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BONE MARROW DONATION LESSONS 'SHOULD BE TAUGHT IN SCHOOLS'

By Jordan Davies BBC News
 * 6 hours ago

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Image copyright Family photo Image caption Emily Clark campaigned to raise
awareness about the stem cell register even before she was diagnosed with blood
cancer

The family of an 18-year-old who died of blood cancer want lessons on bone
marrow donation to be included in the new Welsh curriculum.

Emily Clark, from Cwmbran, Torfaen, campaigned to raise awareness of the stem
cell register even before she was diagnosed with Non-Hodgkin Lymphoma.

Her family want teachers to deliver lessons on the subject to boost donors.

The Welsh Government said the draft curriculum would allow children to learn a
"wide range of health matters".

Thousands of transplant recipients will attend the British Transplant Games this
week, which is being held in Wales for the first time in decades.



Emily, whose sister Holly described her as "inspirational", died after her bone
marrow transplant failed in 2016 and their mother Donna thinks lives can be
saved in the future.

 * Boy gets stem cell transplant from sister
 * 'I've got two months to find a donor'
 * 'I call my stem cell donor my sister'

Image caption Emily's mother Donna and sister Holly think education about bone
marrow donation can save lives

"The national curriculum would be an ideal way of targeting those 16-year-olds
as they hit the age to be able to join the register - education is the key,"
Donna said.

"You hear a lot about the postcode lottery accessing drugs. This is a bigger
issue - you've got to find that one person who can give you a cancer-free life
and if they're not on the register you've got no chance."

Both Donna and Holly will take part in the British Transplant Games opening in
Newport on Thursday.

Charity Anthony Nolan Trust said patient survival rates were better if donors
were under 30.

Wales was the first nation in the UK to operate a system of presumed consent,
where people are regarded as having consented to organ donation unless they have
opted out.

A Welsh Government spokesman said: "We provide an online organ donation teaching
pack for schools and have established a programme of speakers to visit schools
to talk about organ donation.

"Teachers will also be able to focus on a wide range of health matters within
health and wellbeing - one of six areas of learning and experience in the draft
curriculum."

Image caption Lewis Evans was diagnosed with end-stage renal failure Image
caption His mother Gay Evans donated her kidney and saved her son's life

Lewis Evans, from Tregaron, Ceredigion, won gold in the 100m and 200m at the UK
and European transplant games last year.

At his first hospital appointment, the 26-year-old was told his kidneys were
about to stop working and he had end-stage renal failure.

"I just thought: 'Give me the medication and I'll be out'. They said 'no, this
is serious, we need to call somebody'," he said.

Lewis's sister and mother were both a match, but his mother Gay Evans said she
did not want both her children to be operated on at the same time, so donated
her kidney.

"It was a second chance of life from my mam - it was very emotional," Lewis
added.


RELATED TOPICS

 * Newport
 * Tregaron
 * Organ donation
 * Wales education
 * Cwmbran
 * Transplants


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MORE ON THIS STORY

 * ‘I’ve got two months to find a donor’
   9 December 2018
 * Telford boy with blood disorder has stem cell transplant from sister
   29 June 2019
 * Nearly 500 swabs collected in bone marrow donor drive
   12 May 2019
 * The Newport six-year-old who 'needs a life saver'
   19 August 2018


RELATED INTERNET LINKS

 * Anthony Nolan Trust

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WALES


NO-DEAL BREXIT 'WOULD CAUSE CIVIL UNREST'

 * 22 July 2019
 * From the section Wales
 * 80 comments

Full article No-deal Brexit 'would cause civil unrest'


WALES' BUSIEST RAILWAY STATION TO GET £58M UPGRADE

 * 22 July 2019
 * From the section Wales

Full article Wales' busiest railway station to get £58m upgrade


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 * 22 July 2019
 * From the section Wales

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