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HOW "MONKEYPOX" AND OTHER DISEASE NAMES HAVE CAUSED CONTROVERSY

Emilia Ruzicka on Oct 3, 2022

Published in Slideshow World


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HOW "MONKEYPOX" AND OTHER DISEASE NAMES HAVE CAUSED CONTROVERSY

Naming diseases is a complicated business. To be useful, a name needs to be
unique, descriptive, and memorable so it can be referenced easily, especially
when medical situations become urgent. Though the easiest way to name illnesses
may be just to give them identification numbers, that system becomes
extraordinarily difficult to reference efficiently when time is of the essence. 

It may seem intuitive to name diseases based on their origins or discovery
locations; however, this approach also presents issues. As our world
increasingly boasts a global citizenry, illnesses—and their names—can be spread
across various cultures, making it essential to be sensitive to and inclusive of
all who may encounter them.

In light of recent conversations about disease nomenclature, Stacker
investigated how "monkeypox" and other disease names have caused controversy,
using a collection of news, scientific, and government sources. While this is
not an all-inclusive list of the issues surrounding the naming of  diseases, it
explores several fraught means by which illnesses are given nomenclature that
becomes shorthand for public discussion.

Visit thestacker.com for similar lists and stories.

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DISEASE NAMES TIED TO GEOGRAPHIC LOCATIONS

Naming illnesses based on where they were presumed to have originated was a
common practice for decades. The "Spanish flu" from the early 1900s is just one
of many toponymous diseases that earned its name based on a physical place.
However, in 2015, the World Health Organization released new guidelines that
advised against this practice. When an illness becomes irrevocably tied to a
place, people from that place often face discrimination or violence—even if the
illness is later proven to have come from someplace different. 

One recent example of a toponymous disease causing backlash occurred at the
beginning of the COVID-19 pandemic in 2020, when some people, including
then-President Donald Trump, referred to the novel coronavirus as the "Wuhan
flu" or the "Chinese virus." Many experts and medical professionals spoke up,
stating that the monikers were xenophobic and prompted anti-Asian hate.

Other diseases named after places include the Zika virus, named after the Zika
Forest in Uganda; Marburg virus, named after Marburg, Germany, where more than
30 cases of the illness were recorded; and Middle East respiratory syndrome,
named after being first found in Saudi Arabia.

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DISEASE NAMES CONNECTED TO AN ANIMAL SPECIES

The list of diseases named after animal species is long and includes monkeypox,
swine flu, and mad cow disease, among others. Though it may seem harmless to
name an illness using its presumed species of origin or a carrier species, WHO
guidelines also warn against this practice. In the wake of swine flu (also known
as H1N1) outbreaks in other countries in 2009, Egypt ordered the slaughter of
all pig livestock in the country despite not having any cases, resulting in the
killing of about 300,000 animals.

Most recently, the name "monkeypox" has incited people to attack primates in
zoos and their natural habitats out of fear of contracting the virus. WHO
officials have attempted to redirect disease prevention efforts to focus on
human-to-human transmission, but the prevalence of the "monkeypox" name isn't
helping the cause. In addition, 29 experts wrote an article in August 2022
calling for the term "monkeypox" to be changed due to its racist connotations
against Black people and people of African descent.

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DISEASE NAMES THAT INCLUDE THE NAME OF AN INDIVIDUAL PERSON

It's not unusual for scientists to name their discoveries after themselves:
Halley's Comet, Verreaux's sifaka, and Avogadro's number are just a few
examples. But when it comes to physical illnesses, the politics of having an
individual's name in the disease name becomes tricky. One such disease the WHO
specifically named in its updated naming guidance is Creutzfeldt-Jakob disease,
first described by neurologists Hans Gerhard Creutzfeldt and Alfons Maria Jakob
but named by a third neurologist, Walther Spielmeyer.

Names in this category are discouraged because they are not descriptive;
however, the situation can be further complicated when the condition is named
after a controversial figure. This is the case for Asperger's syndrome, which is
no longer an official diagnosis by the American Psychiatric Association as of
2013. Hans Asperger was a Nazi scientist during the Second World War and was
responsible for the deaths of dozens of children; however, his dark story was
not revealed publicly for many years after the diagnosis became common. The
physical and mental conditions initially associated with Asperger's syndrome are
now classified under the diagnosis of autism. However, laypeople still use the
name despite its removal from official medical practices.

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DISEASE NAMES THAT REFER TO A GROUP OF PEOPLE

At the beginning of the HIV/AIDS epidemic, and before the virus had been studied
in-depth, it was called "gay-related immunodeficiency" because of its prevalence
among homosexual men. At the time, it was assumed that sexual orientation had to
be a causal agent of the disease. Though it is now known that HIV is not caused
by sexual orientation but is transmitted by sexual contact or contact with
infected blood, homophobia still lingers around the disease, serving as a
warning for future disease names to mitigate discrimination caused by
nomenclature.

Beyond HIV, controversy ensued during outbreaks of H1N1, or swine flu, in
Israel. Because Israel has large Jewish and Muslim populations, many of its
citizens took offense to the reference to pigs in the flu's name because pigs
are neither kosher nor halal. As a result, Israel's deputy health minister
announced that the illness would instead be called "Mexican flu," based on the
finding that the first human H1N1 patient was Mexican. This caused the Mexican
ambassador to Israel to launch an official complaint against the Israeli
government, ultimately resulting in Israel's acceptance of the term "swine flu"
after all.

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