasonable precautions to prevent misuse of the data. These principles should govern the conduct of all personal-data record-keeping systems. Deviations from them should be permitted only if it is clear that some significant interest of the individual data subject, will be served or if some paramount societal interest can be clearly demonstrated; no deviation should be permitted except as specifically provided by law. MECHANISMS FOR PROVIDING SAFEGUARDS Many mechanisms have been suggested for providing safeguards against the potential adverse effects of automated personal-data systems. Those who believe a general right of personal privacy should be established, by Constitutional amendment or by statute, propose, in - effect, that the courts should be the mechanism. Although we have concluded that a general right of privacy is not a reliable approach to achieving effective protection, the safeguards we recommend in the following chapters of this report would rely in part on the courts. Some have proposed that there be a public ombudsman to monitor automated personal data systems, to identify and publicize their potential for adverse effects, and to investigate and act on complaints -about their operation. We note with approval the efforts of the Association for Computing Machinery, and of many business firms and newspapers, to provide ombudsman service to the victims of computer errors. We believe the benefits of this approach are many and would like to see it extended to more systems. However, the ombudsman concept is basically remedial and will, therefore, work best in the context of established rights and procedures. Furthermore, the function is not well understood or widely accepted in America, and some observers feel it has severe limitations in the context of American legal, political, and administrative traditions. The "strongest", mechanism for safeguards which has been suggested is a centralized, independent Federal agency to regulate the use of all automated personal data systems. In particular, it has been proposed that such an agency, if authorized to register or license the operation of such systems, could make conformance to specific safeguard requirements a condition of registration or licensure. The number and variety of institutions using automated personal data systems is enormous. Systems themselves vary greatly in purpose, complexity, scope of application, and administrative context. Their possible harmful effects are as much a product of these- features as of computerization alone. We doubt that the need exists or that the necessary public support could be marshaled at the. present time for an agency of the scale and pervasiveness required to regulate all automated personal data systems. Such regulation or licensing, moreover, would be extremely complicated, costly, and might uselessly impede desirable applications of computers to record keeping.12 The safeguards we recommend require the establishment of no new mechanisms and seek to impose no constraints on the application of electronic data-processing technology beyond those necessary to assure the maintenance of reasonable standards of personal privacy in record keeping. They aim to create no obstacles to further development, adaptation, and application of a technology that, we all agree, has brought a variety of benefits to a wide range of people and institutions in modem society. The proposed safeguards are intended to assure that decisions about collecting, recording, storing; disseminating,. and using identifiable personal data will be made with full consciousness and consideration of issues of personal privacy-issues that arise from inherent conflicts and contradictions in values and interests. Our recommended safeguards cannot assure resolution of those conflicts to the satisfaction of all individuals and groups involved. However, they can assure that those conflicts will be fully recognized and that the decision-making processes in both the private and public sectors, which lead to assigning higher priority to one interest than to another, will be open, informed, and fair. The safeguards we will recommend are intended to create incentives for institutions that maintain automated personal data systems to adhere closely to basic principles of fair information practice. Establishment of a legal protection against unfair information practice to embody the safeguard requirements described in Chapters IV, V, and VI, will invoke existing mechanisms to assure that automated personal data systems are designed, managed, and operated with due regard for protection of personal privacy. We intend and recommend that. institutions should be held legally responsible for unfair information practice and should be liable for ,actual and punitive damages to individuals representing themselves or classes of individuals. With such sanctions institutional managers would have strong incentives to make sure their automated personal data systems did not violate the privacy of individual data subjects as defined. Of greatest importance, from our point of view, the safeguards we will recommend give the courts a reliable and generally applicable basis for protecting personal privacy in relation to record keeping. The legal concept of fair information practice we recommend will obviate the need to search for new Constitutional doctrines or to invent ways of extending the existing common law of privacy to cover situations for which it is conceptually ill-suited. THE COSTS OF SAFEGUARDS The safeguards we recommend will not be without costs, which will vary from system to system. The personal- data record-keeping practices of some organizations already meet many of the standards called for by the safeguards. The Social Security Administration, for example, maintains a record of earnings for each individual in the Social Security system, and each individual has the legal right to learn the content of his record. Procedures have been set up to allow an individual to find out easily what is in his record and to have the record corrected if it is wrong. Disclosure of an individual's record outside the system is forbidden, except under certain limited circumstances prescribed by statute and regulation, and there are criminal penalties for unauthorized disclosure. An individual is given notice and opportunity for a hearing when the record is being changed at the initiative of the Social Security Administration. These protections are a normal part of Social Security administration and,. in our view, demonstrate the feasibility of building such safeguards into any system. when the system's managers are strongly committed to do so. We believe that the cost to most organizations of changing their customary practices in order to assure adherence to our recommended safeguards will be higher in management attention and psychic energy than in dollars. These costs can be regarded in part as deferred costs that should already have been incurred to protect personal privacy, and in part as insurance against future problems that may result from adverse effects of automated personal data systems. From a practical point of view, we can expect to reap the full advantages of these systems only if active public antipathy to their use is not provoked.13 The past two decades have given America intensive lessons in the difficulty of trying to check or compensate for undesirable side-effects stemming from headlong application and exploitation of complex technologies. Water pollution, air pollution, the annual highway death toll, suburban sprawl, and urban decay are all unanticipated consequences of the too narrowly conceived and largely unconstrained applications of technology. Hence, it is essential now for organizational decision makers to understand why they should be sensitive to issues of personal privacy and not permit their organizations unilaterally to adopt computer-based record-keeping practices that may have adverse effects on individuals. They must recognize where conflicts are likely to arise between an individual's desire for personal privacy and an organization's record-keeping goals and behavior. They must recognize that although individuals and record-keeping organizations do have certain shared purposes, they also have other purposes-some of which are mutual, though not perceived as such, and some of which can be in direct conflict. Record-keeping organizations must guard against insensitivity to the privacy needs and desires of individuals; preoccupied with their own convenience or efficiency, or their relationships with other organizations, they must not overlook the effects on people of their record-keeping and record-sharing practices. They have the power to eliminate misunderstanding, mistrust, frustration, and seeming unfairness; they must learn to exercise it. 1 Appendix G contains a review of law that bears on the collection, storage, use, and dissemination of information by the Department of Health, Education, and Welfare. 2 44 U.S.C 3501-3511. 3 5 U.S.C 552. 4 The privacy implications of the Freedom of Information Act and its application to computer-based record- keeping systems are discussed in Arthur R. Miller, The Assault on Privacy (Ann Arbor: University of Michigan Press), 1971, pp. 152-161. 515 U.S.C. 1681-1681t (1970). 6The Fair Credit Reporting Act is a notable exception. 7 From this conclusion we should not be understood to be unaware of the potential significance of an unqualified right of personal privacy-either Constitutionally or by statute. We know of at least one instance in which the existence of such a right in a State constitution served as the basis for the State's Attorney General to deny access to certain public records whose disclosure was not explicitly provided for in the governing State statutes. We would support enactment of a right of personal privacy for many reasons, but not as the only or best way to protect personal privacy in computer-based record-keeping systems. 8 Alan F. Westin, Privacy and Freedom (New York: Atheneum), 1967, p. 7. 9 Ibid p. 373 10 Office of Science and Technology of the Executive Office of the President, Privacy and Behavioral Research (Washington, D.C., 1967), p. 8. 11 Charles Fried, "Privacy," The Yale Law Journal, Vol. 77 (1968), p. 482. 12 These comments point up what we regard to be the deficiencies of a regulatory approach that would constitute a single Federal agency as the regulatory body. They are not intended to discourage the development of regulation in specific, limited areas of application of computer-based record-keeping systems. For example, where particular institutions or societal functions are already subject to regulation, e.g., public utilities, common carriers, insurance companies, hospitals, it well may be that an effective way to introduce and enforce safeguard requirements would be through the public agencies that regulate such institutions. Such an approach has been adopted with respect to the credit-reporting industry (see discussion, Chapter IV, p. 69). Many municipal governments have been exploring regulatory or quasi-regulatory mechanisms for applying safeguard requirements to so-called "integrated municipal information systems." The efficacy of such mechanisms has not yet been demonstrated; however, we know of several that appear promising in conception. In addition, at both State and local government levels, efforts are being made to regulate the use of criminal justice information systems. 13In addition to maintaining and using records of personal information, computer technology is a tremendous new force for development in many ways. Already, for example, computers are controlling traffic on city streets and highway systems, and in the air; supplementing human judgment in making medical diagnoses; monitoring air pollution; predicting the weather; and even acting as surrogates for human decision makers in controlling large electrical power systems, industrial manufacturing processes, and highspeed rail transportation systems. Such computer applications do not typically require identifiable information about people. That which is required is limited and need be retained for only a short time. Thus the social risks from computer systems such as these are beyond the scope of this report. IV. RECOMMENDED SAFEGUARDS FOR ADMINISTRATIVE PERSONAL DATA SYSTEMS Our inquiry has led us to distinguish two categories of personal data systems that deserve separate attention in developing safeguards. One consists of administrative systems; the other of statistical-reporting and research systems. The essential distinction between the two categories is functional. An administrative personal data system maintains data on individuals for the purpose of affecting them directly as individuals-for making determinations relating to their qualifications, character, rights, opportunities, or benefits. A statistical-reporting or research system maintains data about individuals exclusively for statistical reporting or research, and is not intended to be used to affect any individual directly.1 This chapter contains general recommendations for all personal data systems and safeguard requirements for administrative personal data systems used as such. Chapter V contains additional safeguard requirements for statistical-reporting and research applications of administrative systems. Systems maintained exclusively for statistical reporting or research and safeguard requirements for them are addressed in Chapter VI. Although our specific charge has been to analyze problems of automated systems, our recommendations could wisely be applied to all personal data systems, whether automated or manual. Computer-based systems magnify some record-keeping problems and introduce others, but no matter how data are stored, any maintenance of personal data presents some of the problems discussed in Chapters II and III. Moreover, the distinction between an automated and a non-automated system is not always easy to draw; requiring safeguards for all personal data systems eliminates the need to rule on ambiguous cases. Uniform application of safeguards to all systems will also facilitate conversion from manual to automated data processing when it does occur. We define an automated personal data system as a collection of records containing personal data that can be associated with identifiable individuals, and that are stored, in whole or in part, in computer-accessible files. Data can be "associated with identifiable individuals" by means of some specific identification, such as name or Social Security number, or because they include personal characteristics that make it possible to identify an individual with reasonable certainty. "Personal data" include all data that describe anything about an individual, such as identifying characteristics, measurements, test scores; that evidence things done by or to an individual, such as records of financial transactions, medical treatment, or other services; or that afford a clear basis for inferring personal characteristics or things done by or to an individual, such as the mere record of his presence in a place, attendance at a meeting, or admission to some type of service institution. "Computer-accessible" means recorded on magnetic tape, magnetic disk, magnetic drum, punched card, or optically scannable paper or film. A "data system" includes all processing operations, from initial collection of data through all uses of the data. Data recorded on questionnaires, or stored in microfilm archives, are considered part of the data system, even when the computer-accessible files themselves do not contain identifying information. Consistent with the rationale set forth in Chapter III, we recommend the enactment of legislation establishing a Code of Fair Information Practice for all Automated personal data systems. * The Code should define "fair information practice" as adherence to specified safeguard requirements. (Safeguard requirements for administrative personal data systems are set out below; those for statistical-reporting and research systems will be found in Chapter VI.) * The Code should prohibit violation of any safeguard requirement as an "unfair information practice." * The Code should provide that an unfair information practice be subject to both civil and criminal penalties. * The Code should provide for injunctions to prevent violation of any safeguard requirement. * The Code should give individuals the right to bring suits for unfair information practices to recover actual, liquidated, and punitive damages, in individual or class actions. It should also provide for recovery of reasonable attorneys' fees and other costs of litigation incurred by individuals who bring successful suits. Pending the enactment of a code of fair information practice, we recommend that all Federal agencies (i) apply the safeguard requirements, by administrative action, to all Federal systems, and (ii) assure, through formal rule making, that the safeguard requirements are applied to all other systems within reach of the Federal government's authority. Pending the enactment of a code of fair information practice, we urge that State and local governments, the institutions within reach of their authority, and all private organizations adopt the safeguard requirements by whatever means are appropriate. Labor unions, for example, might find the application of the safeguards to employee records an appropriate issue in collective bargaining. ESTABLISHING AUTOMATED PERSONAL DATA SYSTEMS We were not charged with developing criteria for determining when and for what purposes to establish personal data systems. It is doubtful that any such criteria are feasible or warranted. Our inquiry, however, has prompted us to make cautionary observations to those who must decide whether, when, and how to establish automated personal data systems. The general proposition that records and record-keeping systems are desirable and useful does not necessarily apply to every system. Some data systems appear to serve no clearly defined purpose; some appear to be overly ambitious in scale; others are poorly designed; and still others contain inaccurate data. Each time a new personal data system is proposed (or expansion of an existing system is contemplated) those responsible for the activity the system will serve, as well as those specifically charged with designing and implementing the system, should answer explicitly such questions as: > What purposes will be served by the system and the data to be collected? > > How might the same purposes be accomplished without collecting these data? > > If the system is an administrative personal data system, are the proposed data > items limited to those necessary for making required administrative decisions > about individuals as individuals? > > Is it necessary to store individually identifiable personal data in > computer-accessible form, and, if so, how much? > > Is the length of time proposed for retaining the data in identifiable form > warranted by their anticipated uses? A careful consideration of questions such as these might avert the establishment of some systems. Even if a proposed system survives a searching examination of the need for it, the very process should at least suggest limitations on the collection and storage of data. Formalized administrative procedures and requirements should be followed to assure that questions about the purposes, scope, and utility of systems are raised and confronted before systems are established or enlarged. Members of the public should also have an opportunity to comment on systems before they are created. It is especially important that such procedures be followed whenever data collection requirements, imposed by any Federal department or agency on States, other grantees, or regulated organizations, are likely to result in the creation or enlargement of personal data systems. In our view, any such data collection requirement should be established by regulations adopted after the public has been given an opportunity to comment, rather than by less formal means, such as program guidelines or manuals. Adoption of a regulation also forces a Federal agency to go through a formal process of internal justification and executive review. In the case of Federal data-collection requirements, the notice of any proposed regulation should contain a clear explanation of why each item of data is to be collected and why it must be collected and stored in identifiable form, if such is proposed. THE SAFEGUARD REQUIREMENTS An automated personal data system should operate in conformity with safeguard requirements that, as stated above, should be enacted as part of a code of fair information practice. It is difficult to formulate safeguard requirements that will assure, in every system, an appropriate balance between the interest of the individual in controlling information about himself and all other interests-institutional and societal. However, because the safeguards we recommend are so basic to assuring fairness in personal data record keeping, any particular system, or class of systems, should be exempted from any one of them only for strong and explicitly justified reason. If organizations maintaining personal data systems are left free to decide for themselves when and to what extent to adhere fully to the safeguard requirements, the aim of establishing by law a basic code of fair information practice will be frustrated. Thus, exemptions from, or modifications of, any of the safeguard requirements should be made only as specifically provided by statute, and there should be no exemption or modification unless a societal interest in allowing it can be shown to be clearly paramount to the interest of individuals in having the requirement imposed. "Societal interest," moreover, should not be construed as equivalent to the convenience or efficiency of organizations that maintain data systems, the preference of a professional group, or the welfare of individual data subjects as defined by system users or operators. Existing policies that guide the handling of personal data should not be uncritically accepted or reaffirmed. Nor should the basic "least common denominator" quality of the safeguards discourage law-making bodies, or organizations maintaining personal data systems, from providing individuals greater protection than the safeguards offer. Existing laws or regulations that provide protections greater than the safeguards should be retained; those that provide less protection should be amended to meet the standards set by the safeguards. SAFEGUARD REQUIREMENTS FOR ADMINISTRATIVE PERSONAL DATA SYSTEMS SAFEGUARD REQUIREMENTS FOR ADMINISTRATIVE PERSONAL DATA SYSTEMS I. GENERAL REQUIREMENTS A. Any organization maintaining a record of individually identifiable personal data, which it does not maintain as part of an administrative automated personal data system, shall make no transfer of any such data to another organization without the prior informed consent of the individual to whom the data pertain, if, as a consequence of the transfer, such data will become part of an administrative automated personal data system that is not subject to these safeguard requirements. All other safeguard requirements for administrative personal data systems have been formulated to apply only to automated systems. As suggested earlier, the safeguards would wisely be applied to all personal data systems that affect individuals directly, whether or not they are automated. If this is not done, however, it is necessary to assure that individuals about whom an organization maintains records of personal data, which are not part of an automated system, will be protected in the event that personal data from those records are transferred to automated systems. Requirement I.A. is intended to provide such protection by requiring that transfers of personal data to automated systems not subject to the safeguard requirements be made only with the informed consent of the individuals to whom the data pertain. The requirement is formulated so as not to apply to transfers of personal data that are not in individually identifiable form, e.g., for statistical reporting. (Transfers of individually identifiable data to automated systems used exclusively for statistical reporting and research are covered in Chapter VI, p. 97.) B. Any organization maintaining an administrative automated personal data system shall: > (1) Identify one person immediately responsible for the system, and make any > other organizational arrangements that are necessary to assure continuing > attention to the fulfillment of the safeguard requirements; The obligation to identify a person responsible for the system is intended to provide a focal point for assuring compliance with the safeguard requirements and to guarantee that there will be someone with authority to whom a dissatisfied data subject can go, if other methods of dealing with the system are unsatisfactory. Systems that involve more than one organization may present special problems in this respect, and must be carefully designed to assure that a data subject is not shuffled from one organization to another when he seeks to assert his rights under these requirements. > (2) Take affirmative action to inform each of its employees having any > responsibility or function in the design, development, operation, or > maintenance of the system, or the use of any data contained therein, about all > the safeguard requirements and all the rules and procedures of the > organization designed to assure compliance with them; This requirement takes account of the fact that the actions of many people, with diverse responsibilities and functions located in different parts of an organization, affect the operations of an automated personal data system. Often these people lack a common understanding of the possible consequences for the system of their separate actions. If an organization is to comply fully and efficiently with the safeguard requirements, its employees will have to be made thoroughly aware of all the rules and procedures the organization has established to assure compliance. > (3) Specify penalties to be applied to any employee who initiates or otherwise > contributes to any disciplinary or other punitive action against any > individual who brings to the attention of appropriate authorities, the press, > or any member of the public, evidence of unfair information practice; The employees of an organization must not be penalized for attempting to prevent or expose violations of the safeguard requirements. Organizations maintaining systems must assure their employees that no harm will come to them as a consequence of bringing evidence of poor practice or willful abuse to the attention of parties who are willing and prepared to act on it. A personal-data record-keeping system is often one of the least visible aspects of an organization's operations. Organization managers are sometimes ignorant of important facets of system operations, and individual clients or beneficiaries often do not perceive how their difficulties in dealing with an organization may stem from its record-keeping practices. Furthermore, systems tend to be designed, developed, and operated by sizable groups of specialists, no one of whom has a detailed understanding of how each system works and of all the ways in which it can be abused. This diffusion of responsibility, and of practical knowledge of system characteristics, makes the integrity of computer-based record-keeping systems especially dependent on the probity of system personnel. Efforts by associations of data processing specialists to gain nationwide adherence to a code of professional ethics attest to the importance of this aspect of system operations. > (4) Take reasonable precautions to protect data in the system from any > anticipated threats or hazards to the security of the system; The purpose of requirement (4) is to assure that an organization maintaining an automated personal data system takes appropriate security precautions against unauthorized access to data in the system, including theft or malicious destruction of data files. > (5) Make no transfer of individually identifiable personal data to another > system without (i) specifying requirements for security of the data, including > limitations on access thereto, and (ii) determining that the conditions of the > transfer provide substantial assurance that those requirements and limitations > will be observed-except in instances when an individual specifically requests > that data about himself be transferred to another system or organization; Requirement (5) is intended to provide protection against any additional risks to data security resulting-from transfer of data from one system to another, or from the establishment of regular data linkages between systems. To comply with this requirement, an organization would have to be able to demonstrate that it had carefully followed procedures deliberately designed to assure that the security conditions for a data transfer, including transmission facilities and the data security features and access limitations of the system receiving the data, conform to specified expectations of the transferring organization and its data subjects. In combination with safeguard requirement 111(3) (pp. 61-62, below), which requires an organization to obtain the informed consent of individual data subjects before permitting data about them to be put to uses that exceed their reasonable expectations, this requirement would, for example, prevent the sale of data files by one organization to another without the consent of the data subjects if the security features and access limitations of the purchasing organizations were such as to open the possibility of uses not anticipated by the data subjects. The exception in requirement (5) is intended to accommodate the possibility that an individual may need or want his record, or data therefrom, to be made available to another organization even though such transfer may entail risks of security or access that the transferring organization would not undertake or permit, and could not, consistent with this safeguard. > (6) Maintain a complete and accurate record of every access to and use made of > any data in the system, including the identity of all persons and > organizations to which access has been given; This requirement will contribute significantly to an organization's capacity to detect improper dissemination of personal data. It is not intended to include ordinary system housekeeping entries, such as updating of files, undertaken in the course of normal maintenance by system personnel. To facilitate its compliance with requirement III (4) (p. 62, below), an organization should consider assuring that records of access to and use of data are part of, or are easily associable with, the records of individuals that are accessed and used. > (7) Maintain data in the system with such accuracy, completeness, timeliness, > and pertinence as is necessary to assure accuracy and fairness in any > determination relating to an individual's qualifications, character, rights, > opportunities, or benefits that may be made on the basis of such data; and > (8) Eliminate data from computer-accessible files when the data are no longer > timely. Requirements (7) and (8) are intended to reduce the number of instances in which individuals are adversely affected by poorly conceived, poorly executed, or excessively ambitious uses of automated personal data systems. Because specific deficiencies in individual records will constitute evidence that requirement (7) has been violated, the effect of the requirement will be to make an organization as alert to isolated errors as it is to sources of recurring errors. To assure alertness, giving high priority to periodic retraining of system personnel and the suitability of their working conditions is essential. In addition, the 'organization may find that regular evaluation is needed of its data collection procedures and of the accuracy with which data are being converted into computer accessible form. If particular data are being reproduced for use by another system or organization, steps may also have to be taken to apprise the receiving organization of subtle pitfalls in interpreting the data. Requirement (7) will discourage organizations from attempting to handle more data than they can adequately process and should also reduce the likelihood that computer-based "dragnet" operations will injure, embarrass, or otherwise harrass substantial numbers of individuals. Requirement (8) will promote the development of data-purging schedules that reflect the reasonable useful life of each category of data. Although the requirement would not prohibit the retention of data for archival purposes, it would assure that obsolete data are not available for routine use. II. Public Notice Requirement Any organization maintaining an administrative automated personal data system shall give public notice of the existence and character of its system once each year. Any organization maintaining more than one system shall publish such annual notices for all its systems simultaneously. Any organization proposing to establish a new system, or to enlarge an existing system, shall give public notice long enough in advance of the initiation or enlargement of the system to assure individuals who may be affected by its operation a reasonable opportunity to comment. The public notice shall specify: > (1) The name of the system; > > (2) The nature and purpose(s) of the system; > > (3) The categories and number of persons on whom data are (to be) maintained; > > (4) The categories of data (to be) maintained, indicating which categories are > (to be) stored in computer-accessible files; > > (5) The organization's policies and practices regarding data storage, duration > of retention of data, and disposal thereof; > > (6) The categories of data sources; > > (7) A description of all types of use (to be) made of data, indicating those > involving computer-accessible files, and including all classes of users and > the organizational relationships among them; > > (8) The procedures whereby an individual can (i) be informed if he is the > subject of data in the system; (ii) gain access to such data; and (iii) > contest their accuracy, completeness, pertinence, and the necessity for > retaining them; > > (9) The title, name, and address of the person immediately responsible for the > system. The requirement for announcing the intention to create or enlarge a system stems from our conviction that public involvement is essential for fully effective consideration of the pros and cons of establishing a personal data system. Opportunity for public involvement must not be limited to actual or potential data subjects; it should extend to all individuals and interests that may have views on the desirability of a system. We have not specified a uniform mechanism for giving notice, but rather expect all reasonable means to be used. In the Federal government, we would expect at least formal notice in the Federal Register as well as publicity through other channels, including mailings and public hearings. We would expect State and local governments to use whatever comparable mechanisms are available to them. For other organizations maintaining or proposing systems arrangements such as newspaper advertisements may be appropriate. Whatever methods are chosen, an organization must have copies of its notices readily available to anyone requesting them. III. Rights of Individual Data Subjects Any organization maintaining an administrative automated personal data system shall: > (1) Inform an individual asked to supply personal data for the system whether > he is legally required, or may refuse, to supply the data requested, and also > of any specific consequences for him, which are known to the organization, of > providing or not providing such data; This requirement is intended to discourage organizations from probing unnecessarily for details of people's lives under circumstances in which people may be reluctant to refuse to provide the requested data. It is also intended to discourage coercive collection of personal data that, are to be used exclusively for statistical reporting and research. (Secondary statistical-reporting and research applications of administrative personal data systems are the subject of Chapter V.) > (2) Inform an individual, upon his request, whether he is the subject of data > in the system, and, if so, make such data fully available to the individual, > upon his request, in a form comprehensible to him; We considered having this requirement provide that an individual be informed that he is a data subject, whether or not he inquires. It seems to us, however, that such a requirement could be needlessly burdensome to some organizations, particularly if the character of their operations makes it likely that an individual will know that he is the subject of data in one or more systems-for example, systems that mail their customers monthly statements. Furthermore, since our objective is to specify a set of fundamental "least common denominator" standards of fair information practice, we concluded that it would be sufficient to guarantee each individual the right to ascertain whether he is a data subject when and if he asks to know. We would, however, urge that organizations take the initiative to inform individuals voluntarily that data are being maintained about them, especially if it seems likely that the individuals would not be made fully aware of the fact as a consequence of normal system operations. For example, in systems where individuals become data subjects as a consequence of providing data about themselves in an application, the form could describe the records that will be maintained about them. This requirement affords an individual about whom data are maintained in a system the right to be informed, and the right to obtain a copy of data, only if he may be affected individually by any use made of the system. For example, employees about whom earnings data are maintained in individually identifiable form in records kept by their employers would have these rights, but individuals appearing collaterally in records, such as an employee's dependents or character references, would have the rights afforded by this requirement only if they could be affected by the uses made of the records in which they appear. We recognize that the right of an individual to have full access to data pertaining to himself would be inconsistent with existing practice in some situations. The medical profession, for example, often withholds from a patient his own medical records if knowledge of their content is deemed harmful to him; school records are sometimes not accessible to students; admission to schools, professional licensure, and employment may involve records containing third-party recommendations not commonly made available to the subject. As indicated earlier (pp. 52-53, above), exemption from any one of the safeguard requirements should be only for a strong and explicitly justified reason. Thus, existing practices restricting an individual's right to obtain data pertaining to himself should be continued only if an exemption from the requirement of full access is specifically provided by law. Reassessment of existing practices that deprive individuals of full access to data recorded about themselves will be one of the most significant consequences of establishing safeguard requirement III (2). Many organizations are likely to argue that it is not in the interest of their data subjects to have 'full access. Others may oppose full access on the grounds that it would disclose the content of confidential third-party recommendations or reveal the identity of their sources. Still others may argue that full access should not be provided because the records are the property of the organization maintaining the data system. Such objections, however, are inconsistent with the principle of mutuality necessary for fair information practice. No exemption from or qualification of the right of data subjects to have full access to their records should be granted unless there is a clearly paramount and strongly justified societal interest in such exemption or qualification. If an organization concludes that disclosing to an individual the content of his record might be harmful to him, it can point that out, but if the individual persists in his request to have the data, he should, in our view be given it. The instances in which it can be convincingly demonstrated that there is paramount societal interest in depriving an individual of access to data about himself would seem to' be rare. Similarly, we cannot accede in general to the claim that the sources of recorded comments of third parties should be kept from a data subject if he wants to know them. Disclosure to the data subject of the sources of such comments may be difficult for organizations that have promised confidentiality. Modifying the data subject's right of access in order to honor past pledges may be necessary. However, the practice of recording data provided by third parties, with the understanding that the identities of the data providers will be kept confidential, should be continued only where there is a strong, clearly justified societal interest at stake. Elementary considerations of due process alone cast grave doubt on the propriety of permitting an organization to make a decision about an individual on the basis of data that may not be revealed to him or that have been obtained from sources that must remain anonymous to him. > (3) Assure that no use of individually identifiable data is made that is not > within the stated purposes of the system as reasonably understood by the > individual, unless the informed consent of the individual has been explicitly > obtained; This requirement is intended to deal with one of the central issues of fair information practice-controlling the use of personal data. Assume that a system maintains no more personal data than reasonably necessary to achieve its purposes. Assume further that its purposes are well understood and accepted by the individuals about whom data are being maintained, and that all data in the system are accurate, complete, pertinent, and timely. The question of how data in the system are actually used still remains. Because an individual can be adversely affected even by accurate data in well-kept records, the use of personal data in a system should be held to standards of fairness that minimize the risk that an individual will be injured as a consequence of an organization's permitting data about him to be used for purposes that differ substantially from whatever uses he has been led to expect. The public notice called for by safeguard requirement 1I (pp. 57-58, above) is intended to assure that when an individual first becomes a data subject, he will be able to understand the purposes of the system and the types of uses to which data about him will be put If, however, an organization expands the previously announced purposes of the system, or enlarges the range of permissible uses of data in identifiable form, it must not only revise its public notice for the system; but also must obtain the prior consent of all existing data subjects. The objective of requirement III(3), in short, is to make it possible for individuals to avoid having data about themselves used or disseminated for purposes to which they may seriously object. The requirement applies to all new types of uses, whether they will be made by the system that initially collected that data or by some other system or organization to which data are to be transferred. Thus it applies (as noted on p. 56, above) to uses that may result from the transfer to data to a system whose security features and access limitations open the possibility of uses not anticipated by the data subjects. > (4) Inform an individual, upon his request, about the uses made of data about > him, including the identity of all persons and organizations involved and > their relationships with the system; This requirement will guarantee the individual an opportunity to find out exactly how and why data about him have been used, and by whom. It provides this right for an individual only when he makes a request; a general rule requiring an organization to take the initiative in all cases to inform an individual how data about him have been used would often not serve any useful purpose, and might lead, for example, to periodic mass mailings to inform individuals of uses of which they are already aware. Nonetheless, there may be instances when data subjects will want to be informed on a regular basis about particular types of data use. It is the intent of this safeguard that an organization provide such service when an individual requests it. Coupled with requirement I(6) (p. 56, above) this requirement would also afford individuals the opportunity to advise those to whom records about them have been disseminated of any corrections, clarifications, or deletions that should be made. > (5) Assure that no data about an individual are made available from the system > in response to a demand for data made by means of compulsory legal process, > unless the individual to whom the data pertain has been notified of the > demand; "Compulsory legal process" includes demands made in the form of judicial or administrative subpoena and any other demand for data that carries a legal penalty for not responding. It should be the responsibility of the person or organization that seeks to obtain data by compulsory legal process to notify the data subject of the demand and to provide evidence of such notification to the system. In instances when it may be more practicable for the system to give notice of the demand to the