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  <span class="NetscapeFix"><textarea cols="19" rows="15" name="manuallyScrollingText" id="manuallyScrollingText" readonly="readonly" wrap="off">A &amp; H Mfg 

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Anonymous 
$50.00
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Joel Hankins 

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Faith Scheffer 
$25.00
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Anonymous 
$25.00
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Diane V Smith 

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Susan Stern 

----------
Tandi 
$20.00
----------
Anonymous 
$10.00
----------
Cassie 
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----------
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SUSAN'S PAGE

2024 W. Carolinas - Charlotte Spring Xtreme Hike

Learn more about this event.


FUNDRAISING PROGRESS

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$315
Donate to Me

RAISED: $315

GOAL: $3,000


MY XTREME HIKE STORY

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Prev Next
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 1. 

FROM MY SON ADAM:

"Last year I wrote a blurb for my Mom’s Xtreme hike page about finding my
purpose in life as a husband to my wife Sarah, who has CF. As with any, 2023 was
another crazy year. At the beginning of the year we decided to sell our first
home (which we poured our hearts into renovating) and build our dream home.
Shortly after making this decision and putting our house on the market, Sarah
became very sick and a trip to the ER confirmed it was kidney stones. Before
that, we had gone 3 years without a sick hospital visit, a true miracle we owe
to Trikafta. She had surgery the next day to place a stent that stayed in for
several months until they could do surgery to remove the stones in May. Due to
complications with the removal surgery she had three back to back surgeries that
week but they were finally able to remove them. Her recovery was quick and by
the next week we were celebrating. In August, I ended up in the ER with
breathing issues. Being on the other side of the hospital room was a new
experience for Sarah (and me)! We closed on our dream home in November.

As we mark another milestone we never could have imagined making, we always take
a moment to be thankful for all of the family and support that we're blessed
with to make this all possible. And especially for the second life that Trikafta
has given Sarah. The next and biggest milestone for us, but one that gives us
pause, is having kids. Up until the last few years it wasn't something we even
gave a thought to, but we both want kids without a doubt. Everyone says "you're
never ready to have kids, there's not a perfect time" but with the added
responsibility of daily meds, keeping up with lung function, medical bills, and
work, it's not a decision we'll make lightly. For us the strong possibility of
having a child with CF doesn't deter us from having kids, it just means we need
to be extra prepared when we do. We're firm believers that God will provide for
us and gives his biggest battles to his strongest warriors.

We're truly grateful for everything the Cystic Fibrosis Foundation, the Xtreme
hike, all of those hiking, and everyone who has supported them each year have
done in finding a cure for CF and allowing us to continue dreaming and shooting
for the stars. #untilitsdone 


COMMENTS




MY ACHIEVEMENTS

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MY ACTIVITY

I've Achieved
24.69 miles
My Goal Is
265 miles


HIKE WITH ME!

Join My Team Visit My Team Page Register for This Hike
Fundraising Honor Roll

A & H Mfg


Anonymous
$50.00

Joel Hankins





Fundraising Honor Roll

A & H Mfg ---------- Anonymous $50.00 ---------- Joel Hankins ---------- Faith
Scheffer $25.00 ---------- Anonymous $25.00 ---------- Diane V Smith ----------
Susan Stern ---------- Tandi $20.00 ---------- Anonymous $10.00 ----------
Cassie $10.00 ----------

[Stop] [Start]


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