map.1rbw.org Open in urlscan Pro
104.207.254.35  Public Scan

Form analysis
0 forms found in the DOM

Text Content

ONE RETINOBLASTOMA WORLD

Retinoblastoma is an aggressive eye cancer that affects 8,000 new babies and
children worldwide each year. Early detection and coordinated, evidence-based
care at expert treatment centers are key to saving lives and vision.




FIND A TREATMENT CENTER NEAR YOU

i


OR GO DIRECTLY TO THE MAP

i

Please be patient while the map loads (100%) ...




ONE RETINOBLASTOMA WORLD

Map is currently undergoing updates
to be launched in the first quarter of 2024. Early detection of retinoblastoma
and coordinated, evidence-based care
at expert treatment centers are key to saving lives and vision. Learn more »


FIND A LOCATION

i










Esri, Garmin, NGA, USGS | Earthstar Geographics | Esri, FAO, NOAA | Esri |
 





Zoomen auf


0
200
400km


MAP LEGENDABOUT THIS MAP »


RETINOBLASTOMA PREVALENCE*



1-50 patients



51-100 patients



101-500 patients

501-1,000 patients



1,001-1,500 patients



1,501+ patients



* based on incidence of 1 in 16,000 live births1

Source
1Kivela, T. The epidemiological challenge of the most frequent eye cancer:
retinoblastoma, an issue of birth and death. Br J Ophthalmol 93, 1129-31 (2009)


WORLD BANK INCOME LEVEL**



low income

middle income



** high income countries have no pattern




RETINOBLASTOMA TREATMENT CENTERS


GENETIC TESTING LABS


STORIES






FACILITIES

$0

$0

$0


COUNTRY INFORMATION

-- region -- Africa Americas Asia Europe Oceania -- country
--AfghanistanAlandAlbaniaAlgeriaAmerican
SamoaAndorraAngolaAnguillaAntarcticaAntigua and
BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBosnia
and HerzegovinaBotswanaBrazilBritish Indian Ocean TerritoryBritish Virgin
IslandsBruneiBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman
IslandsCentral African RepublicChadChileChinaClipperton
IslandColombiaComorosCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzech
RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican
RepublicEast TimorEcuadorEgyptEl SalvadorEquatorial
GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFederated States of
MicronesiaFijiFinlandFranceFrench PolynesiaFrench Southern and Antarctic
LandsGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuamGuatemalaGuernseyGuineaGuinea
BissauGuyanaHaitiHeard Island and McDonald IslandsHondurasHong Kong
S.A.R.HungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyIvory
CoastJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKosovoKuwaitKyrgyzstanLaosLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacao
S.A.RMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall
IslandsMauritaniaMauritiusMexicoMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew
CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorthern
Mariana IslandsNorwayOmanPakistanPalauPalestinePanamaPapua New
GuineaParaguayPeruPhilippinesPitcairn IslandsPolandPortugalPuerto
RicoQatarRepublic of CongoRepublic of SerbiaRomaniaRussiaRwandaSaint
BarthelemySaint HelenaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre
and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and
PrincipeSaudi ArabiaSenegalSeychellesSierra LeoneSingaporeSint
MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and South
Sandwich IslandsSouth KoreaSouth SudanSpainSri
LankaSudanSurinameSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanThailandThe
BahamasTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks and Caicos
IslandsTuvaluUgandaUkraineUnited Arab EmiratesUnited KingdomUnited Republic of
TanzaniaUnited States Minor Outlying IslandsUnited States Virgin IslandsUnited
States of AmericaUruguayUzbekistanVanuatuVaticanVenezuelaVietnamWallis and
FutunaWestern SaharaYemenZambiaZimbabwe

Explore information about different countries by using the menus above.


TREATMENT CENTER INFORMATION

-- country
--AfghanistanArgentinaAustraliaAustriaBelgiumBotswanaBrazilBurundiCanadaChileChinaColombiaCosta
RicaCubaCzech RepublicDemocratic Republic of the
CongoDenmarkEgyptEstoniaEthiopiaFinlandFranceGambiaGermanyGhanaGuatemalaHondurasHong
Kong S.A.R.HungaryIndiaIndonesiaIranIrelandIsraelItalyIvory
CoastJapanJordanKenyaLebanonMalawiMalaysiaMaliMexicoMoroccoMyanmarNepalNetherlandsNew
ZealandNicaraguaNigeriaPakistanPalestinePeruPhilippinesPolandPortugalRepublic of
SerbiaRussiaRwandaSaudi ArabiaSingaporeSlovakiaSouth AfricaSouth
KoreaSpainSwedenSwitzerlandThailandTurkeyUgandaUkraineUnited KingdomUnited
Republic of TanzaniaUnited States of AmericaVenezuelaVietnamYemenZambia

Explore information about retinoblastoma treatment centers in a particular
location by using the menus above.