data subject, the cost of doing so should be borne by the originator of the demand. The intent of requirement (5) is to assure that an individual will know that data about himself are being sought by subpoena, summons, or other compulsory legal process, so as to enable him to assert whatever rights he may have to prevent disclosure of the data. > (6) Maintain procedures that (i) allow an individual who is the subject of > data in the system to contest their accuracy, completeness, pertinence, and > the necessity for retaining them; (ii) permit data to be corrected or amended > when the individual to whom they pertain so requests; and (iii) assure, when > there is disagreement with the individual about whether a correction or > amendment should be made, that the individual's claim is noted and included in > any subsequent disclosure or dissemination of the disputed data. It is not the intent of this requirement in any way to relieve an organization of the obligation to maintain data in accordance with requirement I(8) (p. 57, above). Rather, in combination with requirement I(8), it is expected to give an organization maintaining a system strong incentives to investigate and act upon any claim by an individual that data recorded about him are incorrect, insufficient, irrelevant, or out-of-date. The provision for obtaining injunctions included in the Code of Fair Information Practice (p. 50, above) will enable individuals to seek court orders for corrective action in regard to their records. RELATIONSHIP OF EXISTING LAWS TO THE SAFEGUARD REQUIREMENTS As we stated earlier in this chapter, existing laws or regulations affording individuals greater protection than the safeguard requirements should be retained, and those providing less protection should be amended to meet the basic standards set by the safeguards. We have not attempted an exhaustive inventory of existing Federal and State statutes that may need to be amended to bring them into conformity with the safeguards, but in the course of our work we have identified two Federal statutes in regard to which we have specific recommendations. FREEDOM OF INFORMATION ACT The Federal Freedom of Information Act2 has a disturbing feature that could be eliminated by means of an amendment quite in keeping with the primary purpose of the Act. As noted in Chapter 111, the main objective of the Freedom of Information Act is to facilitate public access to information about how the Federal government conducts its activities. The Act contains a broad requirement that information held by Federal agencies be publicly disclosed. Nine categories of information are specifically exempted from the Act's mandatory disclosure requirement. For seven of the nine, moreover, disclosure is not prohibited or otherwise constrained by the Act, and the decision not to disclose is left entirely to the discretion of the agency holding the information. The agency is completely free to decide whether it will comply with a request that it disclose information falling within any of the seven exemptions.3 Of the seven discretionary exemptions, those that offer the most likely basis for an agency to withhold personal data from the public are: > trade secrets and commercial or financial information obtained from a person > and privileged or confidential; > > personnel and medical files and similar files the disclosure of which would > constitute a clearly unwarranted invasion of personal privacy; and > > investigatory files compiled for law enforcement purposes except to the extent > available by law to a party other than an agency. The Act's failure to provide for data-subject participation in a decision by an agency to release personal data requested under the Act is inconsistent with safeguard requirement III(3) (p. 61, above) which calls for an individual's consent to any unanticipated use of data about himself in an administrative automated personal data system. Enactment of this requirement would necessitate modification of the Freedom of Information Act to give the data subject a voice in agency decisions about public disclosure of information covered by the Act, whenever such disclosure is not within the reasonable expectations of individuals about whom a Federal agency maintains data in an automated system. As we see it, an agency that is the custodian of personal data about an individual should not have unilateral discretion to decide to grant a request for public disclosure of such data, especially if the data fall within one of the exempted categories under the Freedom of Information Act. The data custodian should have to obtain consent from the data subject before releasing identifiable personal data about him from an administrative automated personal data system, except in cases where making the requested disclosure without the individual's consent is within the stated purposes of the system as specifically required by a statute. We expect such cases to be few. Accordingly, we recommend that the Freedom of Information Act be amended to require an agency to obtain the consent of an individual before disclosing in personally identifiable form exempted-category data about him, unless the disclosure is within the purposes of the system as specifically required by statute. Pending such amendment of the Act, we further recommend that all Federal agencies provide for obtaining the consent of individuals before disclosing exempted-category personal data about them under the Freedom of Information Act. If the Act were so amended, its purpose of protecting the public's "right to know" about the activities of the Federal government would be brought into a better balance with the no less important public purpose of protecting the personal privacy of individuals who are the subjects of data maintained in the automated personal data systems of the Federal government. There may be other areas of conflict between the safeguard requirements and the Freedom of Information Act. The Act should be given a thorough reappraisal with a view to formulating additional amendments needed to accommodate the safeguard requirements. An amended Freedom of Information Act and the Code of Fair Information Practice we have proposed would, in combination, provide an improved statutory framework within which to resolve the unavoidable conflicts between personal privacy and open government. FAIR CREDIT REPORTING ACT4 The Fair Credit Reporting Act is the first Federal statute regulating the vast consumer-reporting industry. Its basic purpose, as stated in the Act, is > to insure that consumer reporting agencies exercise their grave > responsibilities with fairness, impartiality, and a respect for the consumer's > right to privacy. The consumer-reporting industry is comprised of credit bureaus, investigative reporting companies, and other organizations whose business is the gathering and reporting of information about individuals for use by others in deciding whether individuals who are the subject of such reports qualify for credit, insurance, or employment. Consumer-reporting agencies typically operate what we have called administrative personal data systems, many of which contain large quantities of intelligence-type data. Increasingly, these systems are being computerized. The Fair Credit Reporting Act requires consumer-reporting agencies to adopt reasonable procedures for providing information about individuals to credit grantors, insurers, employers and others in a manner that is fair and equitable to the individual with regard to confidentiality, accuracy, and the proper use of such information. It also places requirements on users of consumer reports and consumer-investigative reports. The chief requirements imposed by the Act include the following: > Accuracy of Information > > Consumer-reporting agencies must follow reasonable procedures in preparing > reports to assure maximum possible accuracy of the information concerning the > individual about whom the report is prepared. The effect of this requirement > extends to all the data gathering, storing, and processing practices of an > agency. > > Obsolete Information > > Certain items of adverse information may not be included in a consumer report > after they have reached specified "ages" (except in connection with credit and > life insurance transactions of $50,000 or more and employment at an annual > salary of $20,000 or more) via.: bankruptcies-14 years; suits and judgments-7 > years; paid tax liens-7 years; accounts placed for collection or written off-7 > years; criminal arrest, indictment, or conviction-7 years; any other adverse > information-7 years. > > Limited Uses of Information > > * A consumer-reporting agency may furnish a consumer report about an > individual to be used for the following purposes and no other: > * in response to a court order in accordance with written instructions of the > individual to whom it relates; > * to determine the individual's eligibility for (i) credit or insurance to be > used for personal, family, or household purposes, (ii) employment, > including promotion, reassignment or retention as an employee; or (iii) a > license or other benefit granted by a governmental instrumentality required > by law to consider an applicant's financial responsibility or status; > * to meet a legitimate business need for a business transaction involving the > individual. > > A consumer-reporting agency must take all steps necessary to insure that its > reports will be used only for the above purposes. > > Notices to Individuals > > Whenever credit, insurance, or employment is denied, or the charge for credit > or insurance is increased, wholly or partly because of information in a report > from a consumer-reporting agency, the user of the report must notify the > individual affected and supply the name and address of the agency that made > the report. > > Whenever a consumer-reporting agency reports public record information about > an individual which may adversely affect his ability to obtain employment, it > must notify the individual that it is doing so, including the name and address > of the person to whom the information is reported. > > Whenever an investigative report (obtaining information through personal > interviews with neighbors, friends, associates, or acquaintances) is to be > prepared about an individual, he must be so notified in advance unless the > report is for employment for which the individual has not applied. > > Individual's Right of Access to Information > > An individual about whom an investigative report is being prepared has the > right, upon his request, to be informed of the nature and scope of the > investigation. > > An individual has the right, upon his request, and proper identification, to > be clearly, accurately, and fully informed of: (i) the nature and substance of > all information, except medical information, about him in the files of a > consumer-reporting agency; (ii) the sources of such information, except > sources of information obtained solely for an investigative report; and (iii) > recipients of consumer reports fumished about the individual, within 2 prior > years for employment purposes and within 6 prior months for any other purpose. > (The individual has this right whether or not adverse action has been taken.) > > Whenever credit is denied, or the charge for it increased, wholly or partly > because of information obtained from a source other than a consumer-reporting > agency, the individual affected has the right, upon his request, to learn the > nature and substance of the information directly from its user. > > Individual's Right to Contest Information > > If an individual disputes the accuracy or completeness of information in a > file maintained about him by a consumer-reporting agency, the agency must > reinvestigate and record the current status of that information, or delete the > information if it is found to be inaccurate or cannot be reverified. If the > reinvestigation does not resolve the dispute, the individual has the right to > file a brief statement explaining the dispute; and the agency must, in any > subsequent report containing the disputed information, note the dispute and > provide at least a clear summary of the individual's statement. One reason for describing the Fair Credit Reporting Act in such detail is to illustrate the care with which the Congress has responded to the need it found to protect individuals from the adverse effects of unfair information practices in the consumer reporting industry. Although the Congress adopted a regulatory approach in this Act,5 it constitutes a strong precedent for our recommended Code of Fair Information Practice. In regulating the practices of both consumer-reporting agencies and the users of their reports, the Act, in effect, imposes many of the safeguard requirements we recommend. The chief reason for presenting the Fair Credit Reporting Act, however, is to illustrate the point that existing laws that provide greater protection for individuals than our safeguards offer should be retained, while laws that provide less protection should be amended to meet the standards set by the safeguards. Section 606(a) of the Fair Credit Reporting Act, 15 U.S.C. 1681d(a), for example, requires that an individual be notified that an investigative report is being prepared about him before work on it is begun, whereas safeguard requirement III(2) (p. 59, above) gives an individual the right to be informed that he is the subject of a record only if he asks to know. In this instance, the Act's requirement, responsive to the particular circumstances of the consumer reporting industry, provides the individual with greater protection than our safeguard and should be retained. Conversely, safeguard requirement III(2), which also guarantees an individual the right to see and obtain copies of data about him, provides more protection for individuals than Section 609(a) of the Fair Credit Reporting Act, 15 U.S.C. 1681g(a). Under the Act's requirement the individual is entitled to be fully informed by a consumer-reporting agency of the content of his record (except medical information and the sources of investigative information), but he is not entitled to see, copy, or physically possess his record. When an individual goes to a consumer-reporting agency to determine what information it has on him, the contents of the record must be read to him, but he must take the agency's word that it is telling him about all information in the record, and about all sources and recipients thereof. We understand that individuals have found this arrangement generally unsatisfactory, and further, that as the proportion of "sensitive" or adverse personal data in a record increases, compliance with the full disclosure requirement tends to diminish. To bring Section 609(a) more in line with the protection afforded individuals by safeguard requirement III(2), and thus to achieve the objective of the Fair Credit Reporting Act more fully, we recommend that the Fair Credit Reporting Act be amended to provide for actual, personal inspection by an individual of his record along with the opportunity to copy its contents, or to have copies made. The choice between inspecting and copying should be left to the individual, and any charge for having copies made should be nominal. We further recommend that the exceptions from disclosure to the individual now authorized by the Fair Credit Reporting Act for medical information and sources of investigative information should be omitted. It is a disturbing thought that an investigative consumer-reporting agency may have a record of medical information that the individual cannot know about or challenge. We realize that in Section 603(f) of the Fair Credit Reporting Act, 15 U.S.C. 1681a(f), "consumer reporting agencies" is defined broadly enough to apply to some organizations that are customary and appropriate repositories of medical. information. However, nothing in the Act should warrant the inference that every type of organization falling within the umbrella definition of "consumer reporting agencies" may, with impunity, conceal from an individual the fact that it is gathering, recording, and reporting medical information about him. We have explained our skepticism about the propriety of utilizing anonymous data sources when determinations about an individual's character, qualifications, rights, opportunities, or benefits are being made. Moreover, we find no strong societal interest in having an individual routinely denied credit, insurance, or employment on the basis of information provided by any source that must be kept secret from him.6 A NOTE ON MAILING LISTS The use of automated personal data systems to generate mailing lists deserves special comment. Ordinarily such use entails no perceptible threat to personal privacy. Even among individuals who strongly object to receiving quantities of so-called "junk mail," most would probably concede that their objections are not founded on any substantial claim that personal privacy has been invaded. Indeed, it is hard to see how the mere delivery of an item of mail to an individual, even though it is addressed to him by name, in itself entails an offensive or harmful disclosure or use of personal data. More important than the end use of the mailing list itself is the question of the original source of the personal data from which the list was originally assembled. In most cases, commercial mailing lists are made up of names and addresses gathered during the course of commercial transactions. In the most typical case, buying an item through the mail assures that the buyer's name will be added to the list of a commercial dealer in names, and that the list will in turn be sold, rented, and traded through a chain of further commercial mailers. This exploitation of names may occasionally be irritating, but there is little potential for substantial disclosure of closely held personal information, since nothing beyond name and address was probably revealed in the first place. A more serious threat to personal privacy arises when mailing lists are compiled from sources that have nothing to do with commercial interests-the membership list of a professional society, the faculty roster of a college, or the donor list of a charity. In these cases, data furnished for one purpose are being used for another, and even though the original source may not have contained more than the name and address, the mere fact of being on the list may reveal something about one's private life. More serious still are lists derived from actual administrative data systems. There is the strong probability that the original source contained data that might well be intensely personal and that names will be selected for mailing lists on the basis of such data. The data files for driver licenses, for instance, usually contain medical information on disabilities. The administrative files of schools contain grades and other personal items. Any use of files such as these for any but the original intention carries a clear danger of exploitation of truly private personal information. The Committee staff studied the structure and practices of the mailing-list industry to gauge the threats to personal privacy that could arise from that source, as well as to examine the applicability of the safeguard requirements to the industry. The report of the study is presented in Appendix H; an abstract of its conclusions, which we fully endorse, is given here: An underlying function of the Advisory Committee's recommended safeguards is to provide effective feedback mechanisms that will help to make automated personal data systems more responsive to the interests of individuals. Systems maintained by most government agencies, and by many private organizations, do not provide for tight links between individuals and the system operators. The direct-mail industry, however, is largely organized around the idea of public feedback; the trade press concentrates almost obsessively on methods for maximizing response and minimizing complaints. Because most mailings draw a response from only 3 or 4 percent of the addressees, a small change in the response rate can have relatively large economic implications for the mailer. The same is true for the compilers and brokers of mailing lists, because the price a list commands in the rental market depends not so much on its demographic sophistication as on its accuracy and freshness. Lists are cleaned by adding a special imprint to the mailing which gives the Postal Service authority to correct and return (at first-class rates) all undeliverable pieces. Since it costs about four times as much to discover and correct a "nixie" as it does to make a clean mailing in the first place, there is a powerful economic incentive to concentrate lists on known buyers at addresses of known accuracy. Another feedback mechanism operates on the industry as a whole. Direct-mail advertising is strongly dependent for survival on the official good will of a large number of agencies of the government; opposition from the Postal Service, from motor vehicle registrars, or from the Census Bureau, to name a few examples, would seriously hamper the industry on its present scale. It seems likely that a scandal involving public records, or the development of a public allergy to direct-mail advertising, would lead to govemment moves to put constraints on the industry. Constructive publicity toward emphasizing the rights of the individual relative to direct-mad advertising, especially the methods the industry has adopted for getting off and getting on the larger lists, would go far in strengthening these feedback mechanisms that already operate. In particular, the Direct Mail Advertising Association's Mail Preference Service deserves wider attention. If feedback mechanisms stronger than those provided by the economics of the industry should become desirable, there would be formidable practical difficulties in applying the Committee's safeguards to the freewheeling small operators of the direct-mail industry. The most directly applicable of the Committee's safeguards is the requirement for the informed consent of the data subject to be obtained before any collateral use may be made of data from an administrative personal data system. To accomplish this, forms that are used by the system in transactions with individuals (applications, for example) and that are vulnerable to mailing-list uses, could be printed with a block in which the individual-by his deliberate action-could indicate whether or not his name and address could be sold or otherwise transferred to another data system for mailing-list use. Of course, this could not prevent his name and address from being copied by hand out of a public record system, but the cost of such handcopying would sharply curtail much commercial use. In view of the controls already at work in the direct-mail advertising industry, this limited application of the Committee's safeguards seems sufficient. It would provide protection to individuals from having their names unexpectedly appear on mailing lists without their consent. We doubt the utility and feasibility of trying to make the rest of the Committee's proposed safeguard requirements apply to the mailing list as such, as a form of administrative automated personal data system, or to organizations that deal only in mailing lists. If the control of mailing lists is to be undertaken by law, it should be done by legislation that is directed specifically to that purpose. If the foregoing analysis of the situation underestimates the felt need for greater mailbox privacy, it would be feasible to undertake specific legislative action against the direct-mail advertising industry to provide greater protections, as the regulation of information practices in the consumer-reporting industry amply demonstrates. A NOTE ON INTELLIGENCE RECORDS In developing safeguard requirements, we have divided personal data record-keeping systems into two broad categories, (i) administrative systems, and (ii) systems maintained exclusively for statistical reporting and research. The distinction between the two is in their purpose vis-a-vis individuals. Administrative systems are intended to be used to affect individuals as individuals; statistical reporting and research systems are not. According to this classification, intelligence records are properly considered administrative records. A chief characteristic of intelligence records is that they are compiled for purposes that presuppose the possibility of taking adverse action against an individual. Their focus is on providing a basis for protecting the data-gathering organization, or other organizations that it serves, against the individual. There are many examples of intelligence-type personal-data record-keeping systems. From a historical standpoint, the original and classical intelligence records were those compiled and maintained about individuals who were viewed as possible enemies of the state. The most obvious and perhaps most common ones today are those compiled by the criminal intelligence systems of Federal, State, and local law enforcement agencies about individuals suspected of being engaged in criminal activities, of being threats to public safety or national. security, or of being suitable objects of surveillance and investigation for less clearly definable reasons. There are, however, many other examples of intelligence-type records, including investigative records of credit-reporting agencies, private detective agencies, industrial security organizations, and so on. It is hard to know how many types of intelligence data systems exist because their function leads as a rule to careful concealment. In framing our proposed safeguard requirements for administrative personal data systems, we did not focus on intelligence records as such. We realize that if all of the safeguard requirements were applied to all types of intelligence records, the utility of many intelligence-type records for the purposes they are designed to serve might be greatly weakened. In some instances this would clearly not be a desirable outcome from the standpoint of important societal interests, such as the apprehension and prosecution of individuals engaged in organized crime. It does not follow, however, that there . is no need for safeguards for personal-data intelligence recordkeeping systems. The risk of abuse of intelligence records is too great to permit their use without some safeguards to protect the personal privacy and due process interests of individuals. The mere gathering of intelligence data can be a serious threat to personal privacy and should be carried out with strict respect for the Constitutional rights of individuals. Once criminal intelligence data have been compiled, their use in connection with law enforcement prosecutions is safeguarded by all the Constitutional requirements of due process and by laws that establish limitations on the exercise of the police power, including civil and criminal remedies and penalties that may be imposed to enforce such limitations. We have not attempted to assess whether protections now afforded individuals from abuses of intelligence records as used in criminal law enforcement should be strengthened. We are concerned, however, about the use of criminal intelligence data, and intelligence records maintained by organizations other than law enforcement agencies, for many purposes that involve determinations about the qualifications, character, opportunities, or benefits of individuals to which the protective requirements of due process may not apply or for which they may not be fully effective. Such determinations include suitability for employment, especially in public service or in positions of critical fiduciary responsibility; clearance for access to classified national security information held by the Federal government and its contractors; and eligibility for various public benefits, permits, and licenses. Enactment of the proposed Code of Fair Information Practice for administrative personal data systems will afford an excellent opportunity to determine precisely what protections for individuals should be applied to intelligence record-keeping systems. Any exception from a safeguard requirement that is proposed for any type of intelligence system must be specifically sanctioned by statute and then only if granting the exception would serve a societal interest that is clearly paramount to the interest served by having the requirement imposed. The process of considering exceptions for intelligence systems will entail a careful review of existing policies, laws, and practices governing the creation, maintenance, and use of intelligence records about individuals. The- need for such a review has seldom seemed more urgent in the history of our Nation. NOTES 1In our brief review of the history of record keeping in Chapter 1, we took note of the origins and existence of intelligence records. These should be thought of as a type of administrative personal data system, since intelligence records are maintained about people for the purpose of affecting them directly as individuals We have not, however, examined intelligence record-keeping systems as such, and it was not with such systems in mind that we developed the safeguard recommendations set forth in this chapter. At the end of the chapter, we have included a brief statement about the application of our safeguards to intelligence records. 225 U.S.C. 552 (1970). 3 The remaining two exemptions refer to information that is: "specifically required by Executive order to be kept secret in the interest of the national defense or foreign policy;" and "specifically exempted from disclosure by statute." Legal prohibitions against disclosure of information in these two categories are not affected by the Act. 415 U.S.C. 1681-1684t. 5The Federal Trade Commission has the basic responsibility for enforcing the Act, but where specific types of institutions are already regulated (for other purposes) by other agencies, those agencies are charged with enforcing the Act; e.g., the Comptroller of the Currency (national banks), the Federal Reserve Board (member banks of the Federal Reserve systems other than national banks), the Interstate Commerce Commission (common carriers), and the Civil Aeronautics Board (air carriers). V. STATISTICAL REPORTING AND RESEARCH USES OF ADMINISTRATIVE DATA SYSTEMS Many automated personal data systems established primarily for administrative purposes are also used for statistical reporting and research. Since one advantage of computerizing administrative records is the capability thereby acquired for high-speed data retrieval and manipulation, a growing number of administrative data systems will be put to such additional uses. The safeguard recommendations in this chapter take account of that expectation. DIMENSIONS OF THE PROBLEM A modern organization, as a rule, maintains elaborate records about the money it spends, the people it serves, the quantities of goods and services it dispenses, and the number, qualifications, and salaries of the people who work for it. It does so, in part, because it must account for its activities to investors or taxpayers, and to other organizations that monitor and regulate its behavior. An organization also needs to plan for the future. A firm selling to the public is interested in knowing what the public wants, or can be persuaded to want. A school needs to know about the financial and intellectual capabilities of students coming to it for learning. A government agency tries to forecast demand for the services it provides or supports. These incentives to develop indicators of institutional performance make it difficult to control the quantity and variety of personal data stored in administrative record-keeping systems, and the statistical-reporting and research uses that are made of such data. The personal data that organizations collect for administrative purposes should be limited, ideally, to data that are demonstrably relevant to decision making about individuals. A substantial amount of personal data, however, appear to be collected because at some point someone thought they might be "useful to have," and found they could be easily and cheaply obtained on an application form, or some other record of an administrative transaction. For example, college students applying for governmentguaranteed loans in one State have been required to provide the State guarantee agency with data on matters that had no direct relation to its individual entitlement decisions. These data, "for our statistical interest" as their intended use was described to the Committee, included race, marital status, sex, adjusted family income, and student-reported "average grades received for last term of fulltime post-high school study." These data have been used to produce statistical reports for internal agency use, for informal discussions with State legislators, and to "run a profile once yearly on . . . schools and . . . lenders to see if there is any odd pattern . . . occurring." On one occasion data in the system also have been used in a study conducted by an outside researcher. For making entitlement decisions, however, the data being collected in excess of those required by law, were described to us as not very helpful to the program, and at least two data elements-sex and student-reported grades-were said to be absolutely valueless.1 The student loan case is but one illustration. The presentations of system managers and users yielded others. We found that decisions to collect personal data are being made without careful consideration of whether they will in fact serve the purposes for which they are supposedly being collected. As a result, substantial sums may be spent on comprehensive data collections for purposes that could often be much better served by other approaches, such as collecting statistical-reporting and research data only from a small sample of an organization's clients or beneficiaries. Most disturbing of all, we found that personal data in excess of those clearly needed for making decisions about individuals are sometimes collected in a way that makes them seem prerequisite to the granting of rights, benefits, or opportunities. MANDATORY OR VOLUNTARY DATA COLLECTION? Poorly conceived data collection can result in various kinds of injury to individuals. As observed earlier, any file of personal data is a potential source of harm to individuals when it is used outside its appropriate context, and much of the personal data in administrative files either is a public record or is vulnerable to legal process. There is also reason to believe that failure to separate information collected for statistical-reporting or research from data used in entitlement decisions may cause such decisions to be made unfairly. "Race" and "sex" are no longer asked on many application forms because of their acknowledged influence on some types of decision making about individuals. There are circumstances in which other kinds of data may have similarly unwarranted effects.2 Moreover, collecting more information than is needed for day-to-day administrative decisions may discourage people from taking advantage of the services an organization offers. As one witness told the Committee: > . . . . our experience indicates that . . . . rigid adherence to proper data > collection often "turns off" many clients, even when the interviewer is > ingenious at gathering it. Also counselors often openly resent [having to ask] > questions which actually may jeopardize their relationship with a client. Perhaps most important of all is the intrusive effect of unrestrained data collection on self-esteem. Occasionally one hears that a wealthy citizen has hired a chauffeur and limousine to avoid disclosing his Social Security number, or some other item of information, to a State Department of Motor Vehicles. One is tempted to dismiss such protests as the trivial antics of rich eccentrics; yet they indicate the high cost of trying to escape personal inquiries of organizations that monopolize the distribution of certain privileges and benefits. The plight of the welfare beneficiary is especially extreme in this respect, but with all the forms that everyone of us is constantly filling out, it would probably be hard to find a single individual who has not had one occasion at least to wonder, "Why do they want to know that?" and "What will happen if I refuse to tell them?" Collecting statistical-reporting and research data in conjunction with the administration of service and payment programs is not intrinsically undesirable. However, such supplementary data gathering should be carefully designed and managed, and should be performed only with the voluntary, informed cooperation of individual respondents. Otherwise only personal data directly and demonstrably germane to a decision about any given individual should be collected. Separate collection of data for statistical reporting and research could have several practical advantages. First, by increasing the cost of supplementary data gathering, it discourages the collection of useless items. Second, it might reduce the amount of data that must be specially protected because it is identifiable. Although personal data maintained exclusively for statistical reporting and research often need broader and stronger protection than they are afforded,3 differentiating sharply among the purposes and uses of data files should encourage public confidence in organizational record-keeping practices and ease the access control burden that now weighs heavily on some system managers. Third, separate collection of personal data for statistical reporting and research could help to make the collection process more reliable. We learned of instances in which an ambitious information system's appetite for data has induced careless statistical reporting. This problem appears to be especially prevalent where an information system has been established to help coordinate the activities of a number of small, loosely knit organizations. Such carelessness can frustrate the management objectives of a system by diluting the quality of data furnished to it in ways that may not be recognized or, if recognized, may be very difficult to control.4 ASSURING SOUND SECONDARY USES OFADMINISTRATIVE DATA SYSTEMS Administrative record-keeping operations can and do constitute rich sources of statistical-reporting and research data useful for many purposes. For example, the Federal government uses Internal Revenue Service records as a source of data for the quinquennial Census of Business and Manufacturers; hospital records are used to develop research data banks on particular diseases or disabilities; school and college records are used to study the relationship between academic performance and subsequent career achievement. Unfortunately, however, the mere existence of an administrative data base can create a strong temptation to use it for statistical reporting and research without sufficient attention to the appropriateness of doing so. Three conditions that encourage sound use of data systems for statistical reporting and research are often absent from the environment in which administrative systems are designed and operated They are: * knowledge of the social processes by which data come to be collected; * management of data collection and analysis by individuals with strong statistical and research competence; and * independent expert scrutiny of analytic methods and results. Knowledge of Data Collection Processes. Detailed understanding of how and why data come to be collected is often difficult, if not impossible, to achieve. For example, not everyone who is eligible for public assistance applies for it, and the amount and kind of information collected from each applicant may vary in subtle ways.5 Hence, if data from administrative systems are used for statistical reporting and research, the results must take account of systematic bias resulting from incompleteness in the data base. Measuring such bias can be expensive and time-consuming, and corrections for it can be even harder to make. Highly trained people are needed to conduct careful studies of the processes by which data in a system are being generated. Because of their expense and difficulty, however, and also because they can bring to light inadequacies in the overall performance of an organization, such studies tend not to be done. Statistical and Research Competence. Because most administrative systems are committed to day-to-day record-keeping operations, they are seldom managed or staffed by persons with strong statistical and research competence. It is true that the statistical offices of a few large government agencies-notably the Social Security Administration and the Internal Revenue Service-have substantially influenced the statistical uses made of their principal data sources, which are mainly administrative records. Similar examples can be found at other levels of government and among private organizations, but there are also numerous instances in which such statistical and research competence is brought to bear only through informal or sporadic consulting arrangements, if at all. Independent Scrutiny. Because administrative data systems are not created expressly for statistical reporting and research, they also tend to lack the strong ties to external groups of data users, and to the formal systems of professional peer review that characterize general purpose statistical-reporting and research operations. This isolation from independent expert scrutiny, coupled with the management orientation of administrative data systems, weakens the incentive to maintain high standards in the secondary statisticalreporting and research uses that are made of them. Neglect of these three conditions is particularly dangerous in a governmental setting. In business, the quality of statistical reporting and research may be measured by the usefulness of such work to the planning and marketing functions that maintain a firm's competitive position. In government, however, feedback from the marketplace is attenuated. Save for the occasional newsworthy statistical report, the ancillary uses of administrative data systems may be ignored by outside professionals and invisible to the general public and its elected representatives. In the Federal Government, formal arrangements for implementing the Federal Reports Act are supposed to serve as a check on the uses made of administrative record-keeping systems for statistical reporting and research. However, at other levels of government, the low visibility of such uses, coupled with the uneven impact of public information laws, can create an open invitation to misguided use of statistical reports and research findings based on administrative data. We learned, for example, that one agency of a State government recently attempted to compare earnings declarations made by some public assistance beneficiaries to county welfare offices, with earnings of those same beneficiaries reported by their employers to a second State agency. This complex comparison of data derived from two quite different administrative record-keeping systems was undertaken mainly to verify the beneficiaries' eligibility for public assistance payments on a case-by-case basis, but it also resulted in a statistical report "showing" that a substantial percentage of the State's public assistance beneficiaries were engaged in "apparent fraud." The design of the comparison, and thus the resulting data, supported no such conclusion. Few people are aware of its technical failings, however, and it seems unlikely that many more will discover them, since appropriately documented data from the study have not been made available outside the sponsoring State agencies. RECOMMENDATIONS In light of our inquiry into the statistical-reporting and research uses of personal data in administrative recordkeeping systems, we recommend that steps be taken to assure that all such uses are carried out in accordance with five principles. > First, when personal data are collected for administrative purposes, > individuals should under no circumstances be coerced into providing additional > personal data that are to be used exclusively for statistical reporting and > research. When application forms or other means of collecting personal data > for an administrative data system are designed, the mandatory or voluntary > character of an individual's responses should be made clear.6 > Second, personal data used for making determinations about an individual's > character, qualifications, rights, benefits, or opportunities, and personal > data collected and used for statistical reporting and research, should be > processed and stored separately.7 > Third, the amount of supplementary statistical-reporting and research data > collected and stored in personally identifiable form should be kept to a > minimum. > Fourth, proposals to use administrative records for statistical reporting and > research should be subjected to careful scrutiny by persons of strong > statistical and research competence. > Fifth, any published findings or reports that result from secondary > statistical-reporting and research uses of administrative personal data > systems should meet the highest standards of error measurement and > documentation. It would be difficult to apply each of these principles uniformly to all administrative automated personal data systems. For this reason, we have not translated them into safeguard requirements to be enacted as part of a code of fair information practice. Adherence to their spirit, however, is warranted by the growing significance of statistical-reporting and research uses of administrative personal data systems -- both for individual data subjects and for the institutions maintaining such systems. In addition, there are certain safeguards that can be feasibly applied to all administrative automated personal data systems used for statistical reporting and research. Specifically, we recommend that the following requirements be added to the safeguard requirements for administrative personal data systems: * Under I. General Requirements (Chapter IV, pp. 53-57), add C. Any organization maintaining an administrative automated personal data system that publicly disseminates statistical reports or research findings based on personal data drawn from the system, or from administrative systems of other organizations, shall: > (1) Make such data publicly available for independent analysis, on reasonable > terms; and > > (2) Take reasonable precautions to assure that no data made available for > independent analysis will be used in a way that might reasonably be expected > to prejudice judgments about any individual data subject's character, > qualifications, rights, opportunities, or benefits. * Under the Public Notice Requirement (Chapter IV, p. 58), add > (8a) The procedures whereby an individual, group, or organization can gain > access to data used for statistical reporting or research in order to subject > such data to independent analysis. The purpose of general requirements C. (1) and (2) is to assure that when statistical reports or research findings based on personal data from administrative systems are used to affect social policy, the data will be available, in an appropriate form, for independent analysis. To comply with this requirement, an organization will have to plan carefully all publicly disseminated statistical-reporting and research uses of personal data in the administrative systems it maintains. The public notice for an administrative personal data system will specify any statistical-reporting and research uses to be made of data in the system (requirement II. (7), p. 58) The additional information required by requirement (8a) will make it easier to obtain access to data for independent analysis. 