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Submitted URL: http://quest.mda.org/
Effective URL: https://mdaquest.org/
Submission: On November 08 via api from US — Scanned from US
Effective URL: https://mdaquest.org/
Submission: On November 08 via api from US — Scanned from US
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Skip to content Open toolbar Accessibility Tools Accessibility Tools * Increase TextIncrease Text * Decrease TextDecrease Text * GrayscaleGrayscale * High ContrastHigh Contrast * Negative ContrastNegative Contrast * Light BackgroundLight Background * Links UnderlineLinks Underline * Readable FontReadable Font * Reset Reset Skip to content * Subscribe * Newsletter * Advertise * MDA.org * Donate Subscribe Donate Menu * Magazine * Current Issue * Past Issues * Featured Content * Topics * Advocacy * Finding a Diagnosis * Get Involved * Health * Inclusion * Independence * Lifestyle * News * Personal Stories * Science + Research * Diseases A-Z * Blog * Podcast * Product Guide * Career Quest A Q&A LOOK INTO THE PLANNING AND UPCOMING TOPICS OF THE 2025 MDA CLINICAL & SCIENTIFIC CONFERENCE The 2025 MDA Clinical & Scientific Conference is coming up! Each year, MDA hosts visionary leaders in neuromuscular disease research and treatment, creating an opportunity for the research and medical communities to share and learn more about groundbreaking studies, innovative advancements in care, and best clinical practices. This year’s event, to be held in Dallas,… MDA NATIONAL AMBASSADOR BLOG-INSIGHTS BY IRA: A JOURNAL OF GRATITUDE During the recent pandemic, I created a written nest of emotional solace by constructing a daily gratitude journal. This was a journal that I diligently spent time each evening before bed documenting the various articles in my life that I was most grateful for. Through completing this daily exercise, I can conclusively concur a notion… FIVE THINGS YOU SHOULD KNOW ABOUT THE SSA’S CHANGES TO SUPPLEMENTAL SECURITY INCOME This year, the Social Security Administration (SSA) announced several important changes to how it calculates Supplemental Security Income (SSI) benefits. SSI provides monthly cash payments to many adults and children with disabilities. For members of the neuromuscular disease community receiving SSI, these benefits are critical to meeting basic needs, including shelter, food, clothing, and care.… SIMPLY STATED: UPDATES IN AMYOTROPHIC LATERAL SCLEROSIS (ALS) Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, often within three to five years from when the symptoms first appear. In ALS, motor neurons (nerve cells that control muscle cells) are gradually lost. As a result, the muscles they control become weak and then nonfunctional, leading to… EPISODE 45- MAKING SPACE AND CREATING PATHWAYS WITH KEELY CAT-WELLS In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities – and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and… AMBASSADOR GUEST BLOG: ADVOCATING FOR CHANGE AT HILL DAY Lily S. is a 17-year-old living with Charcot-Marie-Tooth (CMT) disease. Her passions include disability advocacy, menstrual justice advocacy, and education. Lily lives just outside of Charlotte, NC, where she enjoys traveling with her family, a good cup of coffee, and spending time with her dogs. My recent trip to Washington, D.C. to advocate for disability rights was an… PASSION AND PURPOSE UNITE FOR CERTIFIED DISABILITY-OWNED BUSINESS OWNER AND BRANDING MANAGER For Jeremy Siegers, the key to success is combining passion and purpose. What started as a hobby for the 43-year-old living with limb-girdle muscular dystrophy (LGMD) has grown into a lucrative and fulfilling career. As a certified disability-owned business owner, he wants others in the disability community to know that their talents, skills, and gifts… NATIONAL DISABILITY EMPLOYMENT AWARENESS MONTH (NDEAM) PANEL FOR JOBSEEKERS AND EMPLOYERS In this Quest webinar, we chat with esteemed panelists including: Donna Bungard, Senior Marketing Accessibility Program Manager, Indeed Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L’Oréal Stephane Leblois, MA, Chief Community and Programmes Officer, The Valuable 500 Theo Braddy, Executive Director, National Council on Independent Living They join us to share their experiences,… MDA AMBASSADOR GUEST BLOG: FROM DEALS TO DISABILITIES: HOW A SERIAL ENTREPRENEUR IS INNOVATING ACCESSIBILITY Naji Nizam is a 28-year-old New York-based serial entrepreneur, real estate developer, and disability rights advocate with a neuromuscular condition called Centronuclear Myopathy. He has conducted millions in real estate transactions globally and advised on countless accessibility projects, including NYC’s Penn Station. Some fun facts about Naji are: he is fluent in three languages, played… DOMESTIC VIOLENCE AWARENESS MONTH: KNOW YOUR RISK AND RESOURCES People with disabilities are at higher risk for all types of domestic abuse. Learn how to recognize abuse and what to do about it. Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. MUST-READ FEATURES Lifestyle AVOID ONLINE SCAMS TARGETING PEOPLE WITH DISABILITIES By Cheryl Alkon | August 13, 2024 Health ARE YOU READY FOR GENE THERAPY? HERE’S WHAT YOU NEED TO KNOW By Larry Luxner | August 13, 2024 Advocacy YOUR VOTE MATTERS: DISABILITY ADVOCATES CAN HELP CHANGE LEGISLATION FOR THE BETTER By Steve Wright | August 13, 2024 Health 6 TIPS FOR LIVING WELL AS A SENIOR WITH NEUROMUSCULAR DISEASE By Barbara and Jim Twardowski, RN | August 13, 2024 Personal Stories EMBRACING MY DIFFERENCES AND ADVOCATING FOR THE DISABILITY COMMUNITY By Olivia Holler | August 13, 2024 Personal Stories WHEELCHAIR COSTUME: VOODOO KING AND QUEEN WIN HALLOWEEN By Quest Staff | August 13, 2024 More From Quest Magazine Advertisement Current Issue Past Issues Advertisement RECENTLY ON THE BLOG... Advocacy A Q&A LOOK INTO THE PLANNING AND UPCOMING TOPICS OF THE 2025 MDA CLINICAL & SCIENTIFIC CONFERENCE By MDA Staff | November 6, 2024 Get Involved MDA NATIONAL AMBASSADOR BLOG-INSIGHTS BY IRA: A JOURNAL OF GRATITUDE By Ira Walker | November 5, 2024 Advocacy FIVE THINGS YOU SHOULD KNOW ABOUT THE SSA’S CHANGES TO SUPPLEMENTAL SECURITY INCOME By Shannon Wood | November 1, 2024 Finding a Diagnosis SIMPLY STATED: UPDATES IN AMYOTROPHIC LATERAL SCLEROSIS (ALS) By Sujatha Gurunathan | October 29, 2024 Advocacy EPISODE 45- MAKING SPACE AND CREATING PATHWAYS WITH KEELY CAT-WELLS By MDA Staff | October 25, 2024 Advocacy AMBASSADOR GUEST BLOG: ADVOCATING FOR CHANGE AT HILL DAY By Lily S | October 24, 2024 Inclusion PASSION AND PURPOSE UNITE FOR CERTIFIED DISABILITY-OWNED BUSINESS OWNER AND BRANDING MANAGER By Rebecca Hume | October 22, 2024 Advocacy NATIONAL DISABILITY EMPLOYMENT AWARENESS MONTH (NDEAM) PANEL FOR JOBSEEKERS AND EMPLOYERS By MDA Staff | October 18, 2024 Get Involved MDA AMBASSADOR GUEST BLOG: FROM DEALS TO DISABILITIES: HOW A SERIAL ENTREPRENEUR IS INNOVATING ACCESSIBILITY By Naji Nizam | October 18, 2024 Lifestyle DOMESTIC VIOLENCE AWARENESS MONTH: KNOW YOUR RISK AND RESOURCES By Annika Tourlas | October 16, 2024 QUEST PODCAST The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson. See All Episodes EPISODE 45- MAKING SPACE AND CREATING PATHWAYS WITH KEELY CAT-WELLS October 25, 2024 In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities – and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and… NATIONAL DISABILITY EMPLOYMENT AWARENESS MONTH (NDEAM) PANEL FOR JOBSEEKERS AND EMPLOYERS October 18, 2024 In this Quest webinar, we chat with esteemed panelists including: Donna Bungard, Senior Marketing Accessibility Program Manager, Indeed Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L’Oréal Stephane Leblois, MA, Chief Community and Programmes Officer, The Valuable 500 Theo Braddy, Executive Director, National Council on Independent Living They join us to share their experiences,… EPISODE 44- VOTING RIGHTS AND ACCESSIBILITY October 3, 2024 In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent updates and information about accessible voting, your rights when it comes to accessible voting, and information about MDA’s Access the Vote program… * Media * Careers * Donate * Contact Quest Muscular Dystrophy Association, Inc. 1016 W Jackson Blvd #1073 Chicago, IL 60607 800-572-1717 | ResourceCenter@mdausa.org MANAGE YOUR QUEST MEDIA SUBSCRIPTIONS Quest Subscription Options Quest Email NewsletterQuest Print MagazineUnsubscribe - Quest Print MagazineUnsubscribe - Quest Email Newsletter First Name Last Name Email Address Street Address City State Please select... AL AK AS AZ AR CA CO CT DE DC FM FL GA GU HI ID IL IN IA KS KY LA ME MH MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND MP OH OK OR PW PA PR RI SC SD TN TX UT VT VI VA WA WV WI WY Zip Code The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization. ©2022, Muscular Dystrophy Association Inc. All rights reserved. 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