WORLDWIDE DISTRIBUTION


PREVALENCE BY WORLD BANK LEVEL




Low income



Middle income



High income




CENTERS BY WORLD BANK LEVEL




Low income



Middle income



High income




ADVANCED MAP FILTERS

Show only retinoblastoma treatment centers that offer the following treatment
types:


EXAMINATION UNDER ANAESTHESIA


IMAGING


ENUCLEATION


FOCAL THERAPY


CHEMOTHERAPY


RADIOTHERAPY


RADIOLOGY




GENETIC TESTING AVAILABLE


DEMOGRAPHICS

Explore health related variables by using the global map layers below. To remove
demographic information and return to the map view showing retinoblastoma
prevalence, uncheck any checked boxes below.


GLOBAL DEMOGRAPHICS


Adjust Color Intensity


Show all countries on map »

Human Development Index



Poverty Headcount



Maternal Mortality Ratio



Births Attended by Skilled Health Personnel



Antenatal Care Coverage



Cancer Control Policy



Physician Density




CONTRIBUTE DATA TO THIS MAP

If you have information you would like to submit about a treatment center, a
genetic testing laboratory, or a story not currently represented on this map,
please contact us by clicking on the link below.

Contact Us




CONTACT US





HOW TO DONATE




HELP US ACHIEVE EQUAL AND OPTIMAL CARE FOR ALL CHILDREN WITH RETINOBLASTOMA

Website operating costs are funded by private donors. Your tax-deductible
donation will help us sustain the One Retinoblastoma World Map.

The One Retinoblastoma World Map was created by Dr. Helen Dimaras (Director of
Global Eye Health Research, The Hospital for Sick Children).

Donations from Canada can be made online to the SickKids Foundation by clicking
the button below, or by calling +1-416-813-6166. Donations from outside of
Canada can be coordinated by calling +1-416-813-1211. When processing donations
please specify that funds are for Dr. Helen Dimaras' One Retinoblastoma
World Map.

Donate Now








« Close


ABOUT RETINOBLASTOMA




WHAT IS RETINOBLASTOMA?

Retinoblastoma is an aggressive eye cancer that develops in early infancy and
childhood.




HOW COMMON IS RETINOBLASTOMA?

The incidence of retinoblastoma is constant worldwide at one case per 16,000 –
18,000 live births. This corresponds to about 8,000 new cases every year.




HOW IS RETINOBLASTOMA DETECTED?

Often the first sign of retinoblastoma is a white pupil, similar to a cat's eye
(also called "leukocoria"). The white pupil is often seen on flash photography
or under dim lighting, when the pupil dilates naturally. Other signs of
retinoblastoma may include an inward- or outward-turning eye (strabismus), or a
swollen, bulging eye (proptosis). Urgent referral to an eye doctor is
recommended for a child exhibiting these signs.




HOW IS RETINOBLASTOMA TREATED?

Retinoblastoma treatment is multidisciplinary, requiring management by a
dedicated team with expertise in eyes, cancer, genetics, and nursing, among
others. Treatment depends on the severity of disease at diagnosis, and may
involve the use of several different techniques and methods. Guidelines for
treatment of retinoblastoma have been published in Canada and Kenya. Guidelines
for the management of retinoblastoma in countries with limited resources have
also been developed.




IS RETINOBLASTOMA CURABLE?

Retinoblastoma can be cured if diagnosed early and the cancer is confined within
the eye. However, potentially effective therapies are not accessed in many
countries, because of poor retinoblastoma awareness, unaffordable costs (e.g.,
medicine or transport and accommodation), and lack of health care coordination.
As a result, survival rates vary from country to country.


ABOUT ONE RETINOBLASTOMA WORLD




WHAT IS ONE RETINOBLASTOMA WORLD?

One Retinoblastoma World is a global network with the bold idea that all
children with retinoblastoma can have equal opportunity to optimal
retinoblastoma care. Through global collaboration and research, we will foster
optimal, coordinated, evidence-based retinoblastoma care. We aim to make
retinoblastoma a zero-death disease.