1 A representative of the State agency told the Committee that the agency would not compel a student applicant to provide this information "because we have come to find it is totally worthless . . . . . [A] t one time we thought it would be a viable way of sampling the type of student we would assist. We determined it is not much use . . . [but w]e have not taken it out." 2For a cogent analysis of the effects of "contextual" information on clinical disability determinations, see Saad L. Nagi, Disability and Rehabilitation (Columbus, Ohio: Ohio State University Press), 1969, especially Chapters 2 and 9. Discussion of this problem will also be found in Stanton Wheeler (Ed.), On Record: Files and Dossiers in American Life (New York: Russell Sage Foundation), 1969. 3The special problems of data maintained exclusively for statistical reporting and research are discussed in Chapter VI. 4 As one representative of a small group of agencies observed in his testimony before the Committee: Client- (rather than management-) oriented agencies are philosophically committed to research only secondarily, as a tool for delivering more effective services. Therefore, they often must be dragged kicking and screaming into the data collection business. This is totally apart from their finances or their training . . . . Where services are . . . interfered with, data collection goes out the window. Measurement error can then be quite high. 5These variations may result from practices rooted in a bureaucratic subculture of which the record-keeping operation is but one-albeit important-part. See, for example, the discussions of how juvenile court, welfare, credit, and elementary school records are generated, in Wheeler, op. cit., Chapters 2, 5, 11, and 12. 6 Recall in this regard safeguard requirement III (1), recommended in Chapter IV (p. 59, above) for all administrative automated personal data systems; viz., that an individual asked to supply data for a system be informed clearly whether he is legally required or free to refuse to provide the data requested. That safeguard, when applied, will effectively eliminate de facto coercion of data subjects into providing more information than is needed for making administrative decisions. 7Separating the two types of data in this way would make it easier to apply the protection against compulsory disclosure recommended in Chapter VI (pp. 102-103, below). VI. SPECIAL PROBLEMS OF STATISTICAL REPORTING AND RESEARCH SYSTEMS When the United States was at war with Japan in 1942, the War Department asked the Census Bureau for the names and addresses of all Japanese-Americans who were living on the West Coast at the time of the 1940 Census. Persons of Japanese descent were being rounded up and transported inland for fear that some of them might prove disloyal in the event of a Japanese attack. Because of Title 13 of the U. S. Code, however, which prohibits disclosure of census data furnished by individuals, the Census Bureau could, and did, refuse to give out the names and addresses. In 1969, the Mercer County (ICJ.) Prosecutor's Office subpoenaed the payment histories of 14 families participating in an income-maintenance experiment being conducted by a private contract research organization in Princeton. The prosecutor suspected that the families were defrauding the county welfare department by not reporting their monthly income from the experiment. The contractor found that it had no legal basis for resisting the subpoenas, even though its federally funded subcontract explicitly provided that "individual personal and financial information pertaining to all individuals and families who participate as respondents in this study shall remain strictly confidential."1 The difference between these two cases is clear and fundamental: In the Census case, the data were protected by a statute2 from disclosure in individually identifiable form; in the New Jersey case they were not.3 This chapter examines some of the problems posed by legally unprotected statistical-reporting and research files that contain data about identifiable individuals. It focuses on the need to protect individual data subjects from injury through disclosure of data about them, on one hand, and, on the other, the need to make files of personal data more accessible to persons who can make constructive use of the data they contain. BACKGROUND OBSERVATIONS When we began our examination of automated record-keeping operations, we expected that we could leave out entirely data systems maintained exclusively for statistical reporting or research. We were mindful that in the mid-1960's a series of proposals4 to establish a national statistical data center had alerted the public to some of the dangers inherent in computer-based record-keeping operations. We also knew that the Freedom of Information Act contains no clear statement of Congressional intent with respect to the disclosure of individually identifiable data maintained for statistical reporting and research. We had assumed, however, that statisticalreporting and research data systems, by and large, would not contain data in personally identifiable form, and that if they did, the anonymity of individual data subjects would be protected by specific statutory safeguards. We were not prepared for the discovery that in many instances files used exclusively for statistical reporting and research do contain personally identifiable data, and that the data are often totally vulnerable to disclosure through legal process. This holds for data in Federal agency files as well as for data in the possession of State agencies and private research organizations. Changes in social policy, which computer technology has to some extent facilitated, are in large part responsible for the existence of unprotected statistical-reporting and research files. Since the late 1950's, the Federal Government has been distributing increasingly large sums of money to the States on the basis of formulas that take account of special population characteristics. The recipient State governments, in turn, have been redistributing this money among their own political subdivisions, using grant-in-aid formulas that tend to generate new requirements for statistical data about people at nearly every level of government. Often coupled with these grants, moreover, have been planning requirements demanding highly detailed information about the populations of small geographic areas. Program evaluation requirements, first levied on grant-in-aid recipients by Federal agencies and later explicitly written into some of the agencies' authorizing legislation, have been a further stimulus to the proliferation of statistical-reporting and research files containing data about people. From their initial emphasis on simple input accounting (how much was spent, by whom, for what purpose, on how many people, with which characteristics), evaluation studies have rapidly come to focus on measuring program effects.5 Because effects measurement usually requires before-andafter data on program participants, it has become necessary to preserve individual identities in evaluation research files. Interest in the specific events and processes that may account for changes in participant behavior over time has also grown along with interest in output measurement. Many of the factors that account for a participant's behavior are so subtle that they can only be isolated if records of people's movements and experiences are kept over an extended period. A third factor that has enlarged the number of data files containing information about identifiable individuals is the broad support given to fundamental research in the social and biomedical sciences. In fact, files for research in these two areas may be the most numerous of all, and they exist in a variety of settings. Many such files are coming into the possession of government agencies as a consequence of contract arrangements that make agencies the proprietors of data generated in government-supported research and demonstration projects. Not all of these files contain information that identifies individual data subjects, but of those that do, the ones dealing with controversial social and political issues are particularly vulnerable to misuse in the absence of specific statutory safeguards. THE NEED TO PROTECT DATA SUBJECTS FROM INJURY Even at the Federal level there are few statutes that protect personal data in statistical-reporting and research files from unintended administrative or investigative uses. The Census Act, the Public Health Service Act, and the Social Security Act are notable exceptions. Otherwise there is little to prevent anyone with enough time, money, and perseverance (to say nothing of someone who can issue or obtain a subpoena) from gaining access to a wealth of information about identifiable participants in surveys and experiments. This should not, and need not, be the case.Social scientists and others whose research involves human subjects are vocal about the importance of being able to assure individuals that information they provide for statistical reporting and research will be held in strictest confidence and used only in ways that will not result in harm to them as individuals. Unless people get-and believe-such assurances, they will inevitably become either less willing or less reliable participants in surveys and experiments.6 Ideally, data subjects should also be told of the conditions under which they are being asked to provide information, and should be given an opportunity to refuse if they find those conditions unsatisfactory. It is often asserted, for example, that the decennial census (in which response is mandatory) is a feasible undertaking only because the public willingly co-operates, and that the public's cooperation is best obtained by explaining to respondents the uses to which the data will be put. We believe the principle that no harm must come to an individual as a consequence of participating in a general knowledge-producing activity should be regarded as the essence of "use for statistical or research purposes only." Individual data subjects asked to provide data for statistical reporting and research should also be fully informed, in advance, of the known consequences for them of providing or not providing data. Survey respondents and participants in experiments and demonstration projects are largely dependent on what they are told by interviewers or by explanatory notes on forms. Hence, it is incumbent on the institution conducting or funding a statistical-reporting or research project to find out how vulnerable the data in its files are, and so to inform its data subjects. Finally, we believe that the best way to assure that individual data subjects will not be harmed is to extend to all personal data generated through statistical-reporting and research activities the statutory protections that have been given to census data and certain classes of health and economic data collected and used in the public interest. THE NEED FOR FREER ACCESS TO DATA IN GOVERNMENT FILES The obverse of the problem of data confidentiality is the need to make basic data more accessible for reuse or reanalysis by all qualified persons or institutions. Personal data systems for statistical reporting and research are largely in the hands of institutions that wield considerable power in our society. Hence, it is essential that data which help organizations to influence social policy and behavior be readily available for independent analysis. The ubiquitous computer has increased both the quantity of data potentially available to users and the number of potential users. Unfortunately, however, the data dissemination capability of many funding and collecting institutions has not grown commensurately. Among the general purpose statistical operations of the Federal government, the Census Bureau has led the way in making data from standard statistical series easily available to users in a form that protects the anonymity of respondents. Other agencies, notably the National Center for Health Statistics, have followed suit.7 The Department of Health, Education and Welfare is currently preparing a guidebook of its "public use" data files.8 Laudable as these efforts are, it should be emphasized that they are being made, for the most part, by agencies or offices within agencies whose primary mission is statistical reporting and research. They do not address the problem of access to the statisticalreporting and research files that operating agencies develop in the course of evaluating programs or in adding to the general knowledge of program administrators. It is true, as noted earlier, that anyone with enough money, time, and perseverance can probably gain access to substantial amounts of data not generally available for public use. Yet the individual researcher, or the independent critical expert, however perseverant, may not even know that important data exist, much less where to find them. If he does find them, and if he can afford to have them put in usable form, the documentation may not be sufficient to permit reconstruction of the conditions and suppositions under which the data were collected. An agency holding data collected under a pledge of confidentiality may not be willing to go to the trouble (or may itself not be able to afford the cost) of expunging elements that would serve to identify individual data subjects in order to make the data available. In principle, there need be no conflict between informing the public about how the government conducts its business and protecting individual data subjects from harm. If data cannot be made available for reuse or reanalysis without disclosing the identity of data subjects, special precautions may have to be taken before making basic data accessible to qualified persons outside the collecting organization, but such precautions can be taken. For example, each data subject could be asked at the time of the initial data collection if he would consent to participate in a follow-up study, on the understanding that consent would be sought anew each time a further follow-up study is undertaken. Although such arrangements may add to the expense and difficulty of some data collections, a public institution that uses scientific approaches and methods has a duty to make the work it sponsors or supports available for critical appraisal. Making fully documented data available for reuse and reanalysis by persons competent to assess the interpretations that have been made of them can bring two benefits. First, the knowledge that other investigators will have an early opportunity to challenge its conclusions should tend to heighten the quality of the original collection and analysis, and second, advances in the sciences may produce more powerful techniques of analysis that could make it possible to glean additional information from data in the course of re-examining them. RECOMMENDATIONS FOR STATISTICAL REPORTING AND RESEARCH SYSTEMS In Chapter IV, we have recommended enactment of legislation establishing a code of fair information practice for all automated personal data systems. All the features of that code would apply to systems used exclusively for statistical reporting and research. Thesafeguard requirements to be included in the code for such systems are set forth below. They are designed to help protect the individual citizen against unintended or unforeseen uses of information he provides exclusively for statistical reporting and research, and to help assure that the uses organizations make of statistical-reporting and research data are subjected to independent expert review and open public discussion. Pending the enactment of a code of fair information practice as outlined in Chapter IV, we recommend that all Federal agencies (i) apply the safeguard requirements, by administrative action, to all Federal statistical-reporting and research systems, and (ii) assure, through formal rule making, that the safeguard requirements are applied to all systems within reach of the Federal government's authority. Pending the enactment of a code of fair information practice, we also urge that State and local governments, the institutions within reach of their authority, and all private organizations adopt the safeguard requirements by whatever means are appropriate. In addition, we recommend that all personal data in systems used exclusively for statistical reporting and research be protected by statute from compulsory disclosure in identifiable form. The safeguard requirements recommended below are premised on the enactment of legislation granting such protection. There is no requirement, for example, guaranteeing data subjects access to the contents of records maintained about them. Theoretically, no such requirement is needed, since statistical-reporting and research data systems are not intended to be used to affect individuals directly; granting individuals access to records that can have no direct consequences for them as individuals would interfere with a system's operations to no useful end. In practice, however, the vulnerability of data in many statistical-reporting and research systems to compulsory disclosure in identifiable form means that for individual data subjects to be adequately protected from unforeseen disclosurers, those data must be afforded immunity from disclosure through compulsory legal process. The safeguard requirements for statistical-reporting and research systems are modeled closely on the safeguard requirements for administrative systems in Chapter N. Hence explanatory notes are provided only in those cases where a requirement has been modified to fit the special characteristics of statistical-reporting and researchsystems. Where no notes appear following a requirement, the reader should refer to the notes on the corresponding safeguard in Chapter IV. SAFEGUARD REQUIREMENTS FOR STATISTICAL-REPORTING AND RESEARCH SYSTEMS SAFEGUARD REQUIREMENTS FOR STATISTICAL-REPORTING AND RESEARCH SYSTEMS > I. GENERAL REQUIREMENTSA. Any organization maintaining a record of personal > data, which it does not maintain as part of an automated personal data system > used exclusively for statistical reporting or research, shall make no transfer > of any such data to another organization without the prior informed consent of > the individual to whom the data pertain, if, as a consequence of the transfer, > such data will become part of an automated personal data system that is not > subject to these safeguard requirements or the safeguard requirements for > administrative personal data systems (in Chapter IV). > > All other safeguard requirements for statistical-reporting and research > > systems have been formulated to apply only to automated systems, although > > they would wisely be applied to all statistical-reporting and research > > systems, whether automated or manual. If this is not done, however, it is > > necessary to assure that individuals about whom an organization maintains > > records of personal data, which are not part of an automated system, will be > > protected in the event of transfers of such data to automated systems. > > Requirement LA. is intended to, rovide such protection for individuals by > > requiring that transfers of data about them to automated systems not subject > > to safeguard requirements be made only with their informed consent. > B. Any organization maintaining an automated personal data system used > exclusively for statistical reporting or research shall:(I) Identify one > person immediately responsible for the system, and make any other > organizational arrangements that are necessary to assure continuing attention > to the fulfillment of the safeguard requirements; > The obligation to identify a person responsible for the system is intended to > provide a focal point for assuring compliance with the safeguard requirements > and to guarantee that there will be someone with authority to whom > individuals, groups, or organizations can go if other methods of dealing with > the system are unsatisfactory. Systems that involve more than one organization > may present special problems in this respect, and must be carefully designed > to assure that a person is not shuffled from one organization to another when > he seeks to assert any right under these requirements. > > (2) Take affirmative action to inform each of its employees having any > > responsibility or function in the design, development, operation, or > > maintenance of the system, or the use of any data contained therein, about > > all the safeguard requirements and all the rules and procedures of the > > organization designed to assure compliance with them; > > (3) Specify penalties to be applied to any employee who intiates or > > otherwise contributes to any disciplinary or other punitive action against > > any individual who brings to the attention of appropriate authorities, the > > press, or any member of the public, evidence of unfair information practice; > > (4) Take reasonable precautions to protect data in the system from any > > anticipated threats or hazards to the security of the system; > > (5) Make no transfer of individually identifiable personal data to another > > system without (i) specifying requirements for security of the data, > > including limitations on access thereto, and (ii) determining that the > > conditions of the transfer provide substantial assurance that those > > requirements and limitations will be observedexcept in instances when each > > of the individuals about whom data are to be transferred has given his prior > > informed consent to the transfer; > Requirement (5) has basically the same implications for statistical-reporting > and research systems that it has for administrative systems (Chapter IV, p. > 56). However, applied to statistical-reporting and research systems along with > requirement 111 (2) (p. 101, below), requirement (5) will also preventan > organization or a researcher from transferring data in identifiable form to > another organization or researcher who could not fully guarantee that the > transfer would result in no uses of the data not reasonably anticipated by the > data subjects. > > (6) Have the capacity to make fully documented data readily available for > > independent analysis. > This requirement should be understood to mean that data whose use helps an > organization to influence social policy and behavior must be readily > available. In cases where independent analysis could not be performed without > knowing the identity of each data subject, a system would be considered fully > "capable" if, for example, it had obtained the consent of each data subject to > participate in a follow-on study, or had a policy of seeking the consent of > data subjects on behalf of persons wanting to perform such independent > analysis. > II. PUBLIC NOTICE REQUIREMENT > > Any organization maintaining an automated personal data system used > > exclusively for statistical reporting or research shall give public notice > > of the existence and character of its system once each year. Any > > organization maintaining more than one such system shall publish annual > > notices for all its systems simultaneously. Any organization proposing to > > establish a new system, or to enlarge an existing system, shall give public > > notice long enough in advance of the initiation or enlargement of the system > > to assure individuals who may be affected by its operation a reasonable > > opportunity to comment. The public notice shall specify: > > (1) The name of the system;(2) The nature and purpose(s) of the system;(3) > > The categories and number of persons on whom data are (to be) maintained;(4) > > The categories of data (to be) maintained indicating which categories are > > (to be) stored in computer-accessible files;(5) The organization's policies > > and practices regarding data storage, duration of retention of data, and > > disposal thereof;(6) The categories of data sources;(7) A description of all > > types of use (to be) made of data, indicating those involving > > computer-accessible files, and including all classes of users and the > > organizational relationships among them;(8) The procedures whereby an > > individual, group, or organization can gain access to data for independent > > analysis;(9) The title, name, and address of the person immediately > > responsible for the system;(10) A statement of the system's provisions for > > data confidentiality and the legal basis for them. > This requirement has two primary objectives: (1) to assure that there will be > no automated personal data system whose very existence is kept secret from the > public; and (2) to assure that uses of systems by organizations to help them > influence social policy or behavior are not immune from independent expert > scrutiny. Instances will no doubt arise in which announcement of a research > project prior to undertaking it could seriously hamper part of the study. In > other instances, the scale of a project might be so small, and its influence > on social policy so remote, that strict compliance with the public notice > requirement will seem unduly burdensome. For such cases some mechanism will > have to be devised for granting exemptions from the public notice requirement. > Because of the diversity of statistical-reporting and research activities that > organizations conduct, sponsor, or support, we have not tried to specify > criteria for granting exemptions or to prescribe any particular mechanism for > dealing with requests for exemptions on a case-by-case basis. We do feel, > however, that the people who want to do research that might qualify for an > exemption should not be asked to bear the full burden of deciding whether an > exemption is appropriate.The matter of exemptions from the public notice > requirement is one to which careful attention will have to be addressed when > the safeguard requirements are being applied by administrative action, > andeventually in connection with the enactment of legislation establishing the > code of fair information practice for statisticalreporting and research > systems. > We have also refrained from specifying a uniform mechanism for giving notice. > For Federal agencies, we would expect formal notice in the Federal Register, > but a catalog of data files published annually would also suffice. We would > expect State and local governments to use whatever comparable mechanisms are > available to them. Other systems may find that notices given through > professional journals or mailings would be appropriate. Whatever methods are > chosen, an organization must have copies of its notices readily available to > anyone requesting them. > III. RIGHTS OF INDIVIDUAL DATA SUBJECTS > Any organization maintaining an automated personal data system used > exclusively for statistical reporting or research shall: > > (1) Inform an individual asked to supply personal data for the system > > whether he is legally required, or may refuse, to supply the data requested, > > and also of any specific consequences for him, which are known to the > > organization, of providing or not providing such data; As indicated in Chapter IV (p. 59, above), one purpose of this requirement is to discourage coercive collection of personal data that are to be used exclusively for statistical reporting and research. However, the requirement that an individual be informed of the consequences of providing, or not providing, data for a system is also intended to assure that no pledge to hold data in confidence will be given by a data-collecting organization without apprising each data subject of the legal limitations, if any, of such a pledge. > > (2)9 Assure that no use of individually identifiable data is made that is > > not within the stated purposes of the system as reasonably understood by the > > individual, unless the informed consent of the individual has been > > explicitly obtained; > > (3) Assure that no data about an individual are made available from the > > system in response to a demand for data made by means of compulsory legit > > process, unless the individual to whom the data pertain (i) has been > > notified of the demand, and (ii) has been afforded full access to the data > > before they are made available in response to the demand. > The intent of this requirement is similar to that of requirement Ill (S), as > explained in Chapter IV (p. 63, above). Because there is no safeguard > requirement for statistical-reporting and research systems giving an > individual the right of access to data about himself (as provided in > requirement 111 (2) for administrative systems), this requirement gives an > individual that right in the event of a compulsory process demand. The need > for this requirement would be obviated by enactment of legislation providing > effective protection against compulsory disclosure of identifiable personal > data maintained in statistical-reporting and research systems. However, until > such legislation is enacted, or if, when enacted, the legislation leaves an > organization maintaining such a system any discretion whatsoever to waive the > protection against compulsory disclosure, this safeguard should be the minimum > protection afforded individual data subjects. STATUTORY PROTECTION AGAINST COMPULSORY DISCLOSURE A primary goal of safeguard requirements for statistical-reporting and research systems must be to protect individual data subjects from harm. That goal will be frustrated if, after having been assured that the data he provides for a system will be seen only by persons formally involved in the statistical-reporting or research project, a data subject finds that the data have been disclosed in identifiable form in response to a subpoena. Statistical-reporting or research data that can be traced to identifiable individuals should not be subject to compulsory disclosure through legal process. In our view, there must be new Federal legislation protecting against such disclosure, and it should include the following features: * The data to be protected should be limited to those used exclusively for statistical reporting or research. Thus, the protection would apply to statistical-reporting and research data derived from administrative records, and kept apart from them. but not to the administrative records themselves.10 * The protection should be limited to data identifiable with, or traceable to, specific individuals. When data are released in statistical form, reasonable precautions to protect against "statistical disclosure"11 should be considered to fulfill the obligation not to disclose data that can be traced to specific individuals. * The protection should be specific enough to qualify for non-disclosure under the Freedom of Information Act exemption for matters "specifically exempted from disclosure by statute" 5 U.S.C. 552 (b) (3). * The protection should be available for data in the custody of all statistical-reporting and research systems, whether supported by Federal funds or not. * The Federal law should be controlling; no State statute should interfere with the protection it provides. (The need also. exists for State legislation to protect statistical-reporting and research data that cannot be reached by Federal legislation.) * Either the data custodian or the individual about whom data are sought by legal process should be able to invoke the protection, but only the individual should be able to waive it. These are essential conditions for protecting statistical-reporting and research data from compulsory disclosure in identifiable form. Legislation incorporating the features indicated would not prevent the disclosure of basic records from a statistical-reporting or research system so long as data in the records could not be traced to specific individuals. We offer no specific guidance on the form of the statutory protection. However, existing Federal confidentiality statutes contain some relevant examples. These range from absolute prohibitions against disclosure to authority for an administrative official to make disclosure regulations. Among the specific methods are the following: Absolute Prohibition of Disclosure. Two existing statutes provide stringent protections for personal data held by Federal agencies. > (a) Data collected by the Bureau of the Census may not be revealed to anyone > outside of the Bureau in a form in which an individual respondent is > identifiable. There is no discretion for any Bureau official with respect to > disclosure. There are criminal penalties for disclosure. The prohibition > against disclosure serves to defeat legal process. If a respondent retains a > copy of a report made to the Bureau, the copy, like the original, is immune > from process. 13 U.S.C. 9,214. > > (b) Data collected under the National Health Survey may not be used "for any > purpose other than the statistical purpose for which it was supplied except > pursuant to regulations of the Secretary [of Health, Education, and Welfare]; > nor may any such information be published if the particular establishment or > person supplying it is identifiable except with the consent of such > establishment or person." Sec. 305(a) of the Public Health Service Act, 42 > U.S.C. 242c. Here again, the holders of the records are given no discretion to > reveal information or withhold it; only the establishment or the person who > supplied the information has that discretion. Criminal penalties for > disclosure derive from a general statute on disclosure of confidential > information. 18 U.S.C. 1905. Absolute Protection Against Compulsory Disclosure. A second pattern of data protection is provided by statutes that authorize a Federal official to authorize others to protect the privacy of individuals who are the subject of research by withholding from all persons not connected with the research the names and other identifying characteristics of such individuals. Such authority is vested in the Secretary of Health, Education, and Welfare by Section 303(a) of the Public Health Service Act, 42 U.S.C. 242a, with respect to drug research, and also by Section 333 of the Comprehensive Alcohol Abuse and Alcoholism Prevention, Treatment, and Rehabilitation Act of 1970, 42 U.S.C. 4582, with respect to alcohol abuse and alcoholism research. Similar authority is given the Attorney General by Section 502(c) of the Comprehensive Drug Abuse Prevention and Control Act of 1970, 21 U.S.C. 872(c), with respect to "research." The latter authority speaks only of "research," but appears in a section of the statute dealing with research related to enforcement of laws concerning drugs. The authority in each of these instances is explicit as to immunity from process. Those who obtain the authorization "may not be compelled in any Federal, State, or local civil, criminal, administrative, legislative, or other proceeding" to identify the subjects of research. These sections are of wide scope. The authorization may be given to anyone engaged in the specified type of research. Thus, the Secretary or Attorney General can extend it to Federal employees under his control, Federal employees in other agencies, grantees, and even to resea chers who are not grantees. However, there is no absolute prohibition on disclosure. The Secretary or Attorney General may grant or withhold the authorization. The researcher with the authorization "may not be compelled. . .to identify such individuals," but may choose to identify them pursuant to process or otherwise, subject to whatever other ethical or legal constraints exist. Thus, it is not strictly a privilege, like the lawyer-client privilege, in which the individual who has provided the information controls the action of the professional in responding to process. Discretion to Disclose Under Specified Conditions. The Drug Abuse Office and Treatment Act of 1972 (P.L.. 92255) provides a third model. Section 408 of that Act, 21 U.S.C. 1175, establishes as confidential, and forbids disclosure of, patient records "which are maintained in connection with the performance of any drug abuse prevention function authorized or assisted under any provision of this Act or any Act amended by this Act." There is a criminal penalty for disclosure. If the patient gives written consent, the record may be disclosed for medical care purposes, or to govern mental personnel in order to obtain benefits for the patient. If the patient does not give consent, the record may be disclosed for emergency medical treatment; for research, audit, or evaluation purposes (as long as the patient's identity is not further disclosed); or if authorized by a court order upon application showing good cause. Criminal charges may not be initiated or substantiated on the basis of patient records, and patients may not be investigated on the basis of patient records, except pursuant to disclosure under a court order. The section continues to apply to a patient's records after he ceases to be a patient. This statute speaks of records "maintained in connection with any drug abuse prevention function," and this seems to include records kept solely for research, but the term "patient" is used repeatedly. The Act's legislative history shows that confidentiality was provided so that drug abusers would more readily seek treatment. [H. Rept. No. 92-920, -92nd Cong., 2d Sess., 33(1972)]. Implementing regulations issued by the Special Action Office for Drug Abuse Prevention, 21 C.F.R. Part 401, define "patient" as anyone who is or has been interviewed, examined, diagnosed, treated, or rehabilitated in connection with any drug abuse prevention function, and include "research" in the definition of the drug abuse prevention function. It should be noted that the function of the court order in this scheme is to authorize a disclosure which would otherwise be forbidden, rather than to compel disclosure. The implementing regulations make it clear that the holder of the records may disclose the records if so authorized by a court order, but is not obliged to do so. Discretion to Specify the Condtions for Disclosure. Another pattern of protection is found in Section 1106(a) of the Social Security Act, 42 U.S.C. 1306(a). The section does not deal explicitly with research, but covers any information received by the Department of Health, Education, and Welfare in the course of discharging duties under the Social Security Act. The section provides that no disclosure shall be made "except as the Secretary may by regulations prescribe." Thus, an administrative official is authorized to designate classes of information that may be disclosed, and that may not be disclosed, and to determine when and to whom data may be disclosed. In effect, an administrative official has discretion (which must be exercised in advance in published regulations) to respond to legal process or not. 1 David N. Kershaw and Joseph C. Small, "Data Confidentiality and Privacy: Lessons from the New Jersey Negative Income Tax Experiment," Public Policy, Vol. XX, No. 2 (Spring 1972), p. 261. The Mercer County dispute stemmed from a change in the State public assistance law which made more participants in the experiment eligible for welfare than had been the case when the experiment began. The 1969 investigation was terminated when the contractor agreed to reimburse the county welfare agency for any overpayments that came to light. Two years later, however, the experiment was subjected to a four-month grand jury investigation of charges that the contractor had "instructed lowincome families taking part in the experiment not to report income subsidies to city and county welfare authorities . . . ." Ibid., p. 268. During this same period, access to the contractor's files was also sought by the General Accounting Office and the U. S. Senate Finance Committee. ' 2 The current version of this protection provides that:Neither the Secretary, .nor any other officer or employee of the Department of Commerce or bureau or agency thereof, may ...(1) use the information furnished under the provisions of this title for any purpose other than the statistical purposes for which it is supplied; or (2) make any publication whereby the data furnished by any particular establishment or individual under this title can be identified; or (3) permit anyone other then the mom officers and employees of the Department or bureau or agency thereof to examine the individual reports . . . .13 U.S.C. 9(a). 3The New Jersey case is not unique. At least two other incidents of a similar nature have been reported. See John Walsh, "Anti-poverty R&D: Chicago Debacle Suggests Pitfalls Facing OEO, "Science, 165, 19 September 1969, pp. 1243-1245; and "Appeals Court Orders MD to Reveal Patients' Photos," Psychiatric News, VII:2, November 15, 1972, p. 1. The latter describes a pending court case involving the New York City Methadone Maintenance Treatment Program. 4Report of the Committee on the Preservation and Use of Economic Data to the Social Science Research Council, April 1965, reprinted as Appendix I in The Computer and Invasion of Privacy, Hearings before a Subcommittee of the Committee on Government Operations, U. S. House of Representatives, 89th Congress, 2d Session, July 26, 27, 28, 1966; Statistical Evaluation Report No. 6-Review of Proposal for a National Data Center, prepared by Edgar S. Dunn, Jr., also reprinted in The Computer and Invasion of Privacy as Appendix 2; and Report of the Task Force on the Storage of and Access to Government Statistics (Washington, D.C.: Bureau of the Budget), October 1966. 5There is today a substantial evaluation research literature to which the interested reader can refer for a fuller account of how this new government-supported activity has developed. See, for example, Edward A. Suchman, Evaluative Research (New York: Russell Sage Foundation), 1967; Francis G. Caro, Readings in Evaluation Research (New York: Russell Sage Foundation, 1971; and Peter H. Rossi and Walter Williams (Eds.), Evaluating Social Programs: Theory, Practice, and Politics (New York and London: Seminar Press), 1972. 6See Chapter 6, "Privacy and Confidentiality," in Federal Statistics, the Report of the President's Commission on Federal Statistics (Washington, D.C.: U.S. Government Printing Office), 1971. 7National Center for Health Statistics, Standardized Micro-Data Transcripts (Rockville, Md.: National Center for Health Statistics), December 1972. 8Guidebook to the U.S. Department of Health, Education, and Welfare Computer Data Flies, 1973 (forthcoming).Statistical-Reporting and Research Systems 95 9This requirement corresponds to requirement 111(3) in Chapter IV. 10 See Note 7, Chapter V, p. 85. 