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SEPSIS SURVIVORS
Being discharged from the hospital is a good day for most people, but it can
also be stressful. Post-sepsis life can have challenges, especially if you have
been left with long-term problems related to your illness. Some sepsis survivors
recover completely and resume their lives, while others may struggle to cope,
something no one expected.
Here you can find information to help you navigate post-sepsis life.
Starting in 2019, Sepsis Alliance added to the awareness efforts by launching
Sepsis Survivor Week, which focuses on the survivors and the challenges they may
face. Click here to learn more about Sepsis Survivor Week.
FAQ
Our Frequently Asked Questions (FAQ) section addresses many questions related to
sepsis and life after sepsis. Survivors and their family and friends can find
answers to questions, such as can I get sepsis again, why am I so tired, and can
sepsis be prevented? You may also find our Life After Sepsis Information Guide
helpful in explaining some of the issues that could last long after discharge
from the hospital.
KNOW THE SEPSIS FACTS
Many researchers are working to learn more about what causes sepsis, how it
affects patients, and life after sepsis. Learn more about the facts and
statistics in the Life After Sepsis Fact Sheet.
AFTER DISCHARGE FROM THE HOSPITAL
Once you have been discharged from the hospital, it may seem that you’ve been
left to fend for yourself. Discharge instructions are sometimes rushed or may be
incomplete, or you may not think of the questions you need to ask. To help you
with the hospital to home or hospital to rehab transition, Sepsis Alliance has
put together a checklist with the most common issues that come up. Click here
for the list.
We have also created a discharge kit for those being released from the hospital
after COVID-19. Download the guide here.
Since sepsis survivors are at risk for repeat infections, you should also speak
with your doctor about any vaccinations that you may need to reduce the
likelihood of getting another infection. You can learn more at Prevention:
Vaccines. Regaining your health after sepsis can also be slow, but good
nutrition can help you along the way. Learn more about nutrition after sepsis
here.
CONNECT WITH OTHER SEPSIS SURVIVORS
Sepsis Alliance Connect is a virtual support community designed for the millions
of people affected by sepsis. Click here to learn more or to sign up.
LEARNING ABOUT POST-SEPSIS SYNDROME (PSS)
Many people who spend time in an intensive care unit (ICU) develop problems like
post-traumatic stress disorder (PTSD). Those who were treated for sepsis may
develop not only PTSD, but other problems as well. You can learn more about PSS
here and PTSD here.
COPING WITH MENTAL HEALTH ISSUES
Your mental health is a vital part of your overall recovery. If you find
yourself struggling with anxiety, depression, or any other mental health issue
and you don’t know where to turn, visit our Mental Health Resources page for a
list of organizations that may help you.
EXPLAINING POST-SEPSIS ISSUES TO OTHERS
If you are experiencing problems after your discharge, either physical,
cognitive, or psychological, you may find it difficult to explain. To help
explain post-sepsis issues, Sepsis Alliance has written letters that explain
sepsis and PSS to:
* Doctors
* Teachers
* Coaches
* Daycare Workers
* Employers
CONDITIONS THAT CAN CAUSE SEPSIS
Anyone can develop sepsis, but some people are at higher risk, including sepsis
survivors. Learn how sepsis is associated with various conditions, such as
diabetes or cancer in our Sepsis and… library.
Updated March 25, 2021.
VIDEO RESOURCES
FACES OF SEPSIS: SURVIVOR PANEL
Presented by sepsis survivors for sepsis survivors, this webinar includes a
panel discussion about life after sepsis. Three sepsis survivors will tell their
stories and will answer attendee questions about their experiences with sepsis,
as well as how they found purpose and returned to life after sepsis.
SEPTIC SHOCK WITH MULTIPLE AMPUTATIONS: A SURVIVOR’S STORY
LINDSEY ROWE
Survivor
I’m 35 and have been an ICU nurse for 13 years. I have taken care of many
patients in septic shock. Yet when I was sent home from two ERs with a “just a
virus” diagnosis, I didn’t think much of it. I was the sickest I had ever been,
but if they thought I was okay? I must be. I woke up from a nap literally blue.