HOW CAN I SUPPORT THE ONE RETINOBLASTOMA WORLD MAP?

We welcome all feedback about the One Retinoblastoma World Map, including
information about missing retinoblastoma treatment centers and genetic testing
labs. To contribute information to the map, please see the section below called,
"How do I add information to this map?"

Help Us Achieve Equal and Optimal Care for all Children with Retinoblastoma:
Donate Now Website operating costs are funded by private donors. Your
tax-deductible donation will help us sustain the One Retinoblastoma World Map.

The One Retinoblastoma World Map was created by Dr. Helen Dimaras (Director of
Global Eye Health Research, The Hospital for Sick Children).

Donations from Canada can be made online to the SickKids Foundation or by
calling +1-416-813-6166. Donations from outside of Canada can be coordinated by
calling +1-416-813-1211. When processing donations please specify that funds are
for Dr. Helen Dimaras' One Retinoblastoma World Map.


ABOUT THIS MAP




WHAT IS THE PURPOSE OF THIS MAP?

This map is a key initiative of One Retinoblastoma World. It aims to connect
affected families to expert care; promote evidence-based retinoblastoma
treatment; and facilitate enhanced collaboration among treatment centers.

1) CONNECT TO EXPERT CARE

Prompt referral and access to expert treatment is key for retinoblastoma
survival. Visitors to the site can enter their coordinates and be directed to
the nearest expert retinoblastoma treatment center.

2) EVIDENCE-BASED TREATMENT

Listing retinoblastoma capacity in a standard and transparent manner aims to
promote adherence and adoption of a common standard of care. The data collected
for each retinoblastoma treatment center and genetic testing labs represent the
multidisciplinary resources and expertise recommended for optimal retinoblastoma
care.

3) ENHANCED COLLABORATION

The map connects global caregivers to one another, sharing everything from basic
contact details to available resources and personnel in individual treatment
centers and genetic testing labs. This will facilitate referral of patients
between sites, enhance knowledge exchange and potentially increase research
capacity.




HOW DO I NAVIGATE THIS MAP?

Here are some quick tips for navigating the map. Note that you must have the map
in "focus" in order for these to work (if not in focus, clicking anywhere on the
map will bring it into focus.)

USING THE MOUSE

Click and drag the mouse to pan, use mouse scroll wheel to zoom in and out, and
double click to zoom in.

Hold the SHIFT key while dragging the mouse to zoom in to a selection, or hold
the SHIFT key while clicking to center the map around that point.

USING THE KEYBOARD

Use the arrow keys to pan, use the plus key (+) to zoom in, and use the minus
key (-) to zoom out.


ABOUT THE DATA




HOW IS THE TREATMENT CENTER DATA COLLECTED?

Using publicly available information, we identify and contact retinoblastoma
specialists from around the world. The specialists are invited to answer
questions about their treatment center or genetic testing lab and then this
information is uploaded onto the map. Data are self-reported by specialists and
have not been audited by the One Retinoblastoma World map team.

Each year, participating retinoblastoma treatment centers and genetic testing
labs are invited to update their information, to ensure that the One
Retinoblastoma World map is current.




HOW ARE THE RETINOBLASTOMA ESTIMATES FOR EACH COUNTRY DETERMINED?

The expected number of patients newly diagnosed with retinoblastoma annually per
country is calculated by multiplying the global retinoblastoma incidence (1 in
16,000 live births per year1) by the forecast number of surviving infants
(country population2 x (birth rate3/1000) x [1 - (infant mortality
rate4/1000)]).

Sources
1Kivela, T. The epidemiological challenge of the most frequent eye cancer:
retinoblastoma, an issue of birth and death. Br J Ophthalmol 93, 1129-31 (2009)
2Indicator: Population, total. 2015. World Bank
3Indicator: Birth rate, crude (per 1000 people) 2015. World Bank
4Indicator: Mortality rate, infant (per 1000 births). 2015. World Bank




HOW DO I ADD INFORMATION TO THIS MAP?

If you have information you would like to submit about a treatment center, a
genetic testing laboratory, or a story not currently represented on this map,
please contact us.




WHERE DO I FIND A LIST OF RETINOBLASTOMA TREATMENT CENTERS?

We have a list of retinoblastoma treatment centers separate from this map where
you can view the centers by country.

 

Partners:

How to Donate Help Us Achieve Equal and Optimal Care
for all Children with Retinoblastoma