11This is a risk that arises when a population is so narrowly defined that tabulations are apt to produce cells small enough to permit the identification of individual data subjects, or when a person using a statistical file has access to information which, if added to data in the statistical file, makes it possible to identify individual data subjects. See 1. P. Felice, "On the Question of Statistical Confidentiality," Jowml of the American Statistical Association, 67:337 (Much 1972), pp. 7-18. VII. THE SOCIAL SECURITY NUMBER AS A STANDARD UNIVERSAL IDENTIFIER Our charter commissioned us to analyze policy and practice relative to the issuance and use of the Social Security number, including prohibitions, restrictions, conditions, or other qualifications on the issuance and use of the number which now exist, or might be imposed to help implement whatever safeguards for automated personal data systems we might recommend. This particular aspect of our charge stems from growing public concern that the Social Security number will become a standard universal identifier used by all manner of organizations and data systems to establish the identity of individuals, to link records about them, and generally to keep track of them from cradle to grave. This concern also led to the establishment of the Social Security Number Task Force in February 1970, and was reflected in former HEW Secretary Elliot L. Richardson's testimony, in March 1971, before the U.S. Senate Subcommittee on Constitutional Rights, chaired by Senator Sam J. Ervin, Jr.1 Why do these concerns exist? Are they reasonable? What can be done about them? To answer these questions we must first understand something about identifiers in general and the nature and implications of a standard universal identifier in particular. There are many kinds of personal identifiers. A person's name is an identifier, the most ancient of all, but is not a reliable one, since often it is neither unique nor permanent. Even unusual names may be widely shared, and because of family patterns identical ones are often concentrated in particular localities. Some names change when people marry or divorce, and when children are adopted. Some people are known by different names in different social settings; e.g., itinerants, persons with aliases, and married women who use a maiden name professionally. To compensate for the unreliability of names as personal identifiers, additional schemes of identification have been devised. These commonly take the form of numeric or alpha-numeric labels that provide the uniqueness and permanence names customarily lack. The reliability thereby achieved is important to record-keeping systems in order to assure accuracy in merging and updating data to be stored about individuals. Usually such labels are established for a single system, but in some instances, a single one may be used in more than one system; for example, in all the record-keeping systems of an organization that maintains different sets of records on a given group of people. If one label is used by separate organizations, such as the Social Security number is for the taxpayer's identification number, a driver's license number, and a school student number, that label may be on its way to becoming a de facto universal identifier. CRITERIA FOR A STANDARD UNIVERSAL IDENTIFIER A standard universal identifier (SUI) is a systematically assigned label that, theoretically at least, distinguishes a person from all others. If the labels assigned by a universal identification scheme are to fulfill this function, each SUI must meet all the following criteria: UNIQUENESS. It must be unique for each person. No more than one person can be assigned the same SUI, and each person must have no more than one SUI. PERMANENCE. It must not change during the life of an individual and should not be re-used after his death until all records concerning him have been retired. UBIQUITY. Labels must be issued to the entire population for which unique identification is required. AVAILABILITY. It must be readily obtainable or verifiable by anyone who needs it, and quickly and conveniently regainable in case it is lost or forgotten. INDISPENSABILITY. It must be supported by incentives or penalties so that each person will remember his SUI and report it correctly; otherwise systems will become clogged with errors. ARBITRARINESS. It must not contain any information. If it does, e.g., State of issuance, it will be longer than necessary, thus violating the "brevity" criterion (see below). It may also violate the "permanence" criterion if changeable items, such as name or address, are incorporated. Most important, if items of personal information are part of an SUI, they will be automatically disseminated whenever the SUI is used; in our view, this would be undesirable. BREVITY. It must be as short as possible for efficiency in recognition, retrieval, and processing by man or machine. RELIABILITY. It must be constructed with a feature that detects errors of transcription or communication.2 If the communication of SUIs were done entirely by machine, errors could be minimized through technology, but short of this, there must be protection against the risk of human error in writing or reciting an SUI. For the foreseeable future, the need will continue for people to fill out forms and to report information themselves. IMPLICATIONS OF A STANDARD UNIVERSAL IDENTIFIER The advantages of a standard universal identifier, as seen by its proponents, are easier and more accurate updating, merging, and linking of records about individuals for administrative, statistical, and research purposes. According to them, duplication and error in record keeping would be reduced. Individuals, moreover, would be relieved of the need to use many different identifying numbers; an SUI might supplant credit card numbers, personal checking account numbers, driver license numbers, and many other identifiers. In spite of these practical advantages, the idea of an SUI is objectionable to many Americans. Even in some European countries where SUIs were introduced without opposition a generation or more ago, their use has recently raised fears and anxieties in the population. Many people both feel a sense of alienation from their social institutions and resent the dehumanizing effects of a highly mechanized civilization. Every characteristic of an SUI heightens such emotions. * The bureaucratic apparatus needed to assign and administer an SUI would represent another imposition of government control on an already heavily burdened citizenry. * To realize all the supposed benefits of an SUI, mandatory personal identity cards would have to be presented whenever called for. Loss or theft of an SUI card would cause serious inconvenience, and the mere threat of official confiscation would be a powerful weapon of intimidation. * The national population register that an SUI implies could serve as the skeleton for a national dossier system to maintain information on every citizen from cradle to grave. * An unchangeable SUI used everywhere would make it much easier for an individual to be traced, and his behavior monitored and controlled, through the records maintained about him by a wide range of different institutions. * A permanent SUI issued at birth could create an incentive for institutions to pool or link their records, thereby making it possible to bring a lifetime of information to bear on any decision about a given individual. American culture is rich in the belief that an individual can pull up stakes and make a fresh start, but a universally identified man might become a prisoner of his recorded past. This Committee believes that fear of a standard universal identifier is justified. Although we are not opposed to the concept of an SUI in the abstract, we believe that, in practice, the dangers inherent in establishing an SUIwithout legal and social safeguards against the abuse of automated personal data systems-far outweigh any of its practical benefits. Therefore, we take the position that a standard universal identifier should not be established in the United States now or in the foreseeable future.3 The question can surely be re-examined after there has been sufficient experience with the safeguards proposed in this report to evaluate their effectiveness. HE SOCIAL SECURITY NUMBER (SSN) AS AN SUI But is it not too late to oppose a standard universal identifier? Is not the SSN already a de facto SUI? To answer these questions, we must first measure the SSN against the criteria for an SUI given above. UNIQUENESS. The SSN is not a unique label. More than 4.2 million people, by the Social Security Administration's own estimates, have two or more SSNs. More serious, although much less prevalent, are the instances in which more than one person has been issued or uses the same SSN.4 PERMANENCE. The SSN is, in almost all cases, permanent for an individual throughout his life. UBIQUITY. The SSN is nearly universal for adult Americans, much less so for those of high-school age and below. AVAILABILITY. The SSN of an individual is readily verifiable by the Social Security Administration for some users, and not at all for others. It is regainable from the Social Security Administration by persons who have lost their cards and forgotten their numbers, but not immediately. An individual's SSN, however, is increasingly ascertainable from many sources other than the Social Security Administration. INDISPENSABILITY. The incentives and requirements to report one's SSN correctly are growing, though in some contexts there are incentives to omit or falsify the number. ARBITRARINESS. The SSN is not entirely arbitrary; the State of issuance is coded into the number. BREVITY. The SSN with its nine digits is three places longer than an alpha-numeric label capable of numbering 500 million people without duplication, and two places longer than one that can accommodate 17 billion people. The SSN could therefore be shorter if it were alpha-numeric. RELIABILITY. The SSN has no check-feature, and most randomly chosen nine-digit numbers cannot be distinguished from valid SSNs. It is thus particularly prone to undetectable errors of transcription and oral reporting. By our definition, the SSN cannot fully qualify as an SUI; it only approximates one. The SSN had its genesis, in accounting practice and was first known as the Social Security Account Number (SSAN). It was established to number accounts for the 26 million people with earnings from jobs covered by the Social Security Act of 1935. Income-maintenance benefits under the Act, though not payable until the retirement or death of a worker, were to be determined on the basis of his record of earnings. Each worker needed a uniquely identifiable account to which records of his earnings would be posted periodically. Since obviously many would have the same or similar names, it was decided to assign each a unique number to identify his account and assure an accurate record of earnings, which his employer would report both by name and account number. Name and number were used because standard accounting practice had accustomed people to numbered accounts, and because the technology of the day, notably the punched card machine with its 80-column card, required a short numeric identifier for efficiently adding the records of new transactions to existing master-file records. Nine digits were chosen to provide for future expansion. A check-feature was not provided because the technology of the day could not cope with it, and manual checking, though possible, was judged too timeconsuming to be feasible. The Social Security Administration has developed ingenious error-detection methods, and has improved them over the years to the point where it now neither needs nor desires a check- feature.5 Despite the deficiencies of the SSN for purposes other than those for which it was designed, its use is widespread and growing, even where its limitations are recognized. How did this come about? Why is the SSN now so widely used for purposes and in areas unrelated to the Social Security program? HISTORY OF THE SOCIAL SECURITY NUMBER AND ITS USES The original Social Security Act (P.L.. 74-271, August 14, 1935) imposed two taxes to finance the program of retirement and survivor benefits to be administered by the Social Security Board. One was a tax as a percentage of wages imposed on employees; the second was a matching tax on employers. To finance the Federal contribution to State programs of unemployment compensation required by the same Act, a tax as a percentage of wages was imposed on employers. Section 807 of that Act charged the Bureau of Internal Revenue in the Treasury Department with collecting all three taxes. Section 807(b) provided Such taxes shall be collected and paid in such manner . . . (either by making and filing returns, or by stamps, coupons, tickets, books, or other reasonable devices or methods necessary or helpful in securing a complete and proper collection and payment of the tax or in securing proper identification of the taxpayer), as may be prescribed by the Commissioner of Internal Revenue .... The first mention of the SSN in a law or regulation is in a Bureau of Internal Revenue regulation of November 5, 1936 under which an identifying number, called an "account number," was to be applied for by each employee, and assigned by the Postmaster General or the Social Security Board. Each employee was directed to report his number to his employer. Employers were directed to keep records showing the name and number of each employee and to enter employee account numbers on all required tax returns. The regulation provided that "Any employee may have his account number changed at any time by applying to the Social Security Board and showing good reasons for a change. With that exception, only one account number will be assigned to an employee. "6 It is ironic to discover-though logical and understandable in retrospect-that the first step in the process of extending the use of the Social Security number beyond the purposes of the Social Security program was taken by the Social Security Board itself on January 15, 1937. After the Social Security Act was passed, a question arose about an account numbering system to be used by State agencies established to administer the State unemployment insurance programs. The Board decided that the Social Security number should be used for all workers insured under these programs, rather than have each State agency develop its own identification system. As a result of this decision, many workers not covered by the Social Security program received SSNs for use in State unemployment insurance programs For some years after its inception in 1936, there was no substantial use of the SSN other than that required for the Social Security and unemployment compensation programs. Most Americans had not been issued a number, and few organizations felt the need of a numeric identifier for purposes of data processing. Although many people are under the impression that use of the SSN for other than Social Security program purposes is forbidden by law, this is not the case and never has been. The impression may in part have arisen from the fact that, for many years, the card bearing one's Social Security Account Number. has carried the legend, "NOT FOR IDENTIFICATION." The purpose of this legend is to notify anyone to whom a card might be presented that it cannot be relied upon, by itself, as evidence of the identity of the person presenting it. In 1943, the Civil Service Commission decided that there should be a numerical identification system for all Federal employees and proposed to the Bureau of the Budget that use of the SSN be authorized for this purpose. This led to the issuance of Executive Order 9397. That order, which is still in effect, provides in part as follows: > WHEREAS certain Federal agencies from time to time require in the > administration of their activities a system of numerical identification of > accounts of individual persons; and... > WHEREAS it is desirable in the interest of economy and orderly administration > that the Federal Government move towards the use of a single, unduplicated > numerical identification system of accounts and avoid the unnecessary > establishment of additional systems; > NOW, THEREFORE, . . . it is hereby ordered as follows: 1. Hereafter any Federal department, establishment, or agency shall, whenever the head thereof finds it advisable to establish a new system of permanent account numbers pertaining to individual persons, utilize exclusively the Social Security account numbers . . . . The order directs the Social Security Board, the predecessor agency of the Social Security Administration, to provide for the assignment of an account number to any person required by any Federal agency to have one, and to furnish the number, or the name and identifying data, pertaining to any person or account number upon request of any Federal agency using the SSAN for a numerical identification system of accounts under the order. The order also directs that > The Social Security Board and each Federal agency shall' maintain the > confidential character of information relating to individuals obtained > pursuant to the provisions of this Order. Finally, the order provides for the costs of services rendered thereunder by the Social Security Board to be reimbursed by the agency receiving such services. Most civil servants had never applied for SSNs because their employment was not covered by the Social Security Act. Since they were not being assigned numbers for Social Security program purposes, the costs had to be paid from funds appropriated for the Civil Service Commission. The Commission, however, was unable to obtain the necessary funds, and so it was not until November, 1961 that the assignment of numbers to Civil Service employees was initiated as an adjunct of the Internal Revenue Service's taxpayer identification program (see below). The issuance of Executive Order 9397 in 1943 theoretically may have provided the basis for a change in conception of the role of the SSN. However, there is no evidence that it had any practical significance until after the 1961 decision to use the SSN as an individual identifier for Federal tax purposes. It has been suggested that Executive Order 9397 was intended to apply only to instances when Federal agencies seek to number records of financial transactions, and not to numbering other kinds of records, such as employment, attendance, performance, or medical records. The fiscal interpretation follows from the wording of the order which speaks of the efficiency to be gained from "a single . . . system of accounts . . . ." To interpret the order as applying to all kinds of Federal agency record systems is arguably beyond the meaning of its language. In any case, it appears that Federal agencies are free to use the SSN in any way they wish, and no instance has come to our attention in which the order has been invoked to compel or limit an agency's use of the SSN. What many regard as the single most substantial impetus to use the SSN for purposes other than the Social Security program occurred in 1961, when the Internal Revenue Service, after discussions with the Social Security Administration, decided to use the SSN for taxpayer identification. This decision was implemented by an amendment to the Internal Revenue Code that authorized the Secretary of the Treasury to require each person making "a return, statement, or other document" under the Internal Revenue Code to "include such identifying number as may be prescribed for securing proper identification of such person." The Secretary was also authorized "to require such information as may be necessary to assign an identifying number to any person."7 The Secretary delegated his authority to the Commissioner of Internal Revenue, who has issued a number of regulations, the combined effect of which may be summarized as follows. * The taxpayer's identification number for use by individuals (except as employers in a trade or business) is the SSN. * The SSN for each individual taxpayer and each beneficiary of an estate or trust must be furnished on all tax returns and related statements and documents filed in connection with every tax imposed by the Internal Revenue Code. (A failure to include the number as required on a return gives rise to a civil penalty of $5, unless the failure to provide the number is due to "reasonable cause." Int. Rev. Code of 1954, Sec. 6676.) * An individual is obliged to obtain an SSN from the Social Security Administration and furnish it when requested, for purposes of complying with Internal Revenue Service regulations, by any of the following: employers; estates and trusts; corporations and other entities paying dividends; banks, mutual savings and savings and loan institutions; insurance companies; stockbrokers and securities dealers; other entities paying interest; and nominees receiving dividends or interest. Many other actions of the Federal government have expanded the areas of use of the SSN beyond its original purposes. * The Treasury Department further expanded use of the SSN in 1963 by requiting its use in registration of all United States transferable and non-transferable securities other than U.S. savings bonds. The following year the requirement for such use of the SSN was applied to Series H savings bonds. The Treasury Department has announced that as of October 1, 1973, the inscriptions on Series E bonds must also include the SSN. (Meanwhile the Treasury has modified its earlier rule that the names of women on savings bond inscriptions be preceded by "Miss," "Mrs.,"or other title, by permitting omission of the title if the woman's SSN is included.) * In a decision dated Aprll 16, 1964, the Commissioner of Social Security approved the issuance of SSNs to pupils in the ninth grade and above, if a school requests such issuance and indicates willingness to cooperate in the effort. The Social Security Administration Claims Manual explains that this decision was made (1) to accommodate requests from school systems "desiring to use the SSN for both automatic data processing and control purposes, so that the progress of pupils could be traced throughout their school lives across district, county, and State lines", and (2) because issuance of SSNs to school children in groups is more orderly, efficient, less costly to the Social Security Administration, and gives better assurance of identification of the chlldren than if students eventually apply for numbers one at a time. * In June 1965 the Commissioner of Social Security authorized the issuance of an SSN to every recipient of State old-age assistance benefits who did not already have one, in order to establish a more efficient process for exchange of information between these agencies and the Social Security Administration. When the Social Security Act was amended in 1965, to provide hospital and medical insurance (Medicare) administered by the Social Security Administration, it became necessary for most individuals aged 65 and over who did not already have an SSN to obtain one. * In June 1965 the Civil Service Commission began to add SSNs to the retirement records of their annuitants. This represented an extension of the SSN issuance system started in 1961 for civil service employees. * Effective January 1, 1966, after consultation with the Social Security Administration, the Veterans Administration began using the SSN as a hospital admission number, and for other record-keeping purposes. * On April 7, 1966, the Commissioner of Social Security approved the test usage of the SSN by the Division of Indian Health of the Public Health Service to facilitate development and maintenance of comprehensive health histories of Indians from birth to death. * By memorandum dated January 30, 1967, the Secretary of Defense advised the Social Security Administration of his decision to use the SSN as the service number of all military personnel. * . Pursuant to the Currency and Foreign Transactions Reporting Act (the so-called Bank Secrecy Act), P.L. 91508, October 26, 1970; 31 U.S.C. 1051-1122, the Treasury Department issued regulations in 1972 requiring banks, savings and loan associations, credit unions, and brokers and dealers in securities to obtain the SSNs of all their customers. The Act requires these financial organizations to maintain records of certain large transactions to facilitate criminal, tax, and regulatory investigations with respect to currency and foreign transactions. The SSNs of individuals required for account records under the regulations will already have been obtained in almost all cases by these financial organizations under regulations of the Internal Revenue Service governing tax reporting. A notable impact has been the requirement to furnish one's SSN to open a checking account. * . Use of the SSN is being promoted by the National Driver Register of the U.S. Department of Transportation. Although the Department of Transportation lacks authority to require it, use of the SSN is encouraged by the Register to facilitate matching the records of reports and inquiries it receives. This has led most State motor vehicle departments to collect SSNs from all drivers, and some to shift to the SSN for their driver license identification number. * . The Social and Rehabilitation Service of the Department of Health, Education, and Welfare has for some time been promoting the use of the SSN by States for the identification of individual applicants and beneficiaries under all welfare and social services programs. * The Congress, in Section 137 of the Social Security Amendments of 1972,8 has required the Secretary of HEW to take affirmative measures to issue SSNs to the maximum extent practicable to aliens entitled to work in the United States and "to any individual who is an applicant for or recipient of benefits under any program financed in whole or in part from Federal funds including any child on whose behalf such benefits are claimed by another person." The quoted language of this requirement appears to call for the issuance of an SSN to virtually everyone in America who does not already have one, but the legislative history clearly indicates that such universal enumeration was not intended. The Senate Finance Committee had proposed a requirement of affirmative measures for the assignment of SSNs to all children at the time they first enter school, as well as to aliens and all applicants for and recipients of benefits under Federally supported programs. However, the bill was amended in conference. Instead of requiring the Secretary to take affirmative measures to enumerate children at their entrance into school, the Act makes such measures optional, but the Act retains the requirement that numbers be assigned to aliens, and to applicants and recipients of benefits. Although the legislation does not specify any uses to be made of SSNs issued pursuant to its mandate, the legislative history indicates that Congress intended them to be available for use in preventing aliens from working illegally and public assistance beneficiaries from receiving duplicate or excessive payments. Review of the Federal actions described above (which do not by any means constitute an exhaustive list makes it clear that the Federal government itself has been in the forefront of expanding the use of the SSN. All these actions have actively promoted the tendency to depend more and more on the SSN as an identifier-of workers, taxpayers, automobile drivers, students, welfare beneficiaries, civil servants, servicemen, veterans, pensioners, and so on. If use of the SSN as an identifier continues to expand, the incentives to link records and to broaden access to them are likely to increase. Until safeguards such as we have recommended in Chapters IV, V and VI have been implemented, and demonstrated to be effective, there can be no assurance that the consequences for individuals of such linking and accessibility will be benign. At best, individuals may be frustrated and annoyed by unwarranted exchanges of information about them. At worst, they may be threatened with denial of status and benefits without due process, since at the present time record linking and access are, in the main, accomplished without any provision for the data subject to protest, interfere, correct, comment, and, in most instances, even to know what linking of which records is taking place for what purposes. Although few people have flatly proposed that an SUI be mandated for all Americans, there is a strong tendency for authorities in government and industry to make decisions that, taken collectively, are likely to lead to the establishment of an SUI. There is an increasing tendency for the Social Security number to be used as if it were an SUI. Even organizations selecting a single-system personal identifier are likely to choose the SSN "because it is available," or for efficiency and convenience. There are pressures on the Social Security Administration to do things that make the SSN more nearly an SUI, such as issue more SSNs than the Social Security program requires, for purposes wholly unrelated. We believe that any action that would tend to make the SSN more nearly an SUI should be taken only if, after careful deliberation, it appears justifiable and any attendant risks can be avoided. We recommend against the adoption of any nationwide, standard, personal identification format, with or without the SSN, that would enhance the likelihood of arbitrary or uncontrolled linkage of records about people, particularly between government or government-supported automated personal data systems.9 What is needed is a halt to the drift toward an SUI and prompt action to establish safeguards providing legal sanctions against abuses of automated personal data systems. The recommendations in the following chapter are directed toward that end. 1Federal Data Banks, Computers and the Bill of Rights, Hearings before the Subcommittee on Constitutional Rights of the Committee on the Judiciary, United States Senate, 92nd Congress, 1st Session, February and March 1971, Part 1, pp. 775-881. 108 2 A possible error detecting feature is a number (called a check-digit) that can be derived in some way from the identification number and appended to it. For example, a check-digit may be derived by multiplying the fast digit of the identification number by 1, the second by 2, the third by 3 (and so on), summing the products of the multiplications, and extracting the digital root of their sum. The identification number 1463, handled this way, produces a check-digit of 3 (1 X 1 = 1, 2 X 4 = E, 3 X 6 = 18 4 X 3 = 12; 1 + E + 1 E + 12 = 39; 3 + 9 = 12; 1 + 2 = 3) which is written at the end of the number to produce 14633. A computer and a human being can each readily verify the accuracy of the number. Transpositions are detectable. "14363," for instance, would be caught as illegitimate, because the correct check-digit for the number 1436 is not 3, but 6 (1 X 1=1, 2X 4=E, 3X 3=9, 4X 6=24; 1+E+9+24=42;4+2=6). Most singledigit errors are also detectable, though ermrs of more than one digit may coincidentally generate valid check-digits and hence not be detectable. 3 The National Academy of Sciences Computer Databanks Project reached a similar conclusion on the basis of its independent, empirical assessment of the issues involved. See Alan F. Westin and Michael A. Baker, Databanks in a Free Society (New York: Quadrangle Books), 1972. pp. 396-400. 4"Account number 078-05-1120 was the first of many numbers now referred to as `pocketbook' numbers. It first appeared on a sample account number card contained in wallets sold . . . nationwide in 1938. Many people who purchased the wallets assumed the number to be their own personal account number. It was reported thousands of times on employers' quarterly reports; 1943 was the high year, with 5,755 wage earners listed as owning the famous number. More recently, the IRS requirement that the Social Security AN [Account Number] be shown on all tax returns resulted in 39 taxpayers showing 078-05-1120 as their number. The number continues to be reported at least 10 times each quarter. There are now over 20 different 'pocketbook' numbers . . . ." Account Number and Employer Contact Manual (Baltimore, Md.: Social Security Administration), Sec. 121. 5Ibid., Sec. 554 ff. 6 T.D. 4704, 1 Fed. Reg. 1741 (Nov. 7, 1936); 26 C.F.R. Part 401 (1st ed., 1939). 7P.L. 87-397 (Oct. 5, 1961); Internal Revenue Code of 1954, Sec. 6109. 8 P.L. 92-603, October 30, 1972; 42 U.S.C. 405. 9One notable attempt to establish a standard for the identification of individual Americans for purposes of information exchange was that offered by a committee of the American National Standards Institute (ANSI) in 1969. The standard, as proposed, consisted in part of an individual's SSN; opposition to that feature in particular led in 1972 to official withdrawal of the standard from further consideration pending resolution of the issues that are covered by this report. VIII. RECOMMENDATIONS REGARDING USE OF THE SOCIAL SECURITY NUMBER Until safeguards against abuse of automated personal data systems have become effective, constraints should be imposed on the use of the SSN. After that, the question of SSN use might properly be reopened. We recommend that Federal policy with respect to use of the SSN be governed by the following general principles. First, uses of the SSN should be limited to those necessary for carrying out requirements imposed by the Federal government. Second, Federal agencies and departments should not require or promote use of the SSN except to the extent that they have a specific legislative mandate from the Congress to do so. Third, the Congress should be sparing in mandating use of the SSN, and should do so only after full and careful consideration preceded by well advertised hearings that elicit substantial public participation. Such consideration should weigh carefully the pros and cons of any proposed use, and should pay particular attention to whether effective safeguards have been applied to the automated personal data systems that would be affected by the proposed use of the SSN. Fourth, when the SSN is used in instances that do not conform to the three foregoing principles, no individual should be coerced into providing his SSN, nor should his SSN be used without his consent. Fifth, an individual should be fully and fairly informed of his rights and responsibilities relative to uses of the SSN, including the right to disclose his SSN whenever he deems it in his interest to do so. In light of these principles, we make specific recommendations with respect to the individual's right to refuse to disclose his SSN, issuance of SSNs, constraints on use or dissemination of SSNs, and prohibition of non-data-processing uses of the SSN. Ideally, Congress should review all present Federal requirements for use of the SSN to determine whether the existing requirements should be continued, repealed, or modified. In this chapter, we recommend several modifications that would apply to all SSN requirements now in force. RIGHT OF AN INDIVIDUAL TO REFUSE TO DISCLOSE THE SOCIAL SECURITY NUMBER As indicated in Chapter VII, increasing demands are being placed on individuals to furnish an SSN in circumstances when use of the SSN is not required by the Federal government for Federal program purposes. For example, the SSN is demanded of individuals by State motor vehicle departments, by public utility companies, landlords, credit grantors, schools, colleges, and innumerable other organizations. Existing Federal law and Social Security regulations are silent on such uses of the SSN. They provide no clear basis for keeping State and local government agencies and private organizations from demanding and using the number. As a practical matter, disclosure of one's SSN has been made a condition for obtaining many benefits and services, and legal challenges to this condition under State law have been almost uniformly unsuccessful. If the SSN is to be stopped from becoming a de facto SUI, the individual must have the option not to disclose his number unless required to do so by the Federal government for legitimate Federal program purposes, and there must be legal authority for his refusal. Since existing law offers no such clear authority, we recommend specific, preemptive, Federal legislation providing: (1) That an individual has the right to refuse to disclose his SSN to any person or organization that does not have specific authority provided by Federal statute to request it; (2) That an individual has the right to redress if his lawful refusal to disclose his SSN results in the denial of a benefit, or the threat of denial of a benefit; and that, should an individual under threat of loss of benefits supply his SSN under protest to an unauthorized requestor, he shall not be considered to have forfeited his right to redress. (3) That any oral or written request made to an individual for his SSN must be accompanied by a clear statement indicating whether or not compliance with the request is required by Federal statute, and, if so, citing the specific legal requirement. ISSUANCE OF SOCIAL SECURITY NUMBERS The report of the Social Security Number Task Force1 identified the need to improve the integrity of the SSN for some uses now required by Federal law. Steps have been initiated during the last two years to decrease the likelihood that any individual will be assigned more. than one SSN without the knowledge of the Social Security Administration. They include: improved procedures for verifying the identity of each applicant for an SSN; issuance of SSNs only from the central office of the Social Security Administration rather than from its 1,000 field offices; implementation of a process- that will provide comprehensive, automated screening of applications for SSNs; and the establishment by Section 208 of the Social Security Act2 of a penalty for fraudulently furnishing false information regarding one's identity in order to obtain an SSN. There is good reason to expect that the combined effect of all these actions will be to improve significantly the integrity of the SSN. Enumeration of School Children. The Social Security Number Task Force recommended that the Social Security Administration "should embark on a positive program of enumerating [issuing SSNs to] school children at the ninth-grade level, with concurrent establishment of proof of age and identity." We have given long and careful thought to this recommendation. Our first inclination was flatly to oppose it as an action that would promote the use of the SSN as a de facto SUI. After further deliberation, and exploration of relevant issues with the Commissioner of Social Security, we decided to endorse the Task Force recommendation with two important qualifications. Specifically, we recommend (4) That the Social Security Administration undertake a positive program of issuing SSNs to ninth-grade students in schools, provided (a) that no school system be induced to cooperate in such a program contrary to its preference; and (b) that any person shall have the right to refuse to be issued an SSN in connection with such a program, and such right of refusal shall be available both to the student and to his parents or guardians. Children in the ninth grade have reached the age when they are likely to seek part-time or summer employment and need an SSN for Social Security program and Federal income tax purposes. Indeed, many young people obtain SSNs for such purposes before they reach ninth grade. Under Section 137 of the Social Security Amendments of 1972, many children who receive certain Federal cash benefits will also be assigned SSNs before they reach ninth grade. Since a program of ninth-grade enumeration is likely to be consistent with the needs and convenience of most young people, it is not likely to seem coercive. Moreover, our recommendation is designed to prevent any coercion. Both the Task Force Report and the Commissioner of Social Security have indicated that a program of ninth-grade enumeration would offer the Social Security Administration an opportunity to inform students about the Social Security program and their rights and responsibilities in relation to it. We urge that any such student briefings include information about their rights and responsibilities with respect to uses of the SSN. We also note the observations made in the Task Force Report, and reiterated by the Commissioner of Social Security, that ninth-grade enumeration is advantageous to the Social Security Administration on a cost-benefit basis. Finally, our inquiries and discussions with Social Security Administration representatives convinced us that a positive program of ninth-grade enumeration would contribute significantly to enhancing the integrity of the SSN. The contribution to this end might appear somewhat greater if the program enumerated children at the time of their first enrollment in school, as authorized by the Congress .in Section 137 of the Social Security Amendments of 1972. However, we strongly recommend (5) That there be no positive program of issuing SSNs to children below the ninth-grade level, either at the initiative of the Social Security Administration or in response to requests from schools or other institutions. A positive program of issuing SSNs to all children at school entry has little to recommend it. It would almost surely seem coercive, since the proportion of children in kindergarten or first grade who need an SSN is small. These children are too young for a significant educational contact with the Social Security program. Most important, such a mass enumeration program would be a very significant further step toward making the SSN a de facto standard universal identifier-a step there are no compelling reasons to take. Enumeration of Beneficiaries of Federally Funded Programs. As we noted in Chapter VII (pp. 120-121), Section 137 of the Social Security Amendments of 1972 requires the Secretary of HEW to take affirmative measures to issue the SSN as widely as practicable. to any individual who is an applicant for or recipient of benefits under any program financed in whole or in part from Federal funds including any child on whose behalf such benefits are claimed by another person. This provision, read literally, could well provide the authority for establishing a standard universal identifier. Yet as we understand it, this provision was included in the legislation in the narrow context of improving the administration of public assistance programs. It is a technical provision in a large and complicated piece of legislation (the printed Public Law runs to 165 pages) in which other very controversial issues occupied the attention of the Congress and the public. This particular provision was not the subject of public hearings. The conditions under which Section 137 became law did not allow for adequate consideration of an action that has the potential of driving America toward an SUI. We therefore believe that the Secretary has an obligation to use the authority granted in Section 137 only in the most limited way consistent with the mandate-as a tool for improving the administration of public assistance programs. The potential consequences are too dangerous to allow an SUI to be established without wide and careful public consideration and full assessment of the potential consequences. Specifically, we recommend (6) That the Secretary limit affirmative measures taken to issue SSNs pursuant to Section 205 (c)(2) (13)(i)(II) of the Social Security Act, as amended by Section 137 of Public Law 92-603, to applicants for or recipients of public assistance benefits supported from Federal funds under the Social Security Act. We further recommend (7) That the Secretary do his utmost to assure that any future legislation dealing with the SSN be preceded by full and careful consideration and well advertised hearings that elicit substantial public participation. We would stress once again that the SSN in its present form is not a satisfactory standard universal identifier. Even with the steps that have been taken to improve the integrity of the SSN, the SSN cannot provide a guarantee of identity unless it is coupled with some stable feature of physical identification, such as fingerprints. In its present form, therefore, adoption of the SSN as an SUI would not lead to all the advantages of improved program administration that proponents of its widened use anticipate, e.g., to "identify" welfare beneficiaries. If the Committee had to choose today between a true SUI, complete with fingerprinted identification cards on the one hand, and something less than ultimate efficiency in the administration of public assistance programs on the other, we would rather risk the latter; we think the American public would too. The steps being taken to strengthen the integrity of the SSN can lead to significant improvement in the administration of public assistance, while our recommendations will check the drift of the SSN toward becoming a de facto SUI. Until effective safeguards against the abuse of computer-based personal data systems have been established, and until there has been full public debate of the desirability of an SUI, this is the point at which the situation must be held in check. CONSTRAINTS ON USE AND DISSEMINATION OF SOCIAL SECURITY NUMBERS Recommendations (8)-(10) below are designed to limit uses of the SSN to those necessary to carry out Federal government purposes for which there is a legal requirement that the SSN be obtained and recorded, and to discourage all practices that substantially increase the circulation of individual SSNs together with the names of their holders. Recommendation (8) is intended to constrain the behavior of organizations and persons that are legally required to obtain and record the SSN for Federal purposes, but which use the SSN in other ways that constitute virtual public dissemination of SSNs along with names of the individuals to whom they belong. Among the many uses of the SSN that this recommendation is designed to abate are its use as an employee identification number, a patient identification number, a student identification number, a customer identification number, a driver identification number, and as the primary organizing element in the record-keeping system of any non-Federal organization. Although such uses may be convenient, they are not necessary. Under present circumstances, moreover, they increase the circulation of SSNs, thereby inviting unconstrained linking of record-keeping systems. Accordingly, we recommend (8) That any organization or person required by Federal law to obtain or record the SSN of any individual be prohibited from making any use or disclosure of the SSN without the informed consent of the individual, except as may be necessary to the Federal government purposes for which it was required to be obtained and recorded. This prohibition should be established by a specifc and preemptive act of