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Begin Modernization of Health Privacy Laws section.
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BILL CASSIDY, M.D. UNITED STATES SENATOR FOR LOUISIANA

Contact

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 3. Press Releases

02.09.22


CASSIDY, BALDWIN INTRODUCE LEGISLATION TO BEGIN MODERNIZATION OF HEALTH PRIVACY
LAWS

WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA) and Tammy Baldwin (D-WI)
today introduced the Health Data Use and Privacy Commission Act to begin the
process of modernizing our outdated health privacy laws and regulations. The
presence of technology companies is increasing in health care, and health
information is expanding beyond the reach of The Health Insurance Portability
and Accountability Act (HIPAA). HIPAA is an over 25-year-old law that protects
all interactions between patients and their doctors, but does not protect health
data recorded on emerging technologies (cell phones, smart watches, etc.) which
puts this data at significant potential risk.

This legislation forms a health and privacy commission to research and give
official recommendation to Congress on how to modernize the use of health data
and privacy laws to ensure patient privacy and trust while balancing the need of
doctors to have information at their fingertips to provide care.

“As a doctor, the potential of new technology to improve patient care seems
limitless. But Americans must be able to trust that their personal health data
is protected if this technology can meet its full potential,” said Dr. Cassidy.
“HIPAA must be updated for the modern day. This legislation starts this process
on a pathway to make sure it is done right.”

“Folks across Wisconsin and the country are rightfully concerned about the
security of their personal information, especially individual health care data,
and it is time to give Americans better protection over these records,” said
Senator Baldwin. “I am excited to introduce the bipartisan Health Data Use and
Privacy Commission Act to help inform how we can modernize health care privacy
laws and regulations to give Americans peace of mind that their personal health
information is safe, while ensuring that we have the tools we need to advance
high-quality care.”

This legislation is supported by American College of Cardiology, Association for
Behavioral Health and Wellness, Association of Clinical Research Organizations,
athenahealth, Inc, Epic Systems Corporation, Executives for Health Innovation,
Federation of American Hospitals, Heath Innovation Alliance, IBM, National
Multiple Sclerosis Society, Teladoc Health and United Spinal Association.

The Health Data Use and Privacy Commission Act would establish a commission to –

 * Conduct a coordinated and comprehensive review and comparison of existing
   protections of personal health information at the state and federal level, as
   well as current practices for health data use by the health care, insurance,
   financial services, consumer electronics, advertising, and other industries;
 * Provide recommendations to Congress on whether federal legislation is needed
   to modernize health data privacy, and if so, how to do it; and
 * Be charged with submitting a report to Congress and the President six months
   after all members are appointed, and include 17 members to be appointed by
   the Comptroller General.

Specifically, the Commission is charged with drafting recommendations and
conclusions on the following:

 * The potential threats posed to individual health privacy and legitimate
   business and policy interests.
 * The purposes for which sharing health information is appropriate and
   beneficial to consumers and the threat to health outcomes and costs if
   privacy rules are too stringent.
 * The effectiveness of existing statutes, regulations, private sector
   self-regulatory efforts, technology advances, and market forces in protecting
   individual health privacy.
 * Recommendations on whether federal legislation is necessary, and if so,
   specific suggestions on proposals to reform, streamline, harmonize, unify, or
   augment current laws and regulations relating to individual health privacy,
   including reforms or additions to existing law related to enforcement,
   preemption, consent, penalties for misuse, transparency, and notice of
   privacy practices.
 * Analysis of whether additional regulations may impose costs or burdens, or
   cause unintended consequences in other policy areas, such as security, law
   enforcement, medical research, health care cost containment, improved patient
   outcomes, public health or critical infrastructure protection, and whether
   such costs or burdens are justified by the additional regulations or benefits
   to privacy, including whether such benefits may be achieved through less
   onerous means.
 * The cost analysis of legislative or regulatory changes proposed in the
   report.
 * Recommendations on non-legislative solutions to individual health privacy
   concerns, including education, market-based measures, industry best
   practices, and new technologies.
 * Review of the effectiveness and utility of third-party statements of privacy
   principles and private sector self-regulatory efforts, as well as third-party
   certification or accreditation programs meant to ensure compliance with
   privacy requirements.

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