Everything hurt, including wearing clothes. My husband luckily didn’t listen to
me and immediately called 911. The paramedics who came couldn’t get my blood
pressure to read. They had an even harder ... Read Full Story
Submit Your StoryView More Stories
BETTY LOTT
Survivor, Survivor
It was six years ago in March 2018, at the age of 67, that I went into septic
shock. (Sepsis and Septic Shock) I had been having multiple UTIs and going to
the walk-in one time, my primary gynecologist, etc. So, I guess no one was
really keeping track of the number of episodes. (Sepsis and Urinary Tract
Infections) I was at at my granddaughters’ flag football game and was not
feeling well. I thought maybe I had a kidney stone or infection but just did not
feel well in general. I was in touch with a nurse friend and ... Read Full Story
Submit Your StoryView More Stories
DIANA L.
Survivor, Survivor, Survivor
It started with a urinary tract infection I did not even know I had. (Sepsis and
Urinary Tract Infections) That weekend, I lost my appetite and was extremely
tired. I went to urgent care the next day, where I was given antibiotics for the
UTI. The day after, I felt worse, and went to the ER, where I was given a blood
transfusion, along with other medications. I was asked if I wanted to admit to
the hospital, and I though the medication would work, so I went home. After 2
days, I woke up one morning and was very ... Read Full Story
Submit Your StoryView More Stories
CLAIRE LAPAT
Survivor, Survivor, Survivor, Survivor
I developed severe sepsis and went into septic shock in March 2023, at 23 years
old. I was on TPN (total parenteral nutrition) as a result of my Crohn’s
disease. (Sepsis and Invasive Devices) Unfortunately TPN is almost like agar
used in microbiology lab and Crohn’s disease changes the permeability of the
intestines making it easier for bacteria to leak out into the bloodstream,
making the combination a perfect storm. I had labs drawn weekly and I got a call
in the evening that my WBC count was elevated and to monitor my temperature. At
that point I was at ... Read Full Story
Submit Your StoryView More Stories
FRANK B.
Survivor, Survivor, Survivor, Survivor, Survivor
This is my story. I am 64 years old. My encounter with septic shock took place
in June 2023. I was driving a tractor trailer in an Over the Road capacity
working towards a client in East Peoria, IL. What led to my stay in the ICU of a
hospital in Urbana IL was a kidney stone roughly 1 cm in diameter dropping out
of my kidney and blocking the passageway (ureter) to the bladder. (Sepsis and
Kidney Stones) Urine backed up leading to the sepsis condition. My recollection
of my condition constituted a diminished capacity to safely operate the ... Read
Full Story
Submit Your StoryView More Stories
HELP RAISE SEPSIS AWARENESS
Many sepsis survivors and loved ones feel the need to help spread sepsis
awareness so others don’t go through the same thing. There are many ways you can
do this:
Faces of Sepsis
Share your story through our Faces of Sepsis feature. There are more than 1,000
stories from survivors and people who have lost a loved one to sepsis. Sharing
your story has three initial benefits. Many survivors and loved ones feel that
writing the story down and sharing it allows them to process feelings about
their illness and the aftermath. It also helps others, the readers, learn that
they aren’t alone.
Too many sepsis survivors think that no one understands what they’ve gone
through but when they read these stories, they no longer feel so alone. These
stories also show the readers that sepsis can affect anyone – their family,
friend, coworker.
Host a talk
Sepsis Alliance has made available a kit called Sepsis 911, Community Education
Presentation. A second one focusing on sepsis and aging is also available.
By giving talks to social groups, friends and family, school, even coworkers,
you can help educate the people around you about sepsis, what it is, how it
happens, and how to reduce your risk of developing it. The kit provides you with
material you need for a successful talk, such as a leader’s guide (with script),
a video, customizable promotional materials, surveys, and more.
Host an awareness event/fundraiser
Local awareness events are being held across the country, spearheaded by
individuals like you. Whether you want to hold a Stomp Out Sepsis or Sips for
Sepsis event, or anything in between, these events help raise awareness and
raise funds for Sepsis Alliance, to help support the organization’s awareness
efforts. Or if you’d rather do an online awareness event, that works too. Check
out the host an event page for other ideas and a fundraising toolkit.
Give to Sepsis Alliance
Sepsis Alliance is the nation’s leading organization, working in all 50 states,
to save lives and reduce suffering by improving sepsis awareness and care. As a
non-profit organization, Sepsis Alliance relies on generous gifts from people
like you. Many employers match donations to non-profit organizations, so you may
want to check if your employer does. Click here to give now.
Buy Sepsis Alliance products
You can find sepsis awareness products in our store. From symptoms cards to
lapel pins, these products may introduce the word to someone who has never heard
of it, stimulating a conversation about what sepsis is.
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Sepsis Alliance is a tax-exempt organization under Sections 501(c)(3) of the
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taxes.
Sepsis Alliance tax ID 38-3110993.
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