Congress. This recommendation stems in part from observing that the Social Security Administration treats the SSN with the same confidentiality as the data in its records of Social Security accounts. Access to Social Security data is governed by Section 1106 of the Social Security Act and Regulation No. 1 of the Social Security Administration. The result is that the Social Security Administration will disclose an individual's SSN only to those third persons and organizations permitted by law to obtain SSA record data. The Social Security Administration and the Internal Revenue Service each require organizations to obtain and use the SSNs of individuals for various Federal program purposes. In principle these agencies should require such organizations to treat the SSN with the same confidentiality as the Social Security Administration does. Regrettably, however, there appears to be no legal authority to support the imposition of such a requirement. Recommendation (8) would establish such authority. Recommendation (8), coupled with recommendations (1) and (3) (pp. 125-126, above), would also diminish the risk of nuisance, frustration, and possible serious disadvantage resulting from the use of an individual's SSN to impersonate him. One use of the SSN that appears to be proliferating is as a password, or authenticator of identity, when an individual's name alone is thought insufficient; e.g., in credit-card purchasing and check-cashing. Such use is not necessary, just convenient, and can be risky, since the widespread circulation of SSNs makes them increasingly ascertainable by anyone wishing to impersonate another. An example from our own experience will illustrate the problem. We met on a Saturday in a conference room in a government facility. Security procedures required us to give names and SSNs from a telephone located outside the locked main entrance to a guard who was out of sight inside the building. The guard had earlier been furnished with a list of our names and SSNs. Given the wide dissemination of SSNs, we were impressed by how easily someone could have impersonated any one of us to gain admittance to the building. One may treat this example lightly, but the principle is important. As long as the SSN of an individual can be easily obtained (some organizations list the SSNs of their employees or members in published rosters), both individuals and the organizations that use it as a password are vulnerable to whatever harm may result from impersonation. Recommendations (9) and (10) are intended to constrain the provision of "SSN services" by the Social Security Administration. The phrase, "SSN services," is defined in the Social Security Number Task Force Report as including enumeration, or issuing numbers to individuals who do not have them; validation, or confirming that the number an organization has on file for an individual is the same as the number that appears for him in SSA records; correction, or supplying the proper number from SSA files when an individual has alleged an incorrect number; and identification, or supplying a number from SSA's files to match a particular name, a name to match a number, or vice-versa [sic].3 The Task Force report recommends that SSN services be provided by the Social Security Administration (i) "to public and private organizations using the SSN for health, welfare, or educational purposes" and (ii) to facilitate research activities. Although we recognize the spirit of cooperation that prompted the Task Force position, we believe that the effect of the recommendations would unnecessarily spread use of the SSN. Our recommendations limit SSN services even more narrowly than the Task Force recommendations. We recommend (9) That the Social Security Administration provide "SSN services" to aid record keeping only to organizations or persons that are required by Federal law to obtain or record the SSN, and then only as necessary to fulfill the purposes for which the SSN is required to be obtained or recorded; and (10) That the Social Security Administration provide "SSN services" to aid research activities only when it can assure that the provision of such services will not result in the use of the SSN for record-keeping and reporting activities beyond those permitted under recommendation (9), and then only provided that rigid safeguards to protect the confidentiality of personal data, including the SSN, are incorporated into the research design. These recommendations distinguish between use of the SSN for record-keeping purposes and its use for research activities. SSN services must not be provided to aid an organization's record keeping, except to the extent necessary to enable the organization to fulfill requirements associated with its Federally imposed obligations to collect and record the number. Our recommendation (8) would prohibit organizations from using the SSN beyond this limit, and the Social Security Administration would be obliged to refrain from providing SSN services in cooperation with a violation of the prohibition. As an interim measure, the Social Security Administration should limit SSN services as though recommendation (8) were in force. The limitation must apply to all cases, including requests from organizations that provide health, education, and welfare services. The effect of our recommendations may be illustrated by a case discussed in the Social Security Number Task Force Report.4 A State mental health service requested SSN services from the Social Security Administration to enable it to use the SSN as the patient identification number in a new computerized record-keeping system. It evidently wanted to use the number for general administrative record keeping; such a use is not legally required for any Federal program purpose. The mental health service is obligated to, use the SSN to report the earnings and income taxes of its own employees; it might also need to obtain and use the SSNs of some of its patients to comply with record-keeping requirements of Federal benefit programs mandated by the Social Security Act, e.g., Medicare. However, its Federally required SSN uses do not extend to using the SSN for all patient record keeping, and the mental health service can clearly create its own identification code to track patients. If the SSN Task Force recommendations were to be followed in this case, the Social Security Administration would provide SSN services to the mental health service for all its patient record keeping (to simplify the service's reporting of unduplicated patient counts to HEW'S National Institute of Mental Health). Under our recommendation, by contrast, the Social Security Administration would not provide SSN services, and the SSN would, therefore, not be spread by various uses of mental health service records and thus become available for still other uses. Recommendation (10) recognizes the interest in providing SSN services in support of various kinds of evaluation and research activities. There is no reason why this cannot be done without adding to the unnecessary spread of the SSN for record-keeping and data processing activities or to SSN dissemination of the sort we wish to curtail. In the case discussed above, suppose that the State mental health service proposes to conduct studies of the effectiveness of its services, and that knowing the SSNs of its patients, and having SSN services, might help in some way. Lacking any Federal requirement to use the SSN for evaluation research, the mental health service could not compel disclosure of patients' SSNs for that purpose. However, for all patients' SSNs voluntarily disclosed with informed consent, our recommendation (10) would permit the Social Security Administration to provide SSN services. PROHIBITION OF NON-DATA-PROCESSING USES OF THE SOCIAL SECURITY NUMBER The SSN is sometimes used for a purpose having nothing to do with identification, record keeping, or data processing. While these uses do not directly contribute to unfair information practices, they have other undesirable effects. Consider these examples. > "Lucky number" contests in which an SSN is drawn, and its holder is awarded > some prize. This is objectionable because it may induce people to try to > obtain extra SSNs to increase their chances of winning, and because it > trivializes the SSN. > Various items of merchandise, such as wallets, sold with a number-bearing > facsimile Social Security card enclosed. This is how one such sample number > noted in Chapter VII5 came to be used by more than five thousand people. There > are undoubtedly other difficulties that have not yet come to light. We > understand that such practices are abating as a result of years of intensive > (and expensive) fieldwork by the Social Security Administration which, > however, has no legal authority to prevent them. > "Skip-tracing" efforts in which, to quote a Social Security Administration > manual, [d] ebt or tracing organizations occasionally use special correspondence techniques to obtain information from an individual owing money. Some mail out postcards showing a false [SSN] and asking "Is this your Social Security number? If not, call the number listed below to correct this matter." This is blatantly deceptive and violates reputable business practice. It may also lead people to think that the Social Security Administration is somehow cooperating with skip-tracers. Such spurious uses of Social Security cards and SSNs tend to interfere with appropriate uses of the SSN and to confuse the public about its proper purposes. They also complicate the work of the Social Security Administration. Accordingly, we recommend (11) That specific and preemptive Federal legislation be enacted prohibiting use of an SSN, or any number represented as an SSN, for promotional or commercial purposes. 1Social Security Number Task force: Report to the commissioner (Baltimore, Md.: U.S. Social Security Administration), 1971. 2As provided by Section 130 of the Social Security Amendments of 1972, P.L. 92-603, October 30, 1972; 42 U.S.C. 408. 3Op. cit. pp. 26-27 4Ibid., pp. 24-25. 5 Note 4, p. 112, above. IX. ACTION AGENDA FOR THE SECRETARY OF HEALTH, EDUCATION, AND WELFARE The charter directs us to specify the steps that must be taken to put our recommendations into effect. We have done so in this chapter. For each action outlined below, the chapter and pages of the report where the corresponding recommendation is discussed are indicated. LEGISLATION We have made a number of recommendations that require the submission of legislative proposals to the Congress as follows. * To establish a code of fair information practice for all automated personal data systems maintained by agencies of the Federal government or by organizations within reach of the authority of the Federal government. The code should embody safeguard requirements for both administrative systems and systems used exclusively for statistical reporting and research, and should provide injunctive relief as well as civil and penal sanctions for violation of the code [Ch. IV, pp. 50, 53-64; Ch. V, pp. 86-87; Ch. VI, pp. 97-102] . * To establish protection against compulsory disclosure through legal process for identifiable personal data used exclusively for statistical reporting and research [Ch. VI, pp. 102-106]: * To amend the Freedom of Information Act to require that an agency obtain the consent of an individual before disclosing data about him in identifiable form [Ch. IV, pp. 64-66] . * To protect individuals against unauthorized use of the Social Security number by providing that: (i) an individual shall have the right not to disclose his Social Security number unless specifically required to do so by Federal statute [Ch. VIII, pp. 125-126] ; (ii) any oral or written request made to an individual for his Social Security number shall be accompanied by a clear statement of the legal basis for the request [Ch. VIII, pp. 125-126 ] ;. (iii) an individual shall have a right to redress if his lawful refusal to disclose his Social Security number results in the denial of a benefit, or the threat of such denial [Ch. VIII, pp. 125-126] ; (iv) any organization or person required by Federal law to obtain and record the Social Security number of an individual shall be prohibited from using or disclosing it without the individual's informed consent, except as may be necessary to the Federal purposes for which the number was obtained and recorded [Ch. VIII, pp. 130-132] . * To prohibit any person or organization from using any Social Security number, or any number represented as a Social Security number, for promotional or commercial purposes [Ch. VIII, pp. 134-135]. * To amend Section 609 (a) of the Fair Credit Reporting Act (i) to give an individual the right to inspect personally the records that any consumer-reporting agency maintains about him, and to copy their contents or have copies made [Ch. IV, pp. 66-70]; (ii) to delete the exceptions from disclosure to an individual now permitted for medical information and sources of information used in investigative consumer reports [Ch. IV, pp. 70-71 ] . Action by the Secretary to initiate these legislative proposals should be taken in concert with the Attorney General, the Secretary of the Treasury, and the Chairman of the Federal Trade Commission, as appropriate. ADMINISTRATIVE ACTION Many of our recommendations can be implemented by the issuance of regulations or administrative guidelines. Regulations should be issued: * To make applicable all the safeguard requirements for automated personal data systems to all systems within the Department [Ch. IV, pp. 50-64; Ch.V, pp.85-87; Ch. VI, pp. 95-102] . * To make applicable all the safeguard requirements for automated personal data systems to all systems that can be reached through grant, contract, or other relations with the Department [Ch. IV, p. 50; Ch. V, p. 86; Ch. VI, p. 96] . * To amend the Department's regulation under the Freedom of Information Act to provide that the consent of an individual shall be obtained before disclosing any data about him in identifiable form [Ch. IV, pp. 65-66]. Administrative guidelines should be issued: * Establishing procedures for rigorous and thorough evaluation of (i) any proposal to create or expand any automated personal data system within the Department (Ch. IV, pp. 5152 ] ; (ii) any proposal to use administrative personal data for statistical reporting or research [Ch. V, pp. 82-86] ; and (iii) any proposal that would tend to require the creation or expansion of an automated personal data system outside the Department in response to requirements or needs of programs and activities of the Department [Ch. IV, p. 521. * Requiring that a regulation, with notice of proposed rule making, be issued by the Department before taking any action that would tend to require a State, locality, or other grantee to create or expand an automated personal data system [Ch. IV, p. 52]. * Providing for the publication annually of a compilation of the public notices of all automated personal data systems maintained within the Department [Ch. IV, pp. 57-58; Ch. VI, pp. 99-101 ] . * Directing the Social Security Administration: (i) to undertake a positive program to issue Social Security numbers to ninth-grade students in schools, provided (a) that no school system be induced to cooperate in such a program contrary to its preference; and (b) that any person shall have the right to refuse to be issued a Social Security number in connection with such a program [Ch. VIII, 127-1281; (ii) to undertake no positive program of issuing Social Security numbers to children below the ninth-grade level [Ch. VIII, p. 1281; (iii) to limit affirmative measures taken to issue Social Security numbers pursuant to subparagraph (B) (i) (II) of Section 205 (c) (2) of the Social Security Act, as amended by Section 137 of Public Law 92-603, to applicants for or recipients of public assistance benefits supported from Federal funds under the Social Security Act [Ch. VIII, pp. 128-130] ; (iv) to provide SSN services only to organizations or persons required by Federal law to obtain or record the Social Security number, and then only as necessary to fulfill the (v) to monitor all future legislative proposals dealing with the Social Security number and to recommend actions to be taken by the Secretary to assure that such proposals will be enacted only after full and careful consideration in well advertised hearings that elicit substantial public participation [Ch. VIII, pp. 129-130]. ADDITIONAL ACTION In addition to the steps necessary to put our recommendations into effect, there are some further steps the Department can take to assure that the goals of the recommendations are fully achieved. These include: * Communicating opposition to any proposal for the adoption of any nationwide, standard, personal identification format, with or without the SSN, that would enhance the likelihood of arbitrary or uncontrolled linkage of records about people, particularly between government or government-supported automated personal data systems; * Making comments on proposed Federal legislation having implications for personal privacy in record keeping which will seek to assure incorporation in such legislation of safeguard requirements of the kind recommended in this report for all automated personal data systems; * Encouraging attention in all forms of educational activity to the individual citizen's stake in his personal privacy, to the practical exercise of his rights with respect to the records maintained about him, and to the social impact of computerbased record-keeping systems; * Supporting research on the use and impact of computerbased record-keeping systems in such areas as education, health services delivery, public assistance, juvenile delinquency prevention, and community mental health; * .Encouraging the development of standards of ethical behavior and professional competence for data-processing personnel; * Enhancing the capacity of the Federal government to design and develop computer-based record-keeping systems without reliance on outside specialists; * Monitoring the application of the safeguard requirements to determine whether they are having their intended effect and, most important, whether they are themselves a source of any adverse social consequences; * Cooperating with the States in developing uniform State legislation to establish the recommended code of fair information practice for all automated personal data systems that would not be reached by Federal legislation. Among the organizations through which such cooperation might be undertaken are the National Conference of Commissioners on Uniform State Laws, the Advisory Commission on Intergovernmental Relations, the Council of State Governments, the National Governors Conference, the National Legislative Conference, and the National Conference of State Legislative Leaders. * Urging the Office of Management and Budget to direct all Federal agencies to require their grantees and contractors to operate automated personal data systems with all the safeguards we recommend for systems supported by the Department. In the interest of convenience and simplicity for grantees and contractors, the Office of Management and Budget might prescribe government-wide grant and contract conditions incorporating the safeguard requirements we recommend, just as it now prescribes conditions in such areas as intergovernmental planning and financial management. While such action may not be feasible until there has been some experience in applying the safeguard requirements, we would expect to see the Department take a lead role in promoting uniform, government-wide safeguard requirements for automated personal data systems of Federal grantees and contractors. ORGANIZATIONAL RESPONSIBILITY Responsibility for taking the actions necessary to implement our recommendations will have to be assigned to many officials of the Department who are already burdened with other duties. They will need guidance and assistance. The Secretary will need to designate someone who can devote substantial time and effort to assuring that these actions are taken in a timely and effective fashion. Therefore, an official in the Office of the Secretary should be given responsibility to serve as a combination advisor, monitor, and catalyst to assure that the concerns addressed in this report receive continuing attention, and specifically, to assure that automated personal data systems within the Department, and within grantee and contractor agencies, are operated in accordance with the safeguards we recommend. This official should have adequate authority, staff, and support to conduct these activities effectively. This official should be directed to embark on a positive program of heightening concern within the Department for the issues raised in this report. This program should reach to all who now do, or are apt in the future, to use, direct, or contribute to the use or development of automated personal data systems, at all Civil Service grade levels and in all operating agencies. IMMEDIATE ACTION We expect that the Secretary may wish to have the report reviewed by many key officials of the Department, including the heads of each of the Department's operating agencies. Following such a review, a detailed plan to carry out the foregoing action agenda will have to be formulated. Once such a plan has been adopted, responsibility will have to be assigned to someone to oversee its execution. To start this process we recommend that the Secretary: * Assign responsibility for distributing the report for review to the Executive Secretary of the Department; and * Assign responsibility for preparing a detailed plan to carry out the action agenda to an official in the Office of the Secretary. APPENDICES "COMPUTERS AND PRIVACY": THE REACTION IN OTHER COUNTRIES Common Concerns Most of the advanced industrial nations of Western Europe and North America share concerns about the social impact of computer-based personal data systems. Although there are minor differences in the focus and intensity of their concerns, it is clear that there is nothing peculiarly American about the feeling that the struggle of individual versus computer is a fixed feature of modern life. The discussions that have taken place in most of the industrial nations revolve around themes that are familiar to American students of the problem: loss of individuality, loss of control over information, the possibility of linking data banks to create dossiers, rigid decision making by powerful, centralized bureaucracies. Even though there is little evidence that any of these adverse social effects of computer-based record keeping have occurred on a noticeable scale, they have been discussed seriously since the late sixties, and the discussions have prompted official action by many governments as well as by international organizations. Concern about the effects of computer-based record keeping on personal privacy appears to be related to some common characteristics of life in industrialized societies. In the first place, industrial societies are urban societies. The social milieu of the village that allowed for the exchange of personal information through face-to-face relationships has been replaced by the comparative impersonality of urban living. Industrial society also demands a much more pervasive administration of governmental activities-the collection of taxes, health insurance, social security, employment services, education-many of which collect and use personal data in an impersonal way. Nor should we overlook the increasing uniformity of industrial societies fostered by mass communications media so efficient that few issues of genuine interest and importance fail to achieve near-global extent. Concern about the effects of computer-based record keeping appears to have deep roots in the public opinion of each country, deeper roots than could exist if the issues were manufactured and merchandised by a coterie of specialists, or reflected only the views of a self-sustaining group of professional Cassandras. The fragility of computer-based systems may account for some of the concern. It is not necessary for public opinion to be unanimously opposed to the computerization of personal-data record keeping, or even actively mistrustful of it, to destroy the effectiveness of a record-keeping operation. The active opposition of even a few percent of those whom a system means to serve can cripple the powerful, but fragile, mechanism of a highly automated system. Nor is it necessary for this opposition to be manifested in physical sabotage of the computer itself (although that has happened); it is enough merely to withhold cooperation. There are few computer systems designed to deal with the disruption that deliberately lost or mutilated punched cards in a billing system-to give a simple example-would cause. Thus, the very vulnerability of automated personal data systems, systems without which no modern society could function, may make careful attention to the human element transcend national boundaries. The Response in Individual Nations WEST GERMANY On October 7, 1970, the West German State of Hesse adopted the world's first legislative act directed specifically toward regulating automated data processing. This "Data Protection Act" applies to the official files of the government of Hesse; wholly private files are specifically exempted from control. The Act established a Data Protection Commissioner under the authority of the State parliament whose duty it is to assure that the State's files are obtained, transmitted, and stored in such a way that they cannot be altered, examined, or destroyed by unauthorized persons. The Commissioner is also explicitly responsible for observing the effects of automated data processing on the operations of the State government, and on its decision-making powers. He must take particular note of whether computerization leads to any displacement in the distribution of powers among the governmental bodies of the State. Thus, the Data Protection Act of Hesse seems designed more to protect the integrity of State data and State government than to protect the interests of the people of the State. As a pioneer statute in the field of computer law, however, its exact practical effects could scarcely have been predicted, and in no way diminish its usefulness as a guide for other jurisdictions that can learn from the Hesse experience. To judge from the second annual report of the Data Protection Commissioner, that experience has been one of mild philosophical frustration, punctuated by occasional practical victories.1 In one instance, the Commissioner learned of the existence of a computer in a university clinic only through a newspaper account of a fire; in another the Commissioner successfully blocked the release of criminal records to a private research center. Based on the experience of Hesse, the States of Rheinland-Pfalz and Hamburg have passed similar acts, and the States of Baden Wiirttemberg, Schleswig-Holstein, Bavaria, and Lower Saxony have adopted slightly more circumscribed laws or regulations. At the Federal level, the Bundestag has considered a number of proposals for national laws of wider scope than any of the present State laws, but the estimated costs to data holders of complying with the proposed requirements for mandatory disclosure of data have thus far raised enough objections to cause the Bundestag to reconsider those requirements. It seems likely, however, that some version of a relatively strong law will be passed during 1973. SWEDEN When strong opposition to the 1969 census erupted in Sweden, public mistrust centered not so much on the familiar features of the census itself as on the fact that, for the first time, much of the data gathering would be done in a form specifically designed to facilitate automated data processing. Impressed by the possibility that opposition might be so severe as to invalidate the entire census, the government added the task of studying the problems of computerized record keeping to the work of an official commission already studying policies with respect to the confidentiality of official records. After a notably thorough survey of personal data holdings in both public and private systems, the commission issued a report containing draft legislation for a comprehensive statute for the regulation of computer-based personal data systems in Sweden.2 The aim of the act is specifically the protection of personal privacy. Its key provisions are these: * Establishment of an independent "Data Inspectorate," charged with the responsibility for executing and enforcing the provisions of the Data Law. * No automated data system containing personal data may be set up without a license from the Data Inspectorate. * Data subjects have the right to be informed about all uses made of the data about them, and no new use of the data may be made without the consent of the subject. * Data subjects have the right of access without charge to all data about them, and if the data are found to be incorrect, incomplete, or otherwise faulty, they must either be corrected to the subject's satisfaction, or a statement of rebuttal from the subject must be filed along with the data. * The Data Inspectorate will act as ombudsman in all matters regarding automated personal data systems. The Data Law has been passed by the Swedish Parliament and will become effective on July 1, 1973. A transition period of one year will be allowed to implement all the provisions of the law. FRANCE Article 9 of the French Civil Code states plainly, "Everyone has the right to have his private life respected." 3 As legal scholars in all countries have noted, however, it is very difficult to define the precise limits of privacy in every case that comes before a court, and in spite of such explicit protection, the privacy of the French, both inside and outside of automated personal data systems, seems in practice no better defended than that of most other people. Although concern about the issue of "computers and privacy" has frequently surfaced in the French press4 and in data-processing periodicals,5 public interest in the subject is not deeply engaged. One bill has been introduced in Parliament, but was withdrawn pending completion of a study jointly sponsored by the Department of Justice and the Delegue L'Informatique. An earlier study by the staff of the Conseil d'Etat seems to have influenced the proposed bill, but the legal and administrative implications of many of the features of the proposal appear never to have been carefully developed.6 One other development on the French scene deserves mention. The 1972 annual report of the Supreme Court of Appeals went considerably out of its way, after reviewing a case of literary invasion of privacy, to comment on the subject of computers and privacy: > … The progress of automation burdens society in each country with the menace > of a computer which would centralize the information that each individual is > obliged to furnish in the course of his life to the civil authorities, to his > employer, his banker, his insurance company, to Internal Revenue, to Social > Security, to the census, to university administrations, and, in addition, the > data, correct or not, which is received about him by the various services of > the police. When one thinks about the uses that might be made of that mass of > data by the public powers, of the indiscretions of which that data might be > the origin, and of the errors of which the subjects might be the victims, one > becomes aware that there lies a very important problem, not only for the > private life of everyone, but even for his very liberty. > It appears to us that this eventuality, an extremely probable one, ought to be > made the object of consideration of the public power, . . .and that this > consideration should take its place among the measures of precaution and of > safeguard which should not lack for attention.7 To sum up, the situation in France is complex. The subject of computers and privacy has been given serious attention by a relatively small group of experts, but that group has an influence in government far out of proportion to its numbers. The attitude of the present government is strongly colored by another aspect of the privacy problem: It has been caught in a wiretap scandal, and its defensiveness in that regard appears to be influencing its actions on the computer front. The official report of the present working group is due before the end of 1973, but it does not seem realistic to expect that there will be any definitive action in France before, perhaps, mid-1974. GREAT BRITAIN Britain is unique among the countries reviewed in having recently completed a thorough study of the entire subject of privacy.8 Although the committee in charge of the study, the Younger Committee, was restricted in its terms of reference to private, rather than public, organizations that might threaten privacy, the committee's report is a model of clarity and concern. In brief, the Committee found that both the customs of society and the Common law had evolved defenses against the traditional intrusions of nosey neighbors, unwelcome visitors, door-to-door salesmen, and the like. Against the new threats of technological intrusions-wiretaps, surveillance cameras, and, of course, computerized data banks-the Committee recognized that the traditional defenses are inadequate. To help deal with the threat of the computer, the Committee recommended specific safeguards to be applied to automated personal data systems, although it left the method of application up to the government to decide. The main features of the safeguards are: 1. Information should be regarded as held for a specific purpose and not to be used, without appropriate authorization, for other purposes 2. Access to information should be confined to those authorized to have it for the purpose for which it was supplied. 3. The amount of information collected and held should be the minimum necessary for the achievement of the specified purpose. 4. In computerized systems handling information for statistical purposes, adequate provision should be made in their design and programs for separating identities from the rest of the data. 5. There should be arrangements whereby the subject could be told about the information held concerning him. 6. The level of security to be achieved by a system should be specified in advance by the user and should include precautions against the deliberate abuse or misuse of information. 7. A monitoring system should be provided to facilitate the detection of any violation of the security system. 8. In the design of information systems, periods should be specified beyond which the information should not be retained. 9. Data held should be accurate. There should be machinery for the correction of inaccuracy and the updating of information. 10. Care should betaken in coding value judgments.9 The Younger Committee also considered proposing specific legislation for automated personal data systems, based upon draft bills that had been submitted to Parliament before the Committee was formed. After concluding that the proposed laws were too constraining to be justified by the level of threat as the Committee saw it, the Committee reserved the option to recommend legislation at a later date, and confined its present recommendation to urging that the data-processing industry voluntarily adopt the safeguards as a code of good practice. This has now been accomplished in the form of a professional code adopted by the British Computer Society.10 Although only about one third of the computer professionals in Britain belong to the Society, those who do belong are, by and large, in a position to enforce the provisions of the code. Further regulation appears to be in the early stages of Parliamentary debate, and it is likely only a question of time until safeguards with the full effect of law will be in force in Britain. CANADA In, April 1971 the Departments of Communications and Justice jointly established a Task Force on Privacy and Computers, growing out of earlier work in the Department of Communications on issues concerning the use of computers in communications. The Task Force was given broad terms of reference to consider the rights and values of the individual that cluster about the notion of privacy, and to examine present and foreseeable effects on those rights and values of computerized information systems containing personal data about identifiable individuals. The Task Force began by carrying out a thorough survey of the status of personal data files in Canada and of the attitudes of Canadians about those files and their uses. It found that there was much more interchange of data among systems than the public realizes, that there are more inaccuracies in the files than generally realized, but that few individuals had actually experienced any intrusion on their personal privacy through either use or misuse of computers. In its report, published in late 1972,11 the Canadian Task Force concluded that computer invasion of privacy is still far short of posing a social crisis. However, the rapidly rising volume of computerized personal data and the equally rapidly rising public expectation of a right to deeper and more secure privacy threaten to converge at the crisis level. To forestall that crisis, the Task Force recommends that a commissioner or ombudsman be established in a suitable administrative setting, that carefully prepared test cases on cogent issues be brought before the courts, and that the operation of government data systems be made to serve as a national model. REFERENCES British Computer Society. Privacy and the Computer-Steps to Practicality. London: British Computer Society, 1972. Canada. Department of Communication/Department of Justice. Task Force on Privacy and Computers. Privacy and Computers. Ottawa: Information Canada,1972. Ditchley Foundation. Private Rights and Freedom of the Individual. Ditchley Paper No. 41. Ditchley Park, Emstone, Oxfordshire, England: The Ditchley Foundation, 1972. Federal Republic of Germany. Hesse State Parliament. Data Protection Commissioner. First Activity Report. (Document 7/1495) 1972. Second Activity Report. (Document 7/3137)1973. France. Conseil d'Etat. Rapport annuel 1969-1970. Troisième partie: Réformes d órdre législatif, reglementaire ou administratif. Deuxieme etude: Les consequences du développement de l'informatique sur les libertés publiques et privées et sur les décisions administmtives. Great Britain. Home Office. Report of the Committee on Privacy. Rt. Hon. Kenneth Younger, Chairman. London: H. M. Stationery Office, 1972. International Commission of Jurists. "The Protection of Privacy." International Social Science Journal, 24:3 (1972). Justice. (British Section of the International Commission of Jurists.) Privacy and the Law. Mark Littman and Peter Carter-Ruck, Chairmen. London: Stevens & Sons Limited, 1970. Lenk, Klaus. Automated Information in Public Administration-Present Developments and Impact. Document DAS/SPR/72.18. Paris: Organisation for Economic Cooperation and Development, 1972. Niblett, G. B. F. Digital Information and the Privacy Problem. OECD Informatics Studies, No. 2. Paris: Organisation for Economic Cooperation and Development, 1971. Pipe, Russell. Data Base Developments and International Dimensions. Document DAS/SPR/72.20. Pads: Organisation for Economic Cooperation and Development, 1972. Rowe, B. C., ed. Privacy, Computers and You. Manchester, England: The National Computing Centre Limited, 1972. Rule, James B. Private Lives and Public Survillance. London: Allen Lane, 1973. Samuelsen, Erik. Statlige databanker og personlighets vern (Public Data-Banks and the Defense of Privacy). Oslo: Universitets Forlaget, 1972. Stromholm, Stig. Right of Privacy and Rights of The Personality: A Comparative Survey. Working paper prepared. for the Nordic Conference on Privacy organized by the International Commission of Jurists, Stockholm, May 1967. Stockholm: P. A. Norstedt & Sonars Forlag, 1967. Sweden. Justitiedepartmentet. Data och integritet (Data and Privacy). Stockholm: Almanna Forlaget, 1972. Thomas, Uwe. Computerized Data Banks in Public Administration. OECD Informatics Studies, No. 1. Paris: Organisation for Economic Cooperation and Development, 1971. United Nations. Economic and Social Council. Commission on Human Rights. Human Rights and Scientific and Technological Developments. Report of the Secretary-General. Addendum. 29 December 1970. Warner, Malcolm, and Michael Stone. The Data Bank Society: Organizations, Computers, and Social Freedom. Old Woking, Surrey, England: Unwin Brothers limited, 1970. -------------------------------------------------------------------------------- 1Federal Republic of Germany, State of Hesse, Hessischer Landtag, Vorlage des Datenschutzbeauftrogten (Report of the Data Protection Commissioner), Document 7/3137, 29 March 1973. Reviewed in Frankfurter Allgemeine Zeitung fur Deutschland, 18 April 1973; English version of review in The German Tribune, No. 578, 10 May 1973, p. 3. 2Sweden, Justice Department, Data och integritet (Data and Privacy), Document SOU 1972:47 (Stockholm: Almänna Förlaget), 1972. 3"The Protection of Privacy," International Social Science Journal, XXIV, No. 3, 1972, p. 448. 4Le Monde, November 29, 1972, pp. 20-21, for example. 5 l'Informatique, Aprll, 1971 (entire issue). 6France, Conseil d'Etat, Rapport Annuel 1969-1970, 3iéme Parties, 2ieme étude, Fascicule 3, "Les conséquences du développment de l'Informatique sur les libertés publiques et privées et sur les décisions administratives," Paris, 1970. 7France, Cour de Cassation, Rapport de Cassation. Année Judiciare 1971-1972 (Paris: La Documentation Francaise), 1972, p. 16. 8Great Britain, Home Office, Report of the Committee on Privacy, Rt. Hon. Kenneth Younger, Chairman (London: H. M. Stationery Office), 1972. 9Ibid., pp. 163-184. 10The British Computer Society, Privacy and the Computer–Steps to Practicality (London: The Society), 1972. 11Privacy and Computers. A report of a Task Force established jointly by Department of Communications/Department of Justice (Ottawa: Information Canada), 1972. CONFIDENTIALITY AND THE CENSUS, 1790-1929 ROBERT C. DAVIS* The census of population envisaged by Article I, Sec. 2 of the Constitution involved only a decennial enumeration of the inhabitants of each state, distinguishing free from slave, and excluding untaxed Indians. Yet from the beginning the census encompassed more than this minimal enumeration, and as the scope of census inquiries expanded, the confidentiality of personal data supplied for statistical purposes became an increasingly urgent issue. Gradually administrative and legal safeguards were instituted to insure confidentiality until, in 1919, it became a felony to misuse data supplied to the census by individuals. A complete study of the evolution of government policy with respect to the confidentiality of census data would necessarily involve a full-scale history of the census itself. This brief overview can at best sketch the development of that policy and indicate the major factors that appear to have shaped it. The history of census policy on confidentiality may be conveniently divided into four broad periods. During the first six censuses (1790-1840), the confidentiality issue arose with respect to economic data. From 1850 to 1870 administrative directives extended the principal of confidentiality to all census data; with the Census of 1880 it became a misdemeanor to disclose information collected in the census. Thereafter, the creation of a permanent Bureau of the Census (in 1902) set in motion events that led to the Census Act of March 3, 1919, which made the unauthorized disclosure of personal data collected in the census a felony.1 Beyond Bare Enumeration, 1790-1840 James Madison played the major role in expounding the philosophy of the first census and in establishing its procedures. Madison spoke for many of the leaders of his time when he expressed his desire to gather this "most useful information" for Congress. The census, he argued, should be "extended so as to embrace some other objects besides the bare enumeration of the inhabitants; it would enable them to adapt the public measures to the particular circumstances of the community." Echoing The Federalist Papers, he wished to know accurately the "several classes" of the nation so that Congress could "make proper provision for the agricultural, commercial, and manufacturing interests . . . in due proportion."2 Madison embodied his vision of the census as the vehicle for socioeconomic research in a bill that divided the population into four categories: free white males, free white females, free blacks, and slaves. The free whites were to be differentiated by ageyounger than 16, 16 or older-and Madison also wished to classify the population, where appropriate, under thirty occupational and industrial headings.3 The Senate deleted the proposal on occupations, much to Madison's disgust, but the crucial point is that the first act pushed beyond the simple constitutional provision, thereby establishing a precedent for the enormous expansion of the census in the following century.4 Madison's argument for converting the census into a vehicle for statistical inquiry became the standard rationale echoed in future Congresses. In spite of occasional objections to the implied powers interpretation of Article I, Sec. 2, a Federal court was not asked to rule on the constitutionality of the expanded census until 1901. Its decision reaffirmed the necessity and right of government to gather statistics to guide public policy.5 Madison's statistical ideology may have looked toward the needs of an expanding nation, but his administrative conceptions with regard to the census were bound to his own time. The census bill of 1790 was based on the assumption that each enumeration was to be an ad hoc operation, carried out at minimal cost, and utilizing existing functionaries of government as far as possible. The bill divided the labor between the Congress, which determined the content of the census schedules, and the federal marshals, who appointed assistant marshals to do the enumeration. The thoroughness of the enumeration was to be checked by the marshals, the district courts, and the public before aggregate figures were transmitted to the national capital for compilation and publication. This system, with minor modifications, was used in the first six censuses. Concern for accuracy is evident in the rules for enumerators. Bound by oath and threatened with fines, the assistant marshal had to file copies of his census schedules with the clerk of the district court who would make them available for inspection by the grand jury. Furthermore, the enumerator was bound to > cause a correct copy, signed by himself, of the schedule, containing the > number of inhabitants, within his division, to be set up at two of the most > public places within the same, there to remain for the inspection of all > concerned . . . . 