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Heart This


HOW CHILDREN’S MEMORIAL HERMANN HOSPITAL GAVE ONE BOY A NORMAL HEART


HOW CHILDREN’S MEMORIAL HERMANN HOSPITAL GAVE ONE BOY A NORMAL HEART

By CultureMap Create
Jan 26, 2022, 12:15 pm
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Slideshow

Mason Mims with his pediatric cardiologist, Avichal Aggarwal, MD. Photo courtesy
of Memorial Hermann
Karen and Taylor Mims found out about Mason's heart condition two days after he
was born. Photo courtesy of Memorial Hermann
Mason underwent a successful biventricular conversion at Children’s Memorial
Hermann Hospital. Photo courtesy of Memorial Hermann
Now Mason has, essentially, a normal heart. Photo courtesy of Memorial Hermann
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Karen and Taylor Mims spent the first six years of their son’s life trying to
accept the fact that he was born with half a heart and would eventually require
a heart transplant.

Now, thanks to an innovative procedure being performed by affiliated pediatric
heart surgeons at The Children’s Heart Institute at Children’s Memorial Hermann
Hospital, the Mims are trying to come to grips with a new reality: that their
son, Mason, has a normal, fully functioning heart and a very bright future.

Born with hypoplastic left heart
Mason was born on February 26, 2015, in the Mims’ hometown of Grenada,
Mississippi. Despite a normal pregnancy and delivery, two days after Mason was
born, doctors detected a heart murmur in the newborn and referred the family to
a children’s hospital in nearby Jackson.

"Within 30 minutes, the doctors told us Mason had hypoplastic left heart and
would need a series of at least three open-heart surgeries before the age of 3
or 4. We prayed he would make it through each one," says Karen.

"Hypoplastic left heart is a severe congenital (present at birth) heart defect
characterized by a small, underdeveloped left side of the heart," says
affiliated pediatric heart surgeon Jorge Salazar, MD, professor and chief of the
Division of Pediatric and Congenital Heart Surgery and John P. McGovern
Distinguished Chair at McGovern Medical School at UTHealth Houston and
co-director of the Children’s Heart Institute at Children’s Memorial Hermann
Hospital.

"The normal heart has four chambers: two upper chambers, called atria, which
receive blood into the heart, and two lower chambers, called ventricles, which
pump blood out of the heart. Babies born with hypoplastic left heart have only
one functioning ventricle."

Undergoing the Fontan palliation sequence
Through the three surgeries, known collectively as the Fontan palliation
sequence, surgeons can rearrange the baby’s heart to function with only a single
working ventricle (functionally, half a heart).

"While the Fontan sequence is commonly accepted as the standard of care for
hypoplastic left heart, these children are not assured a length or quality of
life," says pediatric cardiologist Avichal Aggarwal, MD, associate professor
with the Center for Advanced Cardiopulmonary Therapies and Transplantation at
McGovern Medical School at UTHealth Houston. "Often, they experience heart
failure, requiring a heart transplant while they’re still young."

When Mason was 7 days old, doctors in Mississippi performed the first procedure,
the Norwood procedure. When he was 4 months old, they performed the second
surgery, the bidirectional Glenn. And when he was 2 years old, they performed
third surgery, the Fontan procedure.

While all three surgeries were considered a success, after the third, an
echocardiogram revealed that Mason’s tricuspid valve was leaking. So a fourth
surgery was performed to implant a mechanical valve to replace the leaky one and
to implant a pacemaker to regulate his heartbeat.

Placed on blood thinners
To ensure the mechanical valve performed properly, Mason was required to take
blood thinners, which restricted his activity.

"Mason’s being on the coumadin was the hardest part," says Karen. "We had to
keep him safe from accidents, for fear of bleeding. And we had to monitor his
blood thickness and adjust his dosages, even based on what foods he ate."

As Mason grew, Drs. Aggarwal and Salazar became increasingly convinced that
their patient might be a candidate for a groundbreaking procedure being
performed by a very small number of pediatric heart surgeons in the world,
including Dr. Salazar at The Children’s Heart Institute.

Known as a biventricular conversion, the procedure enables the surgeon to
rebuild the child’s heart into a normal, fully functioning heart. A successful
biventricular conversion will eliminate the need for a heart transplant and
enable the child to live a long and healthy life.

"She just couldn’t stop crying."
Dr. Aggarwal recalls the day he called Karen to discuss the possibility with
her. "I said that if Mason were deemed a good candidate for the procedure — and
we’d have to do a full workup to find out — it might give him a normal heart,"
he says. "She was listening, and she couldn’t stop crying. She just couldn’t
stop crying."

"For a child to be a good candidate for the surgery, the left-sided structures —
the mitral valve, the left ventricle, and the aortic valve — have to be big
enough to support the blood flow to the body," explains Dr. Salazar. "We
assessed Mason using echocardiogram, MRI, and heart catheterization and we were
able to demonstrate — to prove ahead of time — that his heart was in fact big
enough."

"I was in shock," says Karen. "To be told, 'We can give him a normal heart,' it
was overwhelming. We were so happy, but we were in denial. We’re still in
denial."

Successful biventricular conversion at Children’s Memorial Hermann Hospital
On February 26, 2021 — his sixth birthday — Mason underwent his fifth and final
open-heart surgery. Dr. Salazar and his team performed the biventricular
conversion, converting Mason’s heart back to a normal, two-ventricle
arrangement.

"We basically took his heart apart completely and put it back together as a
normal heart," says Dr. Salazar. "And we created a new tricuspid valve by hand,
out of natural tissue, to replace the mechanical one, eliminating the need for
blood thinners. Now Mason can run, play, do sports, and have a normal life
without worrying about bleeding."

"The experience was amazing," says Karen. "Everything was fully explained, and
we were included in decision-making at every step. Drs. Aggarwal and Salazar
exhibited a rare level of involvement. Dr. Salazar called us from the operating
room to keep us updated. Dr. Aggarwal called me during my stay at Ronald
McDonald House and even hand-delivered a medication to us there. To have two
physicians take care of a child who is not their own like they did ours was
unbelievable. They treated us like family. There is nothing I could ever do to
repay them. They gave Mason his life."

Karen knows that in time she and Taylor will come to terms with the fact that
Mason now has a normal life.

"You spend six years in this mindset, this trauma, and then one day it changes,"
she says. "We are beyond grateful."

To learn more about The Children’s Heart Institute, visit
memorialhermann.org/childrens-heart.

---

The Children’s Heart Institute is a collaboration between the affiliated
physicians at McGovern Medical School at The University of Texas Health Science
Center at Houston (UTHealth Houston) and Children’s Memorial Hermann Hospital.
Typically, patients are seen on an outpatient basis at a UT Physicians clinic
with all inpatient procedures performed at Children’s Memorial Hermann Hospital.

Enlarge
Slideshow

Mason Mims with his pediatric cardiologist, Avichal Aggarwal, MD. Photo courtesy
of Memorial Hermann
Karen and Taylor Mims found out about Mason's heart condition two days after he
was born. Photo courtesy of Memorial Hermann
Mason underwent a successful biventricular conversion at Children’s Memorial
Hermann Hospital. Photo courtesy of Memorial Hermann
Now Mason has, essentially, a normal heart. Photo courtesy of Memorial Hermann
 1. 
 2. 
 3. 
 4. 


115
3
0

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