6 Both these requirements involved disclosure, but apparently the confidentiality issue was not raised. Given the few facts contained in the schedule, all of which were common knowledge locally, it is probable that most citizens did not perceive the public posting of census results as an invasion of privacy. The practices established in the first census may have seemed sensible and frugal, but built into the procedures were a number of problems. Because data collection was decentralized, the Secretary of State had little control over the quality of the aggregate figures submitted by the marshals. The public posting of census schedules sacrificed confidentiality in the hope of attaining accuracy, a dubious proposition in the long run. And, in the absence of a permanent census bureau, expertise in the collation, analysis, and presentation of census data could not accumulate at the federal level. The Census of 1790, published by Thomas Jefferson in the autumn of 1791, revealed a population of 3,929,214. At about the same time, Jefferson wrote to a friend that, "Making a very small allowance for omissions, which we know to have been very great, we are certainly above four millions, probably about four million one hundred thousand."7 Assuming that his estimate of the undercount was reasonable, one can only speculate about the causes of the difficulty. Clearly the problems of communication and travel, especially in the frontier areas, must have been a contributing factor. Then, too, the lack of detailed instructions to the marshals must be considered. When asked to initiate the field work phase of the first enumeration, Tobias Lear, Washington's private secretary, apparently sent out copies of the census law, nothing more.8 The suspicion that census data would be used in levying future taxes may also have played a role in the reluctance of some citizens to cooperate. To the statistics-minded generation of the Founding Fathers,9 the skimpy data of the first census must have been disappointing. Jefferson's dissatisfaction is evident in the memorial regarding plans for the Census of 1800, which he sent to Congress as President of the American Philosophical Society. It called for "a more detailed view of the inhabitants," and suggested the inclusion of refined age groupings > from whence may be calculated the ordinary duration of life in these States, > the chances of life for each epoch thereof, and the ratio of the increase of > their population; firmly believing that the result will be sensibly different > from what is presented in the tables of other countries . . . .10 The memorial suggested the age intervals that might be used, and urged that data be collected on nativity and occupation. The American Philosophical Society and the Connecticut Academy of Arts and Sciences joined forces in the advocacy of census reform, but the legislation for the approaching census showed scant evidence of their influence. The only significant change in the schedule for 1800 was the refinement of age categories for the free white population, including females (for whom no age data were collected in 1790). The census was placed formally under the authority of the Secretary of State, but otherwise no major procedural alterations were made. Fortunately, the incumbent Secretary of State, Timothy Pickering, was concerned about the quality of the census and drafted a set of detailed instructions to guide the marshals. He clarified the wording of the Census Act by defining terms, and he restated the categories of the census in the form of questions to be asked the head of each household. He also outlined procedures for recording, copying, posting, and aggregating the returns. On the requirement that the schedules be posted, Pickering wrote: > These copies will distinguish . . . the several families, by the names of > their master, mistress, steward, overseer, or other principal person therein. > The design of the copies thus set up, appears to be that if any of the > inhabitants discover errors in the enumerations, they may be made known to the > assistant; and the naming of the heads of families will render the detection > of errors practicable." 11 Whether the instructions helped produce a better census is not clear, but it seems likely that it did not. The compilation of the census was placed in the hands of a State Department clerk, Jacob Wagner, and when the report appeared in 1801 its scanty data allowed little more than Jefferson's observation that "the increase of numbers during the last ten years, proceeding in a geometrical ratio, promises a duplication in a little more than twenty-two years."12 The third census of population merely repeated the procedures of 1800. John B. Colvin, a clerk in the State Department, issued copies of the Pickering instructions and compiled the aggregate statistics as they came in. However, the desire for economic data, voiced earlier by Madison and Jefferson, found an able advocate in the Secretary of the Treasury, Albert Gallatin. Called upon to report on the state of American manufactures, Gallatin reported to Congress the insufficient nature of such statistics and added, "Permit me to observe that the approaching census might afford the opportunity to obtain detailed and correct information on that subject . . . . "13 Congress immediately authorized the collection of data on manufacturing establishments and their products. Gallatin drafted instructions for the enumerators in terms of broad objectives, noting that > No particular form can be prescribed, and to the request that each assistant > should give in his own way the best account which, as he proceeds to take the > census, he may be able to collect, I can add but very general instructions." > 14 The first attempt to collect economic data ended in frustration, due to the vagueness of the instructions, the carelessness of the enumerators, and the resistance of respondents. Samuel Latham Mitchill, a prominent scientist in Congress, and Tench Coxe, who had helped gather Hamilton's manufacturing data, successively worked over the material. Coxe pointed out the "numerous and very considerable imperfections and omissions" and Mitchill urged that "an exact schedule of all the subjects of inquiry ought to be formed" before the next census attempted to gather such statistics. 15 In this first attempt to graft a complicated survey on a relatively simple population schedule the weakness of the early census system was bared, and the issue of confidentiality was raised for the first time. Clearly, information about business was considered a private matter by some, and it was, therefore, an issue that had to be dealt with when the fourth enumeration was planned.16 When Secretary of State John Quincy Adams confronted the problem of the Census of 1820, he set about drafting new and careful instructions. Congress had modified the census law to gather details of sex and age in the free black arid slave population, but stipulated different age categories than those for free whites. As a corollary to gathering immigration data at ports of entry, the number of foreigners not naturalized was to be ascertained, and Congress called for another attempt at gathering economic statistics. The population (including slaves) was to be classified as engaged in agriculture, commerce, or manufacturing. A supplementary act called for an enumeration of manufacturing establishments, giving details of products, their market value, and the raw materials utilized; the kind of machinery; the amount of capital invested; contingent expenses; wages and composition of the labor force. Altogether the enumeration of manufacturing establishments comprised fourteen inquiries.17 Resistance to such detailed investigations was acknowledged by treating the economic inquiry as voluntary and separate from the population schedule. Adams wrote: > as the act lays no positive injunction upon any individual to furnish > information upon the situation of his property, or his private concerns, the > answers to all inquiries of that character must be altogether voluntary . . . > . It is to be expected that some individuals will feel reluctant to give all > the information desired in relation to manufacture ....18 Recognition of the difficulty of obtaining "private" information of an economic nature was a beginning step toward recognition of the principle of confidentiality, but no such concept was applied to the population schedules. They were still posted "for the detection of errors which may have happened in the names of the heads of families and the numbers of persons to be returned . . . . " 19 The economic data obtained by the voluntary procedure were disappointing, and objections to the economic investigation probably influenced the decision of Congress to omit such a schedule in 1830. The Census of 1830, however, did produce a significant precedent in another sector. For the first time data were collected on the blind and the deaf, a reflection of the humanitarian concern for the handicapped which was rising in America. Hesitantly, the census moved toward attention to social problems that were considered outside the legislative scope of the Congress, but about which public policy was being shaped at the State level.20 Insofar as centralization of records touches on the issue of confidentiality, the legislation for the 1830 census provides still another landmark. Congress provided for transmission to the Secretary of State of a copy of the schedules as well as an aggregate summary. Furthermore, the schedules of the first four censuses, preserved in the records of the district courts, were also to be sent to Washington. It appears that the impetus for this legislation was the desire to preserve the history of the nation, but it also indicated an urge for better statistical work by the Federal government, for Congress made provision for the returns of the earlier censuses to be organized and published with the results of the fifth enumeration. That products of this effort were "absolutely valueless," as a later census director put it, should not distract attention from the spirit of the legislation.21 A methodological advance was also recorded in the 1830 Census. Uniform printed forms were used for the first time in the enumeration, although this innovation, unfortunately, was not coupled with improvements in other fieldwork procedures. Poor fieldwork and clerical ineptitude were accompanied by the reluctance of the citizenry to answer the census inquiries. Even though economic questions were omitted, some citizens believed "that the enumeration is made with a view to the assessment of taxes, enrollment in the militia, or the collection of militia fines . . . .22 The appetite of Congress for more and better statistics grew during the decade between the fifth and sixth censuses. A Congressional resolution calling for data on population growth and militia strength led the Department of State into an early demographic analysis to which was added a study of taxation. The debate on the tariff drew the Treasury Department into a survey of manufacturers that was more elaborate than any prior census effort. Interest also flared briefly in a suggestion that an official statistician be appointed to make regular compilations of statistical materials useful to government, but in the end Congress fell back on the old pattern of depending on the census to carry the full burden.23 President Martin Van Buren, responding in part to the widespread surge of statistical interest during his administration, became an advocate of a substantially enlarged Census of 1840; and Congress agreed. It acted not only to classify individuals by their economic pursuits, but to obtain > all such information in relation to mines, agriculture, commerce, > manufactures, and schools, as will exhibit a full view of the pursuits, > industry, education and resources of the country . . . . 24 Drafting the schedules was left to the Secretary of State. Accordingly, a detailed economic schedule was drawn up that probed into capital investments, forms of ownership, and output of products. The question of confidentiality was raised by these new inquiries and the instructions to the enumerators took account of it: > Objections, it has been suggested, may possibly arise on the part of some > persons to give the statistical information required by the act, upon the > ground of disinclination to expose their private affairs. Such, however, is > not the intent nor can be the effect, of answering ingenuously the > interrogatories. On statistical tables no name is inserted-the figures stand > opposite no man's name; and therefore the objection can not apply. It is, > moreover, inculcated upon the assistant that he consider all communications > made to him in the performance of this duty, relative to the business of the > people, as strictly confidential.25 Although the economic questions were thought to merit protection, the population schedule was not. The act for the Census of 1840 retained the requirement that the results of the population count be posted in order to ascertain errors.26 The detailed economic inquiries were not received with equanimity by the populace, especially in rural regions. Several counties in Virginia, Georgia, Alabama, and Louisiana refused to answer them as there was no penalty attached to noncompliance. Andrew Jackson was convinced that "the foolish questions" lost the Democrats Tennessee in the presidential election. The question in many minds, not confined to one region by any means, was voiced by a leading southern journal: "Is this federal prying into the domestic economy of the people a precursor to direct taxes?"27 The defective statistics supplied by careless enumerators and evasive citizens could not be adequately detected, much less fully corrected, by the census system. William A. Weaver, who supervised the State Department clerks checking the census returns, stated that upwards of 20,000 errors were discovered in the returns from Massachusetts alone. The discovery of further errors in the printed reports led to a national discussion of census shortcomings.28 Among the many voices raised, the most significant was that of the American Statistical Association. Founded in 1839, the new organization was an active critic of the official statistics on Negro insanity, data already being cited in the national controversy over slavery. As the result of its futile struggle to get corrections made in the Census of 1840, the Association became committed to the fight for a better census in 1850.29 The American Statistical Association was not the only source of statistical enthusiasm. In varying degrees, reform groups, business associations, medical societies and agricultural organizations expressed the need for statistics related to their specific interests. At the State and local level, statistical activities ranged from sanitary surveys to registration of vital statistics to statewide censuses of agriculture and manufacturing. A small cadre of statisticians began to grow out of this experience, but there was no central statistical bureau created in Washington to attract them to the Federal service. Unlike the situation in most European countries, statistics in the United States remained decentralized and uncoordinated."30 Census Development, 1840-1880 Among all the interest groups concerning themselves with statistics there was general agreement that the Census of 1840 had been, as John Gorham Palfrey called it, "a mortifying failure,"31 and there was widespread agreement in Congress that the approaching Census of 1850 should be conducted in a better manner. The statisticians of New York and Boston led the fight for census reform. In 1848 memorials from the New York Historical Society and the American Statistical Association, drafted by Archibald Russell and Lemuel Shattuck respectively, launched the effort. The burden of their advice was to start planning early and to utilize statistical experts. After much maneuvering in Congress, a bill was passed creating a Census Board to plan the schedules for the seventh enumeration. The Secretary of State, the Attorney General, and the Postmaster General constituted the Board. Rather than appoint a statistician to commence the work, they chose instead Joseph C. G. Kennedy of Pennsylvania, whose political credentials as a fervent Whig were impeccable. Kennedy, a lawyer and journalist, soon needed expert advice, so Russell and Shattuck were called to Washington to be his statistical consultants. In spite of a complicated wrangle involving Kennedy, the Board, and the Senate census committee, a census bill emerged in May 1850. It was primarily the product of the advice of Russell and Shattuck, but Kennedy won a victory too. He was appointed to superintend the seventh census.32 The new census schedules opened avenues of inquiry that thrust the issue of confidentiality to the fore. The schedule for the free population would list every inhabitant by name, giving, in addition, sex, age, color, nativity, place of birth, marital status, literacy, real estate ownership, and information as to whether the individual was deaf, dumb, blind, insane, idiotic, or a pauper or convict. The slave schedule was less inclusive, but more detailed than ever before. A mortality schedule listed by name all who had died in the preceding year, with personal and medical details included. The agricultural schedule covered a wide range of data on the operations of each farmer and planter; the manufacturing schedule asked for economic details on every establishment producing over $500 annually; and the schedule on social statistics asked the enumerator to gather data on various local institutions.33 Given the increased scope of the inquiry, the issue of confidentiality had to be faced. For the first time, the census bill did not require public posting of the population schedules, but it also made no provision for penalties for misuse of personal data. Kennedy's instructions on the point, however, were very clear. Information has been received at this office that in some cases unnecessary exposure has been made by the assistant marshals with reference to the business and pursuits, and other facts relating to individuals, merely to gratify curiosity, or the facts applied to the private use or pecuniary advantage of the assistant, to the injury of others. Such a use of the returns was neither contemplated by the act itself nor justified by the intentions and designs of those who enacted the law. No individual employed under sanction of the Government to obtain these facts has a right to promulgate or expose them without authority.34 The precise nature of the abuse of confidentiality referred to does not survive in the existing records. Although Kennedy's correspondence contains many requests for information, replies were limited to aggregate data. There is only one recorded case that might be counted as a partial exception to the rule of absolute confidentiality. A man seeking his lost brother was informed that a man of a similar name was living in Texas.35 In another reply to a request for access to census schedules Kennedy wrote, "I have no objection to your taking from the office such returns as may be necessary to the purpose you name . . . ."36 However, it is not possible to ascertain the nature of "the purpose" or the specific returns referred to. When the census duties were taken over by James D. B. De Bow in 1853, the same rules of confidentiality were applied. The chief clerk of the census, in denying a request for names and personal details from the 1850 enumeration, observed that "the question is, whether it is well, in order to oblige or benefit an individual, to risk any increase of obstacles under which the Government labors in procuring such information . . . ."37 De Bow felt, however, that the resistance encountered in 1840 to the economic questions had diminished. "Such objections were rarely raised in 1850," he wrote, "and in but two or three cases was it necessary to call in the services of the district attorney to enforce the requisitions of the law."38 The census act of 1850 governed the Census of 1860 and Kennedy once again was appointed superintendent. The eighth enu meration had all the strengths and weaknesses of the seventh, as the schedules and procedures were fixed by law. The Civil War also put unique demands on the census: the President needed data on the probable cost of compensated emancipation; the War Department wanted quotas of draftees calculated; General Sherman needed maps showing food and forage for his March to the Sea. 39 It is possible that confidentiality was breached under the stress of war, but in general the work of the Census Office proceeded very much as before. The volumes on population and agriculture appeared in 1864, and the reports on manufacturing and mortality were in hand by 1865. In that year, however, Kennedy was abruptly removed from office, demonstrating once again the vulnerability of a temporary census office to the shifting fortunes of politics.40 As the 1870 enumeration approached, it seemed evident to many statisticians that the census law of 1850 needed to be replaced with more satisfactory legislation. In Congress, the reform movement was led by James A. Garfield. After much consultation, Garfield drafted a new census act in which he sought to improve the occupational and industrial classification, to create a board to supervise the census, to shorten the census period, to improve methods of selecting census personnel, and generallv to expand the number of inquiries. One suggestion had political implications. Garfield wanted to take the appointment of census enumerators out of the hands of the Federal marshals. In suggesting replacing the marshals' districts with Congressional districts as the basis for appointment of enumerators, Garfield was, in effect, handing the Senate's patronage to the House-a move that defeated the bill when it arrived in the Senate.41 If Garfield failed to reform the census, he succeeded in nondnating its new superintendent, Francis Amasa Walker. Walker was confirmed, but he had to work within the confines of the census act of 1850 which had been modified only slightly to reflect the abolition of slavery and to eliminate some of the ambiguities in the 1850 and 1860 enumerations.42 Nonetheless, in his instructions to enumerators, Walker made clear his position on confidentiality: > No graver offense can be committed by assistant marshals than to divulge > information acquired in the discharge of their duty. All disclosures should be > treated as strictly confidential, with the exception hereafter to be noted in > the case of the mortality schedule. Information will be solicited of any > breach of confidence on the part of the assistant marshals. The department is > determined to protect the citizen in all his rights in the present census . 43 The exception noted permitted the assistant marshals to submit mortality schedules to "some physician who will be willing, out of public spirit and professional interest, to glance over the entire list of diseases and correct a defective classification" of the cause of death of individuals so listed.44 In spite of Walker's preparations, the Census of 1870 suffered from an undercount of unprecedented proportions in the South. Given the limits imposed by the act of 1850, very little could be done from Washington to prevent the fiasco. The politics of Reconstruction dictated that marshals in the South, often non-residents of their districts, had to appoint loyal Republicans. The liberal use of census patronage to attract freedmen to the Party led to the appointment of illiterates as enumerators. Even when the enumerators were capable people, they had to contend with white hostility and black fear. Sometimes the work was illegally subcontracted, and sometimes, as Henry Gannett reported, census data were gathered at "court sessions, musters, public meetings, etc." Walker initially estimated the undercount of Southern blacks to be about 350 to 400 thousand but he later conceded that it probably ran as high as 510,000.45 In spite of the serious flaws in the enumeration of the South, the Census of 1870 was a marked improvement over all previous censuses. The reports were more detailed, better annotated, and the data were more clearly presented in tables and graphs. Due attention was called to limitations of the data, and Walker included a thorough historical and methodological discussion of census procedures. In a sense, the 1870 report was a brief for census reform, and that issue was joined soon again in Congress. Census Reform, 1880-1900 Although James A. Garfield was active in promoting reform of the census, Representative Samuel S. Cox and Senator Justin Morrill led the fight in the Congress. Senator Morrill pointed out that the country had outgrown the census as conceived in 1850. > The statistical facts now required are not merely for the gratification of the > curiosity of students, but are for daily, practical use in wide directions, > and are to serve as the constant resource of legislators, both state and > national . 46 Represenative Cox presented to the House not only an able history and critique of census practices, but also a detailed exposition of the needed reforms.47 The 1880 census act embodied many of the reforms suggested in 1870 and added a few new provisions. Federal marshals were replaced by district supervisors as the chief local functionaries. Appointed by the President, with the advice and consent of the Senate, the district supervisors were empowered to appoint enumerators, with the consent of the Superintendent of the census. The enumerators, moreover, were to be "selected solely with reference to their fitness."48 The topics to be enumerated were named in the act, but the Superintendent was given authority to set up the schedules and make reasonable modifications within the broad range of areas to be covered. The Superintendent was further empowered to hire "experts and special agents" to handle specific areas requiring special knowledge.49 These reforms clearly broke with past census practices. On the issue of confidentiality, the census-taker's oath was a decisive change as well. Each enumerator now had to swear not to disclose "any information contained in the schedules, lists or statements obtained by me to any person or persons, except to my superior officers."50 It was further stipulated that > an enumerator who shall disclose any statistics of property or business > included in his return, shall be deemed guilty of a misdemeanor, and upon > conviction shall forfeit a sum not exceeding five hundred dollars . . . .51 It is noteworthy that the penalty clause specifically mentions economic data, again reflecting the sensitivity felt about collecting that type of information. Notable also are the instructions to enumerators to check with attending physicians the cause of death of individuals listed in the mortality schedule,52 and the provision in a supplementary piece of legislation for correcting census returns by a method akin to the public posting procedure of earlier times. The enumerator was instructed to file with the county clerk a list of "names, with age, sex, and color, of all persons enumerated by him."53 He was further instructed to advertise his availability for 15 days at the courthouse for the purpose of making corrections in the enumeration of population, including taking evidence under oath of needed changes, and to make known to the bystanders, if any, the outcome "of such inquiry for correction and the whole number of persons by him enumerated . . . ."5· This availability of the facts of age, sex, and color in a semi-public setting, of course, ran counter to the growing emphasis on safeguarding the confidentiality of personal data collected by the census. Charles W. Seaton, who, like Walker, combined political and statistical credentials, took over as Superintendent of the census in 1881. He guided the census through budget crises, fended off politically motivated charges of fraudulent counts in the South," and promoted the use of mechanical aids in census work, particularly a simple tallying device that had been in limited use since 1870. The sheer volume of data collected in 1880, especially in the area of economic statistics and special studies, was impressive. Twenty two quarto volumes totalling 19,305 pages (plus a compendium of 1,898 pages) appeared between 1883 and 1888. Clearly, the outer limits of data management were reached in the 1880 enumeration and any further extension of the census would require a new system for data processing.56 Herman Hollerith, a young engineer who had worked as a special agent in the 1880 Census, became interested in the problem and, after some experimentation, invented the punched card system for recording and tabulating the census returns. Hollerith's solution was as ingenious as it was simple. Hand-tallying of raw data was replaced by punching holes in cards whose columns corresponded to census data classifications. The cards, representing individuals or other units, were then counted electrically. Even in its earliest stage of development, the Hollerith system speeded tabulations to such an extent that its merits were demonstrable before the 1890 enumeration began.57 The advent of the new system had dual implications for the question of confidentiality. On the one hand, it removed the actual census return one step farther from the final statistical process. On the other hand, it made possible the collection of even more information on individuals. On balance, however, it is probable that the Hollerith system enhanced the anonymity, and thus the confidentiality,of census data, although technologically it was the forerunner of modern computer-based record keeping. The census act of 1890 followed closely the precedents set in 1880. The provisions for insuring confidentialty were similar with respect to the enumerator's oath and the penalties for unauthorized disclosure of personal data. However, the provision for depositing lists of individuals with the county courts was dropped. Instead, the Superintendent was authorized to disclose to "any municipal government," upon request, a list of names of its inhabitants, indicating "sex, age, birthplace, and color, or race." The enumerators were also instructed to check with the attending physician for the cause of death of persons reported in the mortality schedule.58 The census reform of 1880 did not include the establishment of a continuing census bureau and the arrangements for 1890 were equally impermanent. When Robert P. Porter was appointed Superintendent, in 1889, he had to seek out former census employees, and rescue schedules and instructions from bureaucratic oblivion. The lack of continuity, the haste in organizing for the enumeration, and the problems of patronage all made Porter's position difficult. Porter's own appointment was determined more by politics than by statistical experience. A journalist-editor, he was a vigorous protectionist and served on the Tariff Commission of 1882, and had worked on the 1880 Census; thus, his free-trade enemies kept up a barrage of criticism until his resignation in 1893.59 Congressional critics complained of slowness in completing the tabulations, a charge that had arisen after each previous enumeration, and threatened to close the Census Office in 1893. However, a series of enactment' extended its life and placed it under the direction of Carroll D. Wright, an able statistician, who was Commissioner of Labor. The status of the census as a bureaucratic orphan brought home to many the need for a permanent Census Bureau.60 The Census Bureau. 1902-29 The need for a continuing statistical organization was well-stated by De Bow in 1854: > Each census has taken care of itself. Every ten years some one at Washington > will enter the hall of a department, appoint fifty or a hundred persons under > him, who, perhaps, have never compiled a table before . . . .If any are > qualified it is no merit of the system .. ..In Washington, as soon as an > office acquires familiarity with statistics. . .it is disbanded, and even the > best qualified employee is suffered to depart.61 In the following decades, other voices raised the same complaint, but Congress did not really begin to act seriously in the matter until the census crisis of the nineties. Then the approaching enumeration of 1900 made it necessary to organize a census office before a permanent bureau could be created. Moreover, the organization of the new office preserved an old duality in census operations, the political and the statistical. The position of Director embodied the former, while the Assistant Director was to be "a practical, experienced statistician." Political influence in census jobs was not eliminated.62 The act of March 6, 1902 transformed the census unit into a permanent Office, headed by a Director under whom were four chief statisticians. Provision was made for fitting census personnel into the classified civil service. The statistical duties of the office were specified and the work was spread out across the intercensal period. This is not to say that the new office settled into an uneventful period of tranquility. On the contrary, the census was to be involved in years of struggles to define its role, fend off political influence, build its professional staff, and increase the scope of its activities .63 Just before the Census Office was established, a decision of the Circuit Court of the Southern District of New York gave belated sanction to the extensive work of the census. The reasoning of District Judge Edward B. Thomas was clearly Madisonian: > The functions vested in the national government authorize the obtainment of > the information . . .[in order to enact] laws adapted to the needs of the vast > and varied interests of the people, after acquiring detailed knowledge thereof > ....[The government has the right to] make the researches. . .[in order to > meet] its ever-widening obligations. . .to the welfare of its citizens and to > the world . . . .For the national government to know something, if not > everything, beyond the fact that the population of each state reaches a > certain limit, is apparent, when it is considered what is the dependence of > this population upon the intelligent actions of the general government. The court then cited the wide range of social and economic problems on which Congress must legislate, and concluded that > for these or similar purposes the government needs each item of information > demanded by the census act, and such information, when obtained, requires the > most careful study, to the end that the fulfillment of the governmental > function may be wise. 64 The case did not touch on the confidentiality of personal data; but confidentiality was the subject of Congressional action in the decades that followed. The act for the 1900 Census declared unauthorized disclosure of census data to be a misdemeanor punishable by a fine of up to $500.65 A decade later the punishment was increased: upon conviction a fine not to exceed $1,000, or imprisonment of up to 2 years, or both, could be imposed at the discretion of the court.66 The Act of March 3, 1919, providing for the fourteenth census, declared such disclosure to be a felony and a fine not to exceed $1,000, or imprisonment of up to 2 years, or both, was again authorized.67 When Congress enacted a comprehensive census law for the 1930 and subsequent censuses, it retained the penalty provision of the 1919 statute. The permanent act of June 18, 1929 also included a section that succinctly stated the safeguards for confidentiality instituted in the Bureau of the Census. Section 11 provided > That the information furnished under the provisions of this Act shall be used > only for the statistical purposes for which it is supplied. No publication > shall be made by the Census Office whereby the data furnished by any > particular establishment or individual can be identified, nor shall the > Director of the Census permit anyone other than the sworn employees of the > Census Office to examine the individual reports.68 During the same period (1900-1929), regulations about access to census records were established. Governors, municipal officers, and courts of record could obtain information from the schedules under the provisions of the various census acts. Private individuals, for "genealogical or other proper purposes," were allowed certain specific information, provided the information could not be used to the detriment of the person to whom it pertained. Free access to census data was limited to the records of the first nine enumerations.69 SUMMARY During the first century of census activity the expansion of statistical inquiry raised the issue of confidentiality. The protection of personal data provided for statistical purposes was instituted administratively, then by statute. Before 1850, population schedules were posted publicly in an effort to detect errors, but as early as 1820 assurances of confidentiality were given for economic information. From 1850 to 1870, administrative rules extended confidentiality to all census data, but it was not until 1880 that unauthorized disclosure of information about individuals was declared to be a misdemeanor. The penalties for violating confidentiality were gradually strengthened until, in 1919, unauthorized disclosure was declared a felony. Although it is not possible to weigh the importance of the protection of confidentiality in precise terms, it clearly seems to have been one factor that made it possible for the census to grow. Even given extensive support for the Madisonian viewpoint on the value of social statistics, the corollary guarantee of confidentiality has been needed. As late as 1929, Herbert Hoover, in his proclamation announcing the Census of 1930, felt called upon to reassure the populace: > The sole purpose of the Census is to secure general statistical information > regarding the population and resources of the country, and replies are > required from individuals only to permit the compilation of such general > statistics. No person can be harmed in any way by furnishing the information > required. The Census has nothing to do with taxation, with military or jury > service, with the compulsion of school attendance, with the regulation of > immigration, or with the enforcement of any national, state, or local law or > ordinance. There need be no fear that any disclosure will be made regarding > any individual person or his affairs. For the due protection of the rights and > interests of the persons furnishing information every employee of the Census > Bureau is prohibited under heavy penalty from disclosing any information which > may thus come to his khowledge.70 -------------------------------------------------------------------------------- *This paper was prepared for the Secretary's Advisory Committee on Automated Personal Data Systems. It is based in part on research supported by a grant from the American Philosophical Society whose aid is gratefully acknowledged. Professor Davis is with the Department of Sociology, Case Western Reserve University. 1 On the growth of the census, see: Carroll D. Wright and William C. Hunt, The History and Growth of the United States Census, Senate Document No. 194, 56th Congress, 1st Session, 1900, Serial 3856, and W. Stull Holt, The Bureau of the Census: Its History, Activities and Organization (Washington, D. C.: The Brookings Institution), 1929. See also Hyman Alterman, Counting People: The Census in History (New York: Harcourt, Brace & World), 1969, and Amy Herbert Scott, Census, U.S.A.: Fact Finding for the American People, 1790-1970 (New York: Seabury Press), 1968. 2Annals of Congress, 1, p. 1077. 3The schedule is reproduced in Dorothy Whitson, "1970, Year of the Nineteenth Decennial Census," Daughters of the American Revolution Magazine, Vol. CIV (1970), p. 245. 4Wright and Hunt, op. cit., p. 87. 5US. v.Moriarity, 106 Fed. 886(C.C.S.D.N.Y. 1901). 6Wright and Hunt, op. cit., pp. 926-927. 7Andrew A Lipscomb (Ed.), The Writings of Thomas Jefferson, Vol. VIII (Washington, D. C.: The Thomas Jefferson Memorial Association), 1905, p. 236. 8Tobias Lear, Circular to Marshals, March 5, 1790, in Papers of George Washington, Microfilm Edition, Series 2. 9Washington requested personal copies of the census returns, a move quite in keeping with his interest in the statistical study of Scotland by Sir John Sinclair. [Washington to Sinclair, March 15, 1793, in The Correspondence of the Right Honorable Sir John Sinclair, Bart., Vol. II (London: H. Colburn and R. Bentley), 1631, pp. 16-17. See also Franklin Knight (Ed.), Letters on Agriculture from His Excellency George Washington .. ..(Washington, D. C.: Franklin Knight), 1847.] Alexander Hamilton's interest in sound statistical data is shown in his research for his report on manufacturing. [Arthur H. Cole (Ed.), Industrial and Commercial Correspondence of Alexander Hamilton Anticipating His Report on Manufacturing (Chicago: A. W. Shaw Company), 1926.] Madison's own feelings come through in his lament to Jefferson about the truncated census bill: "It contained a schedule ascertaining the component classes of the Society, a kind of information extremely requisite to the Legislator, and much wanted for the science of Political Economy." [Letters and Other Writings of James Madison, Vol. I (Philadelphia, Pa.: L. B. Lippincott & Co.), 1865, p. 507.] 10 Wright and Hunt, op. cit., p. 19. 11Timothy Pickering, Circular to Marshals, April 30, 1800, in Pickering Papers, Massachusetts Historical Society. 12 Lipscomb, op. cit., III, p. 330. 13National Intelligencer, April 20, 1810. 14National Intelligencer, July 2, 1810. 15 Samuel L. Mitchill, "Views of the Manufactures in the United States," American Medical and Philosophical Register, Vol. 11 (1811-1812), p. 408; and Wright and Hunt, op. cit., p. 23. 16On the problems of economic statistics, see Meyer H. Fishbein, "Early Business Statistical Operations of the Federal Government," National Archives Accestions, No. 54, June 1958, pp. 1-29, and "The Censuses of Manufactures, 1810-1890," National Archives Accessions, No. 57, June 1963, pp. 1-20. 17Wright and Hunt, op. cit., pp. 26-27. 18Ibid., p. 136. 19Ibid. 20 Harry Best, Deafness and the Deaf in the United States (New York: The Macmillan Company), 1943. 21Wright and Hunt, op. cit., pp. 2E-32. Francis A. Walker's evaluation is on page 30. 22Hazard's Pennsylvania Register, Vol. V (1830), p. 352. 23"Statistical View of the Population of the United States from 1790 to 1830, Inclusive," Senate Executive Document No. 505, 23d Congress, 2d Session, 1835, Serial 252; "Documents Relating to the Manufactures in the United States," House Document No. 308, 22d Congress, 1st Session, 1833, Serials 222 and 223; and Frank Freidel, Francis Lieber: Nineteenth-Century Liberal (Baton Rouge: Louisiana State University Press), 1947, pp. 172-174. 24 Wright and Hunt, op. cit., p. 36. 25Ibid., P.145. 26 Ibid., p. 929. 27Andrew Jackson to Martin Van Buren, November 24, 1840, Papers of Martin Van Buren, Microfilm Edition; and James D. B. DeBow Statistical View of the United States.. Being a Compendium of the Seventh Census (Washington, D. C.: Beverley Tucker), 1854, p. 12, 28Proceedings proceedings of the New York Historical Society for the Year 1848 (New York: The Society), 1848. p. 45. 29Albert Deutsch, "The First U.S. Census of the Insane (1840) and Its Use as ProSlavery Propaganda," Bulletin of the History of Medicine, Vol. XV (1944), pp. 469-482; Leon F. Litwack, North of Slavery: The Negro in the Free States, 1790-1860 (Chicago: University of Chicago Press), 1961, pp. 40-46; and William Stanton, The Leopard's Spots: Scientific Attitudes Toward Race in America, 1815-59 (Chicago, Ill.: University of Chicago Press), 1%0, pp. 5866. 30See Robert C. Davis, "The Beginnings of American Social Research," in George H. Daniels (Ed.), Nineteenth-Century American Science: A Reappraisal (Evanston, Ill.: Northwestern University Press), 1972, pp. 152-178; Paul J. Fitz Patrick, "Statistical Societies in the United States in the Nineteenth Century," American Statistician, Vol. XI (December, 1957), pp. 13-21; John Koren (Ed.), The History of Statistics (New York: The Macmillan Company), 1918; Franklin H. Top (Ed.), The History of American Epidemiology (St. Louis: C. V. Mosby), 1952; and Luther L. Bernard and Jesse Bernard, Origins of American Sociology: The Social Science Movement in the United States (New York: Thomas Y. Crowell Company), 1943. 31Congressional Globe, 30th Congress, 2d Session, Vol. 18, p. 638. 32Davis, op. cit., pp. 163-166, and Wright and Hunt, op. cit., pp. 39-50. 33Wright and Hunt, op. cit., pp. 150-153, 227-229, 234-236, 312-314, and 646-649. 34Ibid., p.150. 35J. C. G. Kennedy to S. C. Miller. November 29, 1851, National Archives, Record Group 29, Census, Item 11 (Letterbook). 36J. C. G. Kennedy to William D. Cooke, September 26, 1851, loc. cit. 37T. H. Baird to George C. Whiting, May 22, 1855, National Archives, Record Group 48, Department of the Interior, Office of the Secretary, Patents and Miscellaneous Division, File 183. See also Baird to Whiting, March 23, 1855, loc. cit. 38 De Bow, op. cit., p. 12. 39Typed copy of clipping, New York Tribune, undated, enclosed in Annie E, K. Bidwell to Walter F. Willcox, June 30, 1917, in Walter F. Willcox Papers, Library of Congress. See also General William T. Sherman, Memoirs, Vol. II (New York: D. Appleton and Company), 1875, p. 31; David C. Mearns (Ed.), The Lincoln Papers, Vol. II (Garden City, L. I.: Doubleday), 1948, pp. 587-589; and Roy P. Basler (Ed.), The Collected Works of Abraham Lincoln, Vol. V (New Brunswick: Rutgers University Press), 1933, pp. 160-161. 40James Harlan to J. C. G. Kennedy, June 2, 1865; Kennedy to Harlan, June 3 and 8, 1865; Kennedy to Andrew Johnson, June 17 and 19, 1865, in Andrew Johnson Papers, Microfilm Edition. 41Mary L. Hinsdale (Ed.), Garfield-Hinsdale Letters (Amy Arbor: University of Michigan Press), 1949, pp. 146-147; Congressional Globe, 41 st Congress, 2d Session, Vol. 42, Part 2, p. 1147; James P. Munroe, A Life of Francis Amasa Walker (New York: Henry Holt and Company), 1923, p. 109: Theodore Clarke Smith, The Life and Letters of James Abram Garfield, Vol. II (New Haven: Yale University Press), 1925, pp. 794-795; and Francis Amasa Walker, "American Industry and the Census," Atlantic Monthly, Vol. XXIV (1869), pp. 689-701; "The Census Imbroglio," The Nation, February 24, 1870, p. 116. 42Wright and Hunt, op. cit., pp. 54-56 43Ibid., p. 156. 44 Ibid, p. 161. 45New York Times March 8, 1891; Francis A. Walker, Discussions in Economics and Statistics, Vol. II (New York: Henry Holt and Company), 1899, pp. 49-58; and Henry Gannett, "The Alleged Census Frauds in the South," International Review, Vol. X (1881), pp. 459-467. The total undercount is estimated at about 1,260,000 in U. S. Bureau of the Census, Historical Statistics of the United States, Colonial Times to 1957 (Washington, D. C.: U. S. Government Printing office), 1960, p. 12. For the problem of underenumeration, see Advisory Committee on Problems of Census Enumeration, Carole W. Parsons (Ed.), America's Uncounted People (Washington, D. C.: National Academy of Sciences National Research Council), 1972. 46Congressional Record, 45th Congress, 3d Session, Vol. 8, Put 2, p. 1049. 47Ibid., pp. 1534-1544, and David Lindsey, "Sunset" Cox: Irrepressible Democrat (Detroit, Mich.: Wayne State University Press), 1959, p. 190. 48Ibid.,Wright and Hunt, Ibid., pp. 155-166, 936-943. 49Ibid.,p, 65. 50Ibid., p. 937. 51Ibid., p. 938. 52Ibid., p. 231. 53Ibid., p. 942. 54Ibid., pp. 942-943. 55Gannett, op. cit.; Francis A. Walker, "The Eleventh Census of the United States," Quarterly Journal of Economics, Vol. II (1887-1888), pp. 135-161. 56Wright and Hunt, op. cit., pp.58-69. 57Leon F. Truesdell, The Development ofPunch Card Tabulation in the Bureau of the Census, 1890-1940 (Washington, D. C.: U.S. Government Printing Office), 1965, pp. 26-56. 58Wright and Hunt, op. cit., pp. 233 and 948. 59Holt, op. cit., pp. 27-31. 60Wright and Hunt, op. cit., pp. 69-76. 61De Bow, op. cit., p. 18. 62Holt, op. cit., pp. 31-34. 63Ibid., pp. 34-36 (for the period 1902-1930). 64U.S. v. Moriarity, 106 Fed. 886, 691, 692 (C.C.S.D.N.Y. 1901). See 14 Am Jur 2d, Census, for an excellent summary of the legal status of the census by Henry C. Land. 65Act of Match 3, 1899, ch. 419, aec. 21, 30 Stat. 1020. 66Act of March 3, 1909, ch. 2, sec. 22, 36 Stat. 8. 67Act of March 3, 1919, ch. 97, sec. 22, 40 Stat. 1299. 68Act of June 18, 1929, ch. 28, sec., 11, 46 Star. 25. 69Holt, op. cit., pp. 85-86. 7046 Stat. 3012. Proclamation by Herbert Hoover, November 22, 1929. CORRECTIONETICS: A BLUEPRINT FOR 1984 DANIEL H. LUFKIN* *Staff Consultant to the Committee The American Justice Institute of Sacramento, California, working under a grant from the National Institute of Mental Health, completed in 1972 a six volume report1 of a three-year study of "the utilization of advanced information system technology as a means of improving the correctional decision-making process." The aim of the study was to design a system to enable managers of correctional institutions to make completely objective decisions about the treatment and disposition of criminal offenders. The study was the work of the Institute's Correctional Decisions Information Project (CDIP), whose epigraph is inscribed on the second cover of Volume I of the report: > "TODAY AN INFORMATION SYSTEM HOLDS FOR CORRECTIONS THE SAME BREAKTHROUGH > POTENTIAL AS DID THE MICROSCOPE FOR BIOLOGICAL SCIENCES YESTERYEAR." It must in no way demean the dedicated and intelligent effort of the CDIP staff to point out that any project that aims to create an automated personal data system to monitor and control the popula tion of a prison efficiently necessarily creates a system with all the earmarks of the worst surveillance data bank any civil libertarian could imagine. CDIP has completed much of the work needed to reduce 1984 to practice. Simple substitutions of the words "governmental" for correctional2 and "citizen" for offender3 in the following excerpts from the CDIP report transforms serious and humane objectives for prisoners into a nightmare for citizens. (C)orrectional administrators ...must be able to ...determine the ability of each operational program to assist various types of offenders toward correctional goal attainment. Such an ability is totally dependent upon information. Thus, information is power to withstand irrational, unjustified onslaughts. Information is power to confirm constructive policy decisions. information is power to provide leadership for a rational approach to an improved correctional process. (Vol. 1, pp. 1-2). The Correctional Information System portrayed in these documents is for that breed of managers which strives for an increasingly effective efficient, and responsive approach to rational, humane control and reintegration of offenders. Vol. 1, p. 6) The recycling approach, or Correctionetic concept of successive approximations to desired goal attainment, is not limited to the management of corrections. It applies equally well to individual offenders as they strive to achieve their objectives on any of a number of dimensions of personal adjustments, e.g., vocational, marital, leisure time/social, or academic. (Vol. 1, p. 7) This type of decision-making assistance is possible for correctional managers as they perform the following basic functions which constitute the management process: > 1. Goal Definition > 2. Planning > 3. Operations Control > 4. Achievement Assessment > 5. Effectiveness Evaluation (Vol. 1, p. 8) The last paragraph betrays the weakness of the transformation: if we assume that the CDIP system could apply as well to a nation as to a prison, we are also assuming that "management" and "government" are interchangeable. In fact, however, the idea of the social contract, of authority derived from the consent of the governed (rather than from the managed), is precisely what differentiates a nation from a prison. Valuable as a more thorough exploration of that differentiation might be, we shall forego it here in order to concentrate on the practicalities of the CDIP approach in the context of a special micro-society into which the problems of citizens' rights and privacy do not immediately intrude. Nevertheless, the conditions of prisoners and of free citizens are not diametrically opposed: prison and 20th-century America are not the end points on any scale of social values. Prisoners do have rights and privacy just as ordinary citizens have restrictions and intrusions. Correctionetics includes data on an offender's religion and sexual practices, but none on the contents of his letters or his conversations with his lawyer. Correctionetics is thoroughly benevolent, and efficient benevolence is precisely the characteristic that seems to lie at the root of our suspicions of the computerized state. At the heart of Correctionetics is the capability for what CDIP calls demand reporting: the capability of producing from a generalized data base a report whose content and structure fit the needs of one particular decision. In such a system, the capability of generating routine reports with fixed content is implicit. In the correctional context, for example, the manager may request a report listing the total number and names of offenders in a particular institution who have been convicted of a certain crime, who have served their minimum sentence, are in a given range of age, and who have a particular occupation or skill. Such a report would simplify matching offenders eligible for release with known job possibilities outside. In the civil context, a demand request might be for a list of the blond males in their late thirties who drive blue Pontiacs with the last license digit of seven. The motive of the request is not the offer of a job, but rather the search for a bank robber. The capability of a data system to perform such a search clearly rests on two features: a comprehensive file of personal characteristics, and the logical ability to compare the file contents with the terms of the request. Both these capabilities are easy to build into a computer system; in theory there is no difficulty at all in setting up a system of considerable range and depth. Experience tells us, though, that real life consistently falls short of expectations. It is instructive to see how this universal principle operates on Correctionetics and to extrapolate that knowledge to the real world. Offender Data File The underlying operating unit of Correctionetics is the offender data file (ODF), a record of 369 different facts and opinions about the offender. When the CDIP study fast began, in July 1969, the ODF included only 200 data elements. Let us note for later reference that the number of data elements found to be needed nearly doubled in about two years of planning and experimental operation of the system. The ODF begins with the name (and aliases) of the offender, three identification numbers, his date and place of birth, his first year of State residence, his ethnic origin, and his religious preference. This much information, the offender identification block, requires 139 characters of file space as a minimum for each offender. (The average offender was found to have 2.6 aliases at 33 characters per alias, and some had as many as 12.) The ODF goes on to record the legal status, the offense history, the medical, dental, psychological, psychiatric, academic, vocational, and adjustment histories of the offender, details of his childhood, his family and its economic status, his work history in the institution, and his prospects for release and parole. The data are grouped into 17 blocks and occupy a minimum file space of 1134 characters, but the complete ODF would easily fit on a single page of typescript, since most of the information is entered in coded form. Coding data in order to conserve storage space and to make possible a logical search for a known data entity is characteristic of computer data processing. The extent to which the coding con ventions match the underlying structure of the data determines to a very great extent the ultimate power of the computer program to handle any but the simplest sorting tasks. The coding manual for building the ODF provides explicit codes for every coded data element. Since the computer's perception of the real world takes place only through the medium of the codes (outside of literal data such as names and the like), the structure of the codes and selection of the code elements must be made with the greatest care and foresight. In the experience of practically every organization that has developed a sizable computer data base, one of the greatest expenses in the operation comes in converting the data from conventional manual to encoded machineaccessible form. Conscientious, accurate coding demands well-trained, highly motivated clerks who can keep an extensive body of coding rules in mind and apply them quickly to an amorphous mass of real-world facts. In the CDIP work, the coding manual is a 200-page volume explaining every possible entry in the ODF. The scope and structure of the codes themselves have apparently never been tested by processing a large number of actual correctional records, although we shall later discuss a greatly restricted pilot program and its results. The coding manual shows the extent to which standardized codes for occupations, school subjects, diseases, and similar common data entities have already been adopted among independent but parallel data-processing organizations. Academic course codes are those of the California Department of Education, and include not only introduction to data processing (MXA) and computer techniques (MXB), but also a very full range of elementary and secondary school subjects. The vocational training codes are those used in Federal government job classifications. The Federal code is considerably edited to provide a fuller breakdown of skills important to prison operation: laundry workers (36x.xxx), farm workers (2xx.xxx), food workers (52x.xxx), mattress inspectors (780.687), and the like. (There is no code provision for locksmith.) Medical diagnosis and treatment is coded according to the American Medical Association's Standard Nomenclature of Diseases and Operations. The codes for voluntary and leisure time activities presumably reflect the choices available to actual inmates of the California correctional system. They include all the familiar sports plus some surprises, such as bicycle racing (103) and golf (111). Special interest groups include aviation (706) and transactional analysis (726). That an activity code for the classification of prisoners can hold surprises is a good indication that a similar code for the public at large would run to many times 200 pages. Data for Decision Making During the course of the CDIP study, two pilot programs were carried out to test the preliminary design of the system and to demonstrate the operation of the system before experienced correctional managers. The results of those programs are interesting as an indicator of the potentials and pitfalls we could expect to meet in a large-scale general system. In testing some of the preliminary design concepts of the system, CDIP planners identified the following factors in decision-making processes that use data in the way they can be provided by a largescale computerized system: * Decision makers say they need data concerning large numbers of variables. * Empirical - studies indicate that the decision-making process actually involves a small number of variables, six or eight at the most. * The structure of the decision-making process itself and the order of presentation of the data both affect the outcome. These and other more peripheral problems were tested in an experimental setting with data records of actual prisoners presented to experienced correctional officers in a simulation of computer operation. The officers decided on the disposition of three hypothetical cases: granting a minimum-security custody rating; granting a parole after a minimum sentence had been served; and revoking a parole after a borderline violation. The type of data, its order of selection, and its weight in the ultimate decision were all recorded. The detailed analysis of the experiment appears in Appendix D of the CDIP report; it is enough here to summarize the findings which would have broader applicability to a similar task in a citizen data bank. * The decision makers did in fact use an average of only eight pieces of data. There were a number of data items which were never looked at, even though they had been specifically requested in the data bank. * For the decision on custody rating and granting parole, the record of the offense itself was the first thing considered. For revoking parole, the offense was second. In general, purely factual data on the offender's history were used more than subjective data derived from evaluation of the offender by the correctional staff. * Deeper statistical analysis of the decision-making process revealed no underlying regularities in the way decisions were made, which regularities many data-processing specialists assume to exist. Data for Reports In the second pilot test, the capabilities of a computer program package much more restricted than the full, planned correctionetics system were demonstrated to meetings of senior correctional officers at their national conventions. A special 74-item ODF was prepared from the conventional records of 5756 offenders in a cross section of the institutions of the California Department of Corrections. It is worth noting that the project found it necessary to "embellish" (CDIP's word) the original data to make them conform to the requirements of the demonstration. In the first demonstration, at Palm Springs, a computer at Santa Monica was loaded with the data base and the demonstration programs. The terminal at Palm Springs was connected to the computer by telephone. The demonstration programs were relatively simple sorting routines which demonstrated how to generate a list of offenders to be released in the next month, and then searching the ODF for a qualified inmate to take over a clerk's job vacated by a releasee. After the prepared program application was demonstrated, the spectators were allowed to make up their own queries for the, data, although it is not clear from the report what these queries were or how well that part of the demonstration worked. The second demonstration of the same program package was held in Cincinnati. It is a keen comment on the computer specialist's faith in his charges that the CDIP staff took the precaution of punching all the query input on paper tape beforehand, so that a keyboard mistake-alas! all too common-would not upset the demonstration. The staff also took the precaution of punching the computer's output on paper tape beforehand and taking that tape with them to Cincinnati. There, the output could be fed into the teletype printer under the control of a foot-switch, thus simulating the action of a computer at the other end of the line without exposing the demonstration to the dangers of real-life computer operation. (It is also a tribute to the candor of the CDIP staff that they fully describe this ploy in their report.) The demonstration ended with a period of genuine computer operation over the link, during which the audience had an opportunity to try the system. Typical queries from the experienced correctional officers dealt with average time served by offenders in various classifications of confinement; profiles of offenders involved in escape attempts, juvenile commitment history of selected sets of adult offenders, and other similar sorting and listing tasks. Correctionetics as a Data Bank What does this report about Correctionetics, an automated personal data system designed for a prison society with few of the traditional concerns for privacy, have to tell us about computers and privacy in our own wider society? Are we looking at a worst-case microcosm, one from which we can no more extrapolate to our present civil society than we can from an anthill? Even as an antihill can teach us something about living beings in general, so can Correctionetics teach us something about the intrinsic limitations computerized personal data systems have, even in the absence of manifest safeguards for privacy. Let us look at some of the features of Correctionetics and compare them with roughly corresponding features of other personal data systems. Scope. First, and of fundamental importance, Correctionetics stores no more data on an individual prisoner than the manual system did. In point of fact, it stores less. When the records of the sample population were being prepared for the demonstrations, it was necessary to omit all but a tiny fraction of the material in the prisoners' record jackets, many of which were half afoot thick. The material omitted was that least suited to computer treatment; that is, anecdotal and narrative records, interview reports by psychologists, extracts from correspondence, and the like. It is this sort of intelligence record that is fundamentally unsuited for computer treatment, and which would have the greatest potential for harm to privacy if it were to enter the lightly protected files of a computer data bank. Costs. Second, Correctionetics seems to be so grossly uneconomical that there would be little incentive to adopt it in a full-scale way. As every business comptroller knows, it is almost impossible to price out a computer system before it goes into operation, and difficult enough even to measure the running operating costs. The CDIP report is reticent on costs, but we would estimate the storage and processor requirement for an offender population of 50,000 to be over 250,000,000 bytes (CDIP Table 5.4.2). Roughly corresponding commercial credit experience suggests a cost of about $80,000 per month to which staff and overhead costs would add about 50 percent to bring the total cost to about $120,000 per month. It is hard to see that the advantages of automated prison management on the scale suggested by CDIP would be defensible unless it could be carried as a partial load on some larger generalpurpose system. Impact on Decision Making. Third, the impact of Correctionetics on the actual process of prison management decision making does not seem to be all that striking. It is obvious that the computer has no difficulty in finding, for example, the average age of narcotics offenders in a particular institution, but one suspects that the warden could guess the figure closely enough for practical purposes with no aid at all. For particular tasks, such as matching parolees with job openings, the services of a computer are well defensible, but more economically carded out in a special-purpose system that only handles employment data and need not process the excess baggage of the rest of the offender data file merely to arrive at a job match. This illustrates a point that deserves emphasis again and again in designing data-processing systems: a system should be no larger than needed to do a particular task. Money spent to provide capacity for the possibility of data processing in the abstract, or merely to provide "management information" is like wagering at unknown odds. A management information program run once or twice a month on a computer system that otherwise earns its keep on accounting, payroll, and inventory yields impressive decorations for the board room and likely does no harm. But neither does it do enough good to deserve a dedicated computer system all to itself. Safeguards for Correctionetics Finally, we may look at Correctionetics as a test case for the application of safeguards. What effects would there be if Correctionetics gave offenders more control over information about themselves? In the Correctionetics system there is no provision for feedback from the data subjects. The prison management's goals are defined in terms of data measurements made through the system, and the system is then used as the means of bringing operations of the prison into conformity with those goals. If a data error creeps in from any source, the system can produce a false measurement or a false operation or both; without suitable feedback, the false measurement may well reinforce the false operation instead of correcting it. Let us look at an example as it might actually run through the Correctionetics system. Through a coding error, a prisoner's file is changed to show that he is an active homosexual. A status change report is automatically generated which removes him from a television repair course (forbidden to sexual offenders) and transfers him to a cell in a more secure block (because a profile of such offenders shows them to be, on the average, more aggressive than others). These two actions confirm the prisoner's suspicions about the prison administration and he fulfills their expectations by actually becoming sullen and aggressive, which behavior, in turn, generates another automatic transfer order to an "adjustment center." In this scenario, and in a hundred others we could imagine, an originally minor error in a record has snowballed into serious injustice. Giving the prisoner a right to know what information his file contains would have had the immediate effect of discovering the error, provided he realized that some change in that information had taken place. In this case, the change in training status would have been an obvious clue to him. A right to secure correction of the data would have stopped its propagating in the program and would have prevented or undone the subsequent actions the system made on the basis of the error. Thus, the possibility of feedback from the data subject to the data bank can act as a powerful brake on the freedom of an authority to take arbitrary action. It is obvious that this would have clear benefit for a person at the bottom of the heap, but we wish to point out that it also protects the authority taking action. If we make the assumption that administrative injustice will eventually come to light and be dealt with through the law, it is very much to the benefit of the warden, in our example, to insure that his decisions are based on the best data he can command. Rules to ensure that errors in personal data banks are discovered and corrected promptly will go far toward preventing abuse of even so stern a system as Correctionetics. Computerized Decision Making The deeper question of the actions that an automated system such as Correctionetics can take on the basis of even perfect data also deserves careful consideration. In our example from the actual program, a record as a sexual offender was automatically treated as sufficient cause to disqualify an innate from training as a television repairman. This is a simple decision to program, and one presumably based on an actual rule of the California Department of Corrections. In pre-automation practice, the application of such a rule would usually take place in a context such that knowledge of other factors in the offender's record would come to the attention of the training officer. He might give the rule only as much weight as he thought appropriate in the light of all the factors in an individual case, and could certainly at least take initiative to seek occasional exceptions from the rule. It is precisely that sort of personal initiative which seems to be the most strongly appreciated advantage of human over computerized administration. Although we have all experienced occasions in which a bureaucrat acted like a computer, we also recognize those occasions as the exceptions to our usual experience with human decision making. To be fair, it is possible in theory to program a computer to simulate human decision making. In practice, though, it is obvious from the Correctionetics experiment that we are far from attaining that end. 1Correctional Decisions Information Project, Correctionetics: Modular Approach to an Advanced Correctional Information System (Sacramento, Calif.: American Justice Institute), 1972. 2 Not italicized in original text. 3 Not italicized in original text. THE LAW RELATING TO HEW PERSONAL-DATA RECORD KEEPING Introduction The Federal law bearing on collection, storage, handling, dissemination, and other use of information about individuals (hereinafter often referred to as "personal information activities") is a large and varied assortment of statutes, regulations, Executive orders, and other directives. Little of this law applies generally to all agencies of the Federal government, and still less has general application to personal information activities of organizations outside the Federal government. This paper discusses the law that governs the behavior of the Department of Health, Education, and Welfare1 (hereinafter referred to as "the Department" or "HEW") and its grantees and contractors in the conduct of personal information activities. Three statutes of general application throughout the Federal government are discussed with special reference to their HEW effects: the Federal Reports Act, 44 U.S.C. 3501 et seq.; the so-called "Freedom of Information Act", 5 U.S.C. 552; and a criminal statute forbidding government officers and employees from making unauthorized disclosures of information. 18 U.S.C. 1905. This paper focuses on personal information and does not cover the law relating to trade secrets or commercial information. The statutory sources of authority relating to HEW's conduct of personal information activities may be categorized as follows: (1) broad authority to administer and manage HEW; (2) authority for HEW to carry out particular program activities, including research, whether conducted by HEW or by others with support from HEW; (3) authority for HEW information (or personal information) activities; (4) authority (sometimes by Executive order rather than by statute) which, though not directly conferring authority on HEW, gives rise indirectly to obligations' imposed on HEW, commonly along with other government departments, to obtain, provide, and/or report personal information for its own purposes or to other government departments or agencies (e.g., Civil Service Commission, Internal Revenue Service) to the Congress, or to the public. Except in category (3), these sources of authority generally make no explicit reference to information (or personal information) activities, but it is a reasonable and necessary interpretation of the authority to include such activities. Sources of authority for HEW's personal information activities are legion, resulting particularly from the necessity of interpreting such authority to exist in all statutes concerning program activities and research covered by category (2). This paper seeks to present a complete compilation of the sources of authority for HEW's personal information activities in categories (1), (3), and (4). With respect to category (2) it discusses only statutes that have special significance in relation to personal information activities or contain a provision relating specifically to personal information activity. It should be noted that in order to perform statutory program duties, it is often necessary to conduct personal information activities, particularly in programs that provide direct services to individuals, for example, the repatriation assistance programs of the Social and Rehabilitation Service, 24 U.S.C. 321-29, and section 1113 of the Social Security Act, 42 U.S.C. 1313. In addition, authorized research activities, for example in the health fields, frequently require extensive information about individuals. Examples of authority for the "conduct and support" of research activities include the statutes authorizing the research institutes of the National Institutes of Health. Public Health Service Act sections 402 (Cancer, 42 U.S.C. 282), 412 (Heart Diseases, 42 U.S.C. 287a), 422 (Dental Diseases, 42 U.S.C. 288a), 431 (Arthritis, Rheumatism, and Metabolic Diseases, Neurological Diseases and Stroke, and other particular diseases and groups of diseases, 42 U.S.C. 289a), 441 (Child Health and Human Development, 42 U.S.C. 289d), 442 (General Medical Sciences, 42 U.S.C. 289e), 451 (Eye Diseases and Visual Disorders, 42 U.S.C. 289i). Because the statutes deal sparingly with personal information activities, one must also turn to regulations that have been issued to implement statutes to get a fuller understanding of the authority that governs such activities. We have sought to identify and discuss the principal regulations that have operational significance for the conduct of personal information activities, including all that are Departmental in scope (i.e., apply to all operating agencies of the Department) and those that apply throughout a particular operating agency. Of regulations limited in application to a particular program or activity, we have attempted to include only those that contain specific provisions about personal information activities. Guidance as to HEW personal information activities appears also in program materials issued at the operating level which are more detailed than statutes or regulations but which may lack the force of law. The discussion of such materials in this paper is limited to a few examples. The law relating to personal information activities carried out in connection with HEW personnel administration is treated separately, because the legal requirements and operational considerations involved are distinctive. Authority to Collect Information GENERAL The Department was created by Reorganization Plan No. 1 of 1953 which became effective on April 11, 1953 (67 Stat. 18) and is recognized as an executive department in 5 U.S.C. 101. The Plan provides that the Department shall be administered under the supervision and direction of the Secretary. A general grant of power enables the Secretary to act as he finds necessary in order to carry out his responsibilities in the areas of health, welfare, social security, and education. An opinion of the Attorney General, discussing general Secretarial powers, emphasized that express statutory authority is not required for every administrative act. 28 Op. Atty. Gen. 549 (January 5, 1911). The Secretary's responsibilities are further defined in part in 5 U.S.C. 301 which states: > The head of an Executive department . . . may prescribe regulations for the > government of his department, the conduct of its employees, the distribution > and performance of its business, and the custody, use, and preservation of its > records, papers, and property. See also section 215(b) of the Public Health Service Act, 42 U.S.C. 216(b), setting forth similar authority to promulgate regulations for administration of the Public Health Service, including regulations relating to custody, use and preservation of records. In addition to the Secretary's general authority to manage the Department, there are numerous specific statutory provisions authorizing collection of information by HEW. The authority for the conduct of programs characteristically requires that HEW make periodic reports on the conduct and status of those programs. In addition, where HEW is authorized to contract with or grant money to States, localities, and private institutions for the conduct of programs, the legislation generally requires them to make periodic reports to the Department or its agencies. See, e.g., Elementary and Secondary Education Act, section 142(a) (3), 20 U.S.C. 241f(a) (3), (periodic reports to the Commissioner of Education evaluating effectiveness of Title I payments). EDUCATION Perhaps the broadest grant of authority for collection of information is the Organic Act of 1867, 14 Stat. 434, which established a "Department of Education" > . . . .for the purpose of collecting such statistics and facts as shall show > the condition and progress of education in the several States and Territories, > and of diffusing such information respecting the organization and management > of schools and school systems, and methods of teaching, as shall aid the > people of the United States in the establishment and maintenance of efficient > school systems, and otherwise promote the cause of education throughout the > country. See 20 U.S.C. 1. Under more recent education laws the Commissioner of Education is charged specifically with collecting and disseminating information. Section 422(a) of the General Education Provisions Act provides: > The Commissioner shall > > (1) prepare and disseminate to State and local educational agencies and > institutions information concerning applicable programs and cooperate with > other Federal officials who administer programs affecting education in > disseminating information concerning such programs; > > (2) inform the public on federally supported education programs; > > (3) collect data and information on applicable programs for the purpose of > obtaining objective measurements of the effectiveness of such programs in > achieving their purposes; and > > (4) prepare and publish an annual report (to be referred to as "the > Commissioner's annual report") on (A) the condition of education in the > nation, (B) developments in the administration, utilization, and impact of > applicable programs, (C) results of investigations and activities by the > Office of Education, and (D) such facts and recommendations as will serve the > purpose for which the Office of Education is established (as set forth in > section 403 of this Act). 20 U.S.C. 1231a(a). Other provisions relating to collection of information are found in section 417 of the General Education Provisions Act, 20 U.S.C. 1231f, and in section 501 of the Education Professions Development Act, 20 U.S.C. 1091. The former gives the Commissioner authority to furnish various information to, and to make special statistical compilations and surveys for, State or local officials, private organizations, or individuals. The latter provides for the development of "information on the actual needs for educational personnel, both present and long range." Although it seems clear that the foregoing provisions regarding information activities in the field of education do not contemplate the dissemination of identifiable personal information, such information may need to be collected in order to prepare the statistical compllation and analyses to be used or disseminated. HEALTH In defining the general powers and duties of the Secretary in the health area, section 301 of the Public Health Service Act states: > The Secretary shall conduct in the Service, and encourage, cooperate with, and > render assistance to other appropriate public authorities, scientific > institutions, and scientists in the conduct of, and promote the coordination > of, research, investigations, experiments, demonstrations, and studies > relating to the causes, diagnosis, treatment, control, and prevention of > physical and mental diseases and impairments of man, including water > purification, sewage treatment, and pollution of lakes and streams. In > carrying out the foregoing the Secretary is authorized to- > > (a) Collect and make available through publications and other appropriate > > means, information as to, and the practical application of, such research > > and other activities; 42 U.S.C. 241. Further authority to collect information in the health field is provided in section 305 of the Public Health Service Act which authorizes the National Health Surveys and Studies as follows: > (a) The Secretary is authorized, (1) to make, by sampling or other appropriate > means, surveys and special studies of the population of the United States to > determine the extent of illness and disability and related information such > as: (A) the number, age, sex, ability to work or engage in other activities, > and occupation or activities of persons afflicted with chronic or other > disease or injury or handicapping condition; (B) the type of disease or injury > or handicapping condition of each person so afflicted; (C) the length of time > that each such person has been prevented from carrying on his occupation or > activities; (D) the amounts and types of services received for or because of > such conditions; (E) the economic and other impacts of such conditions; (F) > health care resources; (G) environmental and social health hazards; and (H) > family formation, growth, and dissolution; and (2) in connection therewith, to > develop and test new or improved methods for obtaining current data on illness > and disability and related information . . . . 42 U.S.C. 242c. It should be noted that a provision was added to this paragraph by P.L. 91515 to protect the privacy of persons supplying such information. (See discussion at p. 279, below.) Section 317 of the Public Health Service Act, 42 U.S.C. 247b, authorizes support of communicable disease control programs, and calls for reports to the Secretary on communicable disease problems by grantees under the program. Section 315 of the Public Health Service Act, 42 U.S.C. 247, authorizes the issuance of information related to public health. . Section 313 of the Public Health Service Act, 42 U.S.C. 245, directs the Secretary to " . . . . prepare and distribute suitable and necessary forms for the collection and compilation of [mortality, morbidity, and vital statistics] which shall be published as a part of the health reports published by the Secretary." This section is authority for the operations of the National Center for Health Statistics of the Health Services and Mental Health Administration. In addition there are programs involving health services which involve the collection of personal information (e.g., operation of Public Health Service hospitals, Public Health Service Act § 321, 42 U.S.C. 248; narcotics addict care and treatment, Public Health Service Act § 341, 42 U.S.C. 257). The Secretary is authorized to "conduct examinations and investigations for the purposes of . . . [the Federal Food, Drug, and Cosmetic] Act . . . . " 21 U.S.C. 372. Under the Federal Coal Mine Health and Safety Act of 1969, 30 U.S.C. 801960, the Secretary has certain obligations with respect to the medical examination of coal miners. Under the Act, coal mine operators are obliged to provide miners with chest X-rays in accordance with instructions of the Secretary, and to provide the Secretary with the results of the readings of such X-rays. Under the Act, the Secretary is obliged to provide the results of such readings to the miners involved. Sec. 203(a), 30 U.S.C. 843. There is no statutory obligation of confidentiality, but the Secretary's regulations for the program require mine operators to give assurance that they will not "solicit a physician's roentgenographic findings" and that they have instructed the physicians that duplicate X-rays will not be made. 42 C.F.R. 37.4. WELFARE The authority of the Social Security Administration (SSA) to collect information is derived primarily from its duty to carry out its program responsibilities. In this regard, Title II of the Social Security Act, Federal OldAge, Survivors, and Disability Insurance Benefits (OASDI), provides in part as follows: > (a) The Secretary shall have full power and authority to make rules and > regulations and to establish procedures, not inconsistent with the provisions > of this title, which are necessary or appropriate to carry out such > provisions, and shall adopt reasonable and proper rules and regulations to > regulate and provide for the nature and extent of the proofs and evidence and > the method of taking and furnishing the same in order to establish the right > to benefits hereunder. Sec. 205(a); 42 U.S.C. 405(a). * * * * * * * * * * * * * * * * On the basis of information obtained by or submitted to the Secretary, and after such verifications therof as he deems necessary, the Secretary shall establish and maintain records of the amounts of wages paid to, and the amounts of self-employment income derived by, each individual and of the periods in which such wages were paid and such income was derived and, upon request, shall inform any individual or his survivor, or the legal representative of such individual or his estate, of the amounts of wages and self-employment income of such individual and the periods during which such wages were paid and such income was derived, as shown by such records at the time of such request. Sec. 205 (c)(2)(A); 42 U.S.C. 405 (c)(2). The Secretary is also authorized to obtain information for the purpose of any hearing, investigation or other proceeding authorized or directed under Title II of the Social Security Act or relative to any other matter within his jurisdiction thereunder, by use of the subpoena power if necessary. Sec. 205(d); 42 U.S.C. 405(d). Section 218(e) (1)(B) of the Social Security Act, 42 U.S.C. 418(e) (I)(B), authorizes the Secretary to issue regulations prescribing reports by States under agreements extending OASDI coverage to State and local government employees. Title XVIII of the Social Security Act, Health Insurance for the Aged (Medicare), authorizes the use of intermediaries and carriers for the administration of benefits and specifies that each contract shall provide that the intermediary or carrier shall furnish to the Secretary information it obtains in performing its functions and shall maintain records supporting such information § 1816(b)(2), 42 U.S.C. 1395h(b)(2), and § 1842(b)(3)(D) and (E), 42 U.S.C. 1395u(b)(3)(D) and (E). In addition, the Secretary is authorized to secure information "as may be necessary in the carrying out of his functions. . ." and directed to carry on studies relating to health care of the aged and to the operation and administration of the hospital and supplementary medical insurance programs for the aged. § § 1874 and 1875, 42 U.S.C. 1395kk and 139511. The collection of information by SSA is closely related to some Internal Revenue Service activities and there is interchange of information between the agencies. See 20 C.F.R. 401.3 (d). Internal Revenue Act provisions and the regulations thereunder provide that: > Every person liable for any tax imposed by this title, or for the collection > thereof, shall keep such records, render such statements, make such returns, > and comply with such rules and regulations as the Secretary [of the Treasury] > or his delegate may from time to time prescribe. Whenever in the judgment of > the Secretary or his delegate it is necessary, he may require any person, by > notice served upon such person or by regulations, to make such returns, render > such statements, or keep such records, as the Secretary or his delegate deems > sufficient to show whether or not such person is liable for tax under this > title. 26 U.S.C. 6001; Sec 26-C.F.R. 1.6001-1. > When required by regulations prescribed by the Secretary [of the Treasury] or > his delegate any person made liable for any tax imposed by this title, or for > the collection thereof, shall make a return or statement according to the > forms and regulations prescribed by the Secretary or his delegate. Every > person required to make a return or statement shall include therein the > information required by such forms or regulations. 26 U.S.C. 6011(a); See 26 > C.F.R. 1.6011-1. The Administration on Aging has the "duty and function" to > (1) serve as a clearinghouse for information related to problems of the aged > and aging; > > (4) develop plans, conduct, and arrange for research in the field of aging . . > . . > > (6) prepare, publish, and disseminate educational materials dealing with the > welfare of older persons; > > (7) gather statistics in the field of aging which other Federal agencies are > not collecting; .... Older Americans Act of 1965, § 202. There is also the requirement, similar to that under Titles I, IV, X, XIV, XVI and XIX of the Social Security Act (seep. 268, below), that a State agency administering a State plan program under the Older Americans Act will make reports to the Commissioner on Aging, " . . in such form and containing such information, as the Commissioner may from time to time require." Older Americans Act of 1965, § 305(a)(3). Information and reports authority also exists in the area of juvenile delinquency prevention and control. The Secretary is directed to "collect, evaluate, publish, and disseminate information and materials relating to research and programs and projects. . . " in the juvenile delinquency field. Juvenile Delinquency Prevention Act, § 303, 42 U.S.C. 3873. Provision is made for continuing evaluation of programs and activities under the Act, which evaluations "shall include comparisons with proper control groups composed of persons who have not participated in programs" under the Act. Title IV, §405, 42 U.S.C. 3885. The Act also requires an annual report to Congress on Juvenile delinquency activities including, among other things, > the number and types of training projects, number of persons trained and in > training, and job placement and other follow-up information on trainees and > former trainees . . . . Title IV, §409, 42 U.S.C. 3889. Each title of the Social Security Act authorizing a public assistance program contains a clause that the State plan for the program must > provide that the State agency will make such reports, in such form and > containing such information, as the Secretary may from time to time require, > and comply with such provisions as the Secretary may from time to time find > necessary to assure the correctness and verification of such reports; Title I, > Old Age Assistance and Medical Assistance for the Aged, § 2(a)(6), 42 U.S.C. > 302(a)(6); Title IV, Aid to Families with Dependent Children, § 402(a)(6), 42 > U.S.C. 602(a)(6); Title X, Aid to the Blind, § 1002(a)(6), 42 U.S.C. > 1202(a)(b); Title XIV, Aid to the Permanently and Totally Disabled, > §1402(a)(6), 42 U.S.C. 1202(a)(6); Title XVI, Aid to the Aged, Blind, or > Disabled, and Medical Assistance for the Aged, § 1602(a)(6), 42 U.S.C. > 1382(a)(6); Title XIX, Medical Assistance (Medicaid), § 1902(a)(6), 42 U.S.C. > 1396(a)(6). There is a specific reporting requirement in section 402(a)(21) of the Social Security Act, 42 U.S.C. 602(a)(21), that the States send to the Secretary the names and social security numbers of parents who have a court-ordered obligation to support AFDC recipients, but who cannot be found. Under § 410 of the Act, 42 U.S.C. 610, the Secretary is to consult the Secretary of the Treasury to see if such parents can be located through Internal Revenue Service files. Another authorization to collect information is found in the legislation establishing the Children's Bureau (a unit now placed in the Office of Child Development), which is charged with "investigating and reporting] to the Secretary . . . upon all matters pertaining to the welfare of children . . . . " Act of April 9, 1912, ch. 73 sec. 2, 37 Star. 79, 42 U.S.C. 192. OFFICE FOR CIVIL RIGHTS Executive Order 11246 (3 C.F.R. 342 (1964-65 Comp.), Sept. 24, 1965), which prohibited discrimination in employment practices by Federal contractors and subcontractors, provides that in every Government contract, in addition to the nondiscrimination clauses, the following clause shall be included: > (5) The contractor will furnish all information and reports required by > Executive Order No. 11246 of September 24, 1965, and by the rules, > regulations, and orders of the Secretary of Labor, or pursuant thereto, and > will permit access to his books, records, and accounts by the contracting > agency and the Secretary of Labor for purposes of investigation to ascertain > compliance with such rules, regulations, and orders. § 202. In HEW, compliance with the Executive order is handled by the Office for Civil Rights (OCR). The Executive order provides that > Each contracting agency shall be primarily responsible for obtaining > compliance with the rules, regulations, and orders of the Secretary of Labor > with respect to contracts entered into by such agency or its contractors. § > 205. In addition, a section of the regulations issued by the Secretary of Labor pursuant to the Executive order provides that > The head of each agency shall, subject to the prior approval of the Director > [of the Office of Federal Contract Compliance], establish a program and > promulgate procedures to carry out the agency's responsibilities for obtaining > compliance with the order and regulations and orders issued pursuant thereto. > 41 C.F.R. 60-1.6(b). The Director of the Office of Federal Contract Compliance is further authorized to redelegate authority given to him. Such redelegated authority "shall be exercised under [the Director's] general direction and control." 41 C.F.R. 60-1.46. One further provision upon which OCR jurisdiction is based contains the definition of "compliance agency": > . . . .the agency designated by the Director on a geographical, industry or > other basis to conduct compliance reviews and to undertake such other > responsibilities in connection with the administration of the order as the > Director may determine to be appropriate. 41 C.F.R. 60-1. 3(d). This section continues with guidelines for when no such designation is made. The Department of Labor regulations define the responsibilities of OCR for conducting compliance reviews, 41 C. F. R. 60-1.20, and complaint investigations. 41 C.F.R. 60-1.24 (b). The regulations also require such disclosure to OCR as is necessary to determine whether a contractor is complying with the Executive order. 41 C.F.R. 60-1.7 and 1.43. OCR activities also include monitoring compliance with Title VI of the Civil Rights Act of 1964 which prohibits discrimination in programs and activities receiving Federal financial assistance. Under Title VI, Department regulations provide for the submission of compliance information to the Department by recipients of financial assistance and for access by Department officials to such information as is necessary to ascertain compliance with the Act. 45 C.F.R. 80.6. The regulations also require periodic compliance reviews and investigations of specific complaints. 45 C.F.R. 80.7. Constraints on the Process of Collecting Information Superimposed upon the authority of HEW to collect information is the Federal Reports Act, 44 U.S.C. 3501-3511, passed originally in 1942 (56 Stat. 1078). Section 3509 states that "A Federal agency may not conduct or sponsor the collection of information upon identical items, from ten or more persons, other than Federal employees, unless, in advance of adoption or revision of any plans or forms to be used in the collection-" the Office of Management and Budget (OMB) approves the proposed collection of information. The stated purpose of this Act is to minimize both the burden upon those required to furnish information and the cost to the Government of collection. In addition, the Act provides for cooperation among agencies in sharing information. Provisions are included relating to unlawful disclosure and confidentiality of information. See p.p. 272-273, below. See generally OMB Circular No. A-40 Revised, May 3, 1973. The Act defines "information" as > facts obtained or solicited by the use of written report forms, application > forms, schedules, questionnaires, or other similar methods calling either for > answers to identical questions from ten or more persons other than agencies, > instrumentalities, or employees of the United States or for answers to > questions from agencies, instrumentalities, or employees of the United States > which are to be used for statistical compilations of general public interest. > 44 U.S.C. 3502. Under OMB instructions accompanying the report clearance request form (OMB Standard Form 83), one paragraph is specifically directed to whether sensitive questions may be included and, if so, in what form: > Additional justification must be provided for surveys which include questions > of a sensitive nature, such as sex behavior and attitudes, religious beliefs > and other matters which are commonly considered private. This should include > the reasons why the agency considers the questions necessary and the specific > uses to be made of the data obtained. The explanation to be given respondents > and any steps to be taken to secure their consent (except where response is > mandatory) should be stated. Describe extent of confidentiality and protection > provided against disclosure of information from individual returns, including > arrangements for disposition of completed report forms. Instructions, III, > A-7. Limitations on Storage, and Dissemination of Information Limitations on the storage, handling and dissemination of information collected by HEW are found in statutes, Depart mental regulations, Civil Service Commission regulations, manuals, policy statements, contract guidelines and miscellaneous memoranda The overall Federal government records management policy is set out in 44 U.S.C. 3101 which requires the head of each Federal agency to > ....make and preserve records containing adequate and proper documentation of > the organization, functions, policies, decisions, procedures, and essential > transactions of the agency and designed to furnish the information necessary > to protect the legal and financial rights of the Government and of persons > directly affected by the agency's activities. As mentioned in the previous discussion of the Federal Reports Act. (pp. 270-271, above) there is a section in that Act discussing when information collected under reports approved under the Act may be released. > (a) If information obtained in confidence by a Federal agency is released by > that agency to another Federal agency, all the provisions of law including > penalties which relate to the unlawful disclosure of information apply to the > officers and employees of the agency to which information is released to the > same extent and in the same manner as the provisions apply to the officers and > employees of the agency which originally obtained the information. The > officers and employees of the agency to which the information is released, in > addition, shall be subject to the same provisions of law, including penalties, > relating to the unlawful, disclosure of information as if the information had > been collected directly by that agency. > (b) Information obtained by a Federal agency from a person under this chapter > may be released to another Federal agency only- * (1) in the form of statistical totals or summaries; or * (2) if the information as supplied by persons to a Federal agency had not, at the time of collection, been declared by that agency or by a superior authority to be confidential; or * (3) when the persons supplying the information consent to the release of it to a second agency by the agency to which the information was originally supplied; or * (4) when the Federal agency to which another Federal agency releases the information has authority to collect the information itself and the authority is supported by legal provision for criminal penalties against persons failing to supply the information. 44 U.S.C. 3508. Superimposed upon all HEW information disclosure is the Public Information Act, 5 U.S.C. 552. This Act (usually known as the "Freedom of Information Act") establishes a formalized declaration of availability of records and information of all Government agencies. The policy of the Act as implemented in the HEW Public Information Regulation, 45 C.F.R. Part 5, is ". . .one of the fullest responsible disclosure limited only by the obligations of confidentiality and the administrative necessities recognized by the Act." 45 C.F.R. 5.12. The exemptions from this policy of disclosure which are stated in the Act are: > . . .matters that are > (1) specifically required by Executive order to be kept secret in the interest > of the national defense or foreign policy; > > (2) related solely to the internal personnel rules and practices of an agency; > > (3) specifically exempted from disclosure by statute; > > (4) trade secrets and commercial or financial information obtained from a > person and privileged or confidential; > > (5) inter-agency or intra-agency memorandums or letters which would not be > available by law to a party other than an agency in litigation with the > agency; > > (6) personnel and medical files and similar files the disclosure of which > would constitute a clearly unwarranted invasion of personal privacy; > > (7) investigatory files compiled for law enforcement purposes except to the > extent available by law to a party other than an agency; > > (8) contained in or related to examination, operating, or condition reports > prepared by, on behalf of, or for the use of an agency responsible for the > regulation or supervision of financial institutions; or > > (9) geological and geophysical information and data, including maps, > concerning wells. 5 U.S.C. 552 (b). The HEW Public Information Regulation provides the operating requirements for the Public Information Act. Whenever certain materials, such as final opinions in the adjudication of cases, which are required to be made available under the Act, relate to an individual, the name or other identifying details shall be removed and the materials shall so indicate, if release of such information would constitute a "clearly unwarranted invasion of privacy." 45 C.F.R. 5.16. The exemptions to required disclosure as set out in the Act are reiterated in the Regulation with amplification of their scope. 45 C.F.R. 5.70 et.seq. In addition, Appendix A of the Regulation provides examples of exempt materials. Proposed amendments to these regulations take account of experience with the regulations and court decisions. 38 Fed. Reg. 8273, May 30, 1973. An explicit statutory constraint on disclosure of information which is preserved by exemption (3) is found in section 1106(a) of the Social Security Act, 42 U.S.C. 1306(a), which prohibits disclosure of any personal information obtained by the Department in the course of administration of the Act except as specifically prescribed in regulations issued by the Secretary. (Criminal penalties are provided for violation of this provision.) There are two carefully delimited statutory exceptions from this general prohibition on disclosure of information obtained by HEW under the Social Security Act. The first is Section 1106(c) of the Act which requires the Secretary to furnish an individual's most recent address, or the address of the individual's most recent employer, to a court or a state or local public assistance agency where the individual is sought for purposes of a child support order. 42 U.S.C. 1306(c): See 20 C.F.R. 401.3(g) (3) and (4). The second, found in Section 290(c) of the Immigration and Nationality Act, provides for release of information regarding the identity and location of aliens to any official of the Department of Justice charged with the administration of Title II of that Act. 8 U.S.C. 1360(c). See 20 C.F.R. 401.3(p). Social Security Administration Regulation No. 1, 20 C.F.R. Part 401, issued under Section 1106 of the Social Security Act, specifies with respect to any information "which in any way relates to, or is necessary to, or is used in or in connection with, the administration of the old-age, survivors, disability, or health insurance programs conducted pursuant to Titles II and XVIII of the Social Security Act," what information may be disclosed, under what circumstances and to whom. (No regulation has been issued to prescribe permissible disclosure of any information obtained by HEW in the course of its administration of the public assistance programs of the Social Security Act, viz., under Titles I, IV, V, X, XI, XIV, XVI, and XIX. Hence, disclosure of such information is barred by Section 1106(a) of the Act.) The disclosures permitted by SSA Regulation No. I relate primarily to situations in which: the claimant or his representative gives authorization; disclosure is necessary for a social security program purpose; any official of the Treasury Department or the Department of Justice charged with administration of Titles II, VIII or IX of the Social Security Act, or certain contribution and revenue laws, needs information for the purpose of such administration; any Federal official charged with administration of public assistance, retirement or other benefit payment programs needs information for the purpose of such administration; any State or local agency official charged with administration of various Federally-aided public assistance programs needs information for the purpose of such administration; any authorized Federal official is engaged in investigation or prosecution of a criminal violation of the Act or certain contributions and revenue laws; and the Federal Bureau of Investigation or the U.S. Secret Service is engaged in investigation or prosecution of threat or act of espionage, sabotage or other similar act inimical to national security and certifies in writing that the information requested is required in an investigation of major importance to protect national security. The foregoing and certain other situations when information may be dis closed are specified in careful detail in the Regulation. 20 C.F.R. 401.3. A criminal statute of government-wide applicability provides criminal penalties for unauthorized disclosure of specified classes of information by government officers and employees. This statute states: > Whoever, being an officer or employee of the United States or of any > department or agency thereof, publishes, divulges, discloses, or makes known > in any manner or to any extent not authorized by law any information coming to > him in the course of his employment or official duties or by reason of any > examination or investigation made by, or return, report or record made to or > filed with, such department or agency or officer or employee thereof, which > information concerns or relates to the trade secrets, processes, operations, > style of work, or apparatus, or to the identity, confidential statistical > data, amount or source of any income, profits, losses, or expenditures of any > person, firm, partnership, corporation, or association; or permits any income > return or copy thereof or any book containing any abstract or particulars > thereof to be seen or examined by any person except as provided by law; shall > be fined not more than $1,000, or imprisoned not more than one year, or both; > and shall be removed from office or employment. 18 U.S.C. 1905. Its principal focus appears to be the protection of commercial secrets, but the reference to "identity. . .of any person" and "confidential statistical data" might provide some possibility of employing this statute in cases of unauthorized disclosure of personal data. In any case, however, it merely provides a criminal penalty for disclosing information "in any manner or to any extent not authorized by law." It does not of itself impose an obligation of nondisclosure and does not qualify as a statutory exemption from disclosure under exemption (3) of the Freedom of Information Act (p. 273 above). Constraints on Grantee Behavior In some instances HEW's program authority makes explicit statutory provision for the handling of personal information obtained by Law Relating to HEW Record Keeping 277 HEW grantees. For example, the Social Security Act requires that State plans for the programs of Old Age Assistance, Aid to the Blind, Aid to the Permanently and Totally. Disabled, Aid to the Aged, Blind or Disabled, and Medical Assistance for the Aged, pro vide safeguards which permit the use or disclosure of information concerning applicants or recipients only to public officials who re quire the information in connection with their official duties, or to other persons for purposes directly connected with, the administra tion of the plan. Social Security Act, § 2(a)(7), 42 U.S.C. 302(a)(7); § 1002(a)(9), 42 U.S.C. 1202(a)(9), § 1402(a)(9), 42 U.S.C. 1352(a)(9); § 1602(a)(7), 42 U.S.C. 1382(a)(7). State plans for Aid to Families with Dependent Children and for Medical Assistance must provide safeguards limiting use or disclosure of information to purposes directly connected with the administration of the plan. Social Security Act, § 402(a)(9), 42 U.S.C. 602(a)(9) and § 1902(a)(7), 42 U.S.C. 1396a(a)(7). All the Public Assistance programs of the Social Security Act had, until the Social Security Amendments of 1972 (P.L. 92-603, October 30, 1972) the same limitation on disclosure found in sections 402 and 1902. Those Amendments broadened the access for all the programs except AFDC and Medical Assistance, to permit public officials access to information about applicants and recipients. P.L. 92-603, § 413. The Amendments also provided the broader access in the new program of Grants to States for Services to the Aged, Blind, or Disabled, under a new Title VI which will go into effect on January 1, 1974. § 602(a)(6). The States' obligations with respect to information about recipients in the public assistance programs (other than Medical Assistance) are modified by § 618 of the Revenue Act of 1951, 42 U.S.C. 302 note, which allows States to have legislation allowing access to records of disbursement of public assistance funds as long as the legislation "prohibits the use of any list or names obtained through such access to such records for commercial or political purposes." HEW implementation of the requirements for safeguarding infor mation is found in 45 C.F.R. 205.50. This regulation is in the process of revision to take account of the 1972 amendments. The behavior of States in handling information in Public As sistance programs is further constrained by Department instructions on how the States may determine eligibility. Under 45 C.F.R. 206.10(a)(12), a State agency must get the applicant's consent before consulting records. about the applicant. Under a recent proposal (37 Fed. Reg. 28189, Dec. 21, 1972), States would have been permitted to consult public records (i.e., records of any public agency, whether or not available for public inspection), without seeking consent. A more recent proposal (38 Fed. Reg. 9819, April 20, 1973) would remove Federal restrictions on State behavior in this area by eliminating from 45 C.F.R. 206.10 any reference to consultation of records. If this proposal is adopted, the resulting flexibility would permit States to consult any records without seeking consent. Three grant programs in the health field carry their own specific restrictions on grantee handling of patient data. The Venereal Disease Prevention and Control Program under § 318 of the Public Health Service Act, 42 U.S.C. 247c, (added by P.L. 92-449) has a requirement that information about the examination, care, or treatment of any individual carried out under the grant program "shall not, without such individual's consent, be disclosed except as may be necessary to provide service to him . . . ." There is specific provision for disclosure of statistics, or for "clinical or research purposes" as long as the individual's identity is not disclosed. Two programs under Title XI of the Public Health Service Act provide grants for screening, counseling, and some treatment for X sickle cell anemia and Cooley's anemia, two genetic blood disorders. The applicants for the grants "shall-..,.(2) provide for strict confidentiality of all test results, medical records, and other information regarding screening, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) consents to be released, or (B) statistical data compiled without reference to the identity of any such patient. . ., § 1104(a)(2) and § I 113(a)(2) of the Public Health Service Act; 42 U.S.C. 300b-3(a)(2) and 300c-2(a)(2). The Social Security Amendments of 1972 added a new Part B to Title XI of the Social Security Act. This authorizes the Secretary to enter into agreements with organizations to review, from a technical and professional standpoint, the necessity and quality of medical services for which payment may be made under the Social Security Act. (This includes Medicare, Medicaid, and certain child health programs.) These organizations will be nonprofit associations of physicians, or other organizations found able to perform the task, and are designated Professional Standards Review Organizations. Certain obligations with respect to confidentiality are imposed by the statute. Under § 1155(a)(4), 42 U.S.C. 1320c-4(ax4), these organizations must arrange for the maintenance and review of > profiles of care and services received and provided with respect to patients, > utilizing to the greatest extent practicable in such patient profiles, methods > of coding which will provide maximum confidentiality as to patient identity > and assure objective evaluation consistent with the purposes of this part. There is a prohibition on disclosure of information in § 1166, 42 U.S.C. 1320c-15, which is somewhat similar to the one in § 1106. Under § 1166, data or information acquired by any Professional Standards Review Organization shall be held in confidence and not disclosed except as necessary to carry out the purposes of the program, or under "such circumstances as the Secretary shall by regulations provide to assure adequate protection of the rights and interests of patients, health care practitioners, or providers of health care." Fine, imprisonment, and the costs of prosecution are provided as penalties. Section 305(a) of the Public Health Service Act authorizing the Secretary to conduct the National Health Surveys and Studies, 42 U.S.C. 242C (pp. 263-264, above) includes the following constraint added by P.L. 91-515: > No information obtained in accordance with this paragraph may be used for any > purpose other than the statistical purposes for which it was supplied except > pursuant to regulations of the Secretary; nor may any such information be > published if the particular establishment or person supplying it is > identifiable except with the consent of such establishment or person. Explicit provision to authorize constraints on disclosure of personal information in research relating to drugs is found in § 303(a) of the Public Health Service Act, 42 U.S.C. 242a, as follows: > The Secretary may authorize persons engaged in research on the use and effect > of drugs to protect the privacy of individuals who are the subject of such > research by withholding from all persons not connected with the conduct of > such research the names or other identifying characteristics of such > individuals. Persons so authorized to protect the privacy of such individuals > may not be compelled in any Federal, State, or local civil, criminal, > administrative, legislative, or other proceedings to identify such > individuals. 42 U.S.C. 242a. Similar authority with respect to alcohol research is found in § 333 of the Comprehensive Alcohol Abuse and Alcoholism Prevention, Treatment, and Rehabilitation Act of 1970. 42 U.S.C. 4582. The Attorney General has similar authority with respect to drug research under § 502(c) of the Comprehensive Drug Abuse Prevention and Control Act of 1970, 21 U.S.C. 872(c). In these authorities, the authorization to hold data confidential may be given to anyone conducting the specified research; there is no requirement of Federal connection. The authorization with respect to drug research has been given to Federal employees not in HEW and to employees of an OEO-funded project with no HEW connection, 37 Fed. Reg. 21547, Oct. 12, 1972, and to employees of HEW contractors doing alcoholism research. 37 Fed. Reg. 28310, Dec. 22, 1972. Availability of Public Health Service records and information is governed by 42 C.F.R., Part 1. Clinical information as defined is confidential and is available "...only as necessary for the performance of the functions of the Service" or in certain limited instances, such as to a patient or his designee upon a reasonable showing of need; to a government agency which requested or arranged for examination, care or treatment service facilities; or to State or public health agencies "engaged in collecting data regarding disease." 42 C.F.R. 1.102. In addition, upon a court order, clinical information shall be disclosed in accordance with applicable local law regarding confidentiality of physician-patient communications. When non-clinical information has been obtained under an assurance of confidentiality, it may be disclosed only with the consent of the person or agency to whom the assurance was given or when the Secretary determines that disclosure is necessary to prevent "an epidemic or other grave danger to the public health" or in a legal action brought against the Government. 42 C.F.R. 1.103. The regulations contain additional limitations on release of records and information concerning actions of advisory councils; regulatory programs such as licensing of biological products; conduct of research projects; and applications for employment or Federal support. Six other regulations provide limitations on dissemination of information. 42 C.F.R 200.12 provides that State Plans for maternal and child health and crippled children's programs shall provide for designation of all personal information as confidential with suitable regulations and safeguards to be provided. However, information which does not identify particular individuals may be disclosed in summary or statistical form. , 42 C.F.R., Part 3 provides, among other conditions, that the Special Statistical Services of the National Center for Health Statistics may be furnished provided that "the data or statistics requested are not confidential." 42 C.F.R., Part 300 provides that the records of Saint Elizabeth's Hospital are confidential and may be disclosed only upon a court order or if the Superintendent determines that it would "not be inimical to the public interest or to the welfare of the patient." 42 C.F.R. 300.2. 21 C.F.R., Part 4 provides for procedures to be followed by persons desiring to obtain records and information of the Food and Drug Administration not specifically available under the Freedom of Information Act and the Department's implementing regulations. The Food and Drug Administration (FDA) regulation governing investigational new drugs and approved new drugs specifically provides that the identity of individual patients need not be divulged by a clinical investigator physician unless the records of particular subjects require a more detailed study by FDA personnel of the case history or unless there is reason to believe that the records do not represent actual cases studied or do not represent actual results obtained. 21 C.F.R. 130.3(a)(12), 130.3(a)(13), and 130.13(c). Disclosure of individual information obtained in the administration of the Social and Rehabilitation Service repatriation assistance program, authorized by Section 1113 of the Social Security Act, 42 U.S.C. 1313, is carefully constrained by regulation for the benefit of assisted individuals. 45 C.F.R. 212.9. Other Limitations In addition to the statutes and regulations discussed above, guidelines relating to disclosure of information exist in many other forms including manuals, circulars and instructions, policy statements, contract clauses, and assurances on data collection forms. Many of these develop and enlarge upon the policies and procedures which are prescribed in statutes and regulations. In other instances, these guidelines have been promulgated in the absence of any specific statutory or regulatory provisions. Examples of such guidelines are as follows. The National Center for Health Statistics (NCHS) has issued a comprehensive policy statement on release of data. Simply stated, this policy is one of "absolute and uncompromising protection of confidentiality. . .with respect to data supplied by respondents as privileged communications." Data are never to be released in a manner in which a respondent's identity is revealed, but rather only as aggregate statistics. Detailed procedures for handling particular classes of data or programs are provided. Furthermore, there are restrictions placed on the use of the statistics themselves so that there will be no misuse or misrepresentation. The NCHS requires a pledge in each contract that confidentiality of records will be maintained and that access to data will be strictly limited. A document signed by Surgeon General L.E. Burney on February 26,1957 and published in the Federal Register, 22 Fed. Reg. 1687 (March 15, 1957), underscores the guarantees. This is supplemented by another similar assurance published in May, 1959. 24 Fed. Reg. 4061 (May 20, 1959). Furthermore, most data collecting questionnaires carry a confidentiality assurance. All persons engaged in datacollecting activities with NCHS must also sign an affidavit guaranteeing nondisclosure. Health Services and Mental Health Administration Circular No. 71.1 entitled, "Assurances of Confidentiality Given in Obtaining Information" sets out the Public Health Service policy for the Health Services and Mental Health Administration (HSMHA) governing when such assurances shall be given, what form the assurance shall take and what the responsibilities are with respect to information collected subject to the assurance. In situations where information is collected and stored by third parties under contracts with HEW, generally either the contracts themselves or contract guidelines include confidentiality provisions. The Community Care Contract Agency Series, guidelines prepared by the Narcotic Addict Rehabilitation Branch of the National Institute of Mental Health, provide that the records maintained for each patient will be kept confidential and that release of information, other than to government program personnel and the Federal courts, will be permitted only with the patient's signed consent. Social Security Administration (SSA) contracts with intermediaries and carriers, e.g., Blue Cross, include clauses directing them to adopt policies and procedures to insure that information obtained in carrying out their functions under the Social Security Act shall be used and disclosed solely as provided in SSA Regulation No. 1 (p. 275, above). Furthermore, the contractors must agree to include in all subcontracts disclosure clauses identical to those in their own contracts. The Social Security Claims Manual, SSA's operating instructions for its employees, contains an entire chapter devoted to disclosure of information. See Ch. 7300. This chapter, is keyed to the regulations, 20 C.F.R., Part 401, and covers in rigorous detail, circumstances under which disclosure is allowed. The Social Security Handbook, which does not have the force of law, contains nine pages bearing directly upon the subject of what information SSA may or may not disclose under specified conditions and circumstances. Handbook, § § 141-153 and 1701. The Handbook was published to provide a detailed explanation of the social security program to the public and it does not reflect changes in the regulations since early 1968. A guide to policies governing the provision of special statistical information, records, and related materials created pursuant to Section 417 of the General Education Provisions Act, 20 U.S.C. 1231f (p. 262, above), was adopted by the Office of Education in March, 1972. 37 Fed. Reg. 6218 (March 25, 1972). The basic policy is "to make. . .collected statistical information available. . .as widely and promptly as possible" subject to certain constraints including nonviolation of confidentiality of data. Permanent Storage and Disposal of Information A comprehensive statutory scheme vests authority for management of Federal government records in the General Services Administration (GSA) including generally supervising each agency's record keeping, setting standards for selective retention of records, establishing centers for storage, processing and servicing of records, and finally, regulating and handling the ultimate disposal or permanent storage of all government records. 44 U.S.C. 2901-2910 and 44 U.S.C. 33013314. Records that contain information that is subject to confidentiality restrictions remain subject to such protection when transferred to GSA, as provided by a regulation that states: > Whenever any records that are transferred are subject to restrictions upon > their use, imposed pursuant to statute, Executive order, or agency > determination, such restrictions shall continue in effect after the transfer. > Restrictions imposed by agency determination may be removed by agreement > between the agencies concerned. 41 C.F.R. 101-11.409-8. Personnel Information Activities In addition to the authority to collect personnel information to fulfill general Departmental administrative responsibilities (pp. 260-261, above), there is a duty imposed upon the Department to collect personnel information to fulfill Civil Service Commission (CSC) requirements. Under the provisions of 5 U.S.C. 2951 and Executive Order 10577, HEW is required periodically to provide various personnel-related reports to the Civil Service Commission. Section 7.2 of Civil Service Rule VII provides that: > Each agency shall report to the Commission, in such manner and at such times > as the Commission may prescribe, such personnel information as it may request > relating to positions and officers and employees in the competitive service > and in the excepted service, whether permanent or career, careerconditional, > indefinite, temporary, emergency, or subject to contract. 5 C.F.R. 7.2. The data required for these reports are essentially those supplied on the CSC Standard Form 50, Notification of Personnel Action. That information consists of basic personal data (name, sex, birth date); basic employment data (grade, dates of entrance into service and of potential promotion, pay plan and occupation code, insurance codes, type of personnel actions taken); veteran preference code and handicap code. See Federal Personnel Manual, Chapter 291. Civil Service Commission regulations deal extensively with the maintenance of personnel records. The regulations require establishment of an Official Personnel Folder for each employee, 5 C.F.R. 293.202, which Folder is under the jurisdiction and control of and part of the records of the Civil Service Commission. 5 C.F.R. 293.203. In these Folders each agency is obliged to maintain reports of selection and other personnel actions as listed in 5 U.S.C. 2951 and also other records as required by Commission instructions. 5 C.F.R. 293.204. There is a provision relative to removal of records of only temporary value from the Folder. 5 C.F.R. 293.209. Another requirement for collection of information about Federal employees is found in 5 C.F.R. 713.302 which calls for periodic reporting of employment statistics by race and national origin. CSC regulations provide that data as to race or national origin may be collected only by visual identification. 5 C.F.R. 713.302(b). In addition, anyone having the authority to take or recommend personnel action in the competitive service is prohibited from making any inquiry concerning race, religion, or political affiliation of any employee in, or any eligible or applicant for, the competitive service. 5 C.F.R. 4.2. The disclosure of information collected for personnel purposes is limited by statutes and regulations as follows. The Freedom of Information Act specifically exempts from public disclosure matters > related solely to the internal personal rules and practices of an agency . . . > .[and] personnel and medical files and similar files the disclosure of which > would constitute a clearly unwarranted invasion of personal privacy. 5 U.S.C. > 552(b)(2) and (6). These sections are amplified in regulations of both the Civil Service Commission, 5 C.F.R. 294.103, and the Department, 45 C.F.R. 5.72 and 5.76 (p. 274, above). The general policy of the Civil Service Commission is to make information available unless disclosure would constitute a clearly unwarranted invasion of personal privacy or is otherwise prohibited by law. Medical information may not be made available without the individual's written consent, 5 C.F.R. 294.401, nor may informa- tion from annual and sick leave records, 5 C.F.R. 294.1101. Names, present and past positions, titles, grades, salaries and duty stations of government employees are publicly available, except when release of such information is prohibited by law or Executive order or when the information is sought for commercial or other solicitation or for political purposes. Employee's name, address, Social Security number, and amount of Federal compensation are furnished to State or local taxing authorities pursuant to Office of Management and Budget Circular No. A-38, Revised. In addition, limited information may be made available to prospective employers and home address shall be made available to a police or court official for the purpose of service of a summons, warrant, subpoena or other legal process. Approved educational and historical researchers may be granted limited access to information about separated employees which is stored with the General Services Administration; however, information that is derogatory to the former employee shall not be made available under this provision. 5 C.F.R. 294.702. With the exception of certain medical information, test material, and investigative reports, employees, former employees, and their representatives or other persons having their consent may have access to their Official Personnel Folders. Finally, Official Personnel Folders are, with limitations on material relating to loyalty and security, officially accessible to members of Congress, representatives of Congressional committees and subcommittees, government officials of the District of Columbia and Federal executive branch officials. 5 C.F.R. 294.703. Provision exists for limited disclosure to the parties concerned and to the public of information from administrative appeal and complaint files established for purposes of employee grievances and administrative appeals. 5 C.F.R. 294.801. Instructions, letters and bulletins are issued by the Civil Service Commission periodically to amplify, update, and reinforce the requirements provided in statutes and regulations. The instructions of the Civil Service Commission, found in the Federal Personal Manual (FPM), are issued under the authority of Executive Order 10561 and under the regulations discussed above. They apply to all executive departments and agencies. Chapter 290 of the FPM, added in 1969, is designed to guide agencies in the use of automated data processing in personnel administration. It discusses modifications of standard forms necessary or desirable when automated processing is used and also lists data elements necessary to meet reporting requirements, FPM, Ch. 290, Appendix A, and-mandatory and optional data elements when an automated system is used. FPM, Ch. 290, Appendix B. -------------------------------------------------------------------------------- 1The Department comprises a number of organizational components through which its operational programs and activities are carried out, viz.: the Public Health Service (PHS), consisting of the Food and Drug Administration (FDA), the Health Services and Mental Health Administration (HSMHA) and the National Institutes of Health (NIH); the Education Division, consisting of the National Institute of Education (NIE) and the Office of Education (OE); the Social and Rehabilitation Service (SRS); the Social Security Administration (SSA); and the Office of the Secretary (OS), consisting in put of the Office for Civil Rights (OCR), and the Office of Human Development, which includes the Administration on Aging (AOA), the Office of Child Development (OCD), and the Office of Youth Development (OYD). (Effective July 1, 1973, the operating agency constituents of the Public Health Service will be reorganized to consist of the Food Drug Administration, the Center for Disease Control, the Health Resources Administration, the Health Services Administration, and the National Institutes of Health.) 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Assistant Secretary for Planning and Evaluation, Room 415F U.S. Department of Health and Human Services 200 Independence Avenue, SW Washington, D.C. 20201 +1 202